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Timeframe for antivegf injections…
Hello me again! Sorry this is all really new to me. I ve just a week ago had a macula bleed with suspected myopic maculopathy and my health board is slow to send an urgent appt despite me being an NHS worker and being off work with it. They have classed me as needing an appt in a few weeks but I m aware
Hello me again! Sorry this is all really new to me. I ve just a week ago had a macula bleed with suspected myopic maculopathy and my health board is slow to send an urgent appt despite me being an NHS worker and being off work with it. They have classed me as needing an appt in a few weeks but I m aware
Deepbluesea2022
in
Macular Society
2 years ago
Purchase of B12 for self administration
Would anyone have details to purchase B12 for self administration via IM injection I am in the UK I am a retired qualified nurse so capable and competent to administer my own injections thanks
Would anyone have details to purchase B12 for self administration via IM injection I am in the UK I am a retired qualified nurse so capable and competent to administer my own injections thanks
Katrina999666
in
Pernicious Anaemia Society
3 years ago
Peripapillary CNV
After 18 months without an Eylea injection, I was given an appointment for treatment. The OCT showed a leak further out from the fovea than the one I had had before, which itself was some way from the fovea. I had a second OCT (which I've not seen) taken of the optic disc. In a letter that came after
After 18 months without an Eylea injection, I was given an appointment for treatment. The OCT showed a leak further out from the fovea than the one I had had before, which itself was some way from the fovea. I had a second OCT (which I've not seen) taken of the optic disc. In a letter that came after
ironbrain
in
Macular Society
3 years ago
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Black spots upon waking
Hi.. I have this problem also. It started around 6 months ago. Woke up one morning to see 2 black dots upon the white wall which disappeared when blinking. I contacted my gp and have had 2 eye tests including dilated pupil and both say eye health is good. I am now suffering with sleep and hallucinations
Hi.. I have this problem also. It started around 6 months ago. Woke up one morning to see 2 black dots upon the white wall which disappeared when blinking. I contacted my gp and have had 2 eye tests including dilated pupil and both say eye health is good. I am now suffering with sleep and hallucinations
Giro26
in
Macular Society
3 years ago
Macular Disease Conference 2021 9.15am Saturday 11th September.
This year's virtual event is FREE and will see researchers and consultants come together to talk about the latest news in treatments and cutting-edge research. The event will include tailored sessions for people with age-related macular degeneration (AMD), and for those with inherited retinal diseases
This year's virtual event is FREE and will see researchers and consultants come together to talk about the latest news in treatments and cutting-edge research. The event will include tailored sessions for people with age-related macular degeneration (AMD), and for those with inherited retinal diseases
Kelly_macularsociety
Administrator
in
Macular Society
3 years ago
Wet macular degeneration, does it dry up for long?
I’m heading to my second Eylea injections shortly and was wondering how long the Eylea can dry it up for? I think my vision is improved a little so I’m wondering if there is a chance I won’t need further injections after the loading dose. Is it feasible to hope for this as an outcome?
I’m heading to my second Eylea injections shortly and was wondering how long the Eylea can dry it up for? I think my vision is improved a little so I’m wondering if there is a chance I won’t need further injections after the loading dose. Is it feasible to hope for this as an outcome?
BlurryArtist
in
Macular Society
3 years ago
Ozurdex implant.
Hello everyone after being diagnosed 3 years ago (49 now) with macular oedema and CRVO ive had laser, injections and just received my 2nd steroid implant last Friday, it wasn’t my normal doctor of which I’m not happy about as I went through a totally different procedure and he was very rough with me
Hello everyone after being diagnosed 3 years ago (49 now) with macular oedema and CRVO ive had laser, injections and just received my 2nd steroid implant last Friday, it wasn’t my normal doctor of which I’m not happy about as I went through a totally different procedure and he was very rough with me
sarahc333
in
Macular Society
3 years ago
PA and proctitis
My mom was diagnosed with PA awhile back and has struggled with proctitis for some time. Is there any connection? Anyone else experience this? Did B12 injections help?
My mom was diagnosed with PA awhile back and has struggled with proctitis for some time. Is there any connection? Anyone else experience this? Did B12 injections help?
Ctadds1
in
Pernicious Anaemia Society
3 years ago
Interesting update for us from American Macular!
This looks an interesting webinar to watch on April 15th GMT 8 pm, you can sign up quite easily, if you haven’t received an email, I think the link can be found on Macular.org Love and best wishes Ann You're invited to a free, live, interactive expert panel discussion of age-related macular degeneration
This looks an interesting webinar to watch on April 15th GMT 8 pm, you can sign up quite easily, if you haven’t received an email, I think the link can be found on Macular.org Love and best wishes Ann You're invited to a free, live, interactive expert panel discussion of age-related macular degeneration
Annsandra13
in
Macular Society
3 years ago
BCD
Hi, I have been recently diagnosed with Bietti Crystalline Dystrophy. I have been getting intravenous avastin in both eyes for wet macular degeneration since 11 years (when needed). But my diagnosis is relatively recent. I personally have neither met or known anyone with BCD and wanted to see if anyone
Hi, I have been recently diagnosed with Bietti Crystalline Dystrophy. I have been getting intravenous avastin in both eyes for wet macular degeneration since 11 years (when needed). But my diagnosis is relatively recent. I personally have neither met or known anyone with BCD and wanted to see if anyone
GC_0007
in
Macular Society
4 years ago
Chalazion after injection - how long should we leave it after shot before using hot compresses?
