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Small lymphocytic lymphoma (SLL)
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Blood test changes.
67 years old, 3.5 years on Imbruvica. In remission. Last week's blood test had warning flags all over for first time in two years. About half of them flagged. Had major prostate surgery last month at MD ANDESON. Ones I really noticed were NO MONOCYTES, HIGH ATYPICAL LYMPHS, HIGH BASOS, DOUBLING
67 years old, 3.5 years on Imbruvica. In remission. Last week's blood test had warning flags all over for first time in two years. About half of them flagged. Had major prostate surgery last month at MD ANDESON. Ones I really noticed were NO MONOCYTES, HIGH ATYPICAL LYMPHS, HIGH BASOS, DOUBLING
lsutigers2018
in
CLL Support
3 years ago
Side Effects of Bendamustine?
I am asking for a friend who has follicular lymphoma and has been W&W for nine years. They start Rituxan and Bendamustine next week. With all the treatment I have had, I have never had this one, so I am wondering if you could share what your experiences were. Thanks much.
I am asking for a friend who has follicular lymphoma and has been W&W for nine years. They start Rituxan and Bendamustine next week. With all the treatment I have had, I have never had this one, so I am wondering if you could share what your experiences were. Thanks much.
KevinCLLITP
in
CLL Support
3 years ago
immunohistochemistry need help understanding
I am seeing my doctor on Tuesday but was able to get some results online from my bone marrow biopsy - Additional tests ordered: Cytogenetics and FISH (CLL panel) Can someone help me understand the findings below - thank you Marker Result Description CD20 Positive Pan B Cell Antigen (L26) CD3 T-cells
I am seeing my doctor on Tuesday but was able to get some results online from my bone marrow biopsy - Additional tests ordered: Cytogenetics and FISH (CLL panel) Can someone help me understand the findings below - thank you Marker Result Description CD20 Positive Pan B Cell Antigen (L26) CD3 T-cells
kp58ny
in
CLL Support
3 years ago
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CLL Transform to Lymphoma?
My ophthalmologist specialist is pretty sure I have ocular lymphoma. I will have a biopsy on August 25th. Does anyone have background on CLL combining with lymphoma?
My ophthalmologist specialist is pretty sure I have ocular lymphoma. I will have a biopsy on August 25th. Does anyone have background on CLL combining with lymphoma?
cll2013
in
CLL Support
3 years ago
chemo tomorrow
Starting Bendamustine Rituxan tomorrow, six treatments, probably maintenance after. I am 73 in good health, stage 3, type 3a. no bone marrow or organ involvement, largest node 3 cm. mostly smaller, located neck, upper abdomen, groin, etc. minimal symptoms. Chose chemo over watching. Given my age
Starting Bendamustine Rituxan tomorrow, six treatments, probably maintenance after. I am 73 in good health, stage 3, type 3a. no bone marrow or organ involvement, largest node 3 cm. mostly smaller, located neck, upper abdomen, groin, etc. minimal symptoms. Chose chemo over watching. Given my age
newerguy
in
Non Hodgkin's Lymphoma Friends
3 years ago
The Leukemia & Lymphoma Society’s National Patient Registry COVID-19 vaccination antibody results - published today (Greenberg et al)
As a valued member of The Leukemia & Lymphoma Society’s National Patient Registry, a project of the Michael J. Garil Patient Data Collective, we wanted you to be among the first to know about COVID-19 vaccination antibody results we published today (Greenberg et al., 2021). https://i7.t.hubspotemail.net
As a valued member of The Leukemia & Lymphoma Society’s National Patient Registry, a project of the Michael J. Garil Patient Data Collective, we wanted you to be among the first to know about COVID-19 vaccination antibody results we published today (Greenberg et al., 2021). https://i7.t.hubspotemail.net
