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Small lymphocytic lymphoma (SLL)
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Immunotherapy and Gene Modification of T Cells
I'm diagnosed as of April 2018, and like so many others in the Watch and Wait phase. I hate this approach, but I understand why it is taken. In essence the current treatments available are as dangerous as the disease, so the doctors wait until the enemy is deep in your territory. Sort of waiting until
I'm diagnosed as of April 2018, and like so many others in the Watch and Wait phase. I hate this approach, but I understand why it is taken. In essence the current treatments available are as dangerous as the disease, so the doctors wait until the enemy is deep in your territory. Sort of waiting until
wizzard166
in
CLL Support
5 years ago
NEW TREATMENT: RITUXIMAB AND BENDAMUSTINE
Hello, After Ibrutinib stopped working for my partner, he will now be embarking on a new treatment. Rituximab and Bendamustine chemotherapy combination. Has anybody had any experience using these drugs together? Many thanks,
Hello, After Ibrutinib stopped working for my partner, he will now be embarking on a new treatment. Rituximab and Bendamustine chemotherapy combination. Has anybody had any experience using these drugs together? Many thanks,
pollyg2016
in
Non Hodgkin's Lymphoma Friends
5 years ago
Episode 115: Cutting Edge Therapy: Cancer Cured After Years of Battling CLL | Brian Koffman
[i]“After years of battling CLL, Dr. Brian Koffman underwent an experimental immunotherapy (CAR-T) that has now left him without a single trace of malignancy detectable in his entire body. This week's @HiddenForcesPod is the story of that miraculous journey." [/i]https://hiddenforces.io/podcasts/brian-koffman-cll-cutting-edge-cancer-therapy
[i]“After years of battling CLL, Dr. Brian Koffman underwent an experimental immunotherapy (CAR-T) that has now left him without a single trace of malignancy detectable in his entire body. This week's @HiddenForcesPod is the story of that miraculous journey." [/i]https://hiddenforces.io/podcasts/brian-koffman-cll-cutting-edge-cancer-therapy
bkoffman
CLL CURE Hero
in
CLL Support
5 years ago
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Dr. Siddiqi on Rationale for the TRANSCEND CAR-T CLL 004 Trial in CLL/SLL
leukemia (CLL) or
small
lymphocytic
lymphoma
(SLL).
leukemia (CLL) or
small
lymphocytic
lymphoma
(SLL).
AussieNeil
Partner
in
CLL Support
5 years ago
Debulking Eliminates Need for Hospitalization Prior to Initiating Venetoclax Therapy in untreated CLL pts
This is a report of Phase 3 study NCT03406156. Due to the rapid induction of cell death caused by the targeted activity of venetoclax, some patients require inpatient monitoring for tumor lysis syndrome (TLS) at initiation of therapy. In the recent CLL14 study, 64% and 22% of venetoclax-treated patients
This is a report of Phase 3 study NCT03406156. Due to the rapid induction of cell death caused by the targeted activity of venetoclax, some patients require inpatient monitoring for tumor lysis syndrome (TLS) at initiation of therapy. In the recent CLL14 study, 64% and 22% of venetoclax-treated patients
Jm954
Administrator
in
CLL Support
5 years ago
B-PLL Lymphoma
Hi I have B-PLL lymphoma and because it is very similar to CLL I’m going to start Ibrutinib. Just wondering if anyone with lymphoma has been prescribed this drug?
Hi I have B-PLL lymphoma and because it is very similar to CLL I’m going to start Ibrutinib. Just wondering if anyone with lymphoma has been prescribed this drug?
