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Please Join Us! Tuesday January 9th, Gathering HOPE Community Social
Hello, Happy New Year! For those of you who know me and to those of you I may not have spoken with or met yet, I am Michele Zeh, Manager of the Lung Cancer Living Room Series and I am excited to invite you to our monthly Gathering HOPE Social hosted on our ZOOM link. This Tuesday, January 9th, at 5pm
Hello, Happy New Year! For those of you who know me and to those of you I may not have spoken with or met yet, I am Michele Zeh, Manager of the Lung Cancer Living Room Series and I am excited to invite you to our monthly Gathering HOPE Social hosted on our ZOOM link. This Tuesday, January 9th, at 5pm
Michelezeh
Partner
in
Lung Cancer Support
7 months ago
My dad has CLL with TP53 mutation
As i am writing this im very frightened And i need someone with similar condition My dad was diagnosed back in 2019 With CLL he did about 3 sessions of chemotherapy and went back to remission Lately in January he noticed some lymph nodes in his neck as well as in his face After examination
As i am writing this im very frightened And i need someone with similar condition My dad was diagnosed back in 2019 With CLL he did about 3 sessions of chemotherapy and went back to remission Lately in January he noticed some lymph nodes in his neck as well as in his face After examination
Ornate2001
in
CLL Support
4 months ago
Next step..
Gleason 9, s/practice RP. PSA UP to 0.2 8 months later. PSMA showed 4 hot spots all in pelvis. Started on zytiga and lupron same time as radiation started. PSA has remained < 0.04 for 17 months now. Considering the aggressive nature of my cancer, should I insist on a scan even when PSA <0.04 or
Gleason 9, s/practice RP. PSA UP to 0.2 8 months later. PSMA showed 4 hot spots all in pelvis. Started on zytiga and lupron same time as radiation started. PSA has remained < 0.04 for 17 months now. Considering the aggressive nature of my cancer, should I insist on a scan even when PSA <0.04 or
rfgh20
in
Advanced Prostate Cancer
7 months ago
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PSA Rising and MRI Negative
My husband PSA has been rising after Prostatectomy. A recent PET Scan showed cancer cells in the Prostate bed, but the MRI didn't pick-up any disease. The Oncologist is checking labs, and will start my husband on HT.Question for the group. Why would PET scan pick-up cancer cells, and not the MRI?
My husband PSA has been rising after Prostatectomy. A recent PET Scan showed cancer cells in the Prostate bed, but the MRI didn't pick-up any disease. The Oncologist is checking labs, and will start my husband on HT.Question for the group. Why would PET scan pick-up cancer cells, and not the MRI?
Inquisitive_one
in
Advanced Prostate Cancer
7 months ago
how to reduce testosterone after orchiectomy
NOTE : An orchiectomy is a surgical procedure to remove one or both testicles. Posting here to learn from others. Questions is How to reduce testosterone after Orchiectomy ?
NOTE : An orchiectomy is a surgical procedure to remove one or both testicles. Posting here to learn from others. Questions is How to reduce testosterone after Orchiectomy ?
God_Loves_Me
in
Advanced Prostate Cancer
4 months ago
Sudden increase of PSA...
My PSA numbers after 3 years of Lupron were steady at 0.2...then last month it went to 13....My oncologist has ordered tests but i am worried...Has anyone experienced a similar rise...?
My PSA numbers after 3 years of Lupron were steady at 0.2...then last month it went to 13....My oncologist has ordered tests but i am worried...Has anyone experienced a similar rise...?
Max24
in
Advanced Prostate Cancer
7 months ago
Support in your local community.
The day all treatment ended and I was released to begin life without the benefit of seeing my radiation oncologist or the infusion nurse on a weekly basis was a scary day. The idea that it would be three months before I saw anyone again left me overwhelmed. Finding web boards like these and in person
The day all treatment ended and I was released to begin life without the benefit of seeing my radiation oncologist or the infusion nurse on a weekly basis was a scary day. The idea that it would be three months before I saw anyone again left me overwhelmed. Finding web boards like these and in person
Denzie
Volunteer
in
Lung Cancer Support
4 months ago
Just saying hello as a new member
I was just recently diagnosed with MBC in January 2024 but no stranger to breast cancer as I had already had a tangle with (what I was assured was a very low risk) breast cancer back in 2014 and underwent surgery for a lumpectomy and a subsequent regimen of 6 1/2 weeks of m-f radiation. I thought all
I was just recently diagnosed with MBC in January 2024 but no stranger to breast cancer as I had already had a tangle with (what I was assured was a very low risk) breast cancer back in 2014 and underwent surgery for a lumpectomy and a subsequent regimen of 6 1/2 weeks of m-f radiation. I thought all
CatLoverinthe206
in
SHARE Metastatic Breast Cancer
4 months ago
What category of Intermediate Risk Am I?
