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First Zometa
Had my first Zometa infusion on Wednesday this week. Felt fine all day and evening, but the following day I felt like I had been hit by a truck - muscle and bone pain all over and extreme fatigue. Today, Friday same SE but not as severe. Are these SE common?
Had my first Zometa infusion on Wednesday this week. Felt fine all day and evening, but the following day I felt like I had been hit by a truck - muscle and bone pain all over and extreme fatigue. Today, Friday same SE but not as severe. Are these SE common?
33947
in
Advanced Prostate Cancer
2 years ago
My 18 month follow up scans...........except for the jaw infection and subsequent redo of a failed root canal, which is painful, not bad.
CT no new mets Impression 1. Interval improvement in patient known widespread osseous metastatic disease as describe above. 2. New focal uptake in left mandible could be related to recent dental procedure versus periodontal disease, however as patient is reportedly on Zometa, biphosphonate induced
CT no new mets Impression 1. Interval improvement in patient known widespread osseous metastatic disease as describe above. 2. New focal uptake in left mandible could be related to recent dental procedure versus periodontal disease, however as patient is reportedly on Zometa, biphosphonate induced
katartizo61
in
Advanced Prostate Cancer
2 years ago
Prostate Cancer-Thoughts
My husband was diagnosed in January 2020 with prostate cancer that had metastasized to his bones. His PSA was 30 and after the biopsy it was 130. He has had radiation three different times, Firmagon, Zytiga and Prednisone. His testosterone is low and his PSA did get as low as 2 but then started rising
My husband was diagnosed in January 2020 with prostate cancer that had metastasized to his bones. His PSA was 30 and after the biopsy it was 130. He has had radiation three different times, Firmagon, Zytiga and Prednisone. His testosterone is low and his PSA did get as low as 2 but then started rising
margretrburns
in
Advanced Prostate Cancer
2 years ago
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Greetings, I've completed my 13th session of cabazitaxel/carboplatin + daily prednisone which started in Jan of this year. I've tolerated it well with minimal size effects (peripheral neuropathy) and no nausea. I'm also getting Zometa every 4 weeks and Lupron twice/year. Bone mets on my last Bone (July
Greetings, I've completed my 13th session of cabazitaxel/carboplatin + daily prednisone which started in Jan of this year. I've tolerated it well with minimal size effects (peripheral neuropathy) and no nausea. I'm also getting Zometa every 4 weeks and Lupron twice/year. Bone mets on my last Bone (July
MechD
in
Advanced Prostate Cancer
2 years ago
Suggestions to prevent ZOMETA side effects?
I’m due for my second ZOMETA treatment on Friday. They told me to expect flu like symptoms for a few days last time. However I was so sick I was unable to get out of bed for 2 days and wasn’t myself for almost 2 weeks. Chills, nausea, dizziness, etc. I’ve read a few things about hydration, taking Claritin
I’m due for my second ZOMETA treatment on Friday. They told me to expect flu like symptoms for a few days last time. However I was so sick I was unable to get out of bed for 2 days and wasn’t myself for almost 2 weeks. Chills, nausea, dizziness, etc. I’ve read a few things about hydration, taking Claritin
Nuff
in
SHARE Metastatic Breast Cancer
2 years ago
Oral Hygiene and Zometa, Nubeqa, etc.
At my Oncology Day Clinic, I was given Mycostatin (oral drops for fungal infections [thrush] of the mouth), and bioXtra (mouthwash for dry mouth). I have not been able to find any recommendations online regarding the need to use these agents after t having the Zometa infusion or taking the Nubeqa tablets
At my Oncology Day Clinic, I was given Mycostatin (oral drops for fungal infections [thrush] of the mouth), and bioXtra (mouthwash for dry mouth). I have not been able to find any recommendations online regarding the need to use these agents after t having the Zometa infusion or taking the Nubeqa tablets
Silentio
in
Advanced Prostate Cancer
2 years ago
need help!