lankisterguy
Volunteer
in
CLL Support
3 years ago
Mass infection is not an option
link to a discussion video relating to a letter published in the Lancet and signed by 122 Drs/ Professors. https://youtu.be/VYTyi2pFXxk
link to a discussion video relating to a letter published in the Lancet and signed by 122 Drs/ Professors. https://youtu.be/VYTyi2pFXxk
Belfastbees
in
CLL Support
3 years ago
Clinical trial for waldenstrom
I started a clinical trial of two oral meds this week: ibrutinib and venetoclax. Dana farber is running the 50 person trial. They’re powerful, targeted meds to knock down the cancer. I was diagnosed last feb as I turned 70 and moved quickly from watch and wait to treatment based on blood tests not symptoms
I started a clinical trial of two oral meds this week: ibrutinib and venetoclax. Dana farber is running the 50 person trial. They’re powerful, targeted meds to knock down the cancer. I was diagnosed last feb as I turned 70 and moved quickly from watch and wait to treatment based on blood tests not symptoms
waer88
in
CLL Support
3 years ago
Captivate Trial MRD status
I've been part of the CAPTIVATE trial since 2018. My treatment ended in May 2019....Ibrutinib for 12 months and Venetoclax for 9. I just received several test results including Flow Citometry and I am still MRD negative after 2 years. This trial was simply awesome and a life saver. I was originally
I've been part of the CAPTIVATE trial since 2018. My treatment ended in May 2019....Ibrutinib for 12 months and Venetoclax for 9. I just received several test results including Flow Citometry and I am still MRD negative after 2 years. This trial was simply awesome and a life saver. I was originally
lamboman
in
CLL Support
3 years ago
Is humira safe to take? Re potential lymphoma and leukemia?
Hi all. I am very new to this platform but so grateful to have a place to ask some difficult questions to people who may understand. I have just started humira after reacting badly to mabthera. I have also previously been on methotrexate, azaoress, nivaquin abd high dose steroids to name a few. I have
Hi all. I am very new to this platform but so grateful to have a place to ask some difficult questions to people who may understand. I have just started humira after reacting badly to mabthera. I have also previously been on methotrexate, azaoress, nivaquin abd high dose steroids to name a few. I have
lee2021
in
LUPUS UK
3 years ago
Lymphoma Questions
Hi All, Sorry to post on such a crappy topic. So this study came out and it kind of scared me a bit as I have a focus score of 8 from my biopsy at diagnosis which is quite high. The study is here: https://www.sciencedirect.com/science/article/abs/pii/S0896841121000561 It seems to suggest that the higher
Hi All, Sorry to post on such a crappy topic. So this study came out and it kind of scared me a bit as I have a focus score of 8 from my biopsy at diagnosis which is quite high. The study is here: https://www.sciencedirect.com/science/article/abs/pii/S0896841121000561 It seems to suggest that the higher
Insomniacette
in
LUPUS UK
3 years ago
I have had both doses of the Pfizer vaccine, while they applauded me after I got my 2nd dose, 90 days later I found that I have no immunity!
I took Ibrutinib prior to January 20 when it gave me AFib and a few other problems, then stated Venetoclax in July of 2020, and in August started the first of six doses of Rituxan. It would seem that Rituxan is the main culprit, as in my research I found that no immunity was created in cases which
I took Ibrutinib prior to January 20 when it gave me AFib and a few other problems, then stated Venetoclax in July of 2020, and in August started the first of six doses of Rituxan. It would seem that Rituxan is the main culprit, as in my research I found that no immunity was created in cases which
KevinCLLITP
in
CLL Support
3 years ago
Pies!
