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Test results and more questions than answers!
Hi I am hoping one of you more experienced people can help me move forward with my medication. I am currently on 75mcg Levo and 30mcg T3. I am greatly improved especially mentally - much calmer and no anxiety or feelings of panic. My weight has stopped piling on may even be reducing a wee bit - I no
Hi I am hoping one of you more experienced people can help me move forward with my medication. I am currently on 75mcg Levo and 30mcg T3. I am greatly improved especially mentally - much calmer and no anxiety or feelings of panic. My weight has stopped piling on may even be reducing a wee bit - I no
Carna
in
Thyroid UK
4 years ago
Diet and misleading result?
Hello everyone I posted a question yesterday and said many of my test results were normal then. But now I've started thinking and thinking about what might have actually caused it! Before my last blood test, I had started a diet (low potassium, low calcium, low protein, low everything! I actually
Hello everyone I posted a question yesterday and said many of my test results were normal then. But now I've started thinking and thinking about what might have actually caused it! Before my last blood test, I had started a diet (low potassium, low calcium, low protein, low everything! I actually
Sharam
in
Kidney Disease
4 years ago
Prolia
I am 64 years old. I have been off calcium for about 5 years due to chronic kidney stones. My dexa scores have declined more and I am now at -3.7 in spine and -3.3 in hips. Doctors are telling me to start injections which I assume are prolia. I am to meet with a specialist soon to discuss next steps
I am 64 years old. I have been off calcium for about 5 years due to chronic kidney stones. My dexa scores have declined more and I am now at -3.7 in spine and -3.3 in hips. Doctors are telling me to start injections which I assume are prolia. I am to meet with a specialist soon to discuss next steps
Mbaloo
in
Bone Health and Osteoporosis UK
4 years ago
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Bisphosphonates
I was diagnosed with PMR at the end of January, it did take 4 GP's to finally decide on the problems, my GP started me on 20mg Prednisone which has helped greatly, no more pain! I am now taking 10mg for a couple of weeks, then advised to alternate take 2 and 1. My question is, do I need to take a bisphosphonate
I was diagnosed with PMR at the end of January, it did take 4 GP's to finally decide on the problems, my GP started me on 20mg Prednisone which has helped greatly, no more pain! I am now taking 10mg for a couple of weeks, then advised to alternate take 2 and 1. My question is, do I need to take a bisphosphonate
Yealink
in
PMRGCAuk
4 years ago
Please help - recently discovered various issues which may all be linked to thyroid disorder? Still in the dark, no Endo appointment yet
Sorry, this is a long post! I am 35 and am lucky to have had really good health until recently. I lead a very active lifestyle (sea kayaking, running, snorkelling, hill walking) and eat a varied, healthy diet. There are now various issues (some of which I have found myself with private blood tests),
Sorry, this is a long post! I am 35 and am lucky to have had really good health until recently. I lead a very active lifestyle (sea kayaking, running, snorkelling, hill walking) and eat a varied, healthy diet. There are now various issues (some of which I have found myself with private blood tests),
1503640
in
Thyroid UK
4 years ago
Duloxetine query
I tried Valerian last night as I am over taking
Valium
. What do you guys think? LuLu
I tried Valerian last night as I am over taking
Valium
. What do you guys think? LuLu
Gypsy2220
in
NRAS
4 years ago
Information about spinal cord compression.
