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Nubequa Failing?
I had a PSMA scan in late Nov 2021. A few bone mets and lymph nodes in abdominal area. I had been on just Eligard for 2 years. And before that Lupron and Casodex since 2011 with some vacation time in between and a year, 2017, in a clinical trial using estrodoil applied by applying to shoulders daily.
I had a PSMA scan in late Nov 2021. A few bone mets and lymph nodes in abdominal area. I had been on just Eligard for 2 years. And before that Lupron and Casodex since 2011 with some vacation time in between and a year, 2017, in a clinical trial using estrodoil applied by applying to shoulders daily.
Joey40
in
Advanced Prostate Cancer
2 years ago
Any association between rising PSA and falling T during BCR?
To recap briefly - 65YO, G9 PCa, RP in '16 followed by RT/ADT. BCR in '18...detected in pelvic LNs via PSMA clinical trial. Then RT to that region and 18 months of ADT. No treatment since that ended June '20. Undetectable PSA from Jan '19 thru Oct '21. PSA creeping up from 0.03 in Oct '21 to 0.20 in
To recap briefly - 65YO, G9 PCa, RP in '16 followed by RT/ADT. BCR in '18...detected in pelvic LNs via PSMA clinical trial. Then RT to that region and 18 months of ADT. No treatment since that ended June '20. Undetectable PSA from Jan '19 thru Oct '21. PSA creeping up from 0.03 in Oct '21 to 0.20 in
shueswim
in
Advanced Prostate Cancer
2 years ago
MY JOURNEY: COVID, EVUSHELD, PAXLOVID and CLL
I am sorry this is so long. I really wanted to document and share my journey and remind everyone to be very careful, thoughtful and educated. COVID is no joke! I was diagnosed with Chronic Lymphocytic Leukemia (CLL) in July, 2015. Started a clinical trial of Acalabrutinib (Calquence) in July, 2016 at
I am sorry this is so long. I really wanted to document and share my journey and remind everyone to be very careful, thoughtful and educated. COVID is no joke! I was diagnosed with Chronic Lymphocytic Leukemia (CLL) in July, 2015. Started a clinical trial of Acalabrutinib (Calquence) in July, 2016 at
SandiC
in
CLL Support
2 years ago
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Preventing Drug Resistance - Thinking Outside The Box - PRINT Phase 2 Study
One of the biggest challenges of PCa treatment is eventual drug resistance. I've been thinking that maybe Oncologists may have their thinking locked in a box. This is understandable as most take a conservative approach probably, recommending what is "tried and true." So to speak. So I was thinking,
One of the biggest challenges of PCa treatment is eventual drug resistance. I've been thinking that maybe Oncologists may have their thinking locked in a box. This is understandable as most take a conservative approach probably, recommending what is "tried and true." So to speak. So I was thinking,
jazj
in
Advanced Prostate Cancer
2 years ago
Clinical Trials: costs passed to the patient?
Good morning to all in the best support group team ever! Anybody out there participating in a clinical trial research study and then getting billed for part of the cost of it??? After your insurance coverage has been claimed and paid to your provider, do any of you then get billed for any remaining
Good morning to all in the best support group team ever! Anybody out there participating in a clinical trial research study and then getting billed for part of the cost of it??? After your insurance coverage has been claimed and paid to your provider, do any of you then get billed for any remaining
pollymacchili
in
SHARE Metastatic Breast Cancer
2 years ago
Is a Clinical Trial Right for You?
Hi, Have you ever considered participating in a clinical trial? Join CLL Society on Monday, May 16 at 11am PT / 2pm ET for our webinar: Is a Clinical Trial Right for You? Dr. Adrian Wiestner from the NIH and RN Kennard from U PENN will detail the benefits and risks of participating in a clinical trial
Hi, Have you ever considered participating in a clinical trial? Join CLL Society on Monday, May 16 at 11am PT / 2pm ET for our webinar: Is a Clinical Trial Right for You? Dr. Adrian Wiestner from the NIH and RN Kennard from U PENN will detail the benefits and risks of participating in a clinical trial
bkoffman
CLL CURE Hero
in
CLL Support
2 years ago
Mixed news for flavonoids.