Hidden
in
CLL Support
5 years ago
ASH 2019: A Clinical Trial of Cannabis As Targeted Therapy for Indolent Leukemic Lymphoma
"Conclusion : This study demonstrates that it is safe to administrate a single dose of Sativex to elderly patients with indolent B-cell lymphoma with regards to adverse events. We show that the cannabis compound quickly reduces lymphoma cell numbers in peripheral blood. There was no evidence of activation
"Conclusion : This study demonstrates that it is safe to administrate a single dose of Sativex to elderly patients with indolent B-cell lymphoma with regards to adverse events. We show that the cannabis compound quickly reduces lymphoma cell numbers in peripheral blood. There was no evidence of activation
avzuclav
in
CLL Support
5 years ago
Newbie
Hey CLLers, I found this website and looks like I found a new family. I'll soon turn 72. I was diagnosed for CLL in March of 2013. Did BR from October 2016 to February 2017. Currently symptom free and do monthly blood work and IGIV at oncologist. Dr. mentioned if I relapse we might try a pill. I assume
Hey CLLers, I found this website and looks like I found a new family. I'll soon turn 72. I was diagnosed for CLL in March of 2013. Did BR from October 2016 to February 2017. Currently symptom free and do monthly blood work and IGIV at oncologist. Dr. mentioned if I relapse we might try a pill. I assume
louie48
in
CLL Support
5 years ago
First line above at 69Y: Venetoclax vs Ibrutinib vs BR
Hello All, After consulting 3 of the best available doctors I could find all of the suggest different options and its up to us to chose. So far: 1) Venetoclax -they claim its the least side effects treatment (despite she does not have 17p deleton they say will be very effective) 2) Ibrutinib effective
Hello All, After consulting 3 of the best available doctors I could find all of the suggest different options and its up to us to chose. So far: 1) Venetoclax -they claim its the least side effects treatment (despite she does not have 17p deleton they say will be very effective) 2) Ibrutinib effective
paula_dae
in
CLL Support
5 years ago
Started Trial today
It was kind of a rough start. I got as far as 3.9 ml in on the O drip and I felt like I was burning from the inside out. I have been flushed before but this was 100 times worse. My vitals went south and everyone came running. They stopped the infusion and up the dosage of steroids, benedryl etc.
It was kind of a rough start. I got as far as 3.9 ml in on the O drip and I felt like I was burning from the inside out. I have been flushed before but this was 100 times worse. My vitals went south and everyone came running. They stopped the infusion and up the dosage of steroids, benedryl etc.
aquafinn
in
CLL Support
5 years ago
Mantle Cell Lymphoma Treatment
Just wonder if anyone participates in Window 2 clinical trial of MD Anderson where patients receive Ibrutinib in the first 4 months, combine with Rituximab and add Venetoclax in month 5. Chemo will be followed if in the medium and high risk. Then another 2-3 years in maintenance with Ibrutiniv, Venetoclax
Just wonder if anyone participates in Window 2 clinical trial of MD Anderson where patients receive Ibrutinib in the first 4 months, combine with Rituximab and add Venetoclax in month 5. Chemo will be followed if in the medium and high risk. Then another 2-3 years in maintenance with Ibrutiniv, Venetoclax
writepa
in
Non Hodgkin's Lymphoma Friends
5 years ago
Mantle Cell Lymphoma - Window 2 clinical trial
Just wonder if anyone participates in Window 2 clinical trial of MD Anderson where patients receive Ibrutinib in the first 4 months, combine with Rituximab and add Venetoclax in month 5. Chemo will be followed if in the medium and high risk. Then another 2-3 years in maintenance with Ibrutiniv, Venetoclax
Just wonder if anyone participates in Window 2 clinical trial of MD Anderson where patients receive Ibrutinib in the first 4 months, combine with Rituximab and add Venetoclax in month 5. Chemo will be followed if in the medium and high risk. Then another 2-3 years in maintenance with Ibrutiniv, Venetoclax
writepa
in
CLL Support
5 years ago
Follicular Lymphoma Patient: 8-Year Treatment Experience
In November 2011, at the age of 64, my wife was diagnosed with follicular lymphoma Stage 4, Grade 3A. She had 50% bone marrow involvement. She is one of the 20% of follicular lymphoma patients who progress rapidly after treatments. In 4 years, she progressed after R-CHOP (6 cycles), bendamustine/rituximab
