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DepoProvera for Lupron SEs--many questions
On my MO's recommendation, I've started DepoProvera [DP] injections to combat serious sleep deprivation and other side-effects of Lupron/Zytiga. So far, I've had 3 shots, roughly a month apart. It really helps! But I'm concerned about using this drug, and my MO is basically ignoring my questions about
On my MO's recommendation, I've started DepoProvera [DP] injections to combat serious sleep deprivation and other side-effects of Lupron/Zytiga. So far, I've had 3 shots, roughly a month apart. It really helps! But I'm concerned about using this drug, and my MO is basically ignoring my questions about
LifeQuality
in
Advanced Prostate Cancer
3 years ago
Zometa & Faslodex
After seeing onc today, I’ve been told no more ibrance… instead zometa & faslodex only. I’m an emotional wreck, I don’t understand why she has changed her mind. Am I on a slippery road now? Should I be worried, Should I get a second opinion, or should I just try this new combination? I feel so low. I
After seeing onc today, I’ve been told no more ibrance… instead zometa & faslodex only. I’m an emotional wreck, I don’t understand why she has changed her mind. Am I on a slippery road now? Should I be worried, Should I get a second opinion, or should I just try this new combination? I feel so low. I
Ntash01
in
SHARE Metastatic Breast Cancer
3 years ago
Slight PSA Rise
Well, here we go again. On Xtandi and Lupron and Zometa. Feb PSA at .31 May PSA at .29 Aug PSA at .21 Sep PSA at .27 Next test in Nov. Hopefully just noise or random fluctuation. Nov will give more of an idea. At least we know what to watch for. And have some plans ready to consider.
Well, here we go again. On Xtandi and Lupron and Zometa. Feb PSA at .31 May PSA at .29 Aug PSA at .21 Sep PSA at .27 Next test in Nov. Hopefully just noise or random fluctuation. Nov will give more of an idea. At least we know what to watch for. And have some plans ready to consider.
ppulatie
in
Advanced Prostate Cancer
3 years ago
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Questions on three separate issues
My hubby’s oncologist wants to start him on Zometa next month. Any one on this site taking this and can provide feedback. My hubby has been having leg spasms (only way to describe it) where when he is walking, his legs get spasms, lock up and he can’t move. This started BEFORE starting on Xtandi and
My hubby’s oncologist wants to start him on Zometa next month. Any one on this site taking this and can provide feedback. My hubby has been having leg spasms (only way to describe it) where when he is walking, his legs get spasms, lock up and he can’t move. This started BEFORE starting on Xtandi and
Madbeach
in
Advanced Prostate Cancer
3 years ago
Tears eyes
Was anyone switched from zometa to xgeva ? My eyes tear profusely and was told this could help .
Was anyone switched from zometa to xgeva ? My eyes tear profusely and was told this could help .
Ycats277
in
SHARE Metastatic Breast Cancer
3 years ago
CBC counts on verzenio
Am on Verzenio /faslo / zometa Verzenio for 9 mnths at 300mg daily CBC counts always low since starting verzenio however past 2 blood draws counts dropping further. WBC 1.4 Hemoglobin 9.1 RBC 2.3 Platelets 70 Oncology not too concerned - they want another blood draw and if further drop possibly reduce
Am on Verzenio /faslo / zometa Verzenio for 9 mnths at 300mg daily CBC counts always low since starting verzenio however past 2 blood draws counts dropping further. WBC 1.4 Hemoglobin 9.1 RBC 2.3 Platelets 70 Oncology not too concerned - they want another blood draw and if further drop possibly reduce
Joey1965
in
SHARE Metastatic Breast Cancer
3 years ago
6 month PETSCAN results are in!
