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Urticarial vasculitis
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Microscopic polyangiitis.
I was diagnosed 4 years ago. The main attack was in my lungs, leaving me with 'leaky lungs'. I am doing really well I have stopped azathioprine, anti biotic, and just recently reduced my steroids to 5mg. I have had a slight cold the past couple of weeks and it has knocked me off my feet. My question
I was diagnosed 4 years ago. The main attack was in my lungs, leaving me with 'leaky lungs'. I am doing really well I have stopped azathioprine, anti biotic, and just recently reduced my steroids to 5mg. I have had a slight cold the past couple of weeks and it has knocked me off my feet. My question
dizzy49
in
Vasculitis UK
7 years ago
Hearing problems from Wegeners GPA
I am wondering if anyone else has had to have grommets fitted as a result of ear damage caused by WG. I was diagnosed in June 2014 and was actually fitted with grommets before WG was even diagnosed as the cause of my problems! They didn't work for too long and since then I have had another two lots
I am wondering if anyone else has had to have grommets fitted as a result of ear damage caused by WG. I was diagnosed in June 2014 and was actually fitted with grommets before WG was even diagnosed as the cause of my problems! They didn't work for too long and since then I have had another two lots
poppet2
in
Vasculitis UK
7 years ago
DVT.s and Vasculitis
Hi- I would like to ask if there is possibly a link or a clue that there is Vasculitis present when you have a DVT. I went to the surgery about my leg, I had a bad varicous vein there and I had been having lots of problems before that with my ongoing symptons regarding possible vasculitis anyway. The
Hi- I would like to ask if there is possibly a link or a clue that there is Vasculitis present when you have a DVT. I went to the surgery about my leg, I had a bad varicous vein there and I had been having lots of problems before that with my ongoing symptons regarding possible vasculitis anyway. The
friz42
in
Vasculitis UK
7 years ago
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Google Analytics for the Vasculitis UK website Nov 4th - Dec 4th 2016
Google Analytics Nov 4th - Dec 4th 2016 25,900 users 68,300 pages viewed 2.12 mins average session 75% new users 25% returning users Top 5 types viewed EGPA ( CSS )
Urticarial
Vasculitis
Giant Cell Arteritis Henoch Schonlein Purpura Central Nervous System Top 15 Countries UK US Australia India Canada
Google Analytics Nov 4th - Dec 4th 2016 25,900 users 68,300 pages viewed 2.12 mins average session 75% new users 25% returning users Top 5 types viewed EGPA ( CSS )
Urticarial
Vasculitis
Giant Cell Arteritis Henoch Schonlein Purpura Central Nervous System Top 15 Countries UK US Australia India Canada
Suzym2u
Vasculitis UK
in
Vasculitis UK
8 years ago
Not Diagnosed - could there be a connection with vasculitis
Investigation online has brought me here my Inflammatory markers up on blood test last week .Have had ongoing heart failure symptoms ignored , pulmonary hypertension after & before sudden MI 12 yrs ago. This is still happening .Test results often don't show problem & reason I am having difficulty
Investigation online has brought me here my Inflammatory markers up on blood test last week .Have had ongoing heart failure symptoms ignored , pulmonary hypertension after & before sudden MI 12 yrs ago. This is still happening .Test results often don't show problem & reason I am having difficulty
skybluepink
in
Vasculitis UK
7 years ago
Channel4 Vasculitis & leg ulcers
Just watched food unwrapped on Channel4 it is series 10 episode 1. There was a lady who has Vasculitis, they didn't say which one. She had extremely bad leg ulcers. They were so bad she could not walk. She attended a London hospital where the plastic surgeon treated them with cod fish skin. (Sterile
Just watched food unwrapped on Channel4 it is series 10 episode 1. There was a lady who has Vasculitis, they didn't say which one. She had extremely bad leg ulcers. They were so bad she could not walk. She attended a London hospital where the plastic surgeon treated them with cod fish skin. (Sterile
dizzy49
in
Vasculitis UK
7 years ago
Google Analytics for the Vasculitis UK Website from December 2nd 2016 - January 2nd 2017
Top 5 individual types of
vasculitis
viewed. EGPA, HSP,
Urticarial
, GPA and TAK.
Top 5 individual types of
vasculitis
viewed. EGPA, HSP,
Urticarial
, GPA and TAK.
