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Sjogren-Larsson syndrome
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Off topic. This is me done with hols abroad 😔
So here I am, lying on the bed in a villa in menorca. My T9 compression fracture is back in pain with avengence! Saw doc on 2nd day here but pain killers he gave me are no good. So messaged him today asking for morphine to get me through 2 more days and flight home on Sunday. Don't know what I'll do
So here I am, lying on the bed in a villa in menorca. My T9 compression fracture is back in pain with avengence! Saw doc on 2nd day here but pain killers he gave me are no good. So messaged him today asking for morphine to get me through 2 more days and flight home on Sunday. Don't know what I'll do
Haz58
in
NRAS
21 days ago
Fantastic Improvement!
Wow! What a fantastic improvement there is so far and wanted to share in case it helps anyone else. Also thanks to the members in here who gave me advice. I’ve increased my gabapentin to 1500mg (600mg at 6pm/600mg at 8pm/300mg at10pm) and one 30 mg dihydrocodeine with the 10pm dose. Now getting to sleep
Wow! What a fantastic improvement there is so far and wanted to share in case it helps anyone else. Also thanks to the members in here who gave me advice. I’ve increased my gabapentin to 1500mg (600mg at 6pm/600mg at 8pm/300mg at10pm) and one 30 mg dihydrocodeine with the 10pm dose. Now getting to sleep
Islay9
in
Restless Legs Syndrome
22 days ago
Needing more info on Buprenorphine
hi, I’m due an appointment with consultant next Thursday , my RLS are severe and have recently been suffering anxiety and depression, my mood has now lifted , and now I need to get my RLS under control , as I feel that will help me cope better with the anxiety , I have in the past augmented on pramipexole
hi, I’m due an appointment with consultant next Thursday , my RLS are severe and have recently been suffering anxiety and depression, my mood has now lifted , and now I need to get my RLS under control , as I feel that will help me cope better with the anxiety , I have in the past augmented on pramipexole
Kiram
in
Restless Legs Syndrome
26 days ago
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how to cope
I have suffered with restless legs for many years but didn’t know it was a condition until about a year or so ago then the Gp handed me a prescription for Ropinarole which at first worked but then needed increase dose. anyway I weened off them but my legs are still restless and I take magnesium glycinate
I have suffered with restless legs for many years but didn’t know it was a condition until about a year or so ago then the Gp handed me a prescription for Ropinarole which at first worked but then needed increase dose. anyway I weened off them but my legs are still restless and I take magnesium glycinate
Suzi88
in
Restless Legs Syndrome
27 days ago
Can't believe I did this
I've had RLS for 15 plus years, mainly being treated with Sinemet (1 tab 25/100) over the years, with Ropinirole and more painfully, Pramipexole which caused severe augmentation a year ago. Three weeks ago, I had surgery for right anterior tibial tendon repair on my right ankle BECAUSE I stretched it
I've had RLS for 15 plus years, mainly being treated with Sinemet (1 tab 25/100) over the years, with Ropinirole and more painfully, Pramipexole which caused severe augmentation a year ago. Three weeks ago, I had surgery for right anterior tibial tendon repair on my right ankle BECAUSE I stretched it
dickwalhout
in
Restless Legs Syndrome
28 days ago
Appreciate some guidance
Hello After MANY years, I am finally fully off pramipexole ...(Been nearly 2 months now). I find that the nasty augmentation symptoms that would start up early afternoon and go through the night have gradually subsided to the point where I can actually sit still and read a book or watch TV in the evening
Hello After MANY years, I am finally fully off pramipexole ...(Been nearly 2 months now). I find that the nasty augmentation symptoms that would start up early afternoon and go through the night have gradually subsided to the point where I can actually sit still and read a book or watch TV in the evening
Bikerguy1
in
Restless Legs Syndrome
28 days ago
some advice on Codeine and Ropinirole.
