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Am i catastrophizing over my results
Hi. I’m a little confused over my situation.After Cyberknife treatment and two years on ADT with a constant PSA of 0.02 post treatment .My PSA started to rise and at 4.1 approximately I had a PSMA scan my second .i also had one 3 years previous to that and both were clear . My MO has me back on ADT
Hi. I’m a little confused over my situation.After Cyberknife treatment and two years on ADT with a constant PSA of 0.02 post treatment .My PSA started to rise and at 4.1 approximately I had a PSMA scan my second .i also had one 3 years previous to that and both were clear . My MO has me back on ADT
Walliam
in
Advanced Prostate Cancer
8 months ago
What's on at Ovacome next week? (week commencing Monday 6 May 2024)
Good morning everyone, This is our weekly post to let you know about the different support groups, workshops and events taking place at Ovacome next week. Tuesday 7 May - Gentle strengthening exercise class between 11:00am – 12:00pm : https://www.ovacome.org.uk/Event/exercise-class - Coventry &
Good morning everyone, This is our weekly post to let you know about the different support groups, workshops and events taking place at Ovacome next week. Tuesday 7 May - Gentle strengthening exercise class between 11:00am – 12:00pm : https://www.ovacome.org.uk/Event/exercise-class - Coventry &
OvacomeSupport
My Ovacome Team
in
My Ovacome
5 months ago
Any experience with Intraductal Cancer?
Not sure how this works. Hopefully you can read my profile to see where I'm at. If not, I repeat it here. My GP recommended biopsy after several annual PSA results around 4.0 Was on active surveillance since diagnosis in 2019 with biopsy Gleason 6 in two cores. Similar result in annual biopsies
Not sure how this works. Hopefully you can read my profile to see where I'm at. If not, I repeat it here. My GP recommended biopsy after several annual PSA results around 4.0 Was on active surveillance since diagnosis in 2019 with biopsy Gleason 6 in two cores. Similar result in annual biopsies
SherpaT
in
Prostate Cancer Network
8 months ago
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Pluvicto Treatment
So, I just completed my 3rd round of Pluvicto and my primary oncologist wanted me to do a CT scan w/contrast and a bone scan. The Ct showed some increase in cancer in the liver and a number of other spots. I am only doing Pluvicto and no other treatment as requested. Are there other people who are receiving
So, I just completed my 3rd round of Pluvicto and my primary oncologist wanted me to do a CT scan w/contrast and a bone scan. The Ct showed some increase in cancer in the liver and a number of other spots. I am only doing Pluvicto and no other treatment as requested. Are there other people who are receiving
Parscore
in
Advanced Prostate Cancer
5 months ago
interesting concepts (not applicable yet): Modulating extracellular matrix stiffness - a strategic approach to boost cancer immunotherapy
”How can targeting ECM stiffness be optimized to achieve maximal efficacy in various types of cancer immunotherapy?”….now that’s a hell of a question! https://www.nature.com/articles/s41419-024-06697-4
”How can targeting ECM stiffness be optimized to achieve maximal efficacy in various types of cancer immunotherapy?”….now that’s a hell of a question! https://www.nature.com/articles/s41419-024-06697-4
Maxone73
in
Advanced Prostate Cancer
5 months ago
the DARE trial....anyone familiar with it, been in it?
the trial is ongoing screening of your blood every 6 months, checking for ctDNA ( cancer tumor DNA)....if it is found you begin a treatment regimen...if not they just continue to screen you for 2 years...any thoughts? In my mind this should be the future of cancer detection as it finds the disease at
the trial is ongoing screening of your blood every 6 months, checking for ctDNA ( cancer tumor DNA)....if it is found you begin a treatment regimen...if not they just continue to screen you for 2 years...any thoughts? In my mind this should be the future of cancer detection as it finds the disease at
Drrob81
in
SHARE Metastatic Breast Cancer
8 months ago
Has anyone navigated Medicare while trying to get the TPIAT?