Suzym2u
Vasculitis UK
in
Vasculitis UK
7 years ago
Check up on bypass: There is narrowing at the bypass beginning.
I went for a check-up a few weeks ago and had an ultrasound of my bypass (mesenteric arteries) and unfortunately there is narrowing at the bypass beginning. I have copied what the report is below: Ms. ( leaving out my last name)returns to us after her aortomesenteric bypass. This was a bifurcated
I went for a check-up a few weeks ago and had an ultrasound of my bypass (mesenteric arteries) and unfortunately there is narrowing at the bypass beginning. I have copied what the report is below: Ms. ( leaving out my last name)returns to us after her aortomesenteric bypass. This was a bifurcated
RiviS7
in
Vasculitis UK
7 years ago
Vasculitis GPA (WG) and stepping down from Preds
hi was diagnosed with vasculitis GPA in may last year i had 6 lots of chemotherapy and high dose steroids 60 mg daily am now down to 5 mg daily then stepping done 1 mg every month.Also on 20 mg methotrexate i wanted to know the Dr says all blood test are now normal and vasculitis is "melting away in
hi was diagnosed with vasculitis GPA in may last year i had 6 lots of chemotherapy and high dose steroids 60 mg daily am now down to 5 mg daily then stepping done 1 mg every month.Also on 20 mg methotrexate i wanted to know the Dr says all blood test are now normal and vasculitis is "melting away in
buster1502
in
Vasculitis UK
7 years ago
Relapse?
My hubby has been in remission for nearly 3 years and ANCA negative. Diagnosed with WG in 2008. Latest blood test shows ANCA result is positive. Does this mean disease is active again?
My hubby has been in remission for nearly 3 years and ANCA negative. Diagnosed with WG in 2008. Latest blood test shows ANCA result is positive. Does this mean disease is active again?
Inagh
in
Vasculitis UK
8 years ago
Rituximab - side effects
Hi On Friday 16th December, I received my 2nd infusion of Rituximab - 2 weeks after the 1st infusion; this is for treatment of anca positive vasculitis, probably Churgg Strauss. I would be interested to hear from others how they felt at this stage and whether they had any side effects. I do feel a little
Hi On Friday 16th December, I received my 2nd infusion of Rituximab - 2 weeks after the 1st infusion; this is for treatment of anca positive vasculitis, probably Churgg Strauss. I would be interested to hear from others how they felt at this stage and whether they had any side effects. I do feel a little
sealives
in
Vasculitis UK
8 years ago
Any experience with trigeminal neuralgia with wegeners?
Hubby dx wegeners for 2 yrs now and treatment going well For the past week has experienced extreme pain and after checking teeth and other nerve problems now waiting for MRI after px of tn Wondering if another vasculitis surfacing?
Hubby dx wegeners for 2 yrs now and treatment going well For the past week has experienced extreme pain and after checking teeth and other nerve problems now waiting for MRI after px of tn Wondering if another vasculitis surfacing?
Lamama
in
Vasculitis UK
8 years ago
Azathioprine (imuran)
Hi everyone, my fiance was diagnosed with Anca vasulitis in 2014. He started Azathioprine Aug 2015 and is currently still on it and so far doing well..thank God. My question for those of you who are on Azathioprine- how long have you been on it. : is there a limit to how long one can be on this drug
Hi everyone, my fiance was diagnosed with Anca vasulitis in 2014. He started Azathioprine Aug 2015 and is currently still on it and so far doing well..thank God. My question for those of you who are on Azathioprine- how long have you been on it. : is there a limit to how long one can be on this drug
Christina1960
in
Vasculitis UK
8 years ago
Cerebral Vasculitis and CNS Vasculitis
17 years ago In 1999 was diagnosed with a Disease of brain and the Neurologist called it Isolated Angiitis and after a couple of years he changed the name of the disease to Cerebral Vasculitis and now after looking at a few things it's call CNS Vasculitis . So I was just wondering if they are same.
