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Urso
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Lfts back up
The Dr said he was going to start me on
Urso
if still positive after hepatic panel that he wanted me to do in the first week of Nov. Does pbc present this way with the other lft's increasing dramatically too?
The Dr said he was going to start me on
Urso
if still positive after hepatic panel that he wanted me to do in the first week of Nov. Does pbc present this way with the other lft's increasing dramatically too?
Zelda5
in
PBCers Organization
2 years ago
Cramps , diarrhoea and stomach discomfort
I was diagnosed in 2017 being on
URSO
, so far so good, my lft’s pretty ok , Fibroscan is now 9,3 from 5,8 .
I was diagnosed in 2017 being on
URSO
, so far so good, my lft’s pretty ok , Fibroscan is now 9,3 from 5,8 .
ritarobainapbc
in
PBC Foundation
2 years ago
Bezafibrate and weight gain
I was switched to Bezafibrate when I couldn’t tolerate
Urso
or Ocaliva. It’s absolutely fine. However I seem to be gaining weight. Has anyone else had this?
I was switched to Bezafibrate when I couldn’t tolerate
Urso
or Ocaliva. It’s absolutely fine. However I seem to be gaining weight. Has anyone else had this?
SuziS
in
PBC Foundation
2 years ago
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Teeth issues
I’m wondering if
urso
leeches calcium from the body (I’ve also been diagnosed with osteoenia. Just curious. I’ve been losing a lot of teeth lately. And have 3 more that will have to go - then my dentist and I will focus on the good ones that remain. I’m also using Rx Prevident toothpaste.
I’m wondering if
urso
leeches calcium from the body (I’ve also been diagnosed with osteoenia. Just curious. I’ve been losing a lot of teeth lately. And have 3 more that will have to go - then my dentist and I will focus on the good ones that remain. I’m also using Rx Prevident toothpaste.
FurbabyMama
in
PBC Foundation
2 years ago
Regression of Varices
She started
Urso
a year ago, and her ALP and GGT decreased to the normal range, INR became standard, but her albumin is still mildly low.
She started
Urso
a year ago, and her ALP and GGT decreased to the normal range, INR became standard, but her albumin is still mildly low.
Shon1234
in
PBC Foundation
2 years ago
pbc and Benzofibrate
Have pbc over a year and on 1250 mg of
urso
my levels have not come down enough so hepatologist wants to add benzofibrate . Anyone on this and had good results? TIA
Have pbc over a year and on 1250 mg of
urso
my levels have not come down enough so hepatologist wants to add benzofibrate . Anyone on this and had good results? TIA
Saints1976
in
PBC Foundation
2 years ago
B and O type Blood and Alkaline Phosphatase and Labs have different ULN
I just started
Urso
last month, and had blood work done last week, the other enzymes dropped a lot to normal range, but Alkaline Phosphatase is still higher than normal, around 187, not much change. I have 2 questions, 1.
I just started
Urso
last month, and had blood work done last week, the other enzymes dropped a lot to normal range, but Alkaline Phosphatase is still higher than normal, around 187, not much change. I have 2 questions, 1.
Gmama2
in
PBC Foundation
2 years ago
been on urso for 6months but alp still up
hi has anybody else had this I have been on
urso
for 6 months now had my blood results yesterday and my alp is still 516 it has come down from 1157 I’m not sure if I should be trying something else now or still carry on with just
urso
can any1 give advice on this please I’m so worried thank you
hi has anybody else had this I have been on
urso
for 6 months now had my blood results yesterday and my alp is still 516 it has come down from 1157 I’m not sure if I should be trying something else now or still carry on with just
urso
can any1 give advice on this please I’m so worried thank you
Lena2011
in
PBC Foundation
2 years ago
Weight loss & Urso
I know
Urso
prescribed according to weight If a person loses weight over year or so after starting on it, can or should dosage be reduced? I saw specialist few wks ago,but forgot to ask about this . He did order scan,first time ever.Diagnised since 2016...6 yrs
I know
Urso
prescribed according to weight If a person loses weight over year or so after starting on it, can or should dosage be reduced? I saw specialist few wks ago,but forgot to ask about this . He did order scan,first time ever.Diagnised since 2016...6 yrs
Jesse-Louise
in
PBC Foundation
2 years ago
Contradictory information
Given that
Urso
is a bile salt which can slow down the progress of the condition, by flushing bile out of the liver. Are you going to wait until you have cell change or raised LFT's before you start the process of flushing bile from your liver?
Given that
Urso
is a bile salt which can slow down the progress of the condition, by flushing bile out of the liver. Are you going to wait until you have cell change or raised LFT's before you start the process of flushing bile from your liver?
Zelda5
in
PBC Foundation
2 years ago
LFT showing inflammation
I was diagnosed with PBC 4 years ago and since starting
urso
, my LFT results eventually went back into normal range. I was referred for an urgent fibroscan and luckily, was able to have it there and then.
