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1.5 mgs now blood tests all over the place
So I am into my third year with pmr. I have been at 1.5 mg prednisone for 2 weeks and had my quarterly bloodwork done. Ana is now positive. It was negative last quarter. I am positive for Sjogrens but I don't have any symptoms. Is this because of my lower dosage? I am a little stiff and slow , but
So I am into my third year with pmr. I have been at 1.5 mg prednisone for 2 weeks and had my quarterly bloodwork done. Ana is now positive. It was negative last quarter. I am positive for Sjogrens but I don't have any symptoms. Is this because of my lower dosage? I am a little stiff and slow , but
paleolady
in
PMRGCAuk
6 months ago
Vision in the recovery weeks ( and long term) after a trabeculectomy.
I have had narrow angle glaucoma for over 10 years and despite years of drops and a laser iridotomy in both eyes my glaucoma is slowly progressing. My sight loss in my left eye is not too bad at all ( patchy small areas) but I do feel my central vision is not as good in my left eye ( no cataract or other
I have had narrow angle glaucoma for over 10 years and despite years of drops and a laser iridotomy in both eyes my glaucoma is slowly progressing. My sight loss in my left eye is not too bad at all ( patchy small areas) but I do feel my central vision is not as good in my left eye ( no cataract or other
Cyclingalong
in
Glaucoma UK
6 months ago
First MS Neuro Appointment!
Neuro confirmed in person that I have MS. I have RRMS. To get me out of the current flare, I started steroid infusions today, and will do 3 days of it. I am hopeful that it will really help. I'm looking forward to seeing what my 'new normal' is (more like impatiently waiting for this flare to be over
Neuro confirmed in person that I have MS. I have RRMS. To get me out of the current flare, I started steroid infusions today, and will do 3 days of it. I am hopeful that it will really help. I'm looking forward to seeing what my 'new normal' is (more like impatiently waiting for this flare to be over
MSFlea
in
My MSAA Community
6 months ago
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Any practical tools to prevent computer vision syndrome?
Any practical tools to prevent computer vision syndrome (lower back and neck pain, eye dryness and strain)?
Any practical tools to prevent computer vision syndrome (lower back and neck pain, eye dryness and strain)?
bliinkai
in
Pain Concern
6 months ago
Rythmol/Propafenone
Has anyone been prescribed this antiarrhythmic? Due to the flecainide not working for me, my doctor wants me to go on this drug. I’m really hesitant to try another drug because of the Flecainide not working. Just wondering if anyone has ever tried this medication and if so, did it work?
Has anyone been prescribed this antiarrhythmic? Due to the flecainide not working for me, my doctor wants me to go on this drug. I’m really hesitant to try another drug because of the Flecainide not working. Just wondering if anyone has ever tried this medication and if so, did it work?
Debjimmay
in
Atrial Fibrillation Support
1 month ago
Has anyone gone from Pegasys to Besremi?
