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Urso
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Muscle pain
Hi I was diagnosed with pbc in September,after second opinion am back on waiting list for biopsy re aih or fatty liver , just wonder if anyone else suffers from muscle pains ( reason for seeing gp in the first place ) pains got better after starting low dose
urso
( coincidence?
Hi I was diagnosed with pbc in September,after second opinion am back on waiting list for biopsy re aih or fatty liver , just wonder if anyone else suffers from muscle pains ( reason for seeing gp in the first place ) pains got better after starting low dose
urso
( coincidence?
Louisethew
in
PBC Foundation
7 years ago
New Member
I am taking
Urso
500. 3 pills a day wich I find a walmart drugstore ($114 for 90 pills) with a GoodRx card my Dr gave me. My liver numbers are OK, but reading you guys, I realized I need to learn from your experience. I am overweight and have osteoporosis.
I am taking
Urso
500. 3 pills a day wich I find a walmart drugstore ($114 for 90 pills) with a GoodRx card my Dr gave me. My liver numbers are OK, but reading you guys, I realized I need to learn from your experience. I am overweight and have osteoporosis.
hopereyes
in
PBC Foundation
7 years ago
Alk phos level and ezetimibe
I have just been told that at 285 my alk phos is too high and I should start another drug called ezetimibe on top of the
urso
. I have to stop breastfeeding my 15 week old as a result so I just wanted any thoughts on this prior to taking this step which I'm quite upset about.
I have just been told that at 285 my alk phos is too high and I should start another drug called ezetimibe on top of the
urso
. I have to stop breastfeeding my 15 week old as a result so I just wanted any thoughts on this prior to taking this step which I'm quite upset about.
rubyrose15415
in
PBC Foundation
7 years ago
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Just diagnosed with pbc stage 4, experiences
My dr has precribed me
urso
. Are there others who are diagnosed with pbc in such an advanced stage? En how long did you remain complication free? And did the
urso
work for you?
My dr has precribed me
urso
. Are there others who are diagnosed with pbc in such an advanced stage? En how long did you remain complication free? And did the
urso
work for you?
Suzie38
in
British Liver Trust
7 years ago
Pregnant and looking for a friend
My bile salts are elevated to 19 so the doc is starting me on
Urso
. There is a chance I have ICP, but either way they may need to induce my labor around 36 weeks. I'm terrified. Any pbcers on here that are pregnant, or had similar experience.
My bile salts are elevated to 19 so the doc is starting me on
Urso
. There is a chance I have ICP, but either way they may need to induce my labor around 36 weeks. I'm terrified. Any pbcers on here that are pregnant, or had similar experience.
Grace8888
in
PBC Foundation
7 years ago
First night with Urso
I feel increase of liver discomfort with bit of
urso
, but I did feel more energetic and happy after first dose, hmm? I felt very drowsy when I took. Hoping night 2 is better. This is strong med. can i take any antiacids for the burn and Gas-x?
I feel increase of liver discomfort with bit of
urso
, but I did feel more energetic and happy after first dose, hmm? I felt very drowsy when I took. Hoping night 2 is better. This is strong med. can i take any antiacids for the burn and Gas-x?
Pbcornot
in
PBC Foundation
7 years ago
Diagnosed with PCB stage 4 urso effective?
My specialist has given me
urso
but since my diagnosis i've read so much about PCB and almost al scientifical articles show that
urso
has no effect in the advanced stages of the disease. Are there more people who have also been diagnosed in stage 4 and with whom
urso
had a positive effect?
My specialist has given me
urso
but since my diagnosis i've read so much about PCB and almost al scientifical articles show that
urso
has no effect in the advanced stages of the disease. Are there more people who have also been diagnosed in stage 4 and with whom
urso
had a positive effect?
Suzie38
in
PBC Foundation
7 years ago
Second opinion
Have seen a different consultant today for a second opinion, he says I definitely have pbc (from blood work he believes it's early stages as levels not too high ) he will increase my
urso
in the new year ( in line with my weight ) But I definitely need a biopsy as bloods for aih are not normal and bloods
Have seen a different consultant today for a second opinion, he says I definitely have pbc (from blood work he believes it's early stages as levels not too high ) he will increase my
urso
in the new year ( in line with my weight ) But I definitely need a biopsy as bloods for aih are not normal and bloods
Louisethew
in
PBC Foundation
7 years ago
Confused how pbc diagnosis works?
Has my doc jumped the gun by prescribing me
urso
based on this. I have had chronic pain with elevated sed rate since 2002, but docs never found the cause until now, so i was labeled fibromyalgia n cfs. Are there any other conditions that can alter ama?
Has my doc jumped the gun by prescribing me
urso
based on this. I have had chronic pain with elevated sed rate since 2002, but docs never found the cause until now, so i was labeled fibromyalgia n cfs. Are there any other conditions that can alter ama?
