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Sweet's syndrome
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Weaning off high dose Pramipexole
I have had RLS since the 1970s. Some years ago I had augmentation. At the time I was taking the maximum recommended dose of Pramipexole, .75mg. My neurologist addressed it by a pramipexole vacation and prescribed carbidopa levodopa for 3 months. Seemed odd as it is a dopamine drug but it worked
I have had RLS since the 1970s. Some years ago I had augmentation. At the time I was taking the maximum recommended dose of Pramipexole, .75mg. My neurologist addressed it by a pramipexole vacation and prescribed carbidopa levodopa for 3 months. Seemed odd as it is a dopamine drug but it worked
lessergoldfinch
in
Restless Legs Syndrome
1 year ago
Going off Horizont help
The 600mg Horizont started causing the same alerting that the pregabalin and gabapentin had so my very understanding primary care doctor suggested clonodine. Started last night, while staying on the 600mg Horizont and had a good night, so the plan was to reduce the Horizont to 300mg for 4 days and then
The 600mg Horizont started causing the same alerting that the pregabalin and gabapentin had so my very understanding primary care doctor suggested clonodine. Started last night, while staying on the 600mg Horizont and had a good night, so the plan was to reduce the Horizont to 300mg for 4 days and then
wantokporo
in
Restless Legs Syndrome
1 year ago
22pagents22
Dear everyone is it just me or the media and government talking about economically inactive people feel they are talking about disabled people in chronic pain etc getting the persecution again with pip renewal awards cut or refused and being told nothing wrong with you go get a job etc ie 2014 change
Dear everyone is it just me or the media and government talking about economically inactive people feel they are talking about disabled people in chronic pain etc getting the persecution again with pip renewal awards cut or refused and being told nothing wrong with you go get a job etc ie 2014 change
22pagets22
in
Fibromyalgia Action UK
1 year ago
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Oxycodone
Hello everyone & especially Sue & Jules. I have now had 4 blissful months sleep on 10mg of Oxycodone.I have now successfully reduced my gabapentin from 2,100 to 1,500mg. But am now starting to get one breakthrough session of rls a night & am worried it will get worse. Should I stop reducing the gabapentin
Hello everyone & especially Sue & Jules. I have now had 4 blissful months sleep on 10mg of Oxycodone.I have now successfully reduced my gabapentin from 2,100 to 1,500mg. But am now starting to get one breakthrough session of rls a night & am worried it will get worse. Should I stop reducing the gabapentin
Simkin
in
Restless Legs Syndrome
1 year ago
Hypothetical question re Pramipexole
Just hypothetically. if I had no symptoms of RLS at age 50 what is the probability of my developing the disease at age 60 or 70? If at age 50 with no symptoms I started to take a regular dose of pramipexole for some other reason what is the probability having a reaction that would appear to fit
Just hypothetically. if I had no symptoms of RLS at age 50 what is the probability of my developing the disease at age 60 or 70? If at age 50 with no symptoms I started to take a regular dose of pramipexole for some other reason what is the probability having a reaction that would appear to fit
Graham3196
in
Restless Legs Syndrome
1 year ago
magnesium
I’ve been a RLS sufferer since 2006. I am on (4 x 1mg) and Gabapentin (7 x 300mg) daily. I fully sympathise with anyone who suffers from this debilitating condition. There have been times I’ve not wanted to be here. There is only so much you can cope with! Recently I heard that Magnesium was good for
I’ve been a RLS sufferer since 2006. I am on (4 x 1mg) and Gabapentin (7 x 300mg) daily. I fully sympathise with anyone who suffers from this debilitating condition. There have been times I’ve not wanted to be here. There is only so much you can cope with! Recently I heard that Magnesium was good for
RLSKaren
in
Restless Legs Syndrome
1 year ago
Ropinirole reduction
Hi fellow sufferers, I have had rls for almost 25 years, began during my second pregnancy. I have been switching from Ropinirole and Pramipexole for the majority of this time. I am now suffer with augmentation, there is never the right time to wean yourself off, but know I just have to do it before
Hi fellow sufferers, I have had rls for almost 25 years, began during my second pregnancy. I have been switching from Ropinirole and Pramipexole for the majority of this time. I am now suffer with augmentation, there is never the right time to wean yourself off, but know I just have to do it before
21years
in
Restless Legs Syndrome
1 year ago
Me again
Hi all, Hope everyone is as well as can be 😊 Still not sure if I'm posting in the right place but you guys have always been so helpful 💕 Found out this week that the lip biopsy I had done did not have any sjorgrens syndrome showing which is what they were initially looking for, however the new rheumatologist
