Search
Search
About
Log in
Join
Experiences with
Urso
Posts
Communities
1,399 public posts
Filter results
Anti malaria medication
Hi all I've avoided taking any medication (besides
Urso
) since being diagnosed with PBC three years ago. I am perhaps over cautious but am always nervous that my liver won't absorb them properly. I am now planning a trip where I've been advised to take anti malaria pills.
Hi all I've avoided taking any medication (besides
Urso
) since being diagnosed with PBC three years ago. I am perhaps over cautious but am always nervous that my liver won't absorb them properly. I am now planning a trip where I've been advised to take anti malaria pills.
Itchy111
in
PBC Foundation
7 years ago
So tired and itchy and tired of being itchy
Hi all, I was diagnosed with PBC last summer and put on 1500 mg of
Urso
a day, I also take cholestyramine in the mornings. They could not advise of what stage I am in because the doctor who did my biopsy did not take a big enough sample (Ugh).
Hi all, I was diagnosed with PBC last summer and put on 1500 mg of
Urso
a day, I also take cholestyramine in the mornings. They could not advise of what stage I am in because the doctor who did my biopsy did not take a big enough sample (Ugh).
AllieCraw
in
PBC Foundation
7 years ago
Any one can help
How long dose
urso
take to work then you feel better? My husband started
urso
put He feel abdominal pain and think that is side effects of
urso
How long dose
urso
take to work then you feel better? My husband started
urso
put He feel abdominal pain and think that is side effects of
urso
Mysa1981
in
PBC Foundation
8 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Urso users
If all
urso
users have encountered problems getting
urso
its because you chemist your using is Boots. I had this problem about a year ago its because Boots is now an American company and only use one supplier. Change to a no chain chemist who use many suppliers. I've never had any problems since.
If all
urso
users have encountered problems getting
urso
its because you chemist your using is Boots. I had this problem about a year ago its because Boots is now an American company and only use one supplier. Change to a no chain chemist who use many suppliers. I've never had any problems since.
Jude1
in
PBC Foundation
8 years ago
Has anyone ever "gotten off" Urso?
I take natural thyroid and
Urso
. I am doing well so far. I often read of people with serious diseases such as Crohns or Lupus who claim to be off all medicines by adhering to strict diet (the author of "Against All Grain" - Danielle Walker) .
I take natural thyroid and
Urso
. I am doing well so far. I often read of people with serious diseases such as Crohns or Lupus who claim to be off all medicines by adhering to strict diet (the author of "Against All Grain" - Danielle Walker) .
Sissymcc
in
PBC Foundation
7 years ago
Urso side effect?
Anyone have any idea/suggestion as to whether this rash is possibly connected to the
Urso
? Thank you X
Anyone have any idea/suggestion as to whether this rash is possibly connected to the
Urso
? Thank you X
Thenoise
in
PBC Foundation
8 years ago
URSO! Manufacturing issue
About to run out of
URSO
. Went to collect my prescription from Boots, only to be told no stock as there is a manufacturing issue. Anyone else had this ? No indication of when it will be resolved.
About to run out of
URSO
. Went to collect my prescription from Boots, only to be told no stock as there is a manufacturing issue. Anyone else had this ? No indication of when it will be resolved.
fred6577
in
PBC Foundation
8 years ago
Anyone else?
Thanks, Stella Dx PBC 10/10/16 Can't tolerate
URSO
, Elevated LFT's including AMA M2, Biopsy and Ducts insignificant, however mild fatty liver found.
Thanks, Stella Dx PBC 10/10/16 Can't tolerate
URSO
, Elevated LFT's including AMA M2, Biopsy and Ducts insignificant, however mild fatty liver found.
Ktltel
in
PBC Foundation
8 years ago
Fenofibrate
Hi all, Been on
URSO
since June as although my liver function levels immediately decreased,I still have ALT of 400+.
Hi all, Been on
URSO
since June as although my liver function levels immediately decreased,I still have ALT of 400+.
Starfish72
in
PBC Foundation
8 years ago
Lost
Av been diagnosed with AIH last uear my specialist has left not had any bloods work done since 30th of November 2016 and still not had results from that yet dnt no wot levels of anything am very irritated anbout all this ma arms are a mess with itch am only onlt
urso
dnt evan no if this is helpingdoes
Av been diagnosed with AIH last uear my specialist has left not had any bloods work done since 30th of November 2016 and still not had results from that yet dnt no wot levels of anything am very irritated anbout all this ma arms are a mess with itch am only onlt
urso
dnt evan no if this is helpingdoes
Sylvia1968
in
PBC Foundation
8 years ago
Newly diagnosed mom
The research i have done comes up empty not enough data on weather
urso
gets into breastmilk. My other issue is id like to have another baby but now it worries me as id be on
urso
for the rest of my life and dont want to risk any side effects to the baby.
