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Urticarial vasculitis
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Burst blood vessels in eye
Wondered if any one can tell me if you can have a burst blood vessel at back of eye with having vasculitis, optician writing to GP to explain what they found in recent eye test, I have anca p with positive MPO antibodies, keep getting splinter heamoriges, raised ESR and CRP levels, now burst blood vessel
Wondered if any one can tell me if you can have a burst blood vessel at back of eye with having vasculitis, optician writing to GP to explain what they found in recent eye test, I have anca p with positive MPO antibodies, keep getting splinter heamoriges, raised ESR and CRP levels, now burst blood vessel
valrene
in
Vasculitis UK
8 years ago
HSP / Vasculitis skin rash
I was diagnosed 5-6 weeks ago with HSP, the doctor in A&E prescibed some cocodamol and told me to follow up with my GP in a couple of weeks. My GP prescribed me antibiotics and signed me off to rest up. I've had the arthritic joint pain which I still have a mild form in my hands and I've had the GI bleed
I was diagnosed 5-6 weeks ago with HSP, the doctor in A&E prescibed some cocodamol and told me to follow up with my GP in a couple of weeks. My GP prescribed me antibiotics and signed me off to rest up. I've had the arthritic joint pain which I still have a mild form in my hands and I've had the GI bleed
Iain71
in
Vasculitis UK
8 years ago
Vasculitis and Total Hip Replacement
Just wondering if anyone knows of any complications (other than the usual) that having Vasculitis could add to surgery. Due to being treated with steroids for Vasculitis, I now have AVN (Avascular Necrosis) and am facing total hip replacement. Secondly, for anyone suffering from AVN, I'm trying to decide
Just wondering if anyone knows of any complications (other than the usual) that having Vasculitis could add to surgery. Due to being treated with steroids for Vasculitis, I now have AVN (Avascular Necrosis) and am facing total hip replacement. Secondly, for anyone suffering from AVN, I'm trying to decide
Nova7961
in
Vasculitis UK
8 years ago
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Dapsone antibiotic
Hi just been diagnosed with leukocytoclastic vasculitus following a skin biopsy. Dermatologist want to start me on 25mg of dapsone for 4 weeks and then if no improvement then go onto 50mg. Has anyone else used this drug and does it work? how long does it take for the rash to go and does it ever come
Hi just been diagnosed with leukocytoclastic vasculitus following a skin biopsy. Dermatologist want to start me on 25mg of dapsone for 4 weeks and then if no improvement then go onto 50mg. Has anyone else used this drug and does it work? how long does it take for the rash to go and does it ever come
Seh22
in
Vasculitis UK
8 years ago
Expenses for fuel ?
I now attend hospitals so many times that I am finding that my fuel use is much higher. Now, before anyone starts about me being grateful for being treated, I do feel lucky that I can get treatment but someone has mentioned that I may get help with fuel. Does anyone know if this is true please ? I am
I now attend hospitals so many times that I am finding that my fuel use is much higher. Now, before anyone starts about me being grateful for being treated, I do feel lucky that I can get treatment but someone has mentioned that I may get help with fuel. Does anyone know if this is true please ? I am
Jools52
in
Vasculitis UK
8 years ago
Bringing up blood. Uncertain where from
Hi fellow sufferers and care givers, You are probably like me in that you rarely drink now you have been diagnosed with vasculitis and are on harsh meds. I have generalised small cell & ANCA + vasculitis that is most likely Wegeners / GPA I have inflammatory vowel disease so this is a bit complicated
Hi fellow sufferers and care givers, You are probably like me in that you rarely drink now you have been diagnosed with vasculitis and are on harsh meds. I have generalised small cell & ANCA + vasculitis that is most likely Wegeners / GPA I have inflammatory vowel disease so this is a bit complicated
Jools52
in
Vasculitis UK
8 years ago
Wegeners or periodic fever syndrome ? Help please
Hi good people, I have been going through the various and varied, intrusive tests to try and get a definitive diagnosis and my rheumatologist, Dr Harsha Gunawardena, has said that I have all the markers present for a diagnosis of Wegeners AKA GPA but the latest tests have been for what they call periodic
Hi good people, I have been going through the various and varied, intrusive tests to try and get a definitive diagnosis and my rheumatologist, Dr Harsha Gunawardena, has said that I have all the markers present for a diagnosis of Wegeners AKA GPA but the latest tests have been for what they call periodic
Jools52
in
Vasculitis UK
8 years ago
Churg Strauss new diagnosis.