New meta-analysis below [1]. The flavonoid family (Anthocyanidins, Anthoxanthins, Flavanones, Flavanonols, Flavans, & Isoflavonoids) include members that have hormone-like properties. "This meta-analysis was aimed to explore the association between flavonoids intake and {hormone-related cancer} HRC
New meta-analysis below [1]. The flavonoid family (Anthocyanidins, Anthoxanthins, Flavanones, Flavanonols, Flavans, & Isoflavonoids) include members that have hormone-like properties. "This meta-analysis was aimed to explore the association between flavonoids intake and {hormone-related cancer} HRC
pjoshea13
in
Advanced Prostate Cancer
2 years ago
Why I Choose an Unproven Treatment
It is a rainy stormy day in Perth, Western Australia, called the "most remote city in the world". I arrived here yesterday with more than 30 hours of travel from Oregon USA. Tomorrow I will get my first infusion of Lutetium 177-PSMA (mAb)-J591. An experimental and unproven new form of radioactive ligand
It is a rainy stormy day in Perth, Western Australia, called the "most remote city in the world". I arrived here yesterday with more than 30 hours of travel from Oregon USA. Tomorrow I will get my first infusion of Lutetium 177-PSMA (mAb)-J591. An experimental and unproven new form of radioactive ligand
MateoBeach
in
Fight Prostate Cancer
2 years ago
Why I Choose an Unproven Treatment
It is a rainy stormy day in Perth, Western Australia, called the "most remote city in the world". I arrived here yesterday with more than 30 hours of travel from Oregon USA. Tomorrow I will get my first infusion of Lutetium 177-PSMA (mAb)-J591. An experimental and unproven new form of radioactive ligand
It is a rainy stormy day in Perth, Western Australia, called the "most remote city in the world". I arrived here yesterday with more than 30 hours of travel from Oregon USA. Tomorrow I will get my first infusion of Lutetium 177-PSMA (mAb)-J591. An experimental and unproven new form of radioactive ligand
MateoBeach
in
Advanced Prostate Cancer
2 years ago
We have reached castrate resistance...what to do next?
I have been following this forum for a couple of years now, and have learned so much from all of you. But this is my first time to post...I knew this time would eventually come, but somehow it still caught me off guard. Dad is now 75; he was diagnosed with stage IV metastatic prostate cancer December
I have been following this forum for a couple of years now, and have learned so much from all of you. But this is my first time to post...I knew this time would eventually come, but somehow it still caught me off guard. Dad is now 75; he was diagnosed with stage IV metastatic prostate cancer December
Bmvg02
in
Advanced Prostate Cancer
2 years ago
Rank Neutraceuticals / Off-Label Drugs By Most Likely Most Beneficial
I'm curious about the opinions of members here on how they would currently rank Neutraceutical and off-label use drugs in order of highest benefit potential (most confirming clinical trial evidence combined with actual therapeutic or synergistic therapeutic effect) in slowing/stopping PCa progression
I'm curious about the opinions of members here on how they would currently rank Neutraceutical and off-label use drugs in order of highest benefit potential (most confirming clinical trial evidence combined with actual therapeutic or synergistic therapeutic effect) in slowing/stopping PCa progression
jazj
in
Advanced Prostate Cancer
2 years ago
From S of PD. Could all the benefit of B1 be the placebo affect? I think it's time for me to switch to benfotiamine instead.
"So it doesn’t look like there is a strong association between low thiamine levels and PD." "The (Costantini) researchers proposed that “the motor and non-motor symptoms of PD could derive from a chronic thiamine deficiency” in specific regions of the brain. And by increasing in thiamine levels in these
"So it doesn’t look like there is a strong association between low thiamine levels and PD." "The (Costantini) researchers proposed that “the motor and non-motor symptoms of PD could derive from a chronic thiamine deficiency” in specific regions of the brain. And by increasing in thiamine levels in these
MBAnderson
in
Cure Parkinson's
2 years ago
A phase 3 clinical trial found ultra-high dose methylcobalamin slowed functional decline in patients with early-stage ALS
A phase 3 clinical trial found ultra-high dose methylcobalamin slowed functional decline in patients with early-stage amyotrophic lateral sclerosis. https://ja.ma/3L1hd6C
Question
Does twice-weekly intramuscular injection of 50-mg ultrahigh-dose methylcobalamin slow clinical progression in
A phase 3 clinical trial found ultra-high dose methylcobalamin slowed functional decline in patients with early-stage amyotrophic lateral sclerosis. https://ja.ma/3L1hd6C
Question
Does twice-weekly intramuscular injection of 50-mg ultrahigh-dose methylcobalamin slow clinical progression in
Hidden
in
Cure Parkinson's
2 years ago
The 2022 update on the pipeline of Parkinsons drug therapies in the clinical trial
https://content.iospress.com/articles/journal-of-parkinsons-disease/jpd229002
https://content.iospress.com/articles/journal-of-parkinsons-disease/jpd229002
Hidden
in
Cure Parkinson's
2 years ago
Aspen Neuroscience announces $147.5M financing to fund trials of the company’s 1st iPSC-derived autologous dopamine neuron replacement
WOW! @McdevittDamien Aspen Neuroscience colleagues announces $147.5M (!!!) in Series B financing to help fund clinical trials of the company’s 1st iPSC-derived autologous dopamine neuron replacement for #Parkinsons https://twitter.com/ScienceofPD/status/1523790152941723649 https://aspenneuroscience.com
WOW! @McdevittDamien Aspen Neuroscience colleagues announces $147.5M (!!!) in Series B financing to help fund clinical trials of the company’s 1st iPSC-derived autologous dopamine neuron replacement for #Parkinsons https://twitter.com/ScienceofPD/status/1523790152941723649 https://aspenneuroscience.com
Hidden
in
Cure Parkinson's
2 years ago
Continuing intermittent ADT? or more?