My dad has been on zometa and Lupron and his PSA has been undetectable. He got a new doctor and they want to take him off the zometa and put him on prolia. Why would they do it? I have read awful things about prolia! update: my dad is stage IV, mets everywhere. No pain, no issues so far BUT this new
My dad has been on zometa and Lupron and his PSA has been undetectable. He got a new doctor and they want to take him off the zometa and put him on prolia. Why would they do it? I have read awful things about prolia! update: my dad is stage IV, mets everywhere. No pain, no issues so far BUT this new
antisocialsocialwrkr
in
Advanced Prostate Cancer
2 years ago
Tumor Markers
Hello everyone! First post here but have been reading a lot and found it very helpful. Mets diagnosed back in March of this year. CA 15-3 was tested in my initial work up for restage. My markers have not been tested again. Was wondering what is being followed by other oncologists and how often they
Hello everyone! First post here but have been reading a lot and found it very helpful. Mets diagnosed back in March of this year. CA 15-3 was tested in my initial work up for restage. My markers have not been tested again. Was wondering what is being followed by other oncologists and how often they
Lakincaid
in
SHARE Metastatic Breast Cancer
2 years ago
Dental Care Issues
I have been on Ibrance and Femara for 2-1/2 years now. I am having gum problems but periodontist doesn't want to treat me because I am considered "high risk". I am also on Zometa bone infusion once every three months. It is so frustrating since I can't get gum treatment. Has anyone had this issue
I have been on Ibrance and Femara for 2-1/2 years now. I am having gum problems but periodontist doesn't want to treat me because I am considered "high risk". I am also on Zometa bone infusion once every three months. It is so frustrating since I can't get gum treatment. Has anyone had this issue
GreenPlanter
in
SHARE Metastatic Breast Cancer
2 years ago
Why do we use IFN-α vs IFN-β? Might IFN-β be preferred?
I've discussed IFN types before. Some interesting info here that INF-β might be better to reduce inflammation/progression. ---- A recent post noted that Interferon is used for MS disease. This is the other IFN type 1, IFN-β (vs our IFN-α). I checked into why the difference. It turns out there
I've discussed IFN types before. Some interesting info here that INF-β might be better to reduce inflammation/progression. ---- A recent post noted that Interferon is used for MS disease. This is the other IFN type 1, IFN-β (vs our IFN-α). I checked into why the difference. It turns out there
EPguy
in
MPN Voice
2 years ago
Jaw Pain
jaw pain I've been reading your posts for a while. I join the community for my mother who has bones mets everywhere (cranium, pelvis, jaw, spine, femur...) She follows an ibrance letrozol zometa protocol. since July 2021. her situation is described as lesional stability she has pain in the jaw (the
jaw pain I've been reading your posts for a while. I join the community for my mother who has bones mets everywhere (cranium, pelvis, jaw, spine, femur...) She follows an ibrance letrozol zometa protocol. since July 2021. her situation is described as lesional stability she has pain in the jaw (the
Youji
in
SHARE Metastatic Breast Cancer
2 years ago
Mastectomy and MBC
Hey. I am so confused. I have had chemo and now on Herceptin, Prejeta and Zometa. Last scan NED. Onc says no benefit to have mastectomy. I am not wanting surgery but I hear so many taking about have mastectomy What is the answer? There is confusing online Thx .
Hey. I am so confused. I have had chemo and now on Herceptin, Prejeta and Zometa. Last scan NED. Onc says no benefit to have mastectomy. I am not wanting surgery but I hear so many taking about have mastectomy What is the answer? There is confusing online Thx .
