Why I ask this is I have been diagnosed PRV Jak 2 positive since February 2012 and up 'til two days ago had only seen one consultant who had treated me with venesections on a regular basis first weekly then settled into a two monthly gap. This particular consultant retired two weeks ago giving me my last venesection then but two days ago I met my new person. I will apparently only see this consultant again in six months time as her team will do the blood tests, venesections etc.
I did mention to the consultant that tiredness was my biggest bug bear and she seemed surprised generally and asked if my GP had checked for other causes. I did not even get to mention the awful hot sweats, light headedness etc. I thought she would not be that interested. At least that is how I felt and I hope I am not being unfair to this person.
When I first discovered MPD voice it gave me such an uplift to see I was not imagining my symptoms.
You see, I believed it would be a good move to be seeing another consultant as nice as my first consultant was, I felt I knew more about PRV in the end than she did! (Through researching on the web and reading everything positive I could). Now I feel flat so I am wondering if the team who handle my venesections will be more knowledgeable and further wondered if my experience is similar to others.