Hi all, I am a 65 year old woman in the US with ET. My hematologist has had me on Pegasys for 2 years now, starting with 45 mcg, then 90 mcg injected once a week. Originally my platelets were in the high 400's and have crept up even with the injections and are now at 610. He had me go up to 135 mcg
Hi all, I am a 65 year old woman in the US with ET. My hematologist has had me on Pegasys for 2 years now, starting with 45 mcg, then 90 mcg injected once a week. Originally my platelets were in the high 400's and have crept up even with the injections and are now at 610. He had me go up to 135 mcg
ET625
in
MPN Voice
6 months ago
Functional practitoner
In my search for answers, other than taking pills only for any manifestations of illness which occur (I have Sjogrens disease also), I am speaking with a functional practitioner tonight as they claim to find out causes of and then treat so it should be interesting. Doctors just give you more and more
In my search for answers, other than taking pills only for any manifestations of illness which occur (I have Sjogrens disease also), I am speaking with a functional practitioner tonight as they claim to find out causes of and then treat so it should be interesting. Doctors just give you more and more
Poshy
in
IBS Network
6 months ago
NTG and thin corneas
Hi I was diagnosed with NTG in my left eye over 20 years ago. Since then my pressures have been stable with apparently no cause for concern. Last year I had a severe infection in both eyes which has increased the pressure in my left eye from 11 to 14. I didn't think that was too bad as it had been
Hi I was diagnosed with NTG in my left eye over 20 years ago. Since then my pressures have been stable with apparently no cause for concern. Last year I had a severe infection in both eyes which has increased the pressure in my left eye from 11 to 14. I didn't think that was too bad as it had been
NoraBoneGirl
in
Glaucoma UK
7 months ago
Stopped Methotrexate being screened for Adalimumab
So after being on Methotrexate (injections) for 2 years since diagnosis and feeling dreadful on it (swollen fingers, nausea, constant headaches, depression) I last injected on 18th December 2023. Needless to say my RA is raging in every joint now! Just had a steroid injection and being screened for
So after being on Methotrexate (injections) for 2 years since diagnosis and feeling dreadful on it (swollen fingers, nausea, constant headaches, depression) I last injected on 18th December 2023. Needless to say my RA is raging in every joint now! Just had a steroid injection and being screened for
Amandaazz
in
NRAS
7 months ago
What should I do - follow-ups not feeling thorough
Hi everyone, before I start my question I want to send out love to everyone on here and I really wish being well for everyone. I wish there wasn’t a load of experts on here because it means we are all in this. I was diagnosed in 2022 - they thought they would find ovarian but they were surprised to
Hi everyone, before I start my question I want to send out love to everyone on here and I really wish being well for everyone. I wish there wasn’t a load of experts on here because it means we are all in this. I was diagnosed in 2022 - they thought they would find ovarian but they were surprised to
OrdinarySoul
in
My Ovacome
7 months ago
eye drops side effects
I am on monopost eye drops and now on Azopt eye drops as well as my eye pressure needs to come down. Does anyone have side effects from Azopt drops?
I am on monopost eye drops and now on Azopt eye drops as well as my eye pressure needs to come down. Does anyone have side effects from Azopt drops?
MadMorris
in
Glaucoma UK
2 months ago
Simbrinza eye drops
Does anyone using Simbrinza have problems with a side effect of blurriness? I was on Xalatan for 9 years without any problems, but my ophthalmologist changed me to Simbrinza 2 months ago hoping my eye pressure would not increase so rapidly after an eye injection.
Does anyone using Simbrinza have problems with a side effect of blurriness? I was on Xalatan for 9 years without any problems, but my ophthalmologist changed me to Simbrinza 2 months ago hoping my eye pressure would not increase so rapidly after an eye injection.
ANO_Health
in
Glaucoma UK
2 months ago
cryo-ablation update
hi everyone, Thought I would give an update. I had the cryo-ablation on the 13th of May. i felt fairly uncomfortable over the first few weeks, but thanks to all the support and info on here, I have got through it without panic. the main thing is pacing myself and not overdoing it. Get enough
hi everyone, Thought I would give an update. I had the cryo-ablation on the 13th of May. i felt fairly uncomfortable over the first few weeks, but thanks to all the support and info on here, I have got through it without panic. the main thing is pacing myself and not overdoing it. Get enough
Tilly1957
in
Atrial Fibrillation Support
2 months ago
Myopic CNV, floaters and flashes.