17 years ago In 1999 was diagnosed with a Disease of brain and the Neurologist called it Isolated Angiitis and after a couple of years he changed the name of the disease to Cerebral Vasculitis and now after looking at a few things it's call CNS Vasculitis . So I was just wondering if they are same.
phil3
in
Vasculitis UK
8 years ago
Google Analytics for the Vasculitis UK Website September 30th - October 30th 2016
Types of
Vasculitis
viewed. Top 5
Urticarial
Vasculitis
Churg Strauss Syndrome ( EGPA ) Wegener's Granulomatosis ( GPA ) Giant Cell Arteritis Cerebral Vasculitis
Types of
Vasculitis
viewed. Top 5
Urticarial
Vasculitis
Churg Strauss Syndrome ( EGPA ) Wegener's Granulomatosis ( GPA ) Giant Cell Arteritis Cerebral Vasculitis
Suzym2u
Vasculitis UK
in
Vasculitis UK
8 years ago
New member
Hi my name is KEITH and I am 66 years old and was diagnosed with Vasculitis Wenegers 12 months ago.Spent 2 weeks in St James Leeds having plasma exchange and then 5 months of cyclphos.Then on azothiprine and steroids but recently kidney function dropped dramaticaly so I start rituximab tomorrow with
Hi my name is KEITH and I am 66 years old and was diagnosed with Vasculitis Wenegers 12 months ago.Spent 2 weeks in St James Leeds having plasma exchange and then 5 months of cyclphos.Then on azothiprine and steroids but recently kidney function dropped dramaticaly so I start rituximab tomorrow with
Keithtim10
in
Vasculitis UK
8 years ago
For those who have an interest - Vasculitis Patient Symposium - Keynote Speaker is Prof Robert Moot Centre of Excellence Liverpool
Patient Symposium Timetable 9.00am Registration opens 9.45 Welcome and Introductions - John Mills - Chairman of Vasculitis UK 10.00 Dr Peter Lanyon (British Society of Rheumatology President) - Keynote Speech - Improving Satandards of Care In Vasculitis 10.30 Dr louise Oni - Alder Hay Hospital -
Patient Symposium Timetable 9.00am Registration opens 9.45 Welcome and Introductions - John Mills - Chairman of Vasculitis UK 10.00 Dr Peter Lanyon (British Society of Rheumatology President) - Keynote Speech - Improving Satandards of Care In Vasculitis 10.30 Dr louise Oni - Alder Hay Hospital -
Suzym2u
in
Behçet's UK
8 years ago
Updated information for the Vasculitis Patient Symposium and Gala Dinner In Manchester - March 2017
Patient Symposium Timetable 9.00am Registration opens 9.45 Welcome and Introductions - John Mills - Chairman of Vasculitis UK 10.00 Dr Peter Lanyon (British Society of Rheumatology President) - Keynote Speech - Improving Satandards of Care In Vasculitis 10.30 Dr louise Oni - Alder Hay Hospital -
Patient Symposium Timetable 9.00am Registration opens 9.45 Welcome and Introductions - John Mills - Chairman of Vasculitis UK 10.00 Dr Peter Lanyon (British Society of Rheumatology President) - Keynote Speech - Improving Satandards of Care In Vasculitis 10.30 Dr louise Oni - Alder Hay Hospital -
Suzym2u
Vasculitis UK
in
Vasculitis UK
8 years ago
Square 1
My daughter turned 40 years old in ICU Florida after experiencing rapid muscle loss and then a brain hemorrhage she was diagnosed with cns Vasculitis. She just had a brain biopsy and the results was negative for Vasculitis. I can't help thinking the muscle loss and the brain bleed are related but the
My daughter turned 40 years old in ICU Florida after experiencing rapid muscle loss and then a brain hemorrhage she was diagnosed with cns Vasculitis. She just had a brain biopsy and the results was negative for Vasculitis. I can't help thinking the muscle loss and the brain bleed are related but the
v4227
in
Vasculitis UK
8 years ago
End of tether
Hi guys. Some advice. 1 year history of purpurA, fatigue, joint pain, neuropathy. Three GPs, rheumatologist, dermatologist, two emergency admissions and still no effort to get me a diagnosis. Have been told looks like vasculitis but after a negative ANCA I was discharged from further investigations.
Hi guys. Some advice. 1 year history of purpurA, fatigue, joint pain, neuropathy. Three GPs, rheumatologist, dermatologist, two emergency admissions and still no effort to get me a diagnosis. Have been told looks like vasculitis but after a negative ANCA I was discharged from further investigations.
clarevet
in
Vasculitis UK
8 years ago
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