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and had some blood tests to check if I had a blood clot they came back all good but had a scan afterwards and found I had a clot behind my left knee area, they said as I hadn't had any recent injury to that leg they were not sure why I had a clot but wondered if it could be caused by my infusions of
rituximab
and had some blood tests to check if I had a blood clot they came back all good but had a scan afterwards and found I had a clot behind my left knee area, they said as I hadn't had any recent injury to that leg they were not sure why I had a clot but wondered if it could be caused by my infusions of
rituximab
Cookyboy1
in
Vasculitis UK
4 years ago
CLL treatment prognosis
Hi all, I was told at my consult this week that because of the way my CLL was - the word immature was used - that I would not be one of the lucky people who have the FCR course of treatment and then nothing again for years. I’m about to start on the Flair programme next month. Does this mean my overall
Hi all, I was told at my consult this week that because of the way my CLL was - the word immature was used - that I would not be one of the lucky people who have the FCR course of treatment and then nothing again for years. I’m about to start on the Flair programme next month. Does this mean my overall
HarryMet
in
CLL Support
4 years ago
Lumps under armpits
I have large swellings under both armpits. My GP says they are swollen lymph nodes each the size of half a tennis ball. Painless to the touch but beginning to give me a stinging pain as I move. I was diagnosed 2006 and had fcr 3 years ago. Lymphocytes are just under 200 but generally blood counts are
I have large swellings under both armpits. My GP says they are swollen lymph nodes each the size of half a tennis ball. Painless to the touch but beginning to give me a stinging pain as I move. I was diagnosed 2006 and had fcr 3 years ago. Lymphocytes are just under 200 but generally blood counts are
aloneifly
in
CLL Support
4 years ago
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Report from CLL Webinar: Prof Hillmen, 10th June 2020
I attended a webinar hosted by the CLL Support Association and Leukaemia Care. Thanks to everyone responsible for organising the event, I found it most informative. The guest keynote speaker was Prof. Peter Hillmen, Consultant in Clinical Haematology at Leeds Teaching Hospitals NHS Trust and Honorary
I attended a webinar hosted by the CLL Support Association and Leukaemia Care. Thanks to everyone responsible for organising the event, I found it most informative. The guest keynote speaker was Prof. Peter Hillmen, Consultant in Clinical Haematology at Leeds Teaching Hospitals NHS Trust and Honorary
Davdow
in
CLL Support
4 years ago
shielding letter at last
I suffer from
Rituximab
induced Hypogammaglobulinaemia so require immunoglobulin therapy weekly to maintain my immune system. Will need to be sure life outside is safe before I venture out into the world again. Wishing everyone well. Keep safe. Pam X
I suffer from
Rituximab
induced Hypogammaglobulinaemia so require immunoglobulin therapy weekly to maintain my immune system. Will need to be sure life outside is safe before I venture out into the world again. Wishing everyone well. Keep safe. Pam X
Pam-51
in
NRAS
4 years ago
Rituximab/anxiety
Rituximab
Hi here goes so the back story is I had ritx last year I was given pain page 6 weeks after the ritx of my gp.... anyhow 2 months later after the ritx last year ,I had huge anxiety overwhelming anxiety worst thing I’ve ever experienced, fast forward to this year had the ritx again in late
Rituximab
Hi here goes so the back story is I had ritx last year I was given pain page 6 weeks after the ritx of my gp.... anyhow 2 months later after the ritx last year ,I had huge anxiety overwhelming anxiety worst thing I’ve ever experienced, fast forward to this year had the ritx again in late
Vonnie10
in
NRAS
4 years ago
Rituximab risk from Covid19 coronavirus
Im on
rituximab
for ra and lupus. Does anyone know what I should do. I work in social care so can't self isolate. From what I have read stringent social distancing is what I should be doing so I'm only going out when I go to work
Im on
rituximab
for ra and lupus. Does anyone know what I should do. I work in social care so can't self isolate. From what I have read stringent social distancing is what I should be doing so I'm only going out when I go to work
jeanette60
in
LUPUS UK
4 years ago
Do something or not?
I take 200 mgs hydroxychloroquine and 50 mgs losartan a day and I have had several
Rituximab
infusions, the last being a couple of years ago.
I take 200 mgs hydroxychloroquine and 50 mgs losartan a day and I have had several
Rituximab
infusions, the last being a couple of years ago.
Neriah
in
LUPUS UK
4 years ago
Getting a letter?
Having SLE, on steroids, had
rituximab
in the last 6 months, have CKD and been on dialysis for the last 3 months too so I should qualify but really really unsure. Very worrying times just now.
Having SLE, on steroids, had
rituximab
in the last 6 months, have CKD and been on dialysis for the last 3 months too so I should qualify but really really unsure. Very worrying times just now.
Hidden
in
LUPUS UK
4 years ago
Advice on Shielding
Hi All I have yet to get a letter telling me I'm high risk but am on
rituximab
and predisolone so know I am and just wanted advice on shielding. I live in a flat and have to come out into the communal area and go downstairs to get my post and also have to go out to take rubbish to the bins etc.
Hi All I have yet to get a letter telling me I'm high risk but am on
rituximab
and predisolone so know I am and just wanted advice on shielding. I live in a flat and have to come out into the communal area and go downstairs to get my post and also have to go out to take rubbish to the bins etc.
