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Rituximab
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Be positive
Evening everyone - as usual this place gives me a lift - so much help and support from everyone. I'm reminded that a year ago I was mid FCR (6 rounds) and feeling awful. This evening I ran 10kilometres in 52 minutes as I train for the Westminster 10K that I am running in support of CLLSA. My overriding
Evening everyone - as usual this place gives me a lift - so much help and support from everyone. I'm reminded that a year ago I was mid FCR (6 rounds) and feeling awful. This evening I ran 10kilometres in 52 minutes as I train for the Westminster 10K that I am running in support of CLLSA. My overriding
MattGGibson
in
CLL Support
6 years ago
Rituximab
seen early.Now i am aware of side effects of
Rituximab
but i just wondered if anybody had similar experience and peoples views on this.
seen early.Now i am aware of side effects of
Rituximab
but i just wondered if anybody had similar experience and peoples views on this.
Keithtim10
in
Vasculitis UK
6 years ago
Alcohol
Hi guys can anyone tell me if they had a few beers when on the FCR Treatment programme after their 5 day tablets were finished. Hubby wants a beer in this nice weather ??
Hi guys can anyone tell me if they had a few beers when on the FCR Treatment programme after their 5 day tablets were finished. Hubby wants a beer in this nice weather ??
Sailormoon11
in
CLL Support
6 years ago
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My cancer is in remission – what does this mean?
[i]"In the 1970s, only one cancer patient in three made it through the first five years after diagnosis. Today, this figure is around 70%, and exceeds 85% for some cancers that were previously fatal. So, remission might mean cure but we only know that over time." [/i] So concludes Ian Olver, Director
[i]"In the 1970s, only one cancer patient in three made it through the first five years after diagnosis. Today, this figure is around 70%, and exceeds 85% for some cancers that were previously fatal. So, remission might mean cure but we only know that over time." [/i] So concludes Ian Olver, Director
AussieNeil
Partner
in
CLL Support
6 years ago
Muscle Spasms - Not dehydrated
Post round five FCR with Neulasta (this week). I am experiencing moderate spasms / muscular seizures. Has anyone had similar experiences? Suggestions for overcoming these? At their worse, they actually pulse in intensity with the beating of my heart – yes, the intensity worsens with the beating of my
Post round five FCR with Neulasta (this week). I am experiencing moderate spasms / muscular seizures. Has anyone had similar experiences? Suggestions for overcoming these? At their worse, they actually pulse in intensity with the beating of my heart – yes, the intensity worsens with the beating of my
Paul_Mangold
in
CLL Support
6 years ago
Hospital response to lack of monitoring after first FCR
Just had a call back from a (lady) doctor after my call to the (male) consultant and (male) trial nurse to complain about lack of monitoring by the hospital. Take what inference you will from this! Unreserved apologies. A new team had taken over the discharge papers when I left hospital. I pointed out
Just had a call back from a (lady) doctor after my call to the (male) consultant and (male) trial nurse to complain about lack of monitoring by the hospital. Take what inference you will from this! Unreserved apologies. A new team had taken over the discharge papers when I left hospital. I pointed out
Mandy56
in
CLL Support
6 years ago
Rituximab
Went for the second part of my infusion yesterday and my blood pressure was high and my heart rate. The first part of the infusion left me with this and they kept me back 2 hours and took an ECG. Anyway, in I went yesterday not having slept, terrible weather to drive through and my anxiety level was
Went for the second part of my infusion yesterday and my blood pressure was high and my heart rate. The first part of the infusion left me with this and they kept me back 2 hours and took an ECG. Anyway, in I went yesterday not having slept, terrible weather to drive through and my anxiety level was
Ellieellie
in
NRAS
6 years ago
Rituximab infusion 1 so far so good
Hi everyone just got back from hospital after my first infusion of
Rituximab
. All went well no hiccups thank goodness. Started Ibrutinib the day before. I know I am not out of the wood reaction wise yet but so far so good.🤞for the road ahead.
Hi everyone just got back from hospital after my first infusion of
Rituximab
. All went well no hiccups thank goodness. Started Ibrutinib the day before. I know I am not out of the wood reaction wise yet but so far so good.🤞for the road ahead.
annmcgowan
in
CLL Support
6 years ago
Anyone had FCR as second line treatment?
Hi all has any one had FCR for second line treatment if so how were your results. I'm going back on treatment after 22nd May and discussing what's best.
Hi all has any one had FCR for second line treatment if so how were your results. I'm going back on treatment after 22nd May and discussing what's best.
Mick491
in
CLL Support
6 years ago
Infusion
I would like them to offer an alternative to the
rituximab
. So sitting here feeling really rough and Very sorry for myself.
I would like them to offer an alternative to the
rituximab
. So sitting here feeling really rough and Very sorry for myself.
Ellieellie
in
NRAS
6 years ago
Questions for consultant?