Hi All 👋 We recently had a patient reach out to us about the TPIAT while on Medicare. Medicare covers the removal of the pancreas, but it does not cover the islet cell transplantation; the patient was quoted $70K for the islet cell transplantation. 🙁 They ask that anyone who has also navigated the
Hi All 👋 We recently had a patient reach out to us about the TPIAT while on Medicare. Medicare covers the removal of the pancreas, but it does not cover the islet cell transplantation; the patient was quoted $70K for the islet cell transplantation. 🙁 They ask that anyone who has also navigated the
Skye_MC
Administrator
in
Chronic Pancreatitis Support
1 year ago
Provenge (only) - impact on overall survival
I just got insurance approval for Provenge...out of pocket is really high so now I'm doing a cost benefit analysis in my mind. I've seen many different articles showing that Provenge ALONE only extends overall survival by 4-15 months. Does that sound correct? Tall_Allen mentioned adding xofigio for
I just got insurance approval for Provenge...out of pocket is really high so now I'm doing a cost benefit analysis in my mind. I've seen many different articles showing that Provenge ALONE only extends overall survival by 4-15 months. Does that sound correct? Tall_Allen mentioned adding xofigio for
Gl448
in
Advanced Prostate Cancer
8 months ago
tp53 mutation
Hi All, my dad has been diagnosed with CLL and has just had it confirmed that he has the TP53 mutation/deletion. He is stable at the moment and is currently on watch & wait. His consultant has said if and when he starts treatment it will be for life or until it isn’t effective. I’ve read lots that say
Hi All, my dad has been diagnosed with CLL and has just had it confirmed that he has the TP53 mutation/deletion. He is stable at the moment and is currently on watch & wait. His consultant has said if and when he starts treatment it will be for life or until it isn’t effective. I’ve read lots that say
Fortheloveoffarming
in
CLL Support
5 months ago
liquid biopsy lung cancer
Hello everyone, Does anyone have experience of a liquid biopsy either via the NHS or privately? We got a second opinion, discussed the case with a professor who recommended a guardant 360 liquid biopsy due to the unusual spread into the other lung & appearance during biopsy which is apparently usually
Hello everyone, Does anyone have experience of a liquid biopsy either via the NHS or privately? We got a second opinion, discussed the case with a professor who recommended a guardant 360 liquid biopsy due to the unusual spread into the other lung & appearance during biopsy which is apparently usually
Clark74517796
in
The Roy Castle Lung Cancer Foundation
5 months ago
Different mutation?
I was just checking via my NHS app what had been sent to my GP, when I noticed on a letter from Guys this - it listed my mutations - CGN - normal karotype, NGS - CALR, L2AF1, ASXL2. (High risk markers) Previously I thought I was ASXL1, it could be a typo I suppose but does anyone know the difference
I was just checking via my NHS app what had been sent to my GP, when I noticed on a letter from Guys this - it listed my mutations - CGN - normal karotype, NGS - CALR, L2AF1, ASXL2. (High risk markers) Previously I thought I was ASXL1, it could be a typo I suppose but does anyone know the difference
lizzziep
in
MPN Voice
5 months ago
To Chemo or Not to Chemo--that is the ?
Should I follow my MO's advice and do docetaxel? Since I'm now 78, and have read terrible accounts of chemo, I have held onto the belief that I would do everything to avoid chemo since the treatment appears to be worse than the alternative. But she's really not giving me an alternative, other than
Should I follow my MO's advice and do docetaxel? Since I'm now 78, and have read terrible accounts of chemo, I have held onto the belief that I would do everything to avoid chemo since the treatment appears to be worse than the alternative. But she's really not giving me an alternative, other than
LifeQuality
in
Advanced Prostate Cancer
8 months ago
Recently diagnosed and trying to work out what to do! All advice gratefully received.
I was diagnosed this week. Still in shock a bit as I am a fit and very active 58 with no real symptoms. I have a psa of 7.7. Gleason Score 3+4 = 7 one in 10 cores with a 2.5mm tumour length whoich is 20% of the core involved. 30% of cores showed cribreform pattern 4 glands. Area of concern on MRIs
I was diagnosed this week. Still in shock a bit as I am a fit and very active 58 with no real symptoms. I have a psa of 7.7. Gleason Score 3+4 = 7 one in 10 cores with a 2.5mm tumour length whoich is 20% of the core involved. 30% of cores showed cribreform pattern 4 glands. Area of concern on MRIs
welshsky
in
Prostate Cancer Network
5 months ago
Testosterone and adrenal glands
Hello all, so I finished 10 rounds of chemo docetaxel last year in September. My PSA was down to 2.8 Oct 5th. I had an orchiectomy Oct 15. My PSA started to rise. Nov 5th PSA 5.15. Dec 6th PSA 7.85. Jan 11 PSA 16.23 I have had CT and bone scan early October and another set of scans early January
Hello all, so I finished 10 rounds of chemo docetaxel last year in September. My PSA was down to 2.8 Oct 5th. I had an orchiectomy Oct 15. My PSA started to rise. Nov 5th PSA 5.15. Dec 6th PSA 7.85. Jan 11 PSA 16.23 I have had CT and bone scan early October and another set of scans early January
Eugmn
in
Advanced Prostate Cancer
8 months ago
Always hit pca hard especially in the beginning and follow your instincts, You are Your Own Best Advocate.
