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Urso
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Elevating alp/alk
Am I rejecting
Urso
or is it quitting on me? My alk elevated 20 points two months ago, now it’s 91 which is 10 points higher than last month. Still in range but elevating. How did you all/alk elevate when you learned that you are not responding anymore
Am I rejecting
Urso
or is it quitting on me? My alk elevated 20 points two months ago, now it’s 91 which is 10 points higher than last month. Still in range but elevating. How did you all/alk elevate when you learned that you are not responding anymore
Jennyhadenough
in
PBC Foundation
5 years ago
Encouraging fibroscan and elastography results
I’m fortunate to be an
Urso
responder but I do also take very low dose prednisolone (for another AI disease) and I’ve wondered if that helps. There’s no evidence that it does in the in the literature though, I should add.
I’m fortunate to be an
Urso
responder but I do also take very low dose prednisolone (for another AI disease) and I’ve wondered if that helps. There’s no evidence that it does in the in the literature though, I should add.
Skypony
in
PBC Foundation
5 years ago
Little White Bumps on Chest, Shoulders, Back, Arms, Jaw etc with PBC?
I have been taking
Urso
since then and I'm currently waiting for my follow up appointment to see how I am reacting to them. I keep finding little white bumps on my skin, with what seems like tiny, hard white cores.
I have been taking
Urso
since then and I'm currently waiting for my follow up appointment to see how I am reacting to them. I keep finding little white bumps on my skin, with what seems like tiny, hard white cores.
FairyFae
in
PBC Foundation
5 years ago
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Urso effects
I have been in
urso
almost a month now and I noticed my stools, sorry to be so personal, seem to now have white mucus in them . Is this normal with
urso
. Why would this happen now and not before I took meds?
I have been in
urso
almost a month now and I noticed my stools, sorry to be so personal, seem to now have white mucus in them . Is this normal with
urso
. Why would this happen now and not before I took meds?
tnchikadee
in
British Liver Trust
5 years ago
Itching & Urso?
My gp has told me to stop taking the
urso
, I’m not seeing the hepatologist til mid May. This is all new to me & I’ve had enough already. I’ve tried antihistamines & just don’t know what to do 😔
My gp has told me to stop taking the
urso
, I’m not seeing the hepatologist til mid May. This is all new to me & I’ve had enough already. I’ve tried antihistamines & just don’t know what to do 😔
Karaxxx
in
PBC Foundation
5 years ago
Urso brands
Just a query, just collected my repeat prescription for
Urso
, have been given white tablets instead of the orange Ones I’ve had recently. Also they are manufactured by 2 different companies. This will mean I have 3 different types of manufactured tabs until the orange ones are finished.
Just a query, just collected my repeat prescription for
Urso
, have been given white tablets instead of the orange Ones I’ve had recently. Also they are manufactured by 2 different companies. This will mean I have 3 different types of manufactured tabs until the orange ones are finished.
P13jne
in
PBC Foundation
5 years ago
Started Tricor
I was put on
URSO
and my LFT'S came down. About 2 years ago my numbers went way up. I have been very fortunate as I don't experience the itching or extreme fatigue. My gastroenterologist sent me to a large hospital center to see a Hepatologist.
I was put on
URSO
and my LFT'S came down. About 2 years ago my numbers went way up. I have been very fortunate as I don't experience the itching or extreme fatigue. My gastroenterologist sent me to a large hospital center to see a Hepatologist.
brjl
in
PBC Foundation
5 years ago
Urso causing hairloss! Any treatment?
I have been diagnosed by Pbc about three years ago lots hairloss which worries me so much. Are there sny treatments that can stop the hairloss?
I have been diagnosed by Pbc about three years ago lots hairloss which worries me so much. Are there sny treatments that can stop the hairloss?
oranos
in
PBC Foundation
5 years ago
Fenofibrate
My gastrointerologist is now wanting to add fenofibrate to try to bring the levels down in addition to the
Urso
and high dosage of vitamin D . Has anyone taken feni fibrate ? Thanks in advance
My gastrointerologist is now wanting to add fenofibrate to try to bring the levels down in addition to the
Urso
and high dosage of vitamin D . Has anyone taken feni fibrate ? Thanks in advance
Seybeaute
in
PBC Foundation
5 years ago
Abdominal Cramp Pain
Hi just wondering if anyone taking
Urso
has had any effects such as severe cramp/nausea and sweating half hour after eating. I’ve been on
Urso
since start of Feb 19. Possibly a coincidence but worrying. Thanks
Hi just wondering if anyone taking
Urso
has had any effects such as severe cramp/nausea and sweating half hour after eating. I’ve been on
Urso
since start of Feb 19. Possibly a coincidence but worrying. Thanks
P13jne
in
PBC Foundation
5 years ago
New brand of Urso
Hi all, I currently take 300 mg capsules of ursodiol and I usually receive an all white capsule labeled "WATSON 3159" which I tolerate with no problems. I picked up my prescription today and got a new brand. It is a light pink and white capsule labeled "LANNETT 1326". Anyone taking this and what's your
Hi all, I currently take 300 mg capsules of ursodiol and I usually receive an all white capsule labeled "WATSON 3159" which I tolerate with no problems. I picked up my prescription today and got a new brand. It is a light pink and white capsule labeled "LANNETT 1326". Anyone taking this and what's your
HealthyChik
in
PBC Foundation
5 years ago
Lab Values and Fibrosis
So very thankful that I responded to
Urso
fairly quickly as my ALP was around 200 when diagnosed. However, I still have concerns about the fibrosis continuing even with good labs. And like many others on here, I’m not 100% sure what stage I’m at, but feel like it’s early.
