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Venesection
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Labyrinthitis - is this another side effect of PRV?
I had a
venesection
two days earlier but somehow don't feel there will be a connection. Any feed back would be so useful - I do so hope never to have it again but at least I won't be so scared. I am drinking loads of water.
I had a
venesection
two days earlier but somehow don't feel there will be a connection. Any feed back would be so useful - I do so hope never to have it again but at least I won't be so scared. I am drinking loads of water.
linds
in
MPN Voice
11 years ago
Venesections via alternative entry sites? Veins in my arms are hardening apparently so going in thru my feet has been bandied about. Aargh!
Yes, or groin! Have only been able to get 250ml out of me recently instead of me generously supplying 500ml as usual. Opted to continue with the Venuses (call them this cos I love 'em......not!) & daily Clopidogrel (asthmatic so can't do the aspirin bit) instead of going on to Hydroxy. Got scared when
Yes, or groin! Have only been able to get 250ml out of me recently instead of me generously supplying 500ml as usual. Opted to continue with the Venuses (call them this cos I love 'em......not!) & daily Clopidogrel (asthmatic so can't do the aspirin bit) instead of going on to Hydroxy. Got scared when
Hidden
in
MPN Voice
11 years ago
PV and breathlesness
In the past when my GP did a blood test he thought my body was short of iron, but my Haemo said they were OK and did another
venesection
. I have noticed that I am getting short of breath when I go up hill.
In the past when my GP did a blood test he thought my body was short of iron, but my Haemo said they were OK and did another
venesection
. I have noticed that I am getting short of breath when I go up hill.
mark382
in
MPN Voice
11 years ago
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Constant Headache and blood pressure has gone up - do you think my Hct levels are rising
Hi all I do not get to see the consultant again till mid November and not had
venesection
since mid July which will be about 16 weeks. Last time the gap between
venesection
and next blood test was 12 weeks and in that time the hct had gone back up from 45 to just over 50 again.
Hi all I do not get to see the consultant again till mid November and not had
venesection
since mid July which will be about 16 weeks. Last time the gap between
venesection
and next blood test was 12 weeks and in that time the hct had gone back up from 45 to just over 50 again.
Chrissie10
in
MPN Voice
11 years ago
I Have a High Red Cell Blood Count,Have Been Having a Venesection For This And Feel Good After It! Now The Consultant Is Asking Me If I
Would Like /Prefer To Take Hydroxycarbamide! I'm Undecided,As There Seems To Be Side Affects With It! What Do You Think?
Would Like /Prefer To Take Hydroxycarbamide! I'm Undecided,As There Seems To Be Side Affects With It! What Do You Think?
Malaga88
in
MPN Voice
11 years ago
Does everyone feel that their hematologist understands PRV, or, just treats the main symptoms with no true idea of the many side effects?
This particular consultant retired two weeks ago giving me my last
venesection
then but two days ago I met my new person. I will apparently only see this consultant again in six months time as her team will do the blood tests, venesections etc.
This particular consultant retired two weeks ago giving me my last
venesection
then but two days ago I met my new person. I will apparently only see this consultant again in six months time as her team will do the blood tests, venesections etc.
linds
in
MPN Voice
11 years ago
Excessive Sweats and Leg Pain
Five weeks ago his haematocrit was so high they did a
venesection
and increased the hydroxycarbomide and now they think he has changed to MF and that is what is causing the sweats even though his testosterone is very low.
Five weeks ago his haematocrit was so high they did a
venesection
and increased the hydroxycarbomide and now they think he has changed to MF and that is what is causing the sweats even though his testosterone is very low.
tissi
in
MPN Voice
11 years ago
Is it safe to eat iron rich foods whilst being iron deficient due to venesections for PV?
My PV is controlled only by venesections. I am now suffering fatigue because the venesections have now got the hematocrit down to below .45 but I have become iron deficient. I know I can't take iron tablets as this would send my red cell count up again but wondered if it was safe to increase the natural
My PV is controlled only by venesections. I am now suffering fatigue because the venesections have now got the hematocrit down to below .45 but I have become iron deficient. I know I can't take iron tablets as this would send my red cell count up again but wondered if it was safe to increase the natural
Aime
in
MPN Voice
11 years ago
Excessive sweating
Before we went hubby had a red count of 49 and they tried to bring down to 45 with a
venesection
. But the blood was so thick they could only get out about half what they wanted but they said he would be fine. When away he had excessive sweating, even in an air conditioned room.
Before we went hubby had a red count of 49 and they tried to bring down to 45 with a
venesection
. But the blood was so thick they could only get out about half what they wanted but they said he would be fine. When away he had excessive sweating, even in an air conditioned room.
tissi
in
MPN Voice
11 years ago
Do symptoms get worse? I was originally diagnosed with PV early last year but...
My consultant believes regular
Venesection
to render me Iron Deficient is the best treatment to slow the progression. However I know my mind and body and despite regular venesections to keep HCT 0.45 and Ferritin <10 my symptoms keep getting worse and quality of life continues to deteriorate.