I am trying to make a decision regarding HT with RT. I am 78. I have CKD 3b, and a solitary kidney. I am 6.5 years in remission from UTUC kidney cancer. A number of papers indicate that HT could be detrimental to my kidney. Those with FIR PCa could avoid HT with little risk. The following is defined
I am trying to make a decision regarding HT with RT. I am 78. I have CKD 3b, and a solitary kidney. I am 6.5 years in remission from UTUC kidney cancer. A number of papers indicate that HT could be detrimental to my kidney. Those with FIR PCa could avoid HT with little risk. The following is defined
Nordman
in
Advanced Prostate Cancer
6 months ago
Cabazitaxel or Phase 1 drug trial
Never posted on here before but I have a dilemma? RP 2008, Bicalutimide 2008 until 2019, Enzalutamide 2019 - 2022, Zoladex 3 monthly implant 2019 ongoing. Phase 1 drug trial at Royal Marsden in London Jan 2023 - June 2023 (failed). Doxetaxel August 2023 - November 2023 - but gave up after 5 infusion
Never posted on here before but I have a dilemma? RP 2008, Bicalutimide 2008 until 2019, Enzalutamide 2019 - 2022, Zoladex 3 monthly implant 2019 ongoing. Phase 1 drug trial at Royal Marsden in London Jan 2023 - June 2023 (failed). Doxetaxel August 2023 - November 2023 - but gave up after 5 infusion
Petertanner
in
Advanced Prostate Cancer
7 months ago
Improved Outcomes Using Biomarker-Guided Therapy Selection for Metastatic Prostate Cancer
ProBio trial uses biomarkers to help designing an individual treatment strategy https://www.urotoday.com/video-lectures/mcrpc-treatment/video/mediaitem/3789-probio-trial-demonstrates-improved-outcomes-using-biomarker-guided-therapy-selection-for-metastatic-prostate-cancer-henrik-groenberg.html
ProBio trial uses biomarkers to help designing an individual treatment strategy https://www.urotoday.com/video-lectures/mcrpc-treatment/video/mediaitem/3789-probio-trial-demonstrates-improved-outcomes-using-biomarker-guided-therapy-selection-for-metastatic-prostate-cancer-henrik-groenberg.html
Maxone73
in
Advanced Prostate Cancer
7 months ago
Pulmonary metastasectomy anyone?
HI , I am (almost) 60 years old and have ER+ her- metastatic breast cancer. My cancer returned after first being diagnosed 12 years . I have several tumours in my right lung. I have been stable on ibrance and letrozole for 2 years (hoping and praying for this good quality of life to continue). I
HI , I am (almost) 60 years old and have ER+ her- metastatic breast cancer. My cancer returned after first being diagnosed 12 years . I have several tumours in my right lung. I have been stable on ibrance and letrozole for 2 years (hoping and praying for this good quality of life to continue). I
Kahe
in
SHARE Metastatic Breast Cancer
4 months ago
Update Castrate Resistant Metastatic Cancer
My metastatic prostate cancer was diagnosed castrate resistant on November 1 with PSA of 0.8, which was doubling in about two months while on Lupron. On November 10 I started Abiraterone + prednisone. By December 1 my PSA dropped to 0.44 in 22 days on Abiraterone. In the next 35 days it went down to
My metastatic prostate cancer was diagnosed castrate resistant on November 1 with PSA of 0.8, which was doubling in about two months while on Lupron. On November 10 I started Abiraterone + prednisone. By December 1 my PSA dropped to 0.44 in 22 days on Abiraterone. In the next 35 days it went down to
dac500
in
Advanced Prostate Cancer
8 months ago
New Developments in My Husband's PCA Journey
Hello, I wanted to provide an update on my husband's progression and, hopefully, some of you may have some knowledge to share or have a similar profile. His psa has risen from <0.04 since RP for Stage 3b to 0.06 in 9/23. A recheck a week later showed a rise to 0.1. This was followed by a drop to <.04
Hello, I wanted to provide an update on my husband's progression and, hopefully, some of you may have some knowledge to share or have a similar profile. His psa has risen from <0.04 since RP for Stage 3b to 0.06 in 9/23. A recheck a week later showed a rise to 0.1. This was followed by a drop to <.04
103532
in
Advanced Prostate Cancer
8 months ago
Bladder Cancer Update and More. UPDATE.
