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Hashimoto's and CT scan with Iodine Containing Contrast Materials
I had a CT scan in August. No one warned me that this would involve an IV with an Iodine Containing Contrast solution. No one had any idea how this would affect me with regard to thyroid levels. In other words, I encountered the usual apathy with regard to being a thyroid patient and what my needs
I had a CT scan in August. No one warned me that this would involve an IV with an Iodine Containing Contrast solution. No one had any idea how this would affect me with regard to thyroid levels. In other words, I encountered the usual apathy with regard to being a thyroid patient and what my needs
kferrer
in
Thyroid UK
2 years ago
Suspected Erythromelalgia - boiling red hands, began in early 2021. Urgent advice needed - feel very poorly
Hi I’m a 25 yo female from London, UK. I have hashimotos and hypothyroidism, both diagnosed and I am on treatment. I began to experience sudden hot and achy hands in early 2021 - characteristics were similar to that of erythromelalgia but GP reluctant to diagnose despite seeing photos - tested uric
Hi I’m a 25 yo female from London, UK. I have hashimotos and hypothyroidism, both diagnosed and I am on treatment. I began to experience sudden hot and achy hands in early 2021 - characteristics were similar to that of erythromelalgia but GP reluctant to diagnose despite seeing photos - tested uric
Hanna_josef
in
Scleroderma & Raynaud's UK (SRUK)
2 years ago
liquid radioactive iodine therapy
hello. I’m booked in at Mount Vernon hospital on November 14th for RAI. I’m totally rubbish at swallowing tablets so they have agreed to give it to me as a liquid. I’m now getting anxious it may be a massive beaker full and May taste disgusting Has anyone else had it this way and if so what was
hello. I’m booked in at Mount Vernon hospital on November 14th for RAI. I’m totally rubbish at swallowing tablets so they have agreed to give it to me as a liquid. I’m now getting anxious it may be a massive beaker full and May taste disgusting Has anyone else had it this way and if so what was
Titch121
in
Thyroid Cancer Support
2 years ago
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radium 223
looking for info on side effects. We are 5 hours from a treatment center and would like to be comfortably at home for any side effects. I’d love to hear side effect experiences for this treatment. Thanks
looking for info on side effects. We are 5 hours from a treatment center and would like to be comfortably at home for any side effects. I’d love to hear side effect experiences for this treatment. Thanks
Mcrpca
in
Advanced Prostate Cancer
1 year ago
TT or RAI
HiI have Graves disease - diagnosed 30 Sept 22 with zero TSH and high TRAB count. Carbimazole 40mg less than 3 weeks and neotrophils dropped with slightly raised AST and ALT liver enzymes. Endo told my GP to stop that and go on PTU. One week on only beta blockers then started 400mg PTU. Liver enzymes
HiI have Graves disease - diagnosed 30 Sept 22 with zero TSH and high TRAB count. Carbimazole 40mg less than 3 weeks and neotrophils dropped with slightly raised AST and ALT liver enzymes. Endo told my GP to stop that and go on PTU. One week on only beta blockers then started 400mg PTU. Liver enzymes
MsPeartree
in
Thyroid UK
1 year ago
IBS after eating evening meal
I have been a coeliac for many years, when I was diagnosed I thought my diarrhoea would cease. I also have trouble with an over active bladder. My diarrhoea seems to arrive about 4 hours after my evening meal. It can happen up to 4 times a week then perhaps nothing the next week. I get very painful cramps
I have been a coeliac for many years, when I was diagnosed I thought my diarrhoea would cease. I also have trouble with an over active bladder. My diarrhoea seems to arrive about 4 hours after my evening meal. It can happen up to 4 times a week then perhaps nothing the next week. I get very painful cramps
PayPal
in
IBS Network
2 years ago
What first?: Provenge or Nubeqa?
