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Finally finished prednisolone.
Hi all, after just over 7.5 years I've finally managed to stop pred. It's been a very long and slow reduction with the inevitable hiccups along the way. I ended up on 0.5mg every 2 days and finished last week, with no ill effects that I'm aware of. The last PMR symptoms I had were in 2020. What I'd like
Hi all, after just over 7.5 years I've finally managed to stop pred. It's been a very long and slow reduction with the inevitable hiccups along the way. I ended up on 0.5mg every 2 days and finished last week, with no ill effects that I'm aware of. The last PMR symptoms I had were in 2020. What I'd like
Amstel
in
PMRGCAuk
6 months ago
Advice on egg freezing and hysterectomy for severely heavy bleeding
Hi everyone, I'm doing a little bit of research so I can take a huge stack of notes to my next gynaecology appointment, and wondered if anyone was able to share their experiences. I'm looking at potentially freezing some of my eggs, as I have endometriomas. I'm still undecided as to whether I want children
Hi everyone, I'm doing a little bit of research so I can take a huge stack of notes to my next gynaecology appointment, and wondered if anyone was able to share their experiences. I'm looking at potentially freezing some of my eggs, as I have endometriomas. I'm still undecided as to whether I want children
GrouchoSparx
in
Endometriosis UK
6 months ago
Private Dexa Scan
I have been on 40mg pred for 3 weeks for positive GCA.I have agreed to take weekly alendronic acid as advised by my rheumatologist, and took my first dose yesterday. I asked him about having a dexa scan. He says he will arrange a dexa scan when/if I am off steroids, which he says may be in 1 - 1.5
I have been on 40mg pred for 3 weeks for positive GCA.I have agreed to take weekly alendronic acid as advised by my rheumatologist, and took my first dose yesterday. I asked him about having a dexa scan. He says he will arrange a dexa scan when/if I am off steroids, which he says may be in 1 - 1.5
kalgoorlie
in
PMRGCAuk
6 months ago
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Alendronic Acid
Hi. I've been taking Alendronic Acid for 5.5 years with no problems. Now I'm told I need a treatment break for 2 years. Why would this be? I'm on Letrozole since March 2018 and have been having bone scans every 2 years since 2020.
Hi. I've been taking Alendronic Acid for 5.5 years with no problems. Now I'm told I need a treatment break for 2 years. Why would this be? I'm on Letrozole since March 2018 and have been having bone scans every 2 years since 2020.
Walkingwizard
in
PMRGCAuk
6 months ago
NAC and Alpha Lipoic Acid
hi, I have been reading about NAC and Alpha Lipoic Acid for egg n sperm health. Has anyone take these supplements and seen improved outcomes? Can I take these without consulting my clinic? Please let me know. Thank you x
hi, I have been reading about NAC and Alpha Lipoic Acid for egg n sperm health. Has anyone take these supplements and seen improved outcomes? Can I take these without consulting my clinic? Please let me know. Thank you x
Shwet_16
in
Fertility Network UK
6 months ago
Grade 3 Fatty Liver - Liver Enzymes keeps on elevating
Last month I was diagnosed with grade 3 fatty liver through an ultrasound. I am 27 & extremely obese ( BMI - 33 ) . Just before that I had a drug reaction which led to short term Hemolytic Anemia and Jaundice . At that time everything on my LFT was elevated . It's been 40 days everything else on my LFT
Last month I was diagnosed with grade 3 fatty liver through an ultrasound. I am 27 & extremely obese ( BMI - 33 ) . Just before that I had a drug reaction which led to short term Hemolytic Anemia and Jaundice . At that time everything on my LFT was elevated . It's been 40 days everything else on my LFT
Imviiku
in
Living with Fatty Liver and NASH
6 months ago
GCA confirmed after Ear pain
Just to let you know that the result of my temporal artery biopsy has been confirmed as positive today. I had the biopsy on monday, just 3.5 weeks after initially going to the GP with earache. I am amazed actually as it was a result of knowledge on this forum that prompted me to go back to my GP, after
Just to let you know that the result of my temporal artery biopsy has been confirmed as positive today. I had the biopsy on monday, just 3.5 weeks after initially going to the GP with earache. I am amazed actually as it was a result of knowledge on this forum that prompted me to go back to my GP, after
kalgoorlie
in
PMRGCAuk
6 months ago
Alendronic Acid and Methotrexate
I've had PMR for about two years. All symptoms vanished completely as soon as I was put on Prednisolone (15mg per day), but I had a bad experience with trying to reduce, as advised by both GPs and my rheumatologist, by large cliff-edge steps--from 15mg to 12.5mg, then 10mg, all in a very few weeks.