Hey guys, im after some opinions after a very disappointing call with my Drs today. After things getting very bad and down to 3/4 hours sleep on 1mg ropinirole and 450 pregabalin i found some codeine and decided to try taking 60mg at night with my meds, all at the same time apart from 150 pregab during
Hey guys, im after some opinions after a very disappointing call with my Drs today. After things getting very bad and down to 3/4 hours sleep on 1mg ropinirole and 450 pregabalin i found some codeine and decided to try taking 60mg at night with my meds, all at the same time apart from 150 pregab during
RLSAndy
in
Restless Legs Syndrome
28 days ago
hydroxyzine hydrochloride antihistamine ??? Is this safe please
hi I occasionally have to take hydroxyzine hydrochloride a prescription strength antihistamine for intersistial cystitis (non bacterial but inflammatory) when I’m in a flare I had a colonoscopy last week as a scan showed some inflammation and thickening in my descending colon they ended up removing
hi I occasionally have to take hydroxyzine hydrochloride a prescription strength antihistamine for intersistial cystitis (non bacterial but inflammatory) when I’m in a flare I had a colonoscopy last week as a scan showed some inflammation and thickening in my descending colon they ended up removing
Zenawarrior73
in
Restless Legs Syndrome
30 days ago
Edema of feet -Ropinirole and/or Gabapentin?
Do/can Ropinirole and/or Gabapentin cause edema of the feet? If yes, does edema disappear once one is off Ropinirole and/or Gabapentin? Thank you.
Do/can Ropinirole and/or Gabapentin cause edema of the feet? If yes, does edema disappear once one is off Ropinirole and/or Gabapentin? Thank you.
Palm10Tree
in
Restless Legs Syndrome
1 month ago
Newbie 0
Hi, I've recently been diagnosed with Gilbert's syndrome/disease. It was picked up via blood tests. I'm waiting to have a liver scan but the GP hasn't come up with any other plan. My main question at the minute is does anyone suffer with itching. Its not put down as one of the main symptoms but it's
Hi, I've recently been diagnosed with Gilbert's syndrome/disease. It was picked up via blood tests. I'm waiting to have a liver scan but the GP hasn't come up with any other plan. My main question at the minute is does anyone suffer with itching. Its not put down as one of the main symptoms but it's
HomerJSimpson
in
British Liver Trust
6 months ago
Diuretics
I have pretty severe edema in feet and occasionally legs.Is there a diuretic that does not trigger rls? I have tried Bumex and Metolazone. Had very bad rls soon after taking each one. I am on low dose Ropinirole -.9mg . It didn't even calm it. Appreciate any input.
I have pretty severe edema in feet and occasionally legs.Is there a diuretic that does not trigger rls? I have tried Bumex and Metolazone. Had very bad rls soon after taking each one. I am on low dose Ropinirole -.9mg . It didn't even calm it. Appreciate any input.
rmbroadh
in
Restless Legs Syndrome
1 month ago
DEXTROMETHOROHAN and RLS
I am possibly going to be taking Avuelity for MDD . I was doing some research on it because of the RLS. There was one article of a woman with RLS who was given Dextromethirphan for a cough and got significant reduction in her symptoms, to the point she stopped Gaba and kept going with the dextromethorphan
I am possibly going to be taking Avuelity for MDD . I was doing some research on it because of the RLS. There was one article of a woman with RLS who was given Dextromethirphan for a cough and got significant reduction in her symptoms, to the point she stopped Gaba and kept going with the dextromethorphan
teakabeagle
in
Restless Legs Syndrome
1 month ago
Is Tramadol effective right away?