Hi all, Hope everyone is as well as can be 😊 Still not sure if I'm posting in the right place but you guys have always been so helpful 💕 Found out this week that the lip biopsy I had done did not have any sjorgrens syndrome showing which is what they were initially looking for, however the new rheumatologist
Haylz2109
in
LUPUS UK
1 year ago
A wonderful GP
I started seeing a new GP who started work in my local GP practice just before covid and she has been Marvellous, she's from South Africa and really listens to me and I've told her about the advice I've been getting here and she said that she is going to look further into buprenorphine being used here
I started seeing a new GP who started work in my local GP practice just before covid and she has been Marvellous, she's from South Africa and really listens to me and I've told her about the advice I've been getting here and she said that she is going to look further into buprenorphine being used here
Loopylegs
in
Restless Legs Syndrome
1 year ago
HELP PLEASE
HELP PLEASE -Following your advice, Sue Johnson I have been reducing my Ropinirole and am now down to 1.5 mg. from the original 4 mg. per day. I was in hospital for 2 1/2 days on May2nd for successful bowel cancer surgery and this did not worsen my RLS. However I returned home yesterday after a further
HELP PLEASE -Following your advice, Sue Johnson I have been reducing my Ropinirole and am now down to 1.5 mg. from the original 4 mg. per day. I was in hospital for 2 1/2 days on May2nd for successful bowel cancer surgery and this did not worsen my RLS. However I returned home yesterday after a further
milly-22
in
Restless Legs Syndrome
1 year ago
Methadone adjustment/Horizant
Just started methadone 1.5 mL. I have a lot of trouble with drug side effects. After years on pregabalin more or less successfully treating my PLMD, it started making me nervous/anxious so I tried Tylenol #2 which made me very nervous and now I am trying the methadone. Years ago I tried 5mg of methadone
Just started methadone 1.5 mL. I have a lot of trouble with drug side effects. After years on pregabalin more or less successfully treating my PLMD, it started making me nervous/anxious so I tried Tylenol #2 which made me very nervous and now I am trying the methadone. Years ago I tried 5mg of methadone
wantokporo
in
Restless Legs Syndrome
1 year ago
Buprenorphine and nausea
I will be switching from methadone to buprenorphine. How common is nausea as a side effect? Does it go away over time? My doctor gave me 60 anti-nausea pills, but insurance hasn't approved my switch to buprenorphine yet. Just wondering what to anticipate. I asked to change because of some cognitive
I will be switching from methadone to buprenorphine. How common is nausea as a side effect? Does it go away over time? My doctor gave me 60 anti-nausea pills, but insurance hasn't approved my switch to buprenorphine yet. Just wondering what to anticipate. I asked to change because of some cognitive
ratfancy
in
Restless Legs Syndrome
1 year ago
Long Covid
I have had RLS for decades and have had more help on this site from wonderful people than from any medical person. Currently I take Methadone 15 mg daily which gives me about 5 hours of broken sleep per night. I can live with it as its the best I have had for decades. I wonder if some Marijuana would
I have had RLS for decades and have had more help on this site from wonderful people than from any medical person. Currently I take Methadone 15 mg daily which gives me about 5 hours of broken sleep per night. I can live with it as its the best I have had for decades. I wonder if some Marijuana would
wairoa36
in
Restless Legs Syndrome
1 year ago
systemic sclerosis
Does anyone suffer from terrible heat in veins and arteries(skin) yet raynaud's at the same time? But can also be shaking with cold inside - if that makes sense! I have Sjogren's and Systemic sclerosis but all the Doctors ignore the intolerable symptom of hot and cold I suffer
Does anyone suffer from terrible heat in veins and arteries(skin) yet raynaud's at the same time? But can also be shaking with cold inside - if that makes sense! I have Sjogren's and Systemic sclerosis but all the Doctors ignore the intolerable symptom of hot and cold I suffer
sessull
in
Scleroderma & Raynaud's UK (SRUK)
1 year ago
Maple Syrup
Does anyone else get RLS from 100% pure Maple Syrup? I mean 100% as stated on the label. I have experienced restlessness quite a few times after having it in a night time soothing drink. It was to replace cheap "pouring honey" which I was trying to replace with a healthier option. Would like to get
Does anyone else get RLS from 100% pure Maple Syrup? I mean 100% as stated on the label. I have experienced restlessness quite a few times after having it in a night time soothing drink. It was to replace cheap "pouring honey" which I was trying to replace with a healthier option. Would like to get
Madlegs1
in
Restless Legs Syndrome
1 year ago
Help!
