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28 public communities
PBC Foundation
9,463 members
The PBC Foundation hosts this community to provide support and information to those affected by Primary Biliary Cholangitis - an autoimmune condition that affects the liver. The PBC Foundation is the UK's only, and world's largest, organisation that specifically deals with PBC with registered service users in over 84 countries. We lead the world in PBC in advocacy, support and in providing services such as self-management tools, of which this forum is just one. If you wish to become a registered service user with the PBC Foundation, please visit our website www.pbcfoundation.org.uk and follow the registration process or alternatively please call our office +44 131 556 6811 and we can send out our registration pack free of charge. The current benefits of membership include: ~ free interactive self-management App ~ exclusive content on website, including videos ~ quarterly magazine full of the latest PBC news, including news of upcoming trials, latest research, etc
PBCers Organization
1,443 members
PBCers Organization is a community dedicated to providing reliable primary biliary cholangitis (PBC) information and offer support to its members. Topics discussed include symptoms, medication, diet, personal experiences, transplant and anything else PBC related.
Borders Pain Management
170 members
We are a peer support group specifically for individuals affected by Chronic Pain within the Scottish Borders. We offer support and advice to those diagnosed with Chronic Pain as well as carers, family, friends, employers and health care professionals. We actively encourage members to post their questions to get support from others in a similar position and to feel less isolated.
Chronic Myofascial Pain
504 members
We have set up this community in order to provide support for anyone suffering from Chronic Myofascial Pain (CMP); to provide and share information about all things fascia related; to raise awareness about CMP, and fascia in general; and to bring together patients and professionals working in the field, to create a united front to campaign for better understanding of fascia and for better treatment models for CPS.
Australian Pain Management Association
344 members
APMA is a health promotion charity providing advocacy, information and practical support for people living with persistent (chronic) pain and their families. APMA is the consumer health organisation for all Australians who live with persistent pain. APMA is your voice. APMA provides advice, assistance and advocacy, and works with governments, health clinicians and researchers to deliver evidence-based pain management services and ameliorate the personal and economic impact for people living with severe pain.
Thyroid UK
140,262 members
The Thyroid UK community is for anyone with diagnosed or undiagnosed underactive or overactive thyroid disease. Thyroid UK is a charity that supports people with thyroid disease and related disorders. We support people by informing them of various aspects of thyroid health and testing as well as other conditions such as adrenal deficiency, vitamin and mineral deficiencies and genetics that affect thyroid function. Your health journey is unique. HealthUnlocked can help you identify your unmet thyroid health needs allowing you to ask for the most appropriate support so that you can improve your health outcome in a way that is personalised to you by taking the Needs Assessment survey. Simply click on your profile picture and select "Your needs". The survey will take no longer than 3 minutes to complete and you can retake the assessment multiple times (up to once a month) giving you a tangible way to measure improvements in your health.
Epilepsy Australia
173 members
Epilepsy Australia is the national coalition of Australian Epilepsy Associations raising our voices as one to advance the cause of all Australians living with epilepsy. Actively delivering counseling, support and information to all who access our services, Epilepsy Australia is committed to raising awareness and understanding of the very real issues faced by those living with epilepsy. The unpredictable nature of seizures can force people to stay at home, fearful of a seizure occurring in public. Would you know what to do if you saw someone having a seizure? A goal of Epilepsy Australia is for every household in Australia to be seizure aware. Our challenge is to build on the success of our Seizure First Aid Awareness Campaign where more than 20,000 Seizure First Aid Kits were delivered to households Australia-wide.
Epilepsy New Zealand
87 members
We support those throughout New Zealand living with epilepsy.
Epilepsy South Africa
744 members
We are the only national organisation in South Africa dedicated to improving the quality of life of persons with and affected by epilepsy. Our approach is firmly based on the United Nations Convention on the Rights of Persons with Disabilities (UN CRPD).
Above & Beyond - Mental Health
5,479 members
Above & Beyond (previously Journeys) is a community whose sole purpose is to offer support and understanding to people affected by mental health conditions, their friends, families and carers.
Parkinson's New Zealand
1,030 members
Parkinson's New Zealand provides information, education and support to people with Parkinsonism conditions, their families, carers and health professionals.
Epilepsy Research Institute
2,343 members
Epilepsy Research UK is the only national organisation exclusively dedicated to funding research into all areas of epilepsy. Epilepsy can be a very debilitating condition that leaves many people feeling isolated, so we set up this community to provide a forum for people to share their experiences. Whilst we cannot provide specific medical advice, we hope that you will be able to find answers to some of your questions about epilepsy here.
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