I have not used 2d line AR drugs yet. CRPC just started six months ago. My PSA is below 1. One small, suspected area on last month's PSMA PET scan. That is the same area that looked suspicious on PSMA PET in 2016 and on Axumin in early 2021. I did IADT 2016-2020, with continuous ADT since Jan 2021
I have not used 2d line AR drugs yet. CRPC just started six months ago. My PSA is below 1. One small, suspected area on last month's PSMA PET scan. That is the same area that looked suspicious on PSMA PET in 2016 and on Axumin in early 2021. I did IADT 2016-2020, with continuous ADT since Jan 2021
GeorgeGlass
in
Advanced Prostate Cancer
1 year ago
Practical Advice for having a social life with IBS-D
I'm determined not to let IBS-D stop me from living an active lifestyle. I'm a married mom of 3 and also very social however most people around me don't know about my daily struggle with IBS-D. I'm not looking to share this information either. If I'm going anywhere with friends or family, I generally
I'm determined not to let IBS-D stop me from living an active lifestyle. I'm a married mom of 3 and also very social however most people around me don't know about my daily struggle with IBS-D. I'm not looking to share this information either. If I'm going anywhere with friends or family, I generally
MeliHere2
in
IBS Network
2 years ago
Availability of Sodium Cromoglicate
Hi, is anyone else having supply issues with Sodium Cromoglicate at the moment? It’s been a bit hit or miss the last couple of months, but today the pharmacy attached to our GP said they can’t get it. They are having one more try and then suggest we take the prescription around pharmacists to see if
Hi, is anyone else having supply issues with Sodium Cromoglicate at the moment? It’s been a bit hit or miss the last couple of months, but today the pharmacy attached to our GP said they can’t get it. They are having one more try and then suggest we take the prescription around pharmacists to see if
PCAD
in
The UK Mastocytosis Support Group
2 years ago
Lamotrigine and Sodium Valproate.
My neurologist is now talking about adding Sodium Valproate to my current 400mg daily dose of Lamotrigine. Does anyone else take that combination and if so how has it been? And what other drugs are people taking along with Lamotrigine?
My neurologist is now talking about adding Sodium Valproate to my current 400mg daily dose of Lamotrigine. Does anyone else take that combination and if so how has it been? And what other drugs are people taking along with Lamotrigine?
Michael_M
in
Epilepsy Action
2 years ago
Can you give me advice on my blood results please?
Full blood count Monitoring Total white blood count 4.7 10*9/L [3.9 - 10.2] Red blood cell count 4.48 10*12/L [3.9 - 5.2] Haemoglobin concentration 144 g/L [120.0 - 156.0] Haematocrit 0.449 L/L [0.355 - 0.455] Mean cell volume 100.1 fL [80.0 - 99.0] Above high reference limit Mean cell haemoglobin
Full blood count Monitoring Total white blood count 4.7 10*9/L [3.9 - 10.2] Red blood cell count 4.48 10*12/L [3.9 - 5.2] Haemoglobin concentration 144 g/L [120.0 - 156.0] Haematocrit 0.449 L/L [0.355 - 0.455] Mean cell volume 100.1 fL [80.0 - 99.0] Above high reference limit Mean cell haemoglobin
bubbatetley
in
Thyroid UK
2 years ago
stage 3a ckd
hello all, went for regular check up 9/1/22 and doctor said my global filtration was down some and to drink more water. asked if i should be concerned and he said no not at this time. i am 67 yrs old, male, white. previous 6 months it was 47, 6 months before that was 75. got home same day and pulled
hello all, went for regular check up 9/1/22 and doctor said my global filtration was down some and to drink more water. asked if i should be concerned and he said no not at this time. i am 67 yrs old, male, white. previous 6 months it was 47, 6 months before that was 75. got home same day and pulled
surveyor07
in
Kidney Disease
2 years ago
Discussing Doctors Blood Test
hello all I’ve been on previously, last year, with my daughters blood test results from medicheks. Our Gp has just taken these bloods and here are the results. Could you please have a look and advise as she has a telephone call to discuss them. Just a little reminder background information, she was
hello all I’ve been on previously, last year, with my daughters blood test results from medicheks. Our Gp has just taken these bloods and here are the results. Could you please have a look and advise as she has a telephone call to discuss them. Just a little reminder background information, she was
sunnyday7
in
Thyroid UK
2 years ago
Please help me form a plan of action based on my blood results!