Hi guys, I had my lucentis shot last Tuesday (and a very scratchy shot it was too - my worst in two years). I have a repeated chalazion that comes up on the lid of that eye, and it's in the process of flaring now. Has anyone been given guidance on how long we should leave using microwavable compresses
Hi guys, I had my lucentis shot last Tuesday (and a very scratchy shot it was too - my worst in two years). I have a repeated chalazion that comes up on the lid of that eye, and it's in the process of flaring now. Has anyone been given guidance on how long we should leave using microwavable compresses
Sianana
in
Macular Society
4 years ago
Macular degeneration
I have been receiving injection in my eye since September 2019, for what I thought was a gramuloma in the macula.. I asked the nurse today what I have a she said macular degeneration. The eye dr never mentioned this to me, she just kept telling me injection were for fluid or odema ... I am worried
I have been receiving injection in my eye since September 2019, for what I thought was a gramuloma in the macula.. I asked the nurse today what I have a she said macular degeneration. The eye dr never mentioned this to me, she just kept telling me injection were for fluid or odema ... I am worried
Moddy22
in
Macular Society
4 years ago
I just joined today
So happy I found this place! It is a treasure trove of information. I am an 83-year-old woman from California with macular degeneration. It has been very slowly progressing for about 10 years, but recently one eye progressed to the wet form. I have had two Avastin injections and am due for a third next
So happy I found this place! It is a treasure trove of information. I am an 83-year-old woman from California with macular degeneration. It has been very slowly progressing for about 10 years, but recently one eye progressed to the wet form. I have had two Avastin injections and am due for a third next
oldoakowl
in
Macular Society
4 years ago
Interesting article: In-office gene therapy for wet age-related macular degeneration is coming
Gene therapy is showing promise for one of the most common causes of blindness. Data presented today shows that six patients with wet age-related macular degeneration (AMD) have, so far, gone at least six months without the need for continued injections to control a disease that typically requires treatment
Gene therapy is showing promise for one of the most common causes of blindness. Data presented today shows that six patients with wet age-related macular degeneration (AMD) have, so far, gone at least six months without the need for continued injections to control a disease that typically requires treatment
Edman777
in
Macular Society
4 years ago
New treatment for wet AMD available in Scotland
A new treatment for wet age-related macular degeneration (AMD), which would require fewer injections, has been approved for NHS patients in Scotland today. Brolucizumab (Beovu), which could see patients going as much as 12 weeks between injections, has been approved by the Scottish Medicines Consortium
A new treatment for wet age-related macular degeneration (AMD), which would require fewer injections, has been approved for NHS patients in Scotland today. Brolucizumab (Beovu), which could see patients going as much as 12 weeks between injections, has been approved by the Scottish Medicines Consortium
Becky_MacularSociety
Administrator
in
Macular Society
4 years ago
SHOCKED
Hi just an update on my last post I was diagnosed with wet macular and a macular pucker I have had 3 Lucentis injections which havnt worked and my consultant suggested a Ozurdex implant I decided to go privately and get another opinion and was told yesterday that I do not have macular degeneration just
Hi just an update on my last post I was diagnosed with wet macular and a macular pucker I have had 3 Lucentis injections which havnt worked and my consultant suggested a Ozurdex implant I decided to go privately and get another opinion and was told yesterday that I do not have macular degeneration just
Eyesore
in
Macular Society
4 years ago
OZURDEX
Hi had my second injection 3 weeks ago and my consultant doesn’t think it’s going to work for me and has suggested trying Ozurdex Implant anybody had this and what does it entail is it like getting the Lucentis injections or different more painful etc.
Hi had my second injection 3 weeks ago and my consultant doesn’t think it’s going to work for me and has suggested trying Ozurdex Implant anybody had this and what does it entail is it like getting the Lucentis injections or different more painful etc.
Eyesore
in
Macular Society
4 years ago
Macular Society Virtual Clinic
Experts in macular disease will be bringing you the latest information straight from the eye clinic, in a new series of webinars. The Virtual Clinic series, hosted by the Macular Society, will give you the chance to hear up to date information from ophthalmologists and leading experts and ask the
Experts in macular disease will be bringing you the latest information straight from the eye clinic, in a new series of webinars. The Virtual Clinic series, hosted by the Macular Society, will give you the chance to hear up to date information from ophthalmologists and leading experts and ask the
Becky_MacularSociety
Administrator
in
Macular Society
4 years ago
Lucentis injections
Hi everyone just had my 4th injection today and feeling really well after this latest one. Just a thought, as nearly always takes me a good 24 hours normally to feel brighter after them. Just wondering if this is due to build up, getting used to them or struck lucky with my injector today? Would love
Hi everyone just had my 4th injection today and feeling really well after this latest one. Just a thought, as nearly always takes me a good 24 hours normally to feel brighter after them. Just wondering if this is due to build up, getting used to them or struck lucky with my injector today? Would love
MillieT
in
Macular Society
4 years ago
First in series of webinars for different types of macular disease
We will be launching our first in a series of condition-specific webinars for patients later this month. The first event, which will take place on 30 July, will be focused on myopic macular degeneration and will be hosted by Professor Jeremy Guggenheim from the School of Optometry and Vision Sciences
We will be launching our first in a series of condition-specific webinars for patients later this month. The first event, which will take place on 30 July, will be focused on myopic macular degeneration and will be hosted by Professor Jeremy Guggenheim from the School of Optometry and Vision Sciences
Becky_MacularSociety
Administrator
in
Macular Society
4 years ago
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