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Venetoclax
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Deb Sims on her incredible CLL journey
Hi, After some heavy articles on complex medical topics, this week I have a more upbeat personal interview with my Ozzie friend, Deb Sims about her incredible journey to get into a life saving
venetoclax
trial in England.
Hi, After some heavy articles on complex medical topics, this week I have a more upbeat personal interview with my Ozzie friend, Deb Sims about her incredible journey to get into a life saving
venetoclax
trial in England.
bkoffman
CLL CURE Hero
in
CLL Support
7 years ago
CLL - PLL and Ibrutinb
I start ibrutinib in a couple weeks but if side effects are no good then there is Acalabrutinib and also
Venetoclax
. Lots is in the clinical pipeline so i have been told and access to these are through the best facilities. I will try to keep you updated. Take care everyone.
I start ibrutinib in a couple weeks but if side effects are no good then there is Acalabrutinib and also
Venetoclax
. Lots is in the clinical pipeline so i have been told and access to these are through the best facilities. I will try to keep you updated. Take care everyone.
Roydeane
in
CLL Support
7 years ago
Obinutuzumab anyone?
I am thinking about participating in a clinical trial which will compare ibrutinib+obinutuzumab+
venetoclax
to ibrutinib+obinutuzumab. I have heard of ibrutinib+
venetoclax
but not obinutuzumab. Has anyone had any experience taking this?
I am thinking about participating in a clinical trial which will compare ibrutinib+obinutuzumab+
venetoclax
to ibrutinib+obinutuzumab. I have heard of ibrutinib+
venetoclax
but not obinutuzumab. Has anyone had any experience taking this?
eoravillo
in
CLL Support
7 years ago
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My Cll progression
Being evaluated for a clinical trial of ibrutinib and
venetoclax
anyone on this and can tell me how you are doing. Thank you
Being evaluated for a clinical trial of ibrutinib and
venetoclax
anyone on this and can tell me how you are doing. Thank you
Ninagram
in
CLL America Support
7 years ago
06/28/2017 stop ibrutinib and started venetoclax
My husband, Bill, 55, was diagnosed CLL on Nov 2014, FCR chemotherapy 2016, failed, then Ibrutinib until 2017/06, took
Venetoclax
2017/07
My husband, Bill, 55, was diagnosed CLL on Nov 2014, FCR chemotherapy 2016, failed, then Ibrutinib until 2017/06, took
Venetoclax
2017/07
wwd-bill
in
CLL Support
7 years ago
2 Issues: Ibrutinib side effects + Ibrutinib plus Venetoclax Treatment
The other question I would like to ask, has to do with the new trial: "Ibrutinib plus
Venetoclax
" Recently I read an articule that show evidence of a a synergy between the two medicines, so it´s not the same having Ibrutinig and if fail then
Venetoclax
, than combine both.
The other question I would like to ask, has to do with the new trial: "Ibrutinib plus
Venetoclax
" Recently I read an articule that show evidence of a a synergy between the two medicines, so it´s not the same having Ibrutinig and if fail then
Venetoclax
, than combine both.
nicolas_12
in
CLL Support
7 years ago
I just finished Cycle 6th on my Venetoclax plus Ibruvica trial. So far so good!!
I just finished Cycle 6th on my
Venetoclax
plus Ibruvica trial. I was Nuetropenic so they gave me a shot to boost my ANC and it worked. Came up from 0.8 to 7.8 in 2 days. That brought up my WBC to 9.6 . My IGG, IGA, IGM are for the most part getting better.
I just finished Cycle 6th on my
Venetoclax
plus Ibruvica trial. I was Nuetropenic so they gave me a shot to boost my ANC and it worked. Came up from 0.8 to 7.8 in 2 days. That brought up my WBC to 9.6 . My IGG, IGA, IGM are for the most part getting better.
Hoffy
in
CLL Support
7 years ago
Any feel strange dull pain in lymph nodes in treatment as they clear out?