So very thankful that I responded to
Urso
fairly quickly as my ALP was around 200 when diagnosed. However, I still have concerns about the fibrosis continuing even with good labs. And like many others on here, I’m not 100% sure what stage I’m at, but feel like it’s early.
HealthyChik
in
PBC Foundation
5 years ago
Urso, how to take it
My consultant has just prescribed
urso
3 to be taken at night, but on the enclosed leaflet it says to take 1 3xday for the first 3 months. How do other newly diagnosed take theirs?
My consultant has just prescribed
urso
3 to be taken at night, but on the enclosed leaflet it says to take 1 3xday for the first 3 months. How do other newly diagnosed take theirs?
Spanishnan
in
PBC Foundation
5 years ago
Very stressed
The fatigue is so bad right now, and yet I have insomnia sleeping about 4 hours a night Bloods are slowly increasing bilirubin was 22, ALP - 239 ( down slightly, ) albumin -35 I’m intolerant of
URSO
so no meds. Last fibroscan was 10 Now I feel better having written this down .
The fatigue is so bad right now, and yet I have insomnia sleeping about 4 hours a night Bloods are slowly increasing bilirubin was 22, ALP - 239 ( down slightly, ) albumin -35 I’m intolerant of
URSO
so no meds. Last fibroscan was 10 Now I feel better having written this down .
Jeanb47
in
PBC Foundation
5 years ago
Hi
So, I’m thinking I might be more aih then pbc..wonder what happens if I stop
urso
🤔
So, I’m thinking I might be more aih then pbc..wonder what happens if I stop
urso
🤔
Sachin1234
in
PBC Foundation
5 years ago
New to the group but not PBC
Wasn't able to take
urso
but did well for nearly a decade. Had liver transplant in 2016 and now have (probably) recurrence. Basically I've run the gambit and going for round 2. Everyone have a great day!
Wasn't able to take
urso
but did well for nearly a decade. Had liver transplant in 2016 and now have (probably) recurrence. Basically I've run the gambit and going for round 2. Everyone have a great day!
OdinsMom
in
PBCers Organization
5 years ago
Question about elastograph ultrasound result
I'm taking the correct dose of
Urso
since November. My question is: Are there standards for kPA values that can stage the fibrosis? I read a research article that gave much higher levels.
I'm taking the correct dose of
Urso
since November. My question is: Are there standards for kPA values that can stage the fibrosis? I read a research article that gave much higher levels.
lilygrower
in
PBC Foundation
5 years ago
New
Urso
didn’t lower alp much so was discontinued. Now have very watery diarrhea for several weeks. Pain under right ribs and cramps. No gallbladder Anyone able to relate? Help
Urso
didn’t lower alp much so was discontinued. Now have very watery diarrhea for several weeks. Pain under right ribs and cramps. No gallbladder Anyone able to relate? Help
Candicelynnc
in
PBC Foundation
5 years ago
Antibiotics and blood test
Hello friends, I am with
urso
since my diagnosis 2 years ago ,have my blood test each 3 months and all was slowly being OK but in my last test my liver enzymes are rising up dramatically, also the Alcaline P and bilirrubin are slighty elevated.
Hello friends, I am with
urso
since my diagnosis 2 years ago ,have my blood test each 3 months and all was slowly being OK but in my last test my liver enzymes are rising up dramatically, also the Alcaline P and bilirrubin are slighty elevated.
Germania
in
PBC Foundation
5 years ago
Well....... Now what?
Albu... 3.5 After 30 days on 5mg Ocaliva &
URSO
My numbers aren't bad but I'm disappointed becsuse OCA didn't normalize my alk-phos. My numbers back in Oct. last year had spiked prompting my doctors to put me on Ocaliva. They took me off of my RA drug Sulfasalazine and my numbers when back down.
Albu... 3.5 After 30 days on 5mg Ocaliva &
URSO
My numbers aren't bad but I'm disappointed becsuse OCA didn't normalize my alk-phos. My numbers back in Oct. last year had spiked prompting my doctors to put me on Ocaliva. They took me off of my RA drug Sulfasalazine and my numbers when back down.
Ktltel
in
PBC Foundation
5 years ago
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