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Urso
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What if?
No time is wasted taking nothing besides their
Urso
or Ocaliva. Every patient deserves equal chance of benefiting from a new drug potentially. Any thoughts on this? The lobbying of the pharmacuetical companies is crucial for this to happen. The PBC Foundation is committed to make this happen!
No time is wasted taking nothing besides their
Urso
or Ocaliva. Every patient deserves equal chance of benefiting from a new drug potentially. Any thoughts on this? The lobbying of the pharmacuetical companies is crucial for this to happen. The PBC Foundation is committed to make this happen!
DonnaBoll
Administrator
in
PBC Foundation
3 months ago
to anyone new to the group.....
Urso
is a must drug to take. It has been proven to be the first line treatment for PBC. Take one day at a time. Maybe you are just new to this group. We are all in this together.
Urso
is a must drug to take. It has been proven to be the first line treatment for PBC. Take one day at a time. Maybe you are just new to this group. We are all in this together.
DonnaBoll
Administrator
in
PBC Foundation
14 days ago
Help confused with diagnosis of pbc
Hi just been told I have pbc refusing to belive and have been kind of trying to ignore it but can't stop worrying meant to start
urso
2 weeks ago still not started, could they get it wrong?
Hi just been told I have pbc refusing to belive and have been kind of trying to ignore it but can't stop worrying meant to start
urso
2 weeks ago still not started, could they get it wrong?
Misn
in
PBC Foundation
9 months ago
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Welcome to more of our new members
Urso
is a must drug to take. It has been proven to be the first line treatment for PBC. Take one day at a time. Maybe you are just new to this group. We are all in this together.
Urso
is a must drug to take. It has been proven to be the first line treatment for PBC. Take one day at a time. Maybe you are just new to this group. We are all in this together.
DonnaBoll
Administrator
in
PBC Foundation
2 months ago
Ursodeoxycholic Acid (UDCA)
Anyone on here involved with the trial of
Urso
, a liver drug that showed so promise to treatment of PD Drug: ursodeoxycholic acid Subjects will be provided ~50mg/kg/day (based on the use of 250 and 500mg capsules) of UDCA to be divided into 3 equal daily doses and titrated up over ~2 weeks to a stable
Anyone on here involved with the trial of
Urso
, a liver drug that showed so promise to treatment of PD Drug: ursodeoxycholic acid Subjects will be provided ~50mg/kg/day (based on the use of 250 and 500mg capsules) of UDCA to be divided into 3 equal daily doses and titrated up over ~2 weeks to a stable
Furch
in
Cure Parkinson's
7 months ago
Carvedilol and Urso bowl changes
I’ve been on cavedilol medication since May 2023 and
Urso
since 2022, up until a few weeks ago I’ve suffered a lot of dioreah which started when at the same time when when the Dr prescribed me ferris sulphate for low iron. I know this has a lot of gastric issue so stopped that a week ago.
I’ve been on cavedilol medication since May 2023 and
Urso
since 2022, up until a few weeks ago I’ve suffered a lot of dioreah which started when at the same time when when the Dr prescribed me ferris sulphate for low iron. I know this has a lot of gastric issue so stopped that a week ago.
Dexter786
in
British Liver Trust
8 months ago
Grade 3 Fatty Liver - Liver Enzymes keeps on elevating
I also have T2 Diabetes but it's completely in control ( Hba1c - 5 ) Update : After one month of rigourous training , my ALT/AST Levels are finally coming down . i stopped
Urso
acid that day only and has been completely focusing on my diet. They are fully down but down from 225/300 to 65/120
I also have T2 Diabetes but it's completely in control ( Hba1c - 5 ) Update : After one month of rigourous training , my ALT/AST Levels are finally coming down . i stopped
Urso
acid that day only and has been completely focusing on my diet. They are fully down but down from 225/300 to 65/120
Imviiku
in
Living with Fatty Liver and NASH
5 months ago
urso non responder
hi , does anyone know the criteria of being a non responder? Does the number have to be elevated by a certain amount for a period of time. What would the number have to be elevated to? Im having trouble trying to find details. Thanks for any information.
hi , does anyone know the criteria of being a non responder? Does the number have to be elevated by a certain amount for a period of time. What would the number have to be elevated to? Im having trouble trying to find details. Thanks for any information.
Samanthaann
in
PBC Foundation
9 months ago
Sore throat on urso
Hi Has anyone experienced a constant sore throat when starting
urso
? I started 3 weeks ago and have been feeling fine, but last 10 days I have had a sore throat when swallowing and I have no infection present when checked by my gp. So just wondering if anyone else has had the same. Thank you
Hi Has anyone experienced a constant sore throat when starting
urso
? I started 3 weeks ago and have been feeling fine, but last 10 days I have had a sore throat when swallowing and I have no infection present when checked by my gp. So just wondering if anyone else has had the same. Thank you
Misn
in
PBC Foundation
8 months ago
Travel insurance with PBC. UK
My liver is fine, responding well to
URSO
etc. However, finding travel insurance has been ‘interesting’. Most companies (including the ones listed on the Liver Trust site) are charging almost £2000 for 12 months for me and my husband!!