The research i have done comes up empty not enough data on weather
urso
gets into breastmilk. My other issue is id like to have another baby but now it worries me as id be on
urso
for the rest of my life and dont want to risk any side effects to the baby.
NinaC
in
PBC Foundation
8 years ago
Low wbc with Spleenomegally and aih, pbc along with scleroderma and Lupus
For the itching my doc recommends I take Cymbalta with
Urso
and Cholestyramine powder together and it works pretty well. The powder u need to take it 1 hour before meds or 4 hours after meds. I am currently on the liver transplant list.
For the itching my doc recommends I take Cymbalta with
Urso
and Cholestyramine powder together and it works pretty well. The powder u need to take it 1 hour before meds or 4 hours after meds. I am currently on the liver transplant list.
albiar123
in
PBC Foundation
8 years ago
Newly diagnosed
Starting taking
Urso
and going next month th (February) to find out if my body is responding to the medication. Fingers crossed! It's great to read about other people's experiences as well as daunting!
Starting taking
Urso
and going next month th (February) to find out if my body is responding to the medication. Fingers crossed! It's great to read about other people's experiences as well as daunting!
Sharilee59
in
PBC Foundation
8 years ago
Over the counter
Since I can't take
urso
could I take milk thistle. Pharmacist didn't know anything about it.
Since I can't take
urso
could I take milk thistle. Pharmacist didn't know anything about it.
Urso462
in
PBC Foundation
8 years ago
Alternative
Has anyone else not been able to take
urso
?
Has anyone else not been able to take
urso
?
Urso462
in
PBC Foundation
8 years ago
From Gastro to Hepatologist
He wants to send me to a Hepatologist because my ALP doesn't to seem to be changing and I am on
Urso
and Ocaliva. I stay very fatigued and the itch is not much better. He also wants me to have a colonoscopy because of the polyps he found during the upper scope, he said it would be best to check.
He wants to send me to a Hepatologist because my ALP doesn't to seem to be changing and I am on
Urso
and Ocaliva. I stay very fatigued and the itch is not much better. He also wants me to have a colonoscopy because of the polyps he found during the upper scope, he said it would be best to check.
Lisa15
in
PBC Foundation
8 years ago
Still gaining weight :(
I wrote a few months back saying I had rapidly gained weight since coming out of hospital, I spoke to my consultant in October and he said it shouldn't be the
urso
but my diet and exercise even though I'm eating alot better than before I went to hospital and I'm exercising and working two/three full
I wrote a few months back saying I had rapidly gained weight since coming out of hospital, I spoke to my consultant in October and he said it shouldn't be the
urso
but my diet and exercise even though I'm eating alot better than before I went to hospital and I'm exercising and working two/three full
Lilbear89
in
PBC Foundation
8 years ago
Anyone who attends Kngs College Hepatology.
This was no easy task and I almost gave up and had decided to just keep taking the
Urso
and get on with life. Then my sensible brain kicked in!
This was no easy task and I almost gave up and had decided to just keep taking the
Urso
and get on with life. Then my sensible brain kicked in!
CathieG
in
PBC Foundation
8 years ago
New to this site
I was taking
urso
and had tongue pain and swelling allergic reaction. Went off for 3 weeks went back on, same reaction. I take 2 other medications for fibro. Did anyone else experience those type of reaction?
I was taking
urso
and had tongue pain and swelling allergic reaction. Went off for 3 weeks went back on, same reaction. I take 2 other medications for fibro. Did anyone else experience those type of reaction?
Urso462
in
PBC Foundation
8 years ago
...without urso
Hi there... im actually wondering what does happen if you stopped taking
urso
? I have done this. I can't say I feel worse.. Came up as secondary thought when talking to the doctor about meds. I haven't been back in a while. Might be a good idea to ask... Tris
Hi there... im actually wondering what does happen if you stopped taking
urso
? I have done this. I can't say I feel worse.. Came up as secondary thought when talking to the doctor about meds. I haven't been back in a while. Might be a good idea to ask... Tris
Tris79
in
PBC Foundation
8 years ago
1
...
44
45
46
...
70
Next page
10
20
30
40
50
60
70
Filter results
Clear filters
Posted in
All communities
PBC Foundation
1263 results
British Liver Trust
78 results
PBCers Organization
35 results
View top 10 communities
Sort by
Most Relevant
Newest