Search
Search
About
Log in
Join
Experiences with
Tocilizumab
Posts
Communities
687 public posts
Filter results
Availability of Tocilizumab [TCZ] on NHS
The original NICE gidance on
Tocilizumab
, TA518, was to be reviewed in 2021. Has that review taken place? Have there been any indications that the 1 year max treatment with TCZ on the NHS will be extended?
The original NICE gidance on
Tocilizumab
, TA518, was to be reviewed in 2021. Has that review taken place? Have there been any indications that the 1 year max treatment with TCZ on the NHS will be extended?
GCA-TCZ
in
PMRGCAuk
2 years ago
New member, but not new to RA
Had to take Ledertrexate / Methotrexate and when that did not help, I was cleared to get 4-weekly IV's of Roactemra /
Tocilizumab
(in combination with weekly Ledertrexate / Methotrexate).
Had to take Ledertrexate / Methotrexate and when that did not help, I was cleared to get 4-weekly IV's of Roactemra /
Tocilizumab
(in combination with weekly Ledertrexate / Methotrexate).
Hidden
in
NRAS
2 years ago
Advice please
Surely pred below the magic number is less harmful in the long and short term than
Tocilizumab
?
Surely pred below the magic number is less harmful in the long and short term than
Tocilizumab
?
Mahler2
in
PMRGCAuk
2 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
What next?
Anybody know what date in March
tocilizumab
stops please? I finished Pred. in October and I haven't been informed what's happening, I haven't got a phone appt. so wandered if anyone knew. Thanks.
Anybody know what date in March
tocilizumab
stops please? I finished Pred. in October and I haven't been informed what's happening, I haven't got a phone appt. so wandered if anyone knew. Thanks.
lindyloy
in
PMRGCAuk
2 years ago
Pred sick day rules.
I also wonder if I should omit taking the
Tocilizumab
this week. Any guidance please.
I also wonder if I should omit taking the
Tocilizumab
this week. Any guidance please.
PastelsinArt
in
PMRGCAuk
2 years ago
Fourth vaccination ( booster)
I am due my Biologic
Tocilizumab
over the weekend and the walk in Clinic is tomorrow morning. Any thoughts welcome, thanks.
I am due my Biologic
Tocilizumab
over the weekend and the walk in Clinic is tomorrow morning. Any thoughts welcome, thanks.
Mouseling
in
NRAS
2 years ago
My PMR and GCA story so far...
However, I am intrigued by the mention of a new drug,
Tocilizumab
(TCZ), which seems to have been effective for others with PMR/GCA, and if I am having a flare up then I may suggest to my GP that I'd be willing to try the new drug instead of increasing the Prednisolone. Wish me luck!
However, I am intrigued by the mention of a new drug,
Tocilizumab
(TCZ), which seems to have been effective for others with PMR/GCA, and if I am having a flare up then I may suggest to my GP that I'd be willing to try the new drug instead of increasing the Prednisolone. Wish me luck!
MiniSpec
in
PMRGCAuk
1 year ago
Time to take a BiTE? Bispecific T-Cell Engagers (BiTEs)
Treatment for severe CRS is primarily
tocilizumab
which is used for covid patients and those receiving CAR-T to dampen the process. Of course Tociizumab has its own side effects which need to be considered.
Treatment for severe CRS is primarily
tocilizumab
which is used for covid patients and those receiving CAR-T to dampen the process. Of course Tociizumab has its own side effects which need to be considered.
Jm954
Administrator
in
CLL Support
2 years ago
Tocilizumab
Just tested positive for COVID, I am on
tocilizumab
and just finished a course of steroids. I'm dreading the week ahead. My colleagues have been quite poorly with it. Is anyone else on
tocilizumab
and had COVID x
Just tested positive for COVID, I am on
tocilizumab
and just finished a course of steroids. I'm dreading the week ahead. My colleagues have been quite poorly with it. Is anyone else on
tocilizumab
and had COVID x
Hidden
in
NRAS
2 years ago
TCZ question
Does anyone know for how long
tocilizumab
is effective in the system? I can’t find an answer and am wondering, since I have started spacing my TCZ jabs quite considerably. Might be that I don’t need to do this if it only lasts a finite time.
Does anyone know for how long
tocilizumab
is effective in the system? I can’t find an answer and am wondering, since I have started spacing my TCZ jabs quite considerably. Might be that I don’t need to do this if it only lasts a finite time.
LemonZest11
in
PMRGCAuk
2 years ago
JCVI advice recommending a fourth Covid jab for LVV-GCA patients on Tocilizumab?
I have been on (self-injected) Ro Actemra (
Tocilizumab
) since July 2019 for LVV-GCA, and it enabled me to cease all other medications (mainly the dreadful Prednisolone) over the course of the first 9 months.( All of my blood results have been totally normal from 2 weeks after starting
Tocilizumab
and
I have been on (self-injected) Ro Actemra (
Tocilizumab
) since July 2019 for LVV-GCA, and it enabled me to cease all other medications (mainly the dreadful Prednisolone) over the course of the first 9 months.( All of my blood results have been totally normal from 2 weeks after starting
Tocilizumab
and
Suzita76
in
PMRGCAuk
2 years ago
Can I quote you?