Onedayatatime60
in
SHARE Metastatic Breast Cancer
2 years ago
Zometa Side Effects
My first 3 monthly infusion of Zometa passed without incident and, rather foolishly perhaps, I expected the same response from the 2nd infusion. How wrong I was. For the first couple of days, I just felt a little more tired than usual, and then it all changed. I began to get quite bad pains in the abdomen
My first 3 monthly infusion of Zometa passed without incident and, rather foolishly perhaps, I expected the same response from the 2nd infusion. How wrong I was. For the first couple of days, I just felt a little more tired than usual, and then it all changed. I began to get quite bad pains in the abdomen
Dastardly
in
Advanced Prostate Cancer
2 years ago
Pluvicto plus Xtandi
A question for Tall_Allen, j-o-h-n, LearnAll, tango65 and a lot of other guys smarter than me. In Aug 2019 I had a Radical prostatectomy. Nov 2019 I was dx with mCRPC and 6 bone lesions throughout my body. I’ve run the gambit of Bicalutamide, Docetaxel, Abiraterone, Cabazitaxel, still taking Lupron
A question for Tall_Allen, j-o-h-n, LearnAll, tango65 and a lot of other guys smarter than me. In Aug 2019 I had a Radical prostatectomy. Nov 2019 I was dx with mCRPC and 6 bone lesions throughout my body. I’ve run the gambit of Bicalutamide, Docetaxel, Abiraterone, Cabazitaxel, still taking Lupron
Rondief
in
Advanced Prostate Cancer
2 years ago
vitamin A test results
I’d be very grateful for an opinion on my vitamin A test results from Medichecks. (My GP told me ‘We don’t test vitamin A’, (!!!?), so I got private testing, though it’s not one of the cheaper tests. ) I know conversion of beta-carotene to retinol can be an issue in hypothyroidism, and although I have
I’d be very grateful for an opinion on my vitamin A test results from Medichecks. (My GP told me ‘We don’t test vitamin A’, (!!!?), so I got private testing, though it’s not one of the cheaper tests. ) I know conversion of beta-carotene to retinol can be an issue in hypothyroidism, and although I have
bluejourney
in
Thyroid UK
2 years ago
Capecitabine - new treatment
Hi all MRI shows good response to liver and femur on fulvestrant and zometa, but highlighted an underarm issue a month or so ago. Following guided core biopsy and comparing last MRI to most recent one, onc decided to switch to Cape. My 3rd line of treatment since 2020, she said I could continue on fulvestrant
Hi all MRI shows good response to liver and femur on fulvestrant and zometa, but highlighted an underarm issue a month or so ago. Following guided core biopsy and comparing last MRI to most recent one, onc decided to switch to Cape. My 3rd line of treatment since 2020, she said I could continue on fulvestrant
Ntash01
in
SHARE Metastatic Breast Cancer
2 years ago
Zometa
Hello - I’d love to know your experience with Zometa or Prolia. My recent bone density shows what my oncologist says is “significant” loss of bone density in 2 areas of my hip and spine probably due to Letrozole. So far I have refused Zometa because my sister had developed a hole in her jaw from this
Hello - I’d love to know your experience with Zometa or Prolia. My recent bone density shows what my oncologist says is “significant” loss of bone density in 2 areas of my hip and spine probably due to Letrozole. So far I have refused Zometa because my sister had developed a hole in her jaw from this
JustmeMary
in
SHARE Metastatic Breast Cancer
2 years ago
Vitamin A and liver enzymes
I’ve been eating about 4 oz (115 grams?) of veal liver each day for the past week. I know it has nutrients that are healthy for the liver, but it’s also very high in vitamin A (I think I had about 25,000-30,000 IUs per day on those days). I’ve read that such doses can be damaging to the liver (and
I’ve been eating about 4 oz (115 grams?) of veal liver each day for the past week. I know it has nutrients that are healthy for the liver, but it’s also very high in vitamin A (I think I had about 25,000-30,000 IUs per day on those days). I’ve read that such doses can be damaging to the liver (and
JJgut
in
British Liver Trust
2 years ago
Xgeva or Zometa, which is better?
I have been on Xgeva for over two years because I have metastasis on my bones. My MO suggests that I could stop the Xgeva. Please, I have some questions, and I need help. If I stop the Xgeva can I start Zometa? Is there any difference between Xgeva and Zometa? How long can one be on Xgeva or Zometa
I have been on Xgeva for over two years because I have metastasis on my bones. My MO suggests that I could stop the Xgeva. Please, I have some questions, and I need help. If I stop the Xgeva can I start Zometa? Is there any difference between Xgeva and Zometa? How long can one be on Xgeva or Zometa
kcareer
in
Advanced Prostate Cancer
2 years ago
Taking breaks
Info for all of you who think taking breaks from meds is a good idea and after short period of time test are ok!!!!! Be very careful. My original diagnosis 1993 stage 2 and 2 lymph nodes positive. Did all the treatments, continued with monitoring, 19 years later MBC to my spine. Now 11 yrs on my treatment
Info for all of you who think taking breaks from meds is a good idea and after short period of time test are ok!!!!! Be very careful. My original diagnosis 1993 stage 2 and 2 lymph nodes positive. Did all the treatments, continued with monitoring, 19 years later MBC to my spine. Now 11 yrs on my treatment
Jewelyn
in
SHARE Metastatic Breast Cancer
2 years ago
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