My liver is fine, responding well to
URSO
etc. However, finding travel insurance has been ‘interesting’. Most companies (including the ones listed on the Liver Trust site) are charging almost £2000 for 12 months for me and my husband!!
Jacqui0112
in
PBC Foundation
7 months ago
for some of our newer members
Urso
is a must drug to take. It has been proven to be the first line treatment for PBC. Take one day at a time. Maybe you are just new to this group. We are all in this together.
Urso
is a must drug to take. It has been proven to be the first line treatment for PBC. Take one day at a time. Maybe you are just new to this group. We are all in this together.
DonnaBoll
Administrator
in
PBC Foundation
3 months ago
interesting convo with Rheumatologist
But the interesting part of the conversation was when I kept saying “I MUST have an overlap because my fibroscan and LFTs are stable on
Urso
, but my symptoms are worse!”.
But the interesting part of the conversation was when I kept saying “I MUST have an overlap because my fibroscan and LFTs are stable on
Urso
, but my symptoms are worse!”.
CeeCee101
in
PBC Foundation
6 months ago
for our 'newest' members....
Urso
is a must drug to take. It has been proven to be the first line treatment for PBC. Take one day at a time. Maybe you are just new to this group. We are all in this together.
Urso
is a must drug to take. It has been proven to be the first line treatment for PBC. Take one day at a time. Maybe you are just new to this group. We are all in this together.
DonnaBoll
Administrator
in
PBC Foundation
2 months ago
Double Dosing Cholestyramine
Taking a double dose means staying up late to time it with
Urso
as I have to wait hours between each. My internist says I can take two cholestyramine doses at once. The packaging and everything on internet says not to do that. I'm not sure what to do.
Taking a double dose means staying up late to time it with
Urso
as I have to wait hours between each. My internist says I can take two cholestyramine doses at once. The packaging and everything on internet says not to do that. I'm not sure what to do.
Carly92
in
PBC Foundation
8 months ago
Introduction to our newer members
Urso
is a must drug to take. It has been proven to be the first line treatment for PBC. Take one day at a time. We are all in this together. The more you learn from these reputable sources then the more informed you are of the care you should be getting and deserve.
Urso
is a must drug to take. It has been proven to be the first line treatment for PBC. Take one day at a time. We are all in this together. The more you learn from these reputable sources then the more informed you are of the care you should be getting and deserve.
DonnaBoll
Administrator
in
PBC Foundation
3 months ago
to all our newly diagnosed people
Urso
is a must drug to take. It has been proven to be the first line treatment for PBC. Take one day at a time. We are all in this together. Hopefully you feel that whoever is caring for you, knows about PBC and how to treat someone with it. If this isn’t the case, we can talk about this..
Urso
is a must drug to take. It has been proven to be the first line treatment for PBC. Take one day at a time. We are all in this together. Hopefully you feel that whoever is caring for you, knows about PBC and how to treat someone with it. If this isn’t the case, we can talk about this..
DonnaBoll
Administrator
in
PBC Foundation
5 months ago
another pharma update
With patients taking
Urso
, often up to 40% do not see improvement. 3-5% of patients can't take it for various reasons. Those on Ocaliva, greater than 50% don't see an improvement. 161 people were trialed. There was a placebo group used for half of them.
With patients taking
Urso
, often up to 40% do not see improvement. 3-5% of patients can't take it for various reasons. Those on Ocaliva, greater than 50% don't see an improvement. 161 people were trialed. There was a placebo group used for half of them.
DonnaBoll
Administrator
in
PBC Foundation
3 months ago
Newly diagnosed with PBC
My question is how long does it usually take for the
Urso
to start working for PBC and stabilise your liver? Thanks for reading this far 🙂
My question is how long does it usually take for the
Urso
to start working for PBC and stabilise your liver? Thanks for reading this far 🙂
Becks880
in
PBCers Organization
8 months ago
all phos
Went on
urso
and 6 months later it dropped to 118. Today whic is 6 month later alk went back up to 146. Have not discussed with doctor yet. Has anyone else experienced the fluctuation? Thank you
Went on
urso
and 6 months later it dropped to 118. Today whic is 6 month later alk went back up to 146. Have not discussed with doctor yet. Has anyone else experienced the fluctuation? Thank you
Samanthaann
in
PBC Foundation
9 months ago
for all new members of late.....
Urso
is a must drug to take. It has been proven to be the first line treatment for PBC. Take one day at a time. We are all in this together. The more you learn from these reputable sources then the more informed you are of the care you should be getting and deserve.
Urso
is a must drug to take. It has been proven to be the first line treatment for PBC. Take one day at a time. We are all in this together. The more you learn from these reputable sources then the more informed you are of the care you should be getting and deserve.
DonnaBoll
Administrator
in
PBC Foundation
4 months ago
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