Whilst I was moaning on about all the restaurants that have given up on GF items on their menus I was thinking too of brighter things. Pies! I love a pork pie and cornish pasty, steak pie. I could go on but you get the picture. I have found an online outlet that sells the lot, all delicious and I want
Whilst I was moaning on about all the restaurants that have given up on GF items on their menus I was thinking too of brighter things. Pies! I love a pork pie and cornish pasty, steak pie. I could go on but you get the picture. I have found an online outlet that sells the lot, all delicious and I want
Kim1950
in
Gluten Free Guerrillas
3 years ago
Doctor wants to start Venetoclax today but recent blood work shows evidence of AIHA but Doctor still says start Ven
shouldn't AIHA be treated first? hemoglobin dropping weekly down from 14.7 2 months ago now 10.7 Haptoglobin less than 31 LDH almost 700 Doctor says still start Venclexta tomorrow but why not hold off until AIHA is controlled with steroids or Rituxan? I think the Rituxan will put him in control of
shouldn't AIHA be treated first? hemoglobin dropping weekly down from 14.7 2 months ago now 10.7 Haptoglobin less than 31 LDH almost 700 Doctor says still start Venclexta tomorrow but why not hold off until AIHA is controlled with steroids or Rituxan? I think the Rituxan will put him in control of
Palmetto
in
CLL Support
3 years ago
ANXIETY SUFFERER ALONG WITH LUPUS
Hi All, is anyone suffering with Anxiety?(that's probably a dumb question.most of us have it. I has diagnosed late in life about five years ago. My problem is that I suffer ANXIETY big time. Which I can't sleep without an Aid.Even before I has diagnosed with Panniculitus. I didn't't sleep without a
Hi All, is anyone suffering with Anxiety?(that's probably a dumb question.most of us have it. I has diagnosed late in life about five years ago. My problem is that I suffer ANXIETY big time. Which I can't sleep without an Aid.Even before I has diagnosed with Panniculitus. I didn't't sleep without a
Goinglong10
in
LUPUS UK
3 years ago
Stem cell transplant saved me
I had stage 4 started with rituxin and bendamustine chemo relapsed had RChop it didn’t work had stem cell transplant have been in remission for 7 years do it!
I had stage 4 started with rituxin and bendamustine chemo relapsed had RChop it didn’t work had stem cell transplant have been in remission for 7 years do it!
patricih
in
Non Hodgkin's Lymphoma Friends
3 years ago
Auto Stem Cell transplant?
Hi, Curious to know if anyone out there has had R-chop, then relapsed and the next line of treatment recommended was SCT? I've been battling Marginal Zone lymphoma (2016), transformed to DLBCL (2018) and now it's back again. The auto process sounds very scary (dangerous), and with a 30-50% success rate
Hi, Curious to know if anyone out there has had R-chop, then relapsed and the next line of treatment recommended was SCT? I've been battling Marginal Zone lymphoma (2016), transformed to DLBCL (2018) and now it's back again. The auto process sounds very scary (dangerous), and with a 30-50% success rate
skinkade
in
Non Hodgkin's Lymphoma Friends
3 years ago
"Did catching Covid-19 help these patients fight cancer?"
Unfortunately the source of this information is not very scientific (Daily Mail), but one described case seems to partially base on a credible source (see PDF link on the page below): https://onlinelibrary.wiley.com/doi/10.1111/bjh.17116 Don't try this at home! Wait for thousands of more reports showing
Unfortunately the source of this information is not very scientific (Daily Mail), but one described case seems to partially base on a credible source (see PDF link on the page below): https://onlinelibrary.wiley.com/doi/10.1111/bjh.17116 Don't try this at home! Wait for thousands of more reports showing
mantana
in
CLL Support
3 years ago
Rasburicase/Allopurinol
Hi, I am in the first week of ramp up of Venetoclax. I was hospitalized for 2 days for the first dose. I had Rasburicase IV, but I am not sure if I should be taking Allopurinol daily at home. I should have asked, too stressed. I am at high risk of TLS, but very little effect on large node yet. Thanks
Hi, I am in the first week of ramp up of Venetoclax. I was hospitalized for 2 days for the first dose. I had Rasburicase IV, but I am not sure if I should be taking Allopurinol daily at home. I should have asked, too stressed. I am at high risk of TLS, but very little effect on large node yet. Thanks
Hidden
in
CLL Support
3 years ago
THE USE OF DAPSONE FOR SUBCUTANEOUS ISSUES
Has anyone else been prescribed the Medication DAPSONE? I initially was prescribed the usual suspect (meds)when I was first diagnosed with Panniculitus in 2018. All of them made me deathly ill. I ran across articles for the drug Dapsone and asked my Rumy if I could take it. She prescribed it for me
Has anyone else been prescribed the Medication DAPSONE? I initially was prescribed the usual suspect (meds)when I was first diagnosed with Panniculitus in 2018. All of them made me deathly ill. I ran across articles for the drug Dapsone and asked my Rumy if I could take it. She prescribed it for me
Goinglong10
in
LUPUS UK
3 years ago
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