I've had PMR for about two years. All symptoms vanished completely as soon as I was put on Prednisolone (15mg per day), but I had a bad experience with trying to reduce, as advised by both GPs and my rheumatologist, by large cliff-edge steps--from 15mg to 12.5mg, then 10mg, all in a very few weeks.
PressBarVet
in
PMRGCAuk
6 months ago
Osteoporosis
I had PMR from 2016-2019. Took Alendronic Acic for about 6 weeks but stopped because it was affecting my throat. Had bone density scan around 2017 which showed some osteoporosis and some osteopenia (record has been lost due to GP/house move). I was offered an Infusion of AA which I had in 2017/2018.
I had PMR from 2016-2019. Took Alendronic Acic for about 6 weeks but stopped because it was affecting my throat. Had bone density scan around 2017 which showed some osteoporosis and some osteopenia (record has been lost due to GP/house move). I was offered an Infusion of AA which I had in 2017/2018.
Urtica
in
PMRGCAuk
6 months ago
Alendronic acid
I’ve just achieved the slow taper down to 3mg and am feeling fine. But I’m just wondering about how long to stay on the AA for. (I’m taking into account the trauma of snapping a tooth off last night (a front one) when biting into a square of chocolate and not being able to see a dentist until Wednesday
I’ve just achieved the slow taper down to 3mg and am feeling fine. But I’m just wondering about how long to stay on the AA for. (I’m taking into account the trauma of snapping a tooth off last night (a front one) when biting into a square of chocolate and not being able to see a dentist until Wednesday
Doraflora
in
PMRGCAuk
6 months ago
Alendronic acid
Hello So I’ve had another telephone consultation from the latest GP saying my bloods are fine (not raised) 🙄 yes I know!! I’m tapering myself DDS and on 12.5mgs at present . I was initially diagnosed Dec 21 - and had got down to 9mg but Nov 22 had a flare and had to go back up to 15mgs - I’ve now been
Hello So I’ve had another telephone consultation from the latest GP saying my bloods are fine (not raised) 🙄 yes I know!! I’m tapering myself DDS and on 12.5mgs at present . I was initially diagnosed Dec 21 - and had got down to 9mg but Nov 22 had a flare and had to go back up to 15mgs - I’ve now been
Mercat
in
PMRGCAuk
6 months ago
severe osteoporosis and op drugs
is there people on here with L5 t12 who don't take any op drugs and take the risks of fractures, when I was dx I was told I must have zoledronic acid infusion to help me followed by prolia, I thought I was doomed unless I had treatment, I asked for another dexa scan before my 2nd infusion on the 25th
is there people on here with L5 t12 who don't take any op drugs and take the risks of fractures, when I was dx I was told I must have zoledronic acid infusion to help me followed by prolia, I thought I was doomed unless I had treatment, I asked for another dexa scan before my 2nd infusion on the 25th
Radars
in
Bone Health and Osteoporosis UK
6 months ago
Update: Tooth Extraction delayed because of risks while on Alendronic Acid
my dentist now informs me that having digitised my tooth X-ray and reconsidered, it could be saved with root canal treatment by a specialist, cost £800 to £1000, starting with a consult of £100. Alternatively I could proceed with extraction, however he will not do it, he would refer me to an NHS hospital
my dentist now informs me that having digitised my tooth X-ray and reconsidered, it could be saved with root canal treatment by a specialist, cost £800 to £1000, starting with a consult of £100. Alternatively I could proceed with extraction, however he will not do it, he would refer me to an NHS hospital
Thiago1396
in
PMRGCAuk
6 months ago
Revisiting the Zoledronic acid pros & cons
Hi folks, I was offered zoledronic acid two years ago and was so freaked out by possible side effects that I declined. At the time I was at a much lower dose of Pred and naively thought I would be off it by now, that my calcium absorption would return to normal and I'd be able to rebuild my bones naturally
Hi folks, I was offered zoledronic acid two years ago and was so freaked out by possible side effects that I declined. At the time I was at a much lower dose of Pred and naively thought I would be off it by now, that my calcium absorption would return to normal and I'd be able to rebuild my bones naturally
strawclutching
in
PMRGCAuk
6 months ago
worst fears seem to be coming true.