Update Husband fighting with Stage 4 pca 06/2022 3 lytic lesions Seen same Medical Oncologist since 07/2022 Received a call from PA after only in this fight for 1.8 years and my husband has liver metastaties We don’t know how many or how big, as MO has not released pet scan of course we are devastated
Update Husband fighting with Stage 4 pca 06/2022 3 lytic lesions Seen same Medical Oncologist since 07/2022 Received a call from PA after only in this fight for 1.8 years and my husband has liver metastaties We don’t know how many or how big, as MO has not released pet scan of course we are devastated
Shorehousejam
in
Advanced Prostate Cancer
5 months ago
Today was a good day
My husband had his PSMA scan today and it was negative for mets!! I am so relieved! He also had his PSA tested today and no change since December. I feel like I can breathe for a moment. We also met with the radiation oncologist this morning to discuss brachytherapy boost and it was a very positive meeting
My husband had his PSMA scan today and it was negative for mets!! I am so relieved! He also had his PSA tested today and no change since December. I feel like I can breathe for a moment. We also met with the radiation oncologist this morning to discuss brachytherapy boost and it was a very positive meeting
EvFC
in
Advanced Prostate Cancer
5 months ago
Barry
Hi, Diagnosed with advanced prostate cancer gleeson score 4+4, psa level 77, about 10 months ago on testosterone injections every 6 months (degarelix) , wondering how long i can go on like this before cancer comes back to bones and what will be my options then, can you survive for many years on just
Hi, Diagnosed with advanced prostate cancer gleeson score 4+4, psa level 77, about 10 months ago on testosterone injections every 6 months (degarelix) , wondering how long i can go on like this before cancer comes back to bones and what will be my options then, can you survive for many years on just
littlemount
in
Advanced Prostate Cancer
8 months ago
PCA Cure and when?
7 months into my fight against castration sensitive prostate cancer. PSA is 0 on ADT and Abiraterone and methylprednisolone. Averaged 8,600 steps/day. I have just started to add occasional sprinting. I am taking multiple supplements. I am greatful that my PSA is 0. I work everyday and pray for
7 months into my fight against castration sensitive prostate cancer. PSA is 0 on ADT and Abiraterone and methylprednisolone. Averaged 8,600 steps/day. I have just started to add occasional sprinting. I am taking multiple supplements. I am greatful that my PSA is 0. I work everyday and pray for
Nowhereman9
in
Advanced Prostate Cancer
8 months ago
better delivery for better results: nanolipid particles work well in vivo
”Mitchell and postdoctoral fellow Lulu Xue were able to achieve therapeutic mRNA delivery into the lungs, helping to eradicate metastatic lung cancer in preclinical mouse model studies. ” https://www.thedp.com/article/2024/04/penn-lipid-nanoparticles-michael-mitchell-research
”Mitchell and postdoctoral fellow Lulu Xue were able to achieve therapeutic mRNA delivery into the lungs, helping to eradicate metastatic lung cancer in preclinical mouse model studies. ” https://www.thedp.com/article/2024/04/penn-lipid-nanoparticles-michael-mitchell-research
Maxone73
in
Advanced Prostate Cancer
5 months ago
The MAO inhibitors phenelzine and clorgyline revert enzalutamide resistance in castration resistant prostate cancer
I am not using enza (yet) wondering if it's worth taking some nutmeg to keep those mao in check anyway! :-P https://www.nature.com/articles/s41467-020-15396-5
I am not using enza (yet) wondering if it's worth taking some nutmeg to keep those mao in check anyway! :-P https://www.nature.com/articles/s41467-020-15396-5
Maxone73
in
Fight Prostate Cancer
8 months ago
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