Hello, everyone, I've an appointment to see my doctor tomorrow and would like to know what strength of buprenorphine helps rls? I'm not doing so good, rls back with a vengeance, had to go back on the hrt gel as I found my rls was way worse after stopping it, I'm crawling all over, day and night since
Hello, everyone, I've an appointment to see my doctor tomorrow and would like to know what strength of buprenorphine helps rls? I'm not doing so good, rls back with a vengeance, had to go back on the hrt gel as I found my rls was way worse after stopping it, I'm crawling all over, day and night since
Loopylegs
in
Restless Legs Syndrome
1 year ago
Withdrawals from Pramipexole.
Hi everyone i had been taking one .088mgs pramipexole for approx 3 years plus one or two 8/500 cocodamol at night it’s never been perfect as my tolerance to meds is lowi can’t take high doses. Recently i have had 3 nights and days of meds not working and out this down to the pramipexole and augmentation
Hi everyone i had been taking one .088mgs pramipexole for approx 3 years plus one or two 8/500 cocodamol at night it’s never been perfect as my tolerance to meds is lowi can’t take high doses. Recently i have had 3 nights and days of meds not working and out this down to the pramipexole and augmentation
Hidden
in
Restless Legs Syndrome
1 year ago
APNEA v RLS - something else
I have recently been diagnosed with Sleep Apnea & have been given a CPAP machine to use but it seems the drugs I take for RLS (Oxycodone & Gabapentin) are conflicting with the efficacy of the CPAP kit and not bring down my incidence of AHI during the night. The consultant has asked me to row back
I have recently been diagnosed with Sleep Apnea & have been given a CPAP machine to use but it seems the drugs I take for RLS (Oxycodone & Gabapentin) are conflicting with the efficacy of the CPAP kit and not bring down my incidence of AHI during the night. The consultant has asked me to row back
joepublic
in
Restless Legs Syndrome
1 year ago
Horizant
After pregabalin and gabapentin both made me nervous (I successfully tolerated the pregabalin for years, with daytime sedation however). Codeine also seems to be waking me up instead of sedating me. Doctor is suggesting trying Horizant. I know it is for people who experience symptoms all day, but
After pregabalin and gabapentin both made me nervous (I successfully tolerated the pregabalin for years, with daytime sedation however). Codeine also seems to be waking me up instead of sedating me. Doctor is suggesting trying Horizant. I know it is for people who experience symptoms all day, but
wantokporo
in
Restless Legs Syndrome
1 year ago
ropinerole withdrawal
I have had restless legs for most of my life. The restless legs are out of control now so my GP put me on ropinerole 4 mg a day to begin with and them upped it 8 mg a day. That’s making me have funny feelings, like I’m buzzed or high but I’m not. So I went to a neurologist and he has started taking me
I have had restless legs for most of my life. The restless legs are out of control now so my GP put me on ropinerole 4 mg a day to begin with and them upped it 8 mg a day. That’s making me have funny feelings, like I’m buzzed or high but I’m not. So I went to a neurologist and he has started taking me
wyomingquilter
in
Restless Legs Syndrome
1 year ago
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