Hi. I'm looking for reassurance. I was diagnosed with myopic cnv in 2020. 3 injections then stable. Reoccurrence in 2023 and 3 more injections, 4th this coming Monday.This evening, I'm experiencing insect-like floaters, and intermittent orange flashes in corner of eye. Do I relax and wait till
Hi. I'm looking for reassurance. I was diagnosed with myopic cnv in 2020. 3 injections then stable. Reoccurrence in 2023 and 3 more injections, 4th this coming Monday.This evening, I'm experiencing insect-like floaters, and intermittent orange flashes in corner of eye. Do I relax and wait till
Bluegreensea
in
Macular Society
7 months ago
Selegiline side effects
Hi All. Due to drug shortages we've been unable to get rasagiline and had to swap to selegiline. Since the swap mum has had lots of unusual bleeding and the GP thinks it may be a side effect of the selegiline. Just wondered if anyone else has had similar problems and if so how did you resolve things?
Hi All. Due to drug shortages we've been unable to get rasagiline and had to swap to selegiline. Since the swap mum has had lots of unusual bleeding and the GP thinks it may be a side effect of the selegiline. Just wondered if anyone else has had similar problems and if so how did you resolve things?
Joluu
in
PSP Association
7 months ago
My glove upgrade lost its buzz..
Hi, My PD/Tass glove prototype seems to have lost its “buzz” when my partner swapped the old/vinyl look (on the right in the picture) with the clean new look (on the left in the picture). Using the SAME power/arduino etc. it seemed that it should work great until I put them on my hands and realized
Hi, My PD/Tass glove prototype seems to have lost its “buzz” when my partner swapped the old/vinyl look (on the right in the picture) with the clean new look (on the left in the picture). Using the SAME power/arduino etc. it seemed that it should work great until I put them on my hands and realized
Tryguy
in
Cure Parkinson's
7 months ago
Getting 2024 off to the right start
Hello everyone, Some of the activity on our NRAS HealthUnlocked platform has recently caused us distress at NRAS and as we are still at the start of a new year, I thought I would write a post to remind us all of the purpose of this forum and press re-set. I recall clearly the first time the original
Hello everyone, Some of the activity on our NRAS HealthUnlocked platform has recently caused us distress at NRAS and as we are still at the start of a new year, I thought I would write a post to remind us all of the purpose of this forum and press re-set. I recall clearly the first time the original
Ailsa-NRAS
NRAS
in
NRAS
7 months ago
Riboflavin (b2) supplementation is a no-brainer for Parkinsons
Riboflavin (b2) is a complete no-brainer. 0 side effects and dirt cheap. Especially if your second and third toes any toenails are full of fungus/athletes foot. The Chinese believe that your second and third toe is a place where toxins leave the body. The Chinese believe PD is “stuck” in fight or
Riboflavin (b2) is a complete no-brainer. 0 side effects and dirt cheap. Especially if your second and third toes any toenails are full of fungus/athletes foot. The Chinese believe that your second and third toe is a place where toxins leave the body. The Chinese believe PD is “stuck” in fight or
38yroldmale
in
Cure Parkinson's
7 months ago
DVLA: taking the doubt out of notifying them?
Having read countless posts from individuals receiving a glaucoma diagnosis and not knowing whether they need to inform DVLA, I have wondered why Consultants aren’t required to shove a DVLA notification form firmly into your hand if you have a diagnosis of glaucoma in both eyes. It would take the confusion
Having read countless posts from individuals receiving a glaucoma diagnosis and not knowing whether they need to inform DVLA, I have wondered why Consultants aren’t required to shove a DVLA notification form firmly into your hand if you have a diagnosis of glaucoma in both eyes. It would take the confusion
Beecalmed
in
Glaucoma UK
7 months ago
Egg Donor Transfer
Hi We have selected our egg donor!! We are using frozen eggs currently in the bank at our clinic. Well, they are in their UK branch and we are using a clinic in Dublin, so the the eggs need to be transported over. Prior to transferring, our clinic has recommended me having an Endo Trio test, which
Hi We have selected our egg donor!! We are using frozen eggs currently in the bank at our clinic. Well, they are in their UK branch and we are using a clinic in Dublin, so the the eggs need to be transported over. Prior to transferring, our clinic has recommended me having an Endo Trio test, which
Mrsjaytee
in
Fertility Network UK
7 months ago
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