Hi! So I'm 41 with "advanced stage 4 widespread metastatic disease " multiple bone involvement only being treated with Ibrance Letrozole zoladex and Zometa. I just have my 2nd 6 month Petscan which said "sclerotic osseous metastasis BUT no metabolically active lesion are seen. All hypermetabolic lesions
Hi! So I'm 41 with "advanced stage 4 widespread metastatic disease " multiple bone involvement only being treated with Ibrance Letrozole zoladex and Zometa. I just have my 2nd 6 month Petscan which said "sclerotic osseous metastasis BUT no metabolically active lesion are seen. All hypermetabolic lesions
KimberlyB40
in
SHARE Metastatic Breast Cancer
3 years ago
Zometa
I'm having oral surgery next Thursday on a bone in my jaw do to advanced cancer. Anthem refused to pay for it, saying it is a dental thing. Some cancer patients whose cancer has spread to the bones receive regular infusions of a bone-modifying drug, such as zoledronic acid (Zometa) May have side affects
I'm having oral surgery next Thursday on a bone in my jaw do to advanced cancer. Anthem refused to pay for it, saying it is a dental thing. Some cancer patients whose cancer has spread to the bones receive regular infusions of a bone-modifying drug, such as zoledronic acid (Zometa) May have side affects
lincolnj8
in
Advanced Prostate Cancer
3 years ago
Update on Xtandi and me
Hi all. Just thought I would drop a line to let people and especially newbies know that they can be hopeful for the future. Just had latest PSA while on Xtandi for 21 months now. PSA value now at .21. Started at 8.5 in Nov 2019 when Casodex failed. Been 5 years on this journey at Stage 4 with 3 bone
Hi all. Just thought I would drop a line to let people and especially newbies know that they can be hopeful for the future. Just had latest PSA while on Xtandi for 21 months now. PSA value now at .21. Started at 8.5 in Nov 2019 when Casodex failed. Been 5 years on this journey at Stage 4 with 3 bone
ppulatie
in
Advanced Prostate Cancer
3 years ago
Sleep problems on Xtandi
Hi all, I'm wondering has anyone experienced sleep problems on Xtandi? My Father takes it at 10am, he does have fatigue during the day which is increasing and is experiencing some weakness in his right leg. But awake almost every hour at night. I'm wondering if he took it at night would it make a difference
Hi all, I'm wondering has anyone experienced sleep problems on Xtandi? My Father takes it at 10am, he does have fatigue during the day which is increasing and is experiencing some weakness in his right leg. But awake almost every hour at night. I'm wondering if he took it at night would it make a difference
Nickhmcg
in
Advanced Prostate Cancer
3 years ago
Zometa or Xgeva??
So which do you think is better? What experiences have you had with either or both? My doc is saying to switch but I am not actually sure why. I had questioned my onco about some serious health incidents and asked if the xgeva could be a reason and she talked about infusions every three months of the
So which do you think is better? What experiences have you had with either or both? My doc is saying to switch but I am not actually sure why. I had questioned my onco about some serious health incidents and asked if the xgeva could be a reason and she talked about infusions every three months of the
blms
in
SHARE Metastatic Breast Cancer
3 years ago
Monday Dessert: Pandan Jelly in Coconut Milk. 🌱😋❤️🌺
Hello everyone, hope you have a great start of the week! 🤗 Yesterday I visited my parents and they gave me some pandan leaves from their friend’s garden, so I just made pandan jelly dessert. It is served hot or cold. 😋👍 Recipe: Boil pandan leaves in water and add vegan agar powder to make jelly.
Hello everyone, hope you have a great start of the week! 🤗 Yesterday I visited my parents and they gave me some pandan leaves from their friend’s garden, so I just made pandan jelly dessert. It is served hot or cold. 😋👍 Recipe: Boil pandan leaves in water and add vegan agar powder to make jelly.
Hidden
Star
in
Vegan Foods for Life
3 years ago
Need Advice, numbness on right side of body...