I was diagnosed with PBC 4 years ago and since starting
urso
, my LFT results eventually went back into normal range. I was referred for an urgent fibroscan and luckily, was able to have it there and then.
Rachie34
in
PBC Foundation
2 years ago
Do I really have PBC?
Went onto
Urso
, which worked immediately and everything has remained stable since. Like I said, I feel really lucky. However, wanting to book a longer cruise of a lifetime whilst I'm still young enough to go, I am being quoted £3450 for the trip. Without declaring PBC, the quote is about £550.
Went onto
Urso
, which worked immediately and everything has remained stable since. Like I said, I feel really lucky. However, wanting to book a longer cruise of a lifetime whilst I'm still young enough to go, I am being quoted £3450 for the trip. Without declaring PBC, the quote is about £550.
swinstan
in
PBC Foundation
2 years ago
Indigestion
Hi just wondering if anyone suffered indigestion while on
Urso
.
Hi just wondering if anyone suffered indigestion while on
Urso
.
Casslucy
in
PBC Foundation
2 years ago
Itching is back. gai
I was prescribed cholestyramine powder but was unable to time my doses between thyroid meds and
URSO
so I never started taking it. Instead, I will use benadryl or hydroxyzine when the hydrocortisone or ice packs don't give me the relief I need. These make me very sleepy but at least do the trick.
I was prescribed cholestyramine powder but was unable to time my doses between thyroid meds and
URSO
so I never started taking it. Instead, I will use benadryl or hydroxyzine when the hydrocortisone or ice packs don't give me the relief I need. These make me very sleepy but at least do the trick.
Godsdaughter70
in
PBC Foundation
2 years ago
How are you sleeping?
I take
Urso
, Ocaliva, Prednisone, Salagen and thyroid meds by prescription. I was taking Benadryl a couple days and it was perfect, out like a light. I read Benadryl may not be safe for long term use with liver disease/cirrhosis.
I take
Urso
, Ocaliva, Prednisone, Salagen and thyroid meds by prescription. I was taking Benadryl a couple days and it was perfect, out like a light. I read Benadryl may not be safe for long term use with liver disease/cirrhosis.
IAmTheGlue
in
PBC Foundation
2 years ago
LFT normal but AMA and ANA positive, sorry long post..
They immediately put me on
Urso
, but then said they weren't going to follow up with me at all, but said my GP can do LFTs every 12 months. My GP isn't happy about it and is sending me for a second opinion to a Hepatologist.
They immediately put me on
Urso
, but then said they weren't going to follow up with me at all, but said my GP can do LFTs every 12 months. My GP isn't happy about it and is sending me for a second opinion to a Hepatologist.
AmaraDubh
in
PBC Foundation
2 years ago
AIH/PBC with grade A cirrhosis
In the meantime, My gp prescribed
urso
that I am presently taking, 500 once a day. But my alp has never been elevated, I was doing my blood tests every year. I was wondering if anybody has experienced or has anything similar in regard to the tests and condition. And what approach was recommended.
In the meantime, My gp prescribed
urso
that I am presently taking, 500 once a day. But my alp has never been elevated, I was doing my blood tests every year. I was wondering if anybody has experienced or has anything similar in regard to the tests and condition. And what approach was recommended.
Cat1966
in
PBC Foundation
2 years ago
Urso and pain
I have been taking
urso
now for 6 months. I still get a pain almost daily in my liver area. Sometimes it's a sharp stab that makes jump and other times it's just a dull ache. I wonder to myself when it happens is my liver getting worse and its constantly on my mind.
I have been taking
urso
now for 6 months. I still get a pain almost daily in my liver area. Sometimes it's a sharp stab that makes jump and other times it's just a dull ache. I wonder to myself when it happens is my liver getting worse and its constantly on my mind.
Meeru2007
in
PBC Foundation
2 years ago
AMA negative but ANA positive
Have been on
Urso
( 2 years) but my ALP and GGT are still high!! Had biopsy and fibroscan 10.1 Specialist says I am stage 3. Now as well as
Urso
I have started on 5mg Obeticholic acid (Ocaliva) daily. Hopefully this will improve my LFT's.
Have been on
Urso
( 2 years) but my ALP and GGT are still high!! Had biopsy and fibroscan 10.1 Specialist says I am stage 3. Now as well as
Urso
I have started on 5mg Obeticholic acid (Ocaliva) daily. Hopefully this will improve my LFT's.
Liz_K
in
PBC Foundation
2 years ago
Negative then positive then Negative AMA???
My understanding is I need not only a positive AMA but elevated liver tests to be diagnosed or biopsy, but my doctor diagnosed me from the AMA and started me on
URSO
. I am so confused whether I have this disease or not.
My understanding is I need not only a positive AMA but elevated liver tests to be diagnosed or biopsy, but my doctor diagnosed me from the AMA and started me on
URSO
. I am so confused whether I have this disease or not.
Hellcat79
in
PBC Foundation
2 years ago
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