My consultant believes regular
Venesection
to render me Iron Deficient is the best treatment to slow the progression. However I know my mind and body and despite regular venesections to keep HCT 0.45 and Ferritin <10 my symptoms keep getting worse and quality of life continues to deteriorate.
ilc72
in
MPN Voice
11 years ago
Ankle ache
I have Polycythaemia Vera, being treated by
venesection
plus allopurinol to treat high uric acid. My feet are aching a lot, below my inner ankles, occasionally with sharp pains, noticeably more than before the allopurinol.
I have Polycythaemia Vera, being treated by
venesection
plus allopurinol to treat high uric acid. My feet are aching a lot, below my inner ankles, occasionally with sharp pains, noticeably more than before the allopurinol.
JAK2positive
in
MPN Voice
11 years ago
PV, treated by venesection and anti-histamines only. Does anyone else suffer from the shakes - could be low blood sugar?
I do eat regular meals but quite often by 4.00 p.m., I feel really weak and limbs shakey. Just wondered if this was related to the PV or something else as I have a bad habit of blaming everything on my PV.
I do eat regular meals but quite often by 4.00 p.m., I feel really weak and limbs shakey. Just wondered if this was related to the PV or something else as I have a bad habit of blaming everything on my PV.
Aime
in
MPN Voice
11 years ago
Newbie
I am currently being tested for possible Polycythemia. I have had raised Hct and Hb etc and have 4 venesections and am on 75mg daily asprin, I have been tested for Jak2 which is negative, so they are now considering a bone marrow test next. I have just had Serum Ferritin and Serum LDH results which
I am currently being tested for possible Polycythemia. I have had raised Hct and Hb etc and have 4 venesections and am on 75mg daily asprin, I have been tested for Jak2 which is negative, so they are now considering a bone marrow test next. I have just had Serum Ferritin and Serum LDH results which
Chrissie10
in
MPN Voice
11 years ago
Is anyone else bothered with leg and foot cramps? I have PV Jak 2 negative.
After each
venesection
for about 2-3 weeks I get bothered with leg and foot cramps, particularly in bed at night. I asked my haematologist and was told it was probably due to low iron levels and that drinking tonic water (quinine) would help.
After each
venesection
for about 2-3 weeks I get bothered with leg and foot cramps, particularly in bed at night. I asked my haematologist and was told it was probably due to low iron levels and that drinking tonic water (quinine) would help.
Aime
in
MPN Voice
11 years ago
Are there any minimum standards that we can expect in the way our mpn's are managed?
I have to ask for my blood results every time otherwise I am just told if
venesection
is required or not and when my haem would like to see me again.
I have to ask for my blood results every time otherwise I am just told if
venesection
is required or not and when my haem would like to see me again.
Foss33
in
MPN Voice
11 years ago
Run from the cure - the Rick Simpson story
I need to share with people what has happened with me, I have had PV for 2 years and been on hydroxy and venesections throughout I have suffered terrible fatigue and also a great deal of pain a combination of PV but mainly psoriatic arthritis, as a result I have been taking large quantities of Tramadol
I need to share with people what has happened with me, I have had PV for 2 years and been on hydroxy and venesections throughout I have suffered terrible fatigue and also a great deal of pain a combination of PV but mainly psoriatic arthritis, as a result I have been taking large quantities of Tramadol
Gee1
in
MPN Voice
11 years ago
Mouth ulcers
I have PV and have a reoccurring problem with mouth ulcers and now oral thrush - I am not on any medication other than aspirin but having regular
venesection
. Has anyone else had this problem? Thanks!
I have PV and have a reoccurring problem with mouth ulcers and now oral thrush - I am not on any medication other than aspirin but having regular
venesection
. Has anyone else had this problem? Thanks!
Mollycat
in
MPN Voice
11 years ago
Critical illness payout
I have PV, only meds for itch, otherwise treated, so far, by
venesection
only - although platelet numbers are starting to mess around a bit! Many thanks, best wishes Aime x
I have PV, only meds for itch, otherwise treated, so far, by
venesection
only - although platelet numbers are starting to mess around a bit! Many thanks, best wishes Aime x
Aime
in
MPN Voice
11 years ago
So, do us PV people actually have the dreaded 'C' word?
I recently was looking on an American site about MPDs & it was the first time I'd read that PV is a slow growing cancer which put the wind up me a bit I can tell you! I have been offered Hydroxy but decided to stick with the Clopidogrel & 2 monthly venesections which seem to suit me. I just didn't make
I recently was looking on an American site about MPDs & it was the first time I'd read that PV is a slow growing cancer which put the wind up me a bit I can tell you! I have been offered Hydroxy but decided to stick with the Clopidogrel & 2 monthly venesections which seem to suit me. I just didn't make
Hidden
in
MPN Voice
11 years ago
Giving a little back
Hello everyone. Since I recieved my diagnosis in January (ET & PV), I have visited this forum regulary to help me make sense of it all, to find answers to all my many questions, emotional as well as practical ones. Now that I have had some time to absorb and digest the facts regarding my condition
Hello everyone. Since I recieved my diagnosis in January (ET & PV), I have visited this forum regulary to help me make sense of it all, to find answers to all my many questions, emotional as well as practical ones. Now that I have had some time to absorb and digest the facts regarding my condition
glassaddict
in
MPN Voice
11 years ago
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