Has anyone experienced a spinal cord compression or fracture? Can you share your experiences. Has anyone experienced what it means to prevent one. We know that getting an MRI to show the urgency of treatment is one thing and then the mention of surgery. We don't know what that means. Who handles this
Has anyone experienced a spinal cord compression or fracture? Can you share your experiences. Has anyone experienced what it means to prevent one. We know that getting an MRI to show the urgency of treatment is one thing and then the mention of surgery. We don't know what that means. Who handles this
Bluebird11
in
Advanced Prostate Cancer
4 years ago
Recommended dose of Vitamin D3
Vitamin D I see in the discussion on Vitamin D many people seem to be taking massive doses. The recommended dose of D3 which I take together with calcium is 800 iu, which I believe is what the government is issuing. Mine is already prescribed I don’t have the link handy, but too much is shown to be
Vitamin D I see in the discussion on Vitamin D many people seem to be taking massive doses. The recommended dose of D3 which I take together with calcium is 800 iu, which I believe is what the government is issuing. Mine is already prescribed I don’t have the link handy, but too much is shown to be
Catlover432
in
Lung Conditions Community Forum
4 years ago
Dosage reduction
Following on from my post a month ago, this is where I am now. Continued with 10 mg daily until I reached 6 weeks, then reduced to 9 mg, which is where I am now. My Dr wants me to continue to taper slowly by 1 mg every 6-8 weeks. Dr prefers to focus on symptoms rather than blood tests. I asked if
Following on from my post a month ago, this is where I am now. Continued with 10 mg daily until I reached 6 weeks, then reduced to 9 mg, which is where I am now. My Dr wants me to continue to taper slowly by 1 mg every 6-8 weeks. Dr prefers to focus on symptoms rather than blood tests. I asked if
Tinasleepyhead
in
PMRGCAuk
4 years ago
T3 and Barium swallow - and quick update on T3 trial
Hello I’m having a barium swallow test today and the instructions say no eating or drinking 6 hours before the test. I normally take my T3 about 3pm (right after test time) would you take it before with a tiny bit of water or should I wait a certain number of hours after the test to take it? Thanks
Hello I’m having a barium swallow test today and the instructions say no eating or drinking 6 hours before the test. I normally take my T3 about 3pm (right after test time) would you take it before with a tiny bit of water or should I wait a certain number of hours after the test to take it? Thanks
jsy_girl
in
Thyroid UK
3 years ago
Zytiga Effects On Bloodwork
Hello all, I would appreciate feedback on interpretation of my husband’s latest blood test results. As background, he was diagnosed with stage 4 PC in July 2019 (Gleason 9, PSA 77, several bone mets). He has been on Casodex since diagnosis, then put on Eligard about a month later, and he’s been taking
Hello all, I would appreciate feedback on interpretation of my husband’s latest blood test results. As background, he was diagnosed with stage 4 PC in July 2019 (Gleason 9, PSA 77, several bone mets). He has been on Casodex since diagnosis, then put on Eligard about a month later, and he’s been taking
Dett
in
Advanced Prostate Cancer
4 years ago
Bloods Advice please - new and feelimg wobbly
Hi all, I'm having a bit of a hard time mentally and seem to have lots of little niggling symptoms that I'm not sure are related to the thyroid or are stress/anxiety related. Briefly, I gave birth last March, noticed a lump on my neck in the Spring and had a scan and biopsy. Scan showed a 'patchy' thyroid
Hi all, I'm having a bit of a hard time mentally and seem to have lots of little niggling symptoms that I'm not sure are related to the thyroid or are stress/anxiety related. Briefly, I gave birth last March, noticed a lump on my neck in the Spring and had a scan and biopsy. Scan showed a 'patchy' thyroid
Fredthedog
in
Thyroid UK
4 years ago
Leflunomide and PMR
Hello everyone, This is my first post to your informative PMR community . My story of PMR is really no different to everyone else in a way. Although I do respect we are all very different ,and our management skills of this dreadful disease in unique to each individual. My PMR journey started 17 months
Hello everyone, This is my first post to your informative PMR community . My story of PMR is really no different to everyone else in a way. Although I do respect we are all very different ,and our management skills of this dreadful disease in unique to each individual. My PMR journey started 17 months
golfnutter
in
PMRGCAuk
4 years ago
Hopeful but still keeping fingers crossed!
I am today posting, to give hope to others on tapering plans! After 4 years of first GCA followed by two bouts of PMR, my third attempt of tapering , continues to be promising. I chalk off a new week every Wednesday on my calendar and I have reached the ten week mark. That is ten weeks of no prednisolone
I am today posting, to give hope to others on tapering plans! After 4 years of first GCA followed by two bouts of PMR, my third attempt of tapering , continues to be promising. I chalk off a new week every Wednesday on my calendar and I have reached the ten week mark. That is ten weeks of no prednisolone
DevonMichael
in
PMRGCAuk
4 years ago
Calcium
Since adopting a vegan diet I've thought a lot of how to ensure adequate nutrients but one I've overlooked is calcium. I see the NHS guideline is 700mg a day. How do we ensure we get that?