Hey experts … PMRpro, DorsetLady et al, My local Member of Parliament has just visited me to get information to put to our Federal Health Minister in an attempt to get an exemption so that I can have my allocation of
tocilizumab
extended, or indeed get the drug made available as it is for RA.
Hey experts … PMRpro, DorsetLady et al, My local Member of Parliament has just visited me to get information to put to our Federal Health Minister in an attempt to get an exemption so that I can have my allocation of
tocilizumab
extended, or indeed get the drug made available as it is for RA.
LemonZest11
in
PMRGCAuk
2 years ago
CD19 CAR-T cell therapy for B-ALL achieved remarkable efficacy with a complete remission of 70–90%
Our center also reported that the levels of CRP, serum ferritin, and D-dimer are associated with severe CRS, and their reduced levels indicate a promising response to
tocilizumab
or corticosteroids (79).
Our center also reported that the levels of CRP, serum ferritin, and D-dimer are associated with severe CRS, and their reduced levels indicate a promising response to
tocilizumab
or corticosteroids (79).
Scout4answers
in
Advanced Prostate Cancer
2 years ago
Blood Results - low neutrophils and low WBC
She was concerned because my neutrophils are now 1.5 and my WBC is 3.8 (or 3.6 - can't remember 🤔) She suggested that I call my clinical nurse to ask what I need to do regarding my
Tocilizumab
and Metoject injections.
She was concerned because my neutrophils are now 1.5 and my WBC is 3.8 (or 3.6 - can't remember 🤔) She suggested that I call my clinical nurse to ask what I need to do regarding my
Tocilizumab
and Metoject injections.
Moomin8
in
NRAS
2 years ago
Tocilizumab, Metoject/booster vaccine/possible positive
However, I wanted to ask: has anyone taking
Tocilizumab
has a third vaccine and/or booster? If so, did you do your
Tocilizumab
injection? I'm due my booster tomorrow and my
Tocilizumab
injection is due today. My Metoject injection is due Saturday. I'm not sure whether to do my injections this week.
However, I wanted to ask: has anyone taking
Tocilizumab
has a third vaccine and/or booster? If so, did you do your
Tocilizumab
injection? I'm due my booster tomorrow and my
Tocilizumab
injection is due today. My Metoject injection is due Saturday. I'm not sure whether to do my injections this week.
Moomin8
in
NRAS
2 years ago
Actrema (tocilizumab) and bladder infection
Hi everyone, I had my first infusion of Actrema this week. The infusion went fine but several hours later I started to get symptoms of a urinary tract infection and ended up with a bad UTI. The doctor put me on an antiobiotic while we wait for the culture results and that has helped. I very rarely get
Hi everyone, I had my first infusion of Actrema this week. The infusion went fine but several hours later I started to get symptoms of a urinary tract infection and ended up with a bad UTI. The doctor put me on an antiobiotic while we wait for the culture results and that has helped. I very rarely get
Charkha
in
PMRGCAuk
2 years ago
Unfortunate News precipitated by rare side effect of Docetaxl
During this time, he was also administered with
tocilizumab
(a drug given to patients experiencing respiratory failure following covid) and septran (a strong antibiotic) and ganciclovir (anti-viral drug), none of which helped him.
During this time, he was also administered with
tocilizumab
(a drug given to patients experiencing respiratory failure following covid) and septran (a strong antibiotic) and ganciclovir (anti-viral drug), none of which helped him.
doklam2017
in
Advanced Prostate Cancer
2 years ago
Tapering symptoms
I started
Tocilizumab
10 weeks ago but not sure it is working and due to start Methotrexate this week in addition.
I started
Tocilizumab
10 weeks ago but not sure it is working and due to start Methotrexate this week in addition.
Graciejack4
in
PMRGCAuk
2 years ago
My RA is nearly always one-sided
I am having my 3rd infusion in 9 months on Wednesday (
Tocilizumab
). This is due to starting/stopping due to neutrophils dropping. They have said that if this happens again I will be starting yet another biologic.
I am having my 3rd infusion in 9 months on Wednesday (
Tocilizumab
). This is due to starting/stopping due to neutrophils dropping. They have said that if this happens again I will be starting yet another biologic.
tazman3
in
NRAS
2 years ago
Covid.
I am on Methotrexate, Prednisolone, Hydrocortisone and
Tocilizumab
yet despite that lot throwing the gates wide open in terms of having any immune defence they are some of the best at preventing Cytokine storms that kill people.
I am on Methotrexate, Prednisolone, Hydrocortisone and
Tocilizumab
yet despite that lot throwing the gates wide open in terms of having any immune defence they are some of the best at preventing Cytokine storms that kill people.
AncientMariner
in
PMRGCAuk
2 years ago
1
...
8
9
10
...
35
Next page
10
20
30
Filter results
Clear filters
Posted in
All communities
NRAS
335 results
PMRGCAuk
283 results
Vasculitis UK
20 results
View top 10 communities
Sort by
Most Relevant
Newest