I am on both Imbruvica and full
Venetoclax
now. I on my 6th cycle of the clinical trial. Over all I have been very good. My numbers have rapidly gone to normal. WBC 2.1 ALC 1.2, PLT a little low at 110. Others are good. IGA, IGG, IGM are improving as well.
I am on both Imbruvica and full
Venetoclax
now. I on my 6th cycle of the clinical trial. Over all I have been very good. My numbers have rapidly gone to normal. WBC 2.1 ALC 1.2, PLT a little low at 110. Others are good. IGA, IGG, IGM are improving as well.
Hoffy
in
CLL Support
7 years ago
Ibrutinib Venetoclax question
Anyone out there hear anything about Dr. Kanti Rai starting the I/V trial like MD Anderson?
Anyone out there hear anything about Dr. Kanti Rai starting the I/V trial like MD Anderson?
MPL462
in
CLL Support
7 years ago
Venetoclax/Ibrutinib trial needing surgery
Hi, I have been on Ibrutinib for 6 months and added
Venetoclax
2 weeks ago. My WBC is in range and my Lymphocytes and Neutrophils are within a few points of being in range already. Unfortunately, I tore the meniscus in my knee and a flap is in the joint creating lots of pain.
Hi, I have been on Ibrutinib for 6 months and added
Venetoclax
2 weeks ago. My WBC is in range and my Lymphocytes and Neutrophils are within a few points of being in range already. Unfortunately, I tore the meniscus in my knee and a flap is in the joint creating lots of pain.
Louie_CC
in
CLL America Support
7 years ago
ASH 2016: Dr. Seymour on Combination therapies with venetoclax
John Seymour from the Peter MacCallum Cancer Centre in Melbourne, Australia when we talked at ASH 2016 about combination therapy with
venetoclax
.
John Seymour from the Peter MacCallum Cancer Centre in Melbourne, Australia when we talked at ASH 2016 about combination therapy with
venetoclax
.
bkoffman
CLL CURE Hero
in
CLL Support
7 years ago
Question: Has anyone have a bloating feeling on Venetoclax ?
I have been on full
Venetoclax
for 2 weeks and I feel bloated and some indigestion a lot. My Doctor says he does not feel stomach nodes or the spleen growing. Hopefully it is more of an stomach thing. Has anyone have a bloating feeling or something like this on
Venetoclax
? Thanks, Hoffy
I have been on full
Venetoclax
for 2 weeks and I feel bloated and some indigestion a lot. My Doctor says he does not feel stomach nodes or the spleen growing. Hopefully it is more of an stomach thing. Has anyone have a bloating feeling or something like this on
Venetoclax
? Thanks, Hoffy
Hoffy
in
CLL Support
7 years ago
ATTENTION CLL + SLL PATIENTS AND CAREGIVERS:
Lymphoma Canada and the CLL Patient Advocacy Group (CLLPAG) is preparing a submission for the pan¬Canadian Oncology Drug Review (pCODR) for:
Venetoclax
for the treatment of patients with relapsed/refractory chronic lymphocytic leukemia (CLL) or small lymphocytic lymphoma (SLL).
Lymphoma Canada and the CLL Patient Advocacy Group (CLLPAG) is preparing a submission for the pan¬Canadian Oncology Drug Review (pCODR) for:
Venetoclax
for the treatment of patients with relapsed/refractory chronic lymphocytic leukemia (CLL) or small lymphocytic lymphoma (SLL).
LCAdmin
in
Leukaemia Support
7 years ago
ATTENTION CLL + SLL PATIENTS AND CAREGIVERS
Lymphoma Canada and the CLL Patient Advocacy Group (CLLPAG) is preparing a submission for the pan¬Canadian Oncology Drug Review (pCODR) for:
Venetoclax
for the treatment of patients with relapsed/refractory chronic lymphocytic leukemia (CLL) or small lymphocytic lymphoma (SLL).
Lymphoma Canada and the CLL Patient Advocacy Group (CLLPAG) is preparing a submission for the pan¬Canadian Oncology Drug Review (pCODR) for:
Venetoclax
for the treatment of patients with relapsed/refractory chronic lymphocytic leukemia (CLL) or small lymphocytic lymphoma (SLL).