I appreciate having learned much following this site. 74 year old, very active, runner, hiker, retired ER RN, married, sexually active Brief long hx: Diagnosed 2001 PSA 3.2 (high velocity), RP Gleason 3+4, one nerve spared, negative margins and nodes. 2015 BCR, 2016 salvage radiation to bed for
I appreciate having learned much following this site. 74 year old, very active, runner, hiker, retired ER RN, married, sexually active Brief long hx: Diagnosed 2001 PSA 3.2 (high velocity), RP Gleason 3+4, one nerve spared, negative margins and nodes. 2015 BCR, 2016 salvage radiation to bed for
whitebird
in
Advanced Prostate Cancer
2 years ago
The Journey continues
Ten months ago after trying Docetaxel, Xtandi and just 2 cycles of Jevtana all since 2019, our oncologist said the only thing left to do was a clinical trial. We were referred to another cancer center that was a NCI center as the clinic we were at was not. A clinical trial was begun last August. Progress
Ten months ago after trying Docetaxel, Xtandi and just 2 cycles of Jevtana all since 2019, our oncologist said the only thing left to do was a clinical trial. We were referred to another cancer center that was a NCI center as the clinic we were at was not. A clinical trial was begun last August. Progress
Presby
in
Advanced Prostate Cancer
2 years ago
Dr. A Espay - "The missing ingredient for successful disease modification in Parkinson’s". On Zoom at 7.30 pm London time on May 30.
I am delighted to announce our next zoom session that will be taking place at 7.30 pm London time on Monday, the 30th of May. We will have the pleasure of listening to Dr. Alberto Espay who will talk to us about “Matching therapies to people with the biology to benefit from them: the missing ingredient
I am delighted to announce our next zoom session that will be taking place at 7.30 pm London time on Monday, the 30th of May. We will have the pleasure of listening to Dr. Alberto Espay who will talk to us about “Matching therapies to people with the biology to benefit from them: the missing ingredient
Michel0220
in
Cure Parkinson's
2 years ago
How Big Pharma and the Cost of Phase III clinical trials results in needless delays and deaths !!!
Greetings FPC amigos, I guess this article has been simmering inside me for a bit and I just had to let it go... As you are all aware, I follow promising drugs under development in treating PCa and I thought you should know what has happened to some of them and why they have not marched on to Phase III
Greetings FPC amigos, I guess this article has been simmering inside me for a bit and I just had to let it go... As you are all aware, I follow promising drugs under development in treating PCa and I thought you should know what has happened to some of them and why they have not marched on to Phase III
NPfisherman
in
Fight Prostate Cancer
2 years ago
Press releaseEvusheld approved to prevent COVID-19 in people whose immune response is poor
The decision to grant approval for this treatment was endorsed by the government’s independent expert scientific advisory body, the Commission on Human Medicines, after carefully reviewing the evidence. A new medicine, Evusheld (tixagevimab/cilgavimab), has today been authorised for COVID-19 prevention
The decision to grant approval for this treatment was endorsed by the government’s independent expert scientific advisory body, the Commission on Human Medicines, after carefully reviewing the evidence. A new medicine, Evusheld (tixagevimab/cilgavimab), has today been authorised for COVID-19 prevention
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
2 years ago
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