Dear friends, I posted on here in March 2021 asking your advice as to whether I should even start on Teriparatide worrying about rebound fractures afterwards because I was told there was no other drug that I could safely take. The 2 years on Teriparatide ( Forsteo) passed far too quickly but interrupted
Dear friends, I posted on here in March 2021 asking your advice as to whether I should even start on Teriparatide worrying about rebound fractures afterwards because I was told there was no other drug that I could safely take. The 2 years on Teriparatide ( Forsteo) passed far too quickly but interrupted
Angelicspirit
in
Bone Health and Osteoporosis UK
6 months ago
Drug combinations
Hi all, I wonder if anyone on the forum is taking both Thyroxine and Alendronic Acid (AA)? I am taking a cocktail of drugs, as so many of us are, but have put off taking AA since diagnosed with PMR in 2022 - cannot believe where those 2 years went... I've been on Thyroxine (150 mcg/daily) for nigh
Hi all, I wonder if anyone on the forum is taking both Thyroxine and Alendronic Acid (AA)? I am taking a cocktail of drugs, as so many of us are, but have put off taking AA since diagnosed with PMR in 2022 - cannot believe where those 2 years went... I've been on Thyroxine (150 mcg/daily) for nigh
tempusfugi
in
PMRGCAuk
6 months ago
Tooth Extraction delayed because of risks while on Alendronic Acid
Went for a molar tooth extraction yesterday. It had cracked at the side of an old filling and extraction is the only option. When I told the Dentist I was on Riveroxyban, Steroids and Alendronic Acid, he immediately told me that my extraction will have to be delayed for at least several months while
Went for a molar tooth extraction yesterday. It had cracked at the side of an old filling and extraction is the only option. When I told the Dentist I was on Riveroxyban, Steroids and Alendronic Acid, he immediately told me that my extraction will have to be delayed for at least several months while
Thiago1396
in
PMRGCAuk
6 months ago
Well at least that’s one less thing to worry about.
I’m so pleased to learn that my recent dexa scan after seven years of prednisolone is normal and unchanged from three years ago. Not being a pill popper before diagnosis I have struggled to take the calcium and Vit D supplement and Alendronic Acid which were prescribed as routine by my GP. A dexa scan
I’m so pleased to learn that my recent dexa scan after seven years of prednisolone is normal and unchanged from three years ago. Not being a pill popper before diagnosis I have struggled to take the calcium and Vit D supplement and Alendronic Acid which were prescribed as routine by my GP. A dexa scan
Zebedee44
in
PMRGCAuk
6 months ago
Exciting!
CymaBay Submits New Drug Application to FDA for Seladelpar for the Treatment of Primary Biliary Cholangitis December 15, 2023 8:00am EST Download as PDF - NDA is supported by data evaluating seladelpar efficacy and safety in over 500 patients - - Seladelpar is the first New Drug Application from
CymaBay Submits New Drug Application to FDA for Seladelpar for the Treatment of Primary Biliary Cholangitis December 15, 2023 8:00am EST Download as PDF - NDA is supported by data evaluating seladelpar efficacy and safety in over 500 patients - - Seladelpar is the first New Drug Application from
DonnaBoll
Administrator
in
PBC Foundation
6 months ago
is everyone else not getting diagnosed or much treatment?
I’ve had severe period pain for years, when I wasn’t taking painkiller in time I would be sick and feel faint. I have tried paracetamol and ibuprofen in the pad which did nothing. I took naproxen 500mg which used to completely block my pain but now only stops it being severe. More recently I’ve been
I’ve had severe period pain for years, when I wasn’t taking painkiller in time I would be sick and feel faint. I have tried paracetamol and ibuprofen in the pad which did nothing. I took naproxen 500mg which used to completely block my pain but now only stops it being severe. More recently I’ve been
pinkie25
in
Endometriosis UK
7 months ago
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