Pbcornot
in
PBC Foundation
7 years ago
Not sure if this is good news or not
I was diagnosed with PBC in May and have been on 1000 mg of
URSO
since.Today I went in for blood work.Results in May for Alkaline Phosphatase were 200 today 154.Alt was 94 now 83.AST was 51 and now 46.My Gastrologist said he is referring me to a Hepatologist next week.He said the numbers weren't where
I was diagnosed with PBC in May and have been on 1000 mg of
URSO
since.Today I went in for blood work.Results in May for Alkaline Phosphatase were 200 today 154.Alt was 94 now 83.AST was 51 and now 46.My Gastrologist said he is referring me to a Hepatologist next week.He said the numbers weren't where
PBCTracy
in
PBC Foundation
7 years ago
Scared to take urso ama m2 90
He prescribed
urso
. I get dizzy easily and am scared of side effects. I would not take it if i didnt have such weakness n liver n digestive discomfort. I am super sensitive to meds.
He prescribed
urso
. I get dizzy easily and am scared of side effects. I would not take it if i didnt have such weakness n liver n digestive discomfort. I am super sensitive to meds.
Pbcornot
in
PBC Foundation
7 years ago
Non-responder stopped taking UCDA/Urso
Just wondered if any one else had stopped their
urso
and if so, how you got on? Thanks!
Just wondered if any one else had stopped their
urso
and if so, how you got on? Thanks!
Kateb17
in
PBC Foundation
7 years ago
GENTLEMAN IN STAGE 4, LITTLE SCARED, ASKING FOR IDEAS/INPUT
I write to a PBCer in Kentucky, 80 year old female, great, great shape for not even ever using
Urso
/Ursodiol! She is a "naturalist" (I call her that/might be a wrong term) so to speak, and offered me this to pass on to you .....
I write to a PBCer in Kentucky, 80 year old female, great, great shape for not even ever using
Urso
/Ursodiol! She is a "naturalist" (I call her that/might be a wrong term) so to speak, and offered me this to pass on to you .....
kehello
in
PBC Foundation
7 years ago
Holy Cholesterol, Batman!
I'm taking
Urso
, prednisone and Atarax.
I'm taking
Urso
, prednisone and Atarax.
IAmTheGlue
in
PBC Foundation
7 years ago
Scan results
It appears the
URSO
is working. I am thankful. Also thankful for my friends here that always have time to respond and encourage!
It appears the
URSO
is working. I am thankful. Also thankful for my friends here that always have time to respond and encourage!
Nanajo1962
in
PBC Foundation
7 years ago
DIZZINESS??
I AM ONLY TAKING
URSO
SINCE TWO MONTH AGO AND I NEVER FELT LIKE THIS. I FEEL SICK :(
I AM ONLY TAKING
URSO
SINCE TWO MONTH AGO AND I NEVER FELT LIKE THIS. I FEEL SICK :(
YADILURO
in
PBC Foundation
7 years ago
Please can anyone explain what the the numbers mean....
I am now being treated with
urso
and am patient at QE Hospital .
I am now being treated with
urso
and am patient at QE Hospital .
TOMOLLIE
in
PBC Foundation
7 years ago
Went to Dr today
So, after being diagnosed PBC/AIH overlap syndrome, my GI put me on prednisone (10mg long term) along with the
Urso
and Atarax. My last blood tests on Monday showed my levels elevated but still dropping. My bilirubin is at 6.9 now.
So, after being diagnosed PBC/AIH overlap syndrome, my GI put me on prednisone (10mg long term) along with the
Urso
and Atarax. My last blood tests on Monday showed my levels elevated but still dropping. My bilirubin is at 6.9 now.
IAmTheGlue
in
PBC Foundation
7 years ago
I am getting ready to go see my Doctor O'Konski whom I love and respect! I am going for blood work and an abdominal scan a week before my
I just keep taking my
Urso
and thinking positive! I hope my tests come back really good and my doctor has positive things to say. I do get nervous on appointment day! I guess that's normal! Love to all! Ruth
I just keep taking my
Urso
and thinking positive! I hope my tests come back really good and my doctor has positive things to say. I do get nervous on appointment day! I guess that's normal! Love to all! Ruth
2006
in
PBC Foundation
7 years ago
Ocaliva side effects does it improve?
I am
Urso
non responder stage 4 and started Ocaliva a week ago. 3 days into starting 5mg a day severe itching literally from head to soles of my feet plus feeling hot and last 4 nights slept 1 to 2 hrs per night because of the intense itching. Prior to taking Ocaliva no itching.
I am
Urso
non responder stage 4 and started Ocaliva a week ago. 3 days into starting 5mg a day severe itching literally from head to soles of my feet plus feeling hot and last 4 nights slept 1 to 2 hrs per night because of the intense itching. Prior to taking Ocaliva no itching.
AB12
in
PBC Foundation
7 years ago
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