Hi Everyone, Its been a while since I lasted posted. I need everyone’s advice and knowledge. I have been on 125 Ibrance, Faslodex injections monthly, and Zometa infusions monthly since October of last year. Scans have showed the meds are working and tumors in my spine have calcified over. However, I
Hi Everyone, Its been a while since I lasted posted. I need everyone’s advice and knowledge. I have been on 125 Ibrance, Faslodex injections monthly, and Zometa infusions monthly since October of last year. Scans have showed the meds are working and tumors in my spine have calcified over. However, I
Julielovescats
in
SHARE Metastatic Breast Cancer
3 years ago
Zometa pain flare advice
Hi everyone, I'm posting on behalf of my Father (61 fit & healthy very active never ever sick, dx last Aug 2020, stage 4 multiple widespread bone mets & few lymph nodes, psa 84) immediately started decapeptyl injection every 3 months & zometa infusion. 9 rounds of chemo (taxotere) brought psa to 9.8
Hi everyone, I'm posting on behalf of my Father (61 fit & healthy very active never ever sick, dx last Aug 2020, stage 4 multiple widespread bone mets & few lymph nodes, psa 84) immediately started decapeptyl injection every 3 months & zometa infusion. 9 rounds of chemo (taxotere) brought psa to 9.8
Nickhmcg
in
Advanced Prostate Cancer
3 years ago
Health anxiety and half beta prograne 80 mg slow release
Can someone give me advice please... I'm anxious about taking 80mg half beta prograne slow release.. I suffer so so much with ectopics. Right throughout the day... I also wake up in the night and my heart rate increases to around 130 bump I have has ecgs and a 24hr monitor a few years back. I also had
Can someone give me advice please... I'm anxious about taking 80mg half beta prograne slow release.. I suffer so so much with ectopics. Right throughout the day... I also wake up in the night and my heart rate increases to around 130 bump I have has ecgs and a 24hr monitor a few years back. I also had
Rachel_Welsby
in
AF Association
3 years ago
Arthritis flareup on Ibrance and Anastrozole and Zometa
Hello Ladies! I've just gone through my one year anniversary of being diagnosed with MBC...and am feeling relatively well. I can walk for at least a mile, play golf, and am relatively active for an almost 68 year old woman. My most recent development is a painful flare up of arthritis in my hands,
Hello Ladies! I've just gone through my one year anniversary of being diagnosed with MBC...and am feeling relatively well. I can walk for at least a mile, play golf, and am relatively active for an almost 68 year old woman. My most recent development is a painful flare up of arthritis in my hands,
Dragonfly2
in
SHARE Metastatic Breast Cancer
3 years ago
Skin issues, hives and welts
Hello everyone. I am four years and four months into this MBC journey and was diagnosed 20 years after having breast cancer in 1997. I have been on Ibrance and letrozole since my diagnosis along with Xgeva injections monthly. Just changed from Xgeva to Zometa which will be every three months. Starting
Hello everyone. I am four years and four months into this MBC journey and was diagnosed 20 years after having breast cancer in 1997. I have been on Ibrance and letrozole since my diagnosis along with Xgeva injections monthly. Just changed from Xgeva to Zometa which will be every three months. Starting
gerisplace
in
SHARE Metastatic Breast Cancer
3 years ago
Help please
Hi all, Need help… A friend of mine is 70 been dealing with the monster for 14 years, Kaiser in California, and now his PSA explodes to 27 and he has spots in his Femur and ribs. My complaint is they put him on Zytiga and Zometa. Shouldn’t he be moving forward with chemo??
Hi all, Need help… A friend of mine is 70 been dealing with the monster for 14 years, Kaiser in California, and now his PSA explodes to 27 and he has spots in his Femur and ribs. My complaint is they put him on Zytiga and Zometa. Shouldn’t he be moving forward with chemo??
Survivor1965
in
Advanced Prostate Cancer
3 years ago
How do you know if Xtandi has stopped working?
My dad is on Xtandi for the last 8 months. Last 2 months haven’t been great - increase in pains / urinary retention etc Now blood reports show his PSA increased from 0.03 to 0.04 and ALP from 173 to 281 The doc says the reports are normal and to switch from Zometa to Xgeva. (To help escape the painful
My dad is on Xtandi for the last 8 months. Last 2 months haven’t been great - increase in pains / urinary retention etc Now blood reports show his PSA increased from 0.03 to 0.04 and ALP from 173 to 281 The doc says the reports are normal and to switch from Zometa to Xgeva. (To help escape the painful
Cheerr
in
Advanced Prostate Cancer
3 years ago
Breast cancer metastasis
New to the site, have been treated forMBC for 10 years I’m doing very well. Originally on Femara and Zometa then 2018 changed to Ibrance 125 , faslodex injections and Zometa
New to the site, have been treated forMBC for 10 years I’m doing very well. Originally on Femara and Zometa then 2018 changed to Ibrance 125 , faslodex injections and Zometa
Jewelyn
in
SHARE Metastatic Breast Cancer
3 years ago
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