Back in January I was diagnosed with problems with my spine as below. "x rays shows OA throughout loss lumbar lordosis" I posted at the time being my spine is affected, would that affect me being able to have a spinal (Epidural) when I have a Cystoscopy? I said at the time I would consult my GP and
Back in January I was diagnosed with problems with my spine as below. "x rays shows OA throughout loss lumbar lordosis" I posted at the time being my spine is affected, would that affect me being able to have a spinal (Epidural) when I have a Cystoscopy? I said at the time I would consult my GP and
Ern007
in
Lung Conditions Community Forum
4 months ago
Fulvestrant side effects and updates
After 4yrs of silence and no medications against my oncologist advice, my breast cancer is back. Atleast I was spared from horrible side effects for those times. My 2023 January Ct scan showed mets again in mu lungs, liver and some other areas. It progressed slowly as I was going through so much financial
After 4yrs of silence and no medications against my oncologist advice, my breast cancer is back. Atleast I was spared from horrible side effects for those times. My 2023 January Ct scan showed mets again in mu lungs, liver and some other areas. It progressed slowly as I was going through so much financial
JonaC38
in
SHARE Metastatic Breast Cancer
4 months ago
Appointment update
Well guys, I've had my appointment today at the head and neck cancer clinic.I do not have head & neck cancer on my lungs I have lung cancer of various types in miniscule sizes that are causing me no problems at the moment. I will have 3 monthly ct scan 2 see if they grow if not have anything done, if
Well guys, I've had my appointment today at the head and neck cancer clinic.I do not have head & neck cancer on my lungs I have lung cancer of various types in miniscule sizes that are causing me no problems at the moment. I will have 3 monthly ct scan 2 see if they grow if not have anything done, if
Mindini1964
in
The Roy Castle Lung Cancer Foundation
8 months ago
Thank you for all the support and bye for now
Warning this is very long and contains some sensitive information that might be triggering for some. Hello lovely people, hope you are all coping ok and having a comfortable day. I have been quite active on here for a few months telling my story of living with endo since I was very
Warning this is very long and contains some sensitive information that might be triggering for some. Hello lovely people, hope you are all coping ok and having a comfortable day. I have been quite active on here for a few months telling my story of living with endo since I was very
Poppyg16
in
Endometriosis UK
4 months ago
Any updates on the 2019 Italian work on CRISPR-CAS9 that anyone knows about?
I am referring to this article: Targeting Interleukin(IL)-30/IL-27p28 signaling in cancer stem-like cells and host environment synergistically inhibits prostate cancer growth and improves survival https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6670138/ https://www.labiotech.eu/trends-news/crispr-deletion-interleukin
I am referring to this article: Targeting Interleukin(IL)-30/IL-27p28 signaling in cancer stem-like cells and host environment synergistically inhibits prostate cancer growth and improves survival https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6670138/ https://www.labiotech.eu/trends-news/crispr-deletion-interleukin
PCreader
in
Advanced Prostate Cancer
8 months ago
Please suggest "must read" articles for men diagnosed with an advanced stage of prostate cancer
If your prostate cancer knowledge seeking includes reading peer-reviewed articles, please suggest "must read" articles for men diagnosed with an advanced stage of prostate cancer and perhaps for their family members, too.
If your prostate cancer knowledge seeking includes reading peer-reviewed articles, please suggest "must read" articles for men diagnosed with an advanced stage of prostate cancer and perhaps for their family members, too.
Darryl
Partner
in
Advanced Prostate Cancer
8 months ago
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