LCAdmin
in
CLL Support
7 years ago
ATTENTION CLL + SLL PATIENTS AND CAREGIVERS
Lymphoma Canada and the CLL Patient Advocacy Group (CLLPAG) is preparing a submission for the pan¬Canadian Oncology Drug Review (pCODR) for:
Venetoclax
for the treatment of patients with relapsed/refractory chronic lymphocytic leukemia (CLL) or small lymphocytic lymphoma (SLL).
Lymphoma Canada and the CLL Patient Advocacy Group (CLLPAG) is preparing a submission for the pan¬Canadian Oncology Drug Review (pCODR) for:
Venetoclax
for the treatment of patients with relapsed/refractory chronic lymphocytic leukemia (CLL) or small lymphocytic lymphoma (SLL).
LCAdmin
in
CLL America Support
7 years ago
ATTENTION CLL + SLL PATIENTS AND CAREGIVERS
Lymphoma Canada and the CLL Patient Advocacy Group (CLLPAG) is preparing a submission for the pan¬Canadian Oncology Drug Review (pCODR) for:
Venetoclax
for the treatment of patients with relapsed/refractory chronic lymphocytic leukemia (CLL) or small lymphocytic lymphoma (SLL).
Lymphoma Canada and the CLL Patient Advocacy Group (CLLPAG) is preparing a submission for the pan¬Canadian Oncology Drug Review (pCODR) for:
Venetoclax
for the treatment of patients with relapsed/refractory chronic lymphocytic leukemia (CLL) or small lymphocytic lymphoma (SLL).
LCAdmin
Lymphoma Canada
in
Lymphoma Canada
7 years ago
Update from IwCLL 2017
Combination therapy will be at its heart and
Venetoclax
will probably be involved. I'm really well, now 18 months on the
Venetoclax
plus Obinutuzimab trial, still traveling from Melbourne to london every 3 months but am making the most of life.
Combination therapy will be at its heart and
Venetoclax
will probably be involved. I'm really well, now 18 months on the
Venetoclax
plus Obinutuzimab trial, still traveling from Melbourne to london every 3 months but am making the most of life.
Debinoz
in
CLL Support
7 years ago
Weird red Mark on my leg.
I am on imbruvica plus
Venetoclax
clinical trial. Is this something that happens with ibruvica ? Or V? Anything to be concerned about? Trial has been going well. Blood levels are back to normal within four months of starting a trial. I feel good energy has gotten much better.
I am on imbruvica plus
Venetoclax
clinical trial. Is this something that happens with ibruvica ? Or V? Anything to be concerned about? Trial has been going well. Blood levels are back to normal within four months of starting a trial. I feel good energy has gotten much better.
Hoffy
in
CLL Support
7 years ago
Bloodwise would like your experience of Ventoclax for treatment assessment for NHS Scotland
- What was your experience of being treated with
venetoclax
? What impact did it have on you and your family? - How did treatment with
venetoclax
differ from other treatments you have experienced? - Were there any disadvantages of taking
venetoclax
?
- What was your experience of being treated with
venetoclax
? What impact did it have on you and your family? - How did treatment with
venetoclax
differ from other treatments you have experienced? - Were there any disadvantages of taking
venetoclax
?
Myrddin
in
CLL Support
7 years ago
Venetoclax - Day 25 - 200mg
In the interim mum became weaker and bed ridden, stopped eating and there was concern the dose of
Venetoclax
(50mg) was not high enough to see her through to the next escalation the following week :( Thankfully the Drs added flucanazole to her medications, which amplified the strength of
Venetoclax
until
In the interim mum became weaker and bed ridden, stopped eating and there was concern the dose of
Venetoclax
(50mg) was not high enough to see her through to the next escalation the following week :( Thankfully the Drs added flucanazole to her medications, which amplified the strength of
Venetoclax
until
Natali
in
CLL Support
7 years ago
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