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Members' magazine NewsWire published this week
There's a super useful article on tapering steroids (thank you to PMRPro for writing that), Dr Sarah Mackie answers a members question, latest research, a member's experience of
Tocilizumab
...and much more.
There's a super useful article on tapering steroids (thank you to PMRPro for writing that), Dr Sarah Mackie answers a members question, latest research, a member's experience of
Tocilizumab
...and much more.
Fran_Benson
Partner
in
PMRGCAuk
4 years ago
Tocilizumab injection vs infusion
I was on
tocilizumab
infusions until last month but was switched to injections because of COVID. Have any of you found the injections don’t work as well as infusions? I’ve found I am getting flare ups now and I’ve done the injection for two weeks but the infusions I didn’t have a flare up at all.
I was on
tocilizumab
infusions until last month but was switched to injections because of COVID. Have any of you found the injections don’t work as well as infusions? I’ve found I am getting flare ups now and I’ve done the injection for two weeks but the infusions I didn’t have a flare up at all.
PM193
in
NRAS
4 years ago
Repurposed drug shows promise for treating COVID-19 inflammation.
The team initially gave the drug,
tocilizumab
, to the most severely ill COVID-19 patients — specifically, those experiencing a dangerous immune response known as a “cytokine storm” — and it appeared to improve survival rates, especially among patients requiring mechanical ventilation.
The team initially gave the drug,
tocilizumab
, to the most severely ill COVID-19 patients — specifically, those experiencing a dangerous immune response known as a “cytokine storm” — and it appeared to improve survival rates, especially among patients requiring mechanical ventilation.
2greys
in
Lung Conditions Community Forum
4 years ago
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tocilizumab
I’ve just spoken to Rheumatologist and they are suggesting that I try
tocilizumab
injection. How affective have people found this drug and what kind of side effects have you experienced? How often do you take it? Always worried before starting something new but my arthritis has flared up again.
I’ve just spoken to Rheumatologist and they are suggesting that I try
tocilizumab
injection. How affective have people found this drug and what kind of side effects have you experienced? How often do you take it? Always worried before starting something new but my arthritis has flared up again.
Flowers2020
in
NRAS
4 years ago
Sweet's Syndrome UK Day
Intravenous
TOCILIZUMAB
, a biologic, was given once. This is a drug that works by blocking INTERLEUKIN 6 (IL-6), a protein and CYTOKINE that is part of the body’s inflammatory and immune processes. Too much IL-6 can cause inflammation and tissue damage (see notes).
Intravenous
TOCILIZUMAB
, a biologic, was given once. This is a drug that works by blocking INTERLEUKIN 6 (IL-6), a protein and CYTOKINE that is part of the body’s inflammatory and immune processes. Too much IL-6 can cause inflammation and tissue damage (see notes).
Shell567
Sweet's Syndrome UK
in
Sweet's Syndrome UK
4 years ago
New Meds
Hi everyone, hope you are all feeling well, its been a long time since i was on here, but today my Consultant is changing my injection to
Tocilizumab
, to start in 2 weeks, just wondered if anyone else is on this and how they are finding it. Thank you, stay safe.
Hi everyone, hope you are all feeling well, its been a long time since i was on here, but today my Consultant is changing my injection to
Tocilizumab
, to start in 2 weeks, just wondered if anyone else is on this and how they are finding it. Thank you, stay safe.
nellysgran
in
NRAS
4 years ago
Hello peeps :)
Thanks for your good wishes for Friday, when I had my first dose of
Tocilizumab
.
Thanks for your good wishes for Friday, when I had my first dose of
Tocilizumab
.
Cookiecrumb
in
NRAS
4 years ago
Tocilizumab
I have GCA and was fortunate to have one year of
Tocilizumab
as per NICE guidelines. I was wondering if anyone would like to share their experience? Thank you
I have GCA and was fortunate to have one year of
Tocilizumab
as per NICE guidelines. I was wondering if anyone would like to share their experience? Thank you
DAW28
in
PMRGCAuk
4 years ago
Advice?
She proposed 3 medications to use for the future:
Tocilizumab
, Methotrexate or Hydrochloraquoin (sp?). I am interested in the latter, however I need an eye exam and the eye doctors are not yet receiving patients due to Covid. Any comments on these 3 meds???
She proposed 3 medications to use for the future:
Tocilizumab
, Methotrexate or Hydrochloraquoin (sp?). I am interested in the latter, however I need an eye exam and the eye doctors are not yet receiving patients due to Covid. Any comments on these 3 meds???
DianneRose409
in
PMRGCAuk
4 years ago
Pred , tocilizumab and methotrexate Anyone on all 3 together??