49 Years old, in UK (Yorkshire) Diagnosed 2 years ago, blood counts steadily rising. I am no longer working (As a p/t Teacher) due to fatigue. Started FCR Chemo due to fatigue (On Cycle 1) . No swollen lymph nodes etc but CT scan showed Spleen enlarged and lesions on Liver. Biopsy revealed CLL progression
49 Years old, in UK (Yorkshire) Diagnosed 2 years ago, blood counts steadily rising. I am no longer working (As a p/t Teacher) due to fatigue. Started FCR Chemo due to fatigue (On Cycle 1) . No swollen lymph nodes etc but CT scan showed Spleen enlarged and lesions on Liver. Biopsy revealed CLL progression
AntonMB
in
CLL Support
6 years ago
Treatmant for cll
Hello!My name is Lidia.My husband has cll from 2012 and now his wbc is 140000 and the platelets are 101000.The doctor said that is time for therapy.He will start FCR on tuesday.Is there anybody who knows something about it?Does it work?My husband has also del 11q.
Hello!My name is Lidia.My husband has cll from 2012 and now his wbc is 140000 and the platelets are 101000.The doctor said that is time for therapy.He will start FCR on tuesday.Is there anybody who knows something about it?Does it work?My husband has also del 11q.
nikolle
in
CLL America Support
6 years ago
First. FCR treatment
Happy to report first day (of two) of treatment done and feel fine. Bit od a sticky moment half an hour in, feeling palpitations and breathless. Nurses think this was due to steroids I’d been given initially to counter any adverse reaction. After ECG and doctor checking me over, treatment continued
Happy to report first day (of two) of treatment done and feel fine. Bit od a sticky moment half an hour in, feeling palpitations and breathless. Nurses think this was due to steroids I’d been given initially to counter any adverse reaction. After ECG and doctor checking me over, treatment continued
Mandy56
in
CLL Support
6 years ago
Hello my name is Donna. 56 yrs old, CLL diagnosis 2002, started FCR in Jan.
I was looking online for info on neurological side effects of FCR because I keep feeling "brain zaps". I found this page and signed up. So anyone else experience thos kind of side effect? I finished round 4 3 weeks ago and the symptoms are lessening a bit, but in the evening I still feel off on the
I was looking online for info on neurological side effects of FCR because I keep feeling "brain zaps". I found this page and signed up. So anyone else experience thos kind of side effect? I finished round 4 3 weeks ago and the symptoms are lessening a bit, but in the evening I still feel off on the
Hidden
in
CLL Support
6 years ago
Foot and heel problems
I'm already having regular
Rituximab
infusions and Methotrexate and prednisone...running out of options after trying quite a few other biologics etc. Thanks for your ideas :-)
I'm already having regular
Rituximab
infusions and Methotrexate and prednisone...running out of options after trying quite a few other biologics etc. Thanks for your ideas :-)
Talmalmo
in
NRAS
6 years ago
Starting FCR on Monday
After lots of ups and downs, I am on the FLAIR trial and starting FCR on Monday. I’ve tapped into a wealth of advice here, but would welcome any pearls of wisdom anyone can offer. I do have a question though - does the treatment get worse the longer into it you go? I was hoping to book a holiday in
After lots of ups and downs, I am on the FLAIR trial and starting FCR on Monday. I’ve tapped into a wealth of advice here, but would welcome any pearls of wisdom anyone can offer. I do have a question though - does the treatment get worse the longer into it you go? I was hoping to book a holiday in
Mandy56
in
CLL Support
6 years ago
Rituximab and heightened histamine/allergic reaction? Or just the soya yoghurts I ate ?
Anyone else ever had an allergic hives reaction to soya products whilst on
Rituximab
? I was worried that
Rituximab
has caused this reaction but my rheumy nurse phoned me and said it isn't that as it's never happened before and would have done the first of the recent duo, and didn't!
Anyone else ever had an allergic hives reaction to soya products whilst on
Rituximab
? I was worried that
Rituximab
has caused this reaction but my rheumy nurse phoned me and said it isn't that as it's never happened before and would have done the first of the recent duo, and didn't!
NeonkittyUK
in
NRAS
6 years ago
Probable discectomy☹️☹️
My problem is i was due to have
rituximab
infusion on the 18th of February but ive found out it is delayed until 27th of April. Im getting the op done privately hopefully so if I get it done soon maybe early March will that work with the
rituximab
.
My problem is i was due to have
rituximab
infusion on the 18th of February but ive found out it is delayed until 27th of April. Im getting the op done privately hopefully so if I get it done soon maybe early March will that work with the
rituximab
.
weathervane
in
NRAS
6 years ago
FLAIR Trial allocated Ibrutinib and Rituximab any advice?
Hi just heard I have been allocated the Ibrutinib and
Rituximab
arm on the FLAIR trial today. I will be starting very soon. Anyone out there been on this arm of the trial or are currently on it? I would welcome any advice from anyone. Ann
Hi just heard I have been allocated the Ibrutinib and
Rituximab
arm on the FLAIR trial today. I will be starting very soon. Anyone out there been on this arm of the trial or are currently on it? I would welcome any advice from anyone. Ann
annmcgowan
in
CLL Support
6 years ago
Hi I am new to Health Unlocked.
Had RA since 1992,tried lots of meds some good but stopped working.Am on Methotrexate,Folic Acid and
Rituximab
infusions ok at the moment. Most of my joints have mechanical damage, some replaced or fused. I lost jobs on Health & Safety grounds & had to stop work in 2010.
Had RA since 1992,tried lots of meds some good but stopped working.Am on Methotrexate,Folic Acid and
Rituximab
infusions ok at the moment. Most of my joints have mechanical damage, some replaced or fused. I lost jobs on Health & Safety grounds & had to stop work in 2010.
Backy
in
NRAS
6 years ago
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