Hi I'm new to this site thanks for the add. I have recently been diagnosed with churg-strauss and have one more cycle of cyclophosphamide to go I'm coping ok but the pain in my legs is getting me down. Has anyone used a tens machine or similar and did it help? Just wondering if it is worth the investment
Hi I'm new to this site thanks for the add. I have recently been diagnosed with churg-strauss and have one more cycle of cyclophosphamide to go I'm coping ok but the pain in my legs is getting me down. Has anyone used a tens machine or similar and did it help? Just wondering if it is worth the investment
Tiss
in
Vasculitis UK
8 years ago
Worried about my Dad
Hi everyone, my Dad was admitted to hospital last week because of high potassium levels in his regular blood tests for diabetes, his kidneys aren't filtering. He received the diagnosis yesterday after kidney biopsy of ANCA MPO Vasculitis and was started on steroids last night and starting intravenous
Hi everyone, my Dad was admitted to hospital last week because of high potassium levels in his regular blood tests for diabetes, his kidneys aren't filtering. He received the diagnosis yesterday after kidney biopsy of ANCA MPO Vasculitis and was started on steroids last night and starting intravenous
Hidden
in
Vasculitis UK
8 years ago
cyclophosphamide
Been to see Consultant today with my daughter of 12 years old thing haven't got worse but no better too she's on cyclophosphamide infusion every 3 weeks she's had 4 of these so far but nothings changed so far. Today her Consultant mentioned once again about her having a steroid injection straight into
Been to see Consultant today with my daughter of 12 years old thing haven't got worse but no better too she's on cyclophosphamide infusion every 3 weeks she's had 4 of these so far but nothings changed so far. Today her Consultant mentioned once again about her having a steroid injection straight into
shine78
in
Behçet's UK
8 years ago
start cellcept
hi my friends l have SLE For 13 years also I'm 30 now.I was taking 7.5 prednisone, hydroxyclorchin 200 untill 18 mounth ago after that my GP prescripted Azaitropin50 for me.i had Locopenia after 6 mounth of taking Azaitropin also I decriese that and I tooke day by day until now. Today my Gp stop Azaitropin
hi my friends l have SLE For 13 years also I'm 30 now.I was taking 7.5 prednisone, hydroxyclorchin 200 untill 18 mounth ago after that my GP prescripted Azaitropin50 for me.i had Locopenia after 6 mounth of taking Azaitropin also I decriese that and I tooke day by day until now. Today my Gp stop Azaitropin
asma1364
in
LUPUS UK
8 years ago
RV and Stroke
I have Rheumatoid Vasculitis, a byproduct of having Rheumatoid Arthritis, and suffered a mild stroke. There was no bleed on the brain, nor any furry arteries. They've said it was most likely stress, but I wonder whether having vasculitis and it affecting small blood vessels could have been a factor
I have Rheumatoid Vasculitis, a byproduct of having Rheumatoid Arthritis, and suffered a mild stroke. There was no bleed on the brain, nor any furry arteries. They've said it was most likely stress, but I wonder whether having vasculitis and it affecting small blood vessels could have been a factor
Wolf52
in
Vasculitis UK
8 years ago
Some Vasculitis UK Website Google Annalytics, April 1st - May 1st 2016, to share for the first week of Vasculitis Awareness Month.