Since adopting a vegan diet I've thought a lot of how to ensure adequate nutrients but one I've overlooked is calcium. I see the NHS guideline is 700mg a day. How do we ensure we get that?
willsie01
in
Vegan Foods for Life
4 years ago
Do I need to take Lansoprazole & Fosavance
Can anyone help me please 🙏 I have been prescribed to take once a week ; Fosavance 70mg calcium tablet 1x 15mg lansoprazole in the morning before I take my daily Prednisolone 17.5mg Is there any thing natural I can do myself to not have to take the Fosavance or the Lansoprazole, as I want to start
Can anyone help me please 🙏 I have been prescribed to take once a week ; Fosavance 70mg calcium tablet 1x 15mg lansoprazole in the morning before I take my daily Prednisolone 17.5mg Is there any thing natural I can do myself to not have to take the Fosavance or the Lansoprazole, as I want to start
Maggie1313
in
PMRGCAuk
4 years ago
I finally got a GP to listen
I thought I would share this as I finally had success at getting a GP to listen to me. What helped to convince them was: 1. A ticked list of symptoms using the Thyroid UK list https://thyroiduk.org/wp-content/uploads/2017/06/Signs-and-Symptoms-of-Hypothyroidism-V1.1-.doc.pdf 2. An excel file with my
I thought I would share this as I finally had success at getting a GP to listen to me. What helped to convince them was: 1. A ticked list of symptoms using the Thyroid UK list https://thyroiduk.org/wp-content/uploads/2017/06/Signs-and-Symptoms-of-Hypothyroidism-V1.1-.doc.pdf 2. An excel file with my
KikiLR
in
Thyroid UK
4 years ago
GP and Cardiologist Disagree On Statins
7 months post Covid and unfortunately I'm still having issues. Went to the cardiologist to check my heart just in case. Normal echo, initially a normal EKG, but my stress test showed an inverted T wave. After bloods tests, he wanted me on statins and BP meds (BP is -140ish/90 and LDL of 159. Normal
7 months post Covid and unfortunately I'm still having issues. Went to the cardiologist to check my heart just in case. Normal echo, initially a normal EKG, but my stress test showed an inverted T wave. After bloods tests, he wanted me on statins and BP meds (BP is -140ish/90 and LDL of 159. Normal
Hidden
in
British Heart Foundation
4 years ago
Zytiga did not Work - Chemo or RA 223 Next
Question for all you warriors. Have you had Zytiga fail? Yesterday I met with my MO and he reviewed the results of my PSA - now 15 - up from 4 - ninety days ago when I started Zytiga, the bone scan - some mets larger and some new ones - and CT scan with no mets in the soft tissues. He said we
Question for all you warriors. Have you had Zytiga fail? Yesterday I met with my MO and he reviewed the results of my PSA - now 15 - up from 4 - ninety days ago when I started Zytiga, the bone scan - some mets larger and some new ones - and CT scan with no mets in the soft tissues. He said we
Hidden
in
Advanced Prostate Cancer
4 years ago
Why continue LUPRON when ADT not working?
I have castration resistant prostate cancer with a Testosterone level of 6. I am not sure why I am still taking Lupron when it is clearly not working? Ideas? [i] Like everyone, I hate the side effects! Thanks in advance![/i] History: Diagnosed at Stage 4 (2 years + 3 months ago). Reached mCRPC 1 year
I have castration resistant prostate cancer with a Testosterone level of 6. I am not sure why I am still taking Lupron when it is clearly not working? Ideas? [i] Like everyone, I hate the side effects! Thanks in advance![/i] History: Diagnosed at Stage 4 (2 years + 3 months ago). Reached mCRPC 1 year
baltha
in
Advanced Prostate Cancer
4 years ago
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