Just got my bloods back and would appreciate any advice what all these could mean and/or how I can myself get well(er) as I am not at all convinced this knowledge will ever come from my clueless but kind GP and NHS Endo. By way of background, thyroid disease runs in my family, and I have had years
Just got my bloods back and would appreciate any advice what all these could mean and/or how I can myself get well(er) as I am not at all convinced this knowledge will ever come from my clueless but kind GP and NHS Endo. By way of background, thyroid disease runs in my family, and I have had years
blogfrog
in
Thyroid UK
2 years ago
daughter of stage iv patient here
my mom called my 7/30/22 alerting me that my father wasn’t looking good, at all. I had seen him in March earlier that year and he was having hip and back pain, but otherwise, looked normal, if not a little tired. But some time late June/early July he lost a lot of weight, started walking weird, experiencing
my mom called my 7/30/22 alerting me that my father wasn’t looking good, at all. I had seen him in March earlier that year and he was having hip and back pain, but otherwise, looked normal, if not a little tired. But some time late June/early July he lost a lot of weight, started walking weird, experiencing
Shelboop
in
Advanced Prostate Cancer
2 years ago
Amazed!
After 30 years of living with the affects of radiotherapy I found this community after a Google search for remedies after the doctor only advised imodium. I have found it to be a very emotional discovery as I didn'teven know PRD was a thing! Has anyone tried peppermint oil tablets? Do they help
After 30 years of living with the affects of radiotherapy I found this community after a Google search for remedies after the doctor only advised imodium. I have found it to be a very emotional discovery as I didn'teven know PRD was a thing! Has anyone tried peppermint oil tablets? Do they help
SURFER58
in
Pelvic Radiation Disease Association
2 years ago
Advice on tablets if liquid thyroxine is still unavailable.
Hi all Having seen my GP today to discuss the lack of liquid thyroxine, she tells me that they cannot just discontinue providing it on the NHS as there are several patients that can't take thyroxine in any other form. It seems it is all cost related and pharmacies don't want to order it and be out
Hi all Having seen my GP today to discuss the lack of liquid thyroxine, she tells me that they cannot just discontinue providing it on the NHS as there are several patients that can't take thyroxine in any other form. It seems it is all cost related and pharmacies don't want to order it and be out
Tintin0202
in
Thyroid UK
2 years ago
Anyone Used Pascoe B12 Depot (Hydroxy)
Hi Guys and thank you all for all your help in my previous posts.... Has any one used Pascoe B12 Depot and did they notice any difference to Panpharma (Rotexmedica) Depot Hydroxy? I know it is stronger and there is only one different ingredient to Panpharma being Sodium Chloride instead of Sodium
Hi Guys and thank you all for all your help in my previous posts.... Has any one used Pascoe B12 Depot and did they notice any difference to Panpharma (Rotexmedica) Depot Hydroxy? I know it is stronger and there is only one different ingredient to Panpharma being Sodium Chloride instead of Sodium
WorkingProgress
in
Pernicious Anaemia Society
2 years ago
Alk Phosphate going up after third Radium 223
hello all. Husband dx in 2017 with 489 PSA. So far we’ve done Docetaxel, Xgeva, Zytiga. Currently on Xofigo (Ra 223) it knocked the Alk Ph way down then after the third treatment it went up a few points. Has this happened to anyone? RO suggests doing 4th treatment then PSMA scan to see if there’s
hello all. Husband dx in 2017 with 489 PSA. So far we’ve done Docetaxel, Xgeva, Zytiga. Currently on Xofigo (Ra 223) it knocked the Alk Ph way down then after the third treatment it went up a few points. Has this happened to anyone? RO suggests doing 4th treatment then PSMA scan to see if there’s
mdiaz76
in
Advanced Prostate Cancer
1 year ago
Iodine in yoghurt...and the possibility of it interfering with correct blood test result.
I am dairy free and I have just had my Thyroxine reduced from 125 mg to 100mg. My question is that the Tesco plant based soya plain yoghurt that I normally would have, now has iodine added. One fifth of a pot, my normal consumption, contains 45.0µg iodine. I am due to have a retest to see if the reduction
I am dairy free and I have just had my Thyroxine reduced from 125 mg to 100mg. My question is that the Tesco plant based soya plain yoghurt that I normally would have, now has iodine added. One fifth of a pot, my normal consumption, contains 45.0µg iodine. I am due to have a retest to see if the reduction
Knip
in
Thyroid UK
2 years ago
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