Hi I have LVV , struggled to get inflammation down with pred , then methotrexate added , still no improvement.Tocilizumab added last November, first improvement seen after 3rd weekly injection. Wanting to know has anyone else been treated with all 3 together? I wanted to stop the methotrexate but consultant
Hi I have LVV , struggled to get inflammation down with pred , then methotrexate added , still no improvement.Tocilizumab added last November, first improvement seen after 3rd weekly injection. Wanting to know has anyone else been treated with all 3 together? I wanted to stop the methotrexate but consultant
Devoid
in
Vasculitis UK
4 years ago
Restart of Tocilizumab
Been 10 weeks tomorrow since my last infusion. Rheumatologist said to postpone during the covid19 pandemic. I now have appt for Wednesday morning. My joints have been killing me for around 5 weeks now. I am still advised not to go the hospital lab for bloodwork, not sure what to make of that, going for
Been 10 weeks tomorrow since my last infusion. Rheumatologist said to postpone during the covid19 pandemic. I now have appt for Wednesday morning. My joints have been killing me for around 5 weeks now. I am still advised not to go the hospital lab for bloodwork, not sure what to make of that, going for
dwsurquhart
in
NRAS
4 years ago
Advice please
Hi, been offered my usual
Tocilizumab
by self administering pen subcutaneously instead of my monthly ones at hospital due to covid. Anyone have experience of this form of delivery please?
Hi, been offered my usual
Tocilizumab
by self administering pen subcutaneously instead of my monthly ones at hospital due to covid. Anyone have experience of this form of delivery please?
tamnwill
in
NRAS
4 years ago
Covid-19: rough morning
I worked for a biotech company that is making a monoclonal antibody cocktail vaccine/cure for this virus, as well as an IL6 inhibitor similar to
tocilizumab
. I was heavily involved in the IL6 inhibitor, not the cocktail.
I worked for a biotech company that is making a monoclonal antibody cocktail vaccine/cure for this virus, as well as an IL6 inhibitor similar to
tocilizumab
. I was heavily involved in the IL6 inhibitor, not the cocktail.
Angelssavepoppy
in
ICUsteps
4 years ago
Thoughts on Covid
Perhaps a more interesting drug is
Tocilizumab
which targets the cytokine inflammatory response.
Perhaps a more interesting drug is
Tocilizumab
which targets the cytokine inflammatory response.
Paul123456
in
MPN Voice
4 years ago
Blurred vision - alternatives to Tocilizumab
She has recently complained about blurred vision which is a known side effect of
Tocilizumab
. She is now wondering whether to go back onto the steroids as blurred 50% vision is making her feel worse about herself. She is also wondering if there are any alternatives to
Tocilizumab
".
She has recently complained about blurred vision which is a known side effect of
Tocilizumab
. She is now wondering whether to go back onto the steroids as blurred 50% vision is making her feel worse about herself. She is also wondering if there are any alternatives to
Tocilizumab
".
Skinnyjonny
in
PMRGCAuk
4 years ago
Tocilizumab
I’m taking
Tocilizumab
on a weekly basis, and have been reading about the research on this drug. Roche, the manufacturer, has been testing it on severe Covid 19 patients, with excellent results. Therefore I am currently feeling that , maybe, I am less likely to contract the disease.
I’m taking
Tocilizumab
on a weekly basis, and have been reading about the research on this drug. Roche, the manufacturer, has been testing it on severe Covid 19 patients, with excellent results. Therefore I am currently feeling that , maybe, I am less likely to contract the disease.
MrsChips
in
PMRGCAuk
4 years ago
Tocilizumab may be Helpful for the Cytokine Storm if our Immune Systems over react to COVID19
The case report, described in an upcoming paper in Annals of Oncology, joins dozens of accounts from Italy and China, all indicating that
tocilizumab
might be an effective antidote to the coronavirus in some people.
The case report, described in an upcoming paper in Annals of Oncology, joins dozens of accounts from Italy and China, all indicating that
tocilizumab
might be an effective antidote to the coronavirus in some people.
Jm954
Administrator
in
CLL Support
4 years ago
Not old yet still vulnerable
I take the
tocilizumab
biologic to treat my arthritis so I’m now classed as vulnerable. I live on my own and have been WFH last week. I went shopping early the Other day at the vulnerable time however I got some very bad looks as people think I’m fine as I don’t look vunerable.
I take the
tocilizumab
biologic to treat my arthritis so I’m now classed as vulnerable. I live on my own and have been WFH last week. I went shopping early the Other day at the vulnerable time however I got some very bad looks as people think I’m fine as I don’t look vunerable.
Golden87
in
NRAS
4 years ago
COVID-19 pandemic, the Global Rheumatology Alliance
Clinical trials of potential treatments for COVID-19, including antimalarials,
tocilizumab
, Janus kinase inhibitors, IL-1 inhibitors, IL-6 inhibitors, intravenous immunoglobulin and leflunomide, are progressing.
REFERENCE
Philip C. Robinson, Jinoos Yazdany.
Clinical trials of potential treatments for COVID-19, including antimalarials,
tocilizumab
, Janus kinase inhibitors, IL-1 inhibitors, IL-6 inhibitors, intravenous immunoglobulin and leflunomide, are progressing.
REFERENCE
Philip C. Robinson, Jinoos Yazdany.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
4 years ago
Tocilizumab and Covid19
Doctors in southern Italy have been supplied with stocks of
tocilizumab
/Actemra to trial in Covid19 patients. It had shown good results in China - but there are so many poor quality trials that the Chinese are unable to get recruits for further work.
Doctors in southern Italy have been supplied with stocks of
tocilizumab
/Actemra to trial in Covid19 patients. It had shown good results in China - but there are so many poor quality trials that the Chinese are unable to get recruits for further work.
PMRpro
Ambassador
in
PMRGCAuk
4 years ago
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