/Understanding
Vasculitis
Urticarial
Vasculitis
Personal Stories/images Central Nervous System Vasculitis / Cerebral Vasculitis Frequently Asked Questions
/Understanding
Vasculitis
Urticarial
Vasculitis
Personal Stories/images Central Nervous System Vasculitis / Cerebral Vasculitis Frequently Asked Questions
Suzym2u
Vasculitis UK
in
Vasculitis UK
8 years ago
Pan and vasculitis
so I just found out today I have systemic polyarteritis nodosa. Finally got in to an actual vasculitis center. Shocked to find out only 22 other people are diagnosed with pan in north America. And I think it was like 120 with another form of vasculitis. Dont know what to say but i appreciate this forum
so I just found out today I have systemic polyarteritis nodosa. Finally got in to an actual vasculitis center. Shocked to find out only 22 other people are diagnosed with pan in north America. And I think it was like 120 with another form of vasculitis. Dont know what to say but i appreciate this forum
greg31
in
Vasculitis UK
8 years ago
Cannabis & Vasculiti
Cannabis oil, a controversial *treatment* that a few hundreds have tried and has had success where all other medication has proved unhelpful. I can't help but be disturbed by the idea the weakening the immune system is the only way to deal with so many diseases. I am as uncomfortable today and after
Cannabis oil, a controversial *treatment* that a few hundreds have tried and has had success where all other medication has proved unhelpful. I can't help but be disturbed by the idea the weakening the immune system is the only way to deal with so many diseases. I am as uncomfortable today and after
Jools52
in
Vasculitis UK
8 years ago
It is Behcets Disease Awareness Day today
Behcets is an extremely rare type of Vasculitis - classified as a type of Vasculitis in 2012. It affects around 3,000 here in the UK. This is the page to the Vasculitis UK website explaining what Behcets Disease is. It is extremely difficult to diagnose and manage. http://www.vasculitis.org.uk/about-vasculitis
Behcets is an extremely rare type of Vasculitis - classified as a type of Vasculitis in 2012. It affects around 3,000 here in the UK. This is the page to the Vasculitis UK website explaining what Behcets Disease is. It is extremely difficult to diagnose and manage. http://www.vasculitis.org.uk/about-vasculitis
Suzym2u
Vasculitis UK
in
Vasculitis UK
8 years ago
Cns vasculitis
Got appointment for Lumber punture.Feeling emotional about it all.It's been 7 months of tests.And to think this test may either be the beginning or the end of it all.As if there is inflammation in the csf I have been advised about a angiogram to look at the brain. As they think I may have cns vasculitis.Which
Got appointment for Lumber punture.Feeling emotional about it all.It's been 7 months of tests.And to think this test may either be the beginning or the end of it all.As if there is inflammation in the csf I have been advised about a angiogram to look at the brain. As they think I may have cns vasculitis.Which
Hidden
in
Vasculitis UK
8 years ago
The newly elected ePAG (European Patient Advocacy Group) patient representatives have now been announced
This was announced yesterday that John Mills chairman of Vasculitis UK has been elected as one of the 5 patient representatives (ePAG) for rare immunological and autoimmune diseases in Europe. 😊 EURORDIS created the ePAGs to engage patient organisations and ensure a democratic process of patient representation
This was announced yesterday that John Mills chairman of Vasculitis UK has been elected as one of the 5 patient representatives (ePAG) for rare immunological and autoimmune diseases in Europe. 😊 EURORDIS created the ePAGs to engage patient organisations and ensure a democratic process of patient representation
Suzym2u
Vasculitis UK
in
Vasculitis UK
8 years ago
lynnj
Hi I'm new here - I was diagnosed with cerebral vasculitis in Nov 2015. I have read a few posts but can only read for a short while everyone seems to know a lot more about their condition than I know about mine. I am now on 1500mg cell cept and 5mg prednisolone plus the various others for my stomach
Hi I'm new here - I was diagnosed with cerebral vasculitis in Nov 2015. I have read a few posts but can only read for a short while everyone seems to know a lot more about their condition than I know about mine. I am now on 1500mg cell cept and 5mg prednisolone plus the various others for my stomach
Ljohn456
in
Vasculitis UK
8 years ago
Osteonecrosis and other rare bone diseases
Hello Over the past 10 years from the age of 50 I have had the spontaneous, transient osteonecrosis in both knees and ankles. It is transient in the sense that the outbreaks last about a year or so and it is spontaneous in the sense that the problems come on spontaneously (though a minor ligament injury
Hello Over the past 10 years from the age of 50 I have had the spontaneous, transient osteonecrosis in both knees and ankles. It is transient in the sense that the outbreaks last about a year or so and it is spontaneous in the sense that the problems come on spontaneously (though a minor ligament injury
mickeymouse42
in
LUPUS UK
8 years ago
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