After seeing a new neurologist late in April, I started on clonazepam at bedtime. After a week of not having any results other than being way groggier than ever during my walking sessions through the night, I was told to double the dose...still no lessening of my RLS symptoms. Yesterday I was switched
After seeing a new neurologist late in April, I started on clonazepam at bedtime. After a week of not having any results other than being way groggier than ever during my walking sessions through the night, I was told to double the dose...still no lessening of my RLS symptoms. Yesterday I was switched
Marzipana
in
Restless Legs Syndrome
1 month ago
restless leg syndrome
I have read up on this and found a article recommending to take one turmeric and one Tylenol no other type of pain reliever must be Tylenol. When I am getting restless leg syndrome at night I take one of each and I was in total shock because within 15 minutes my legs were calm. I could not believe it
I have read up on this and found a article recommending to take one turmeric and one Tylenol no other type of pain reliever must be Tylenol. When I am getting restless leg syndrome at night I take one of each and I was in total shock because within 15 minutes my legs were calm. I could not believe it
Friend_rsl
in
Restless Legs Syndrome
1 month ago
questions about gabapentin
I have severe rls. I have gone through augmentation and had impulse control issues. I went through DAWS when I weaned off pramipraxole. I have been off of DAs for 5 years. I tried to go drug free when I got off but I was going crazy. I found a dr that prescribed methadone. That helped but it really
I have severe rls. I have gone through augmentation and had impulse control issues. I went through DAWS when I weaned off pramipraxole. I have been off of DAs for 5 years. I tried to go drug free when I got off but I was going crazy. I found a dr that prescribed methadone. That helped but it really
senders
in
Restless Legs Syndrome
1 month ago
Living Hell
I first experienced RLS about 1982. I had no idea what was wrong with me so I just put it down to some sort of allergy. As the attacks were quite intermittent, I didn't seek any help at the time. After about a year though. The frequency and severity of the attacks increased manyfold and was now causing
I first experienced RLS about 1982. I had no idea what was wrong with me so I just put it down to some sort of allergy. As the attacks were quite intermittent, I didn't seek any help at the time. After about a year though. The frequency and severity of the attacks increased manyfold and was now causing
SteveSpectra
in
Restless Legs Syndrome
1 month ago
coffeecup
I have tried everything ! After years on Pramipexol I augmented but was persuaded by a neurologist (against my better judgement) to try Ropinerol - guess what - augmentation. After weaning off it I was so looking forward to relief from Pregabalin - no relief just horrendous brain fog. Gabapentin - no
I have tried everything ! After years on Pramipexol I augmented but was persuaded by a neurologist (against my better judgement) to try Ropinerol - guess what - augmentation. After weaning off it I was so looking forward to relief from Pregabalin - no relief just horrendous brain fog. Gabapentin - no
Coffeecup
in
Restless Legs Syndrome
1 month ago
here’s what I use
Neupro patch 24 h 6mg, Tramadol 50 mg at night, Gabapentin 100 mg, Tylenol 500 mg, temazepam 30mg at bedtime, Iron 325 mg 3 x’s a week. Magnesium 500 mg at night. Works pretty good though I’m augmenting. I
Neupro patch 24 h 6mg, Tramadol 50 mg at night, Gabapentin 100 mg, Tylenol 500 mg, temazepam 30mg at bedtime, Iron 325 mg 3 x’s a week. Magnesium 500 mg at night. Works pretty good though I’m augmenting. I
maribarosay
in
Restless Legs Syndrome
1 month ago
Changing opiods
I have severe restless legs and have suffered for many years Recently I came off pramipexole, after augmentation. I am now on Targin 40 mg daily, 15mg at 2pm and 25mg at 8pm. I still suffer from restless legs early in the morning, however it is far less intense. Having read many comments re the benefits
I have severe restless legs and have suffered for many years Recently I came off pramipexole, after augmentation. I am now on Targin 40 mg daily, 15mg at 2pm and 25mg at 8pm. I still suffer from restless legs early in the morning, however it is far less intense. Having read many comments re the benefits
Trish8433
in
Restless Legs Syndrome
1 month ago
2nd post update from neurology and quick Q. can you see your muscles moving?
hi only my second post, had a very disappointing appt with a private neurologist over my RLS and muscle twitching. brief history mine started as muscle twitching out hip surgery with restless legs flaring up as a side dish it’s now widespread twitching and restless legs. He tried prescribing me duloxetine
hi only my second post, had a very disappointing appt with a private neurologist over my RLS and muscle twitching. brief history mine started as muscle twitching out hip surgery with restless legs flaring up as a side dish it’s now widespread twitching and restless legs. He tried prescribing me duloxetine
Zenawarrior73
in
Restless Legs Syndrome
1 month ago
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