In November 2011, at the age of 64, my wife was diagnosed with follicular lymphoma Stage 4, Grade 3A. She had 50% bone marrow involvement. She is one of the 20% of follicular lymphoma patients who progress rapidly after treatments. In 4 years, she progressed after R-CHOP (6 cycles), bendamustine/rituximab
wmay13241
in
Non Hodgkin's Lymphoma Friends
5 years ago
Lung Illnesses Associated with Use of Vaping Products. FDA Warns Public to stop using those containing Tetrahydrocannabinol (THC)
Those of us wanting to quit smoking and using e-cigarettes to achieve this, or anyone vaping cannabinoids including THC (the psychoactive cannabinoid) need to be aware of recent concerns regarding their safety. [i]Both the U.S. Food and Drug Administration and the U.S. Centers for Disease Control and
Those of us wanting to quit smoking and using e-cigarettes to achieve this, or anyone vaping cannabinoids including THC (the psychoactive cannabinoid) need to be aware of recent concerns regarding their safety. [i]Both the U.S. Food and Drug Administration and the U.S. Centers for Disease Control and
AussieNeil
Partner
in
CLL Support
5 years ago
DA-EPOCH-R treatments
I was diagnosed with diffuse large cell B lymphoma in Sept. immediately hospitalized for DA-EPOCH-R 24 hour treatments. A real shock to me as I envisioned a day in the infusion center every 3 weeks. Made it thru 2 sessions and headed back next week for another week tethered to my chemo pole 😊. Anyone
I was diagnosed with diffuse large cell B lymphoma in Sept. immediately hospitalized for DA-EPOCH-R 24 hour treatments. A real shock to me as I envisioned a day in the infusion center every 3 weeks. Made it thru 2 sessions and headed back next week for another week tethered to my chemo pole 😊. Anyone
Msmerryc
in
CLL Support
5 years ago
Mantle Cell Lymphoma
My husband just got the flow cytometry today. One of the markers CD23 is negative. I met the doctor and he diagnosed my husband with Mantle Cell Lymphoma. Although still need Fish test to confirm but he seems certain. As MCL explains why it is so sudden and the spleen is big. What a difficult path a
My husband just got the flow cytometry today. One of the markers CD23 is negative. I met the doctor and he diagnosed my husband with Mantle Cell Lymphoma. Although still need Fish test to confirm but he seems certain. As MCL explains why it is so sudden and the spleen is big. What a difficult path a
writepa
in
CLL Support
5 years ago
Duvelisib Dosing Modification Does Not Compromise Efficacy in Heavily Pretreated CLL/SLL
Reducing or interrupting duvelisib (Copiktra) treatment does not increase toxicity or reduce outcomes with relapsed/refractory chronic
lymphocytic
leukemia/
small
lymphocytic
lymphoma
(CLL/SLL).
Reducing or interrupting duvelisib (Copiktra) treatment does not increase toxicity or reduce outcomes with relapsed/refractory chronic
lymphocytic
leukemia/
small
lymphocytic
lymphoma
(CLL/SLL).
Jm954
Administrator
in
CLL Support
5 years ago
Vecabrutinib clinical trial?
Does anyone have any experience on the vecabrutinib clinical trial from a company called sunesis? I believe it is being developed for those who are or have become resistant to ibrutinib for cll and other B cell cancers.
Does anyone have any experience on the vecabrutinib clinical trial from a company called sunesis? I believe it is being developed for those who are or have become resistant to ibrutinib for cll and other B cell cancers.
Asclepiusone
in
CLL Support
5 years ago
Lymphoma Canada’s 3rd Annual National Conference for lymphoma patients Saturday, September 21, 2019 8:00am - 5:00pm Hilton Toronto
Danielle Rodin Princess Margaret Cancer Centre - Chronic
Lymphocytic
Leukemia/
Small
Lymphocytic
Lymphoma
Presented by: Dr. David Spaner Odette Cancer Centre - Lymphoma 101 – Understanding Your Diagnosis Presented by: Dr.
Danielle Rodin Princess Margaret Cancer Centre - Chronic
Lymphocytic
Leukemia/
Small
Lymphocytic
Lymphoma
Presented by: Dr. David Spaner Odette Cancer Centre - Lymphoma 101 – Understanding Your Diagnosis Presented by: Dr.
lankisterguy
Volunteer
in
CLL Support
5 years ago
Accelerated Dental Decay
Any info on accelerated dental decay following CLL, lymphoma and/or chemo (RCHOP, intrathecal methraxoate)? Is this likely to be an effect of the cancer; a direct effect of the chemo; a side effect or the result of a compromised immune system?
Any info on accelerated dental decay following CLL, lymphoma and/or chemo (RCHOP, intrathecal methraxoate)? Is this likely to be an effect of the cancer; a direct effect of the chemo; a side effect or the result of a compromised immune system?
MaitreD
in
CLL Support
5 years ago
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