Galaxy2
in
Vasculitis UK
4 years ago
Vasculitis chest probs
Hi had my first infusion of
rituximab
days ago, not expecting miricles but was wondering why I still have a husky voice and feel as though when I get like that (which is quite often) there's a need to clear flem from my throat, can anyone explain this please, lve done a peek test and am reaching 450,
Hi had my first infusion of
rituximab
days ago, not expecting miricles but was wondering why I still have a husky voice and feel as though when I get like that (which is quite often) there's a need to clear flem from my throat, can anyone explain this please, lve done a peek test and am reaching 450,
Cookyboy1
in
Vasculitis UK
4 years ago
Coronavirus - very worried
Suffer from
Rituximab
induced Hypogammaglobulinaemia which means than my immune system has been compromised by 12 years treatment with
Rituximab
. I now require immunoglobulin infusions weekly to maintain my immune system.
Suffer from
Rituximab
induced Hypogammaglobulinaemia which means than my immune system has been compromised by 12 years treatment with
Rituximab
. I now require immunoglobulin infusions weekly to maintain my immune system.
Pam-51
in
NRAS
4 years ago
I’m Self isolating but should my daughter still go to school?
Currently in a bad flare after having a baby 7 months ago and was due to change meds to
Rituximab
which I imagine will be postponed now. I’m going to self isolate for the 12 weeks but my daughter who is 7 attends school which is currently still open. Should I be keeping her at home?
Currently in a bad flare after having a baby 7 months ago and was due to change meds to
Rituximab
which I imagine will be postponed now. I’m going to self isolate for the 12 weeks but my daughter who is 7 attends school which is currently still open. Should I be keeping her at home?
Claire32
in
NRAS
4 years ago
Is this psoriasis?
Is it likely that this rash could be the result of my
Rituximab
infusion having been postponed? How to cope with the itching? Any creams you would recommend? I've taken a cetirizine (antihistamine) at suggestion of GP as an interim measure but no relief apparent yet. Help!
Is it likely that this rash could be the result of my
Rituximab
infusion having been postponed? How to cope with the itching? Any creams you would recommend? I've taken a cetirizine (antihistamine) at suggestion of GP as an interim measure but no relief apparent yet. Help!
Lolabridge
in
NRAS
4 years ago
CCL n ibrutinib side effects
My dad was detected with CLL in December 2019..2 chemos of
Rituximab
and endoxon .He was doing well..bt he was put in ibrutinib which is working wonders bringing wbc from 500000 to 150000.But had to stop the medicine after 8 days dur to side effects ..capillary burst and internal bleeding in the legs.Initial
My dad was detected with CLL in December 2019..2 chemos of
Rituximab
and endoxon .He was doing well..bt he was put in ibrutinib which is working wonders bringing wbc from 500000 to 150000.But had to stop the medicine after 8 days dur to side effects ..capillary burst and internal bleeding in the legs.Initial
sweetromeet
in
CLL Support
4 years ago
Structure of CD20 in complex with the therapeutic monoclonal antibody rituximab
Rituximab
is the prototypical Type I mAb, characterized by high CDC activity and the ability to cluster CD20 into lipid rafts. Other Type I mAbs include ocrelizumab [OCR] and ofatumumab [OFA;].
Rituximab
is the prototypical Type I mAb, characterized by high CDC activity and the ability to cluster CD20 into lipid rafts. Other Type I mAbs include ocrelizumab [OCR] and ofatumumab [OFA;].
gardening-girl
in
CLL Support
4 years ago
High platelets and poor consult
I am on
rituximab
had my 2 infusions January. I expressed concerns to previous out of retirement consultant that it was no longer working. She then asked me if I wanted to continue with
rituximab
I replied that I was aware it was in my system until July.
I am on
rituximab
had my 2 infusions January. I expressed concerns to previous out of retirement consultant that it was no longer working. She then asked me if I wanted to continue with
rituximab
I replied that I was aware it was in my system until July.
28maggie11
in
NRAS
4 years ago
Hospitals treating Coronavirus
Hi all I really needed somewhere just to have a little (or big) panic but thanks to Twitter I've just read that the hospital I'm due to have my second
Rituximab
infusion at tomorrow is treating patients with the Coronavirus in their infectious diseases unit.
Hi all I really needed somewhere just to have a little (or big) panic but thanks to Twitter I've just read that the hospital I'm due to have my second
Rituximab
infusion at tomorrow is treating patients with the Coronavirus in their infectious diseases unit.
BookishVibes
in
LUPUS UK
4 years ago
Still ANCA positive
Hi everyone, regarding GPA, if I’m still ANCA positive after
Rituximab
and consultants now thinking about Azathioprine, does that mean
rituximab
hasn’t worked well enough? Didn’t ask at last appointment and there’s so much online it’s confusing. Thankyou!
Hi everyone, regarding GPA, if I’m still ANCA positive after
Rituximab
and consultants now thinking about Azathioprine, does that mean
rituximab
hasn’t worked well enough? Didn’t ask at last appointment and there’s so much online it’s confusing. Thankyou!
kitkatmum
in
Vasculitis UK
4 years ago
Rituximab subsequent courses
As
Rituximab
takes a while to kick in, why do they leave it so long between courses? It feels like being on a rollercoaster . It took 14 weeks for my husband to feel the benefits of his first course. After 6 months the effects tailed off.
As
Rituximab
takes a while to kick in, why do they leave it so long between courses? It feels like being on a rollercoaster . It took 14 weeks for my husband to feel the benefits of his first course. After 6 months the effects tailed off.
Pop007
in
LUPUS UK
4 years ago
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