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STEP ONE OF MY THIRD CLINICAL TRIAL huCAR-T19 IL-18
With the ink barely dry on my clinical trial consent forms, it was back up to Penn Medicine for my blood collection. First stop was the radiology dept to have a neck catheter installed, I decided against the arm extraction method, as it limits your mobility during the procedure. Cath installation complete
With the ink barely dry on my clinical trial consent forms, it was back up to Penn Medicine for my blood collection. First stop was the radiology dept to have a neck catheter installed, I decided against the arm extraction method, as it limits your mobility during the procedure. Cath installation complete
steve5441
in
CLL Support
1 year ago
PICC line or not
hello every one I read every ones post everyday so hoping you can give me some advice . I had FCR in 2016/2017 which I struggled with the last 3 months of treatment, I started on acalabrutanib but after 1 week had to stop due to severe bone pain , so severe I couldn’t get out of bed or a chair , was
hello every one I read every ones post everyday so hoping you can give me some advice . I had FCR in 2016/2017 which I struggled with the last 3 months of treatment, I started on acalabrutanib but after 1 week had to stop due to severe bone pain , so severe I couldn’t get out of bed or a chair , was
mush56
in
CLL Support
1 year ago
Covid-Induced ITP Recovery Questions
I just finished my 4th of 4 doses of
Rituximab
on September 30th. So far, I haven't seen any major improvements. I've been given IVIG like 4 times (8/9, 8/10, 8/17, 9/16) to stop me from bottoming out too low again while I wait for something to work, but no dice.
I just finished my 4th of 4 doses of
Rituximab
on September 30th. So far, I haven't seen any major improvements. I've been given IVIG like 4 times (8/9, 8/10, 8/17, 9/16) to stop me from bottoming out too low again while I wait for something to work, but no dice.
thestrugglebus
in
ITP Support Association
2 years ago
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Struggling to understand all this.
I am suppose to start
Rituximab
Infusion as soon as I call. When I ask how my kidneys got this bad-no real answer or etiology. Ask why my kidneys are not responding to treatments/medication- I get -sometimes it takes longer than normal.
I am suppose to start
Rituximab
Infusion as soon as I call. When I ask how my kidneys got this bad-no real answer or etiology. Ask why my kidneys are not responding to treatments/medication- I get -sometimes it takes longer than normal.
Hidden
in
Kidney Disease
2 years ago
Lupus / Rituximab Infusion and Stomach problems
Hi, I had COVID Vaccine (no 5) on 10 of August and 10 days later caught COVID for 1st time and on 22 Sept had my 6 monthly Infusion. I felt fairly awful while I had COVID cough, aches, stomach upset, very bad fatigue, loss of taste & smell etc. I have had bad stomach bloating, cramps after eating
Hi, I had COVID Vaccine (no 5) on 10 of August and 10 days later caught COVID for 1st time and on 22 Sept had my 6 monthly Infusion. I felt fairly awful while I had COVID cough, aches, stomach upset, very bad fatigue, loss of taste & smell etc. I have had bad stomach bloating, cramps after eating
Haired
in
LUPUS UK
2 years ago
Zanubrutinib PFS, ORR Is Superior to Ibrutinib for Relapsed/Refractory CLL/SLL
This application was based on earlier findings from an interim analysis of the ALPINE study along with phase 3 findings from the SEQUOIA study (NCT03336333), which showed improvements in PFS compared with bendamustine plus
rituximab
(Rituxan).
This application was based on earlier findings from an interim analysis of the ALPINE study along with phase 3 findings from the SEQUOIA study (NCT03336333), which showed improvements in PFS compared with bendamustine plus
rituximab
(Rituxan).
lankisterguy
Volunteer
in
CLL Support
2 years ago
Treatments for Lupus May Reduce Response to COVID-19 Vaccination
Patients on
rituximab
had an 89% decrease in antibody levels compared with healthy controls, whereas those using belimumab had a 7% decrease.
Patients on
rituximab
had an 89% decrease in antibody levels compared with healthy controls, whereas those using belimumab had a 7% decrease.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
2 years ago
Anyone on here with severe lung nodules caused by RA? or if a biologic?anything has helped ........am desperate.
Now is having three daily infusions of Methylprednisolone and going to start on
Rituximab
1st November. Has lost over 10 kg in weight and now can't even walk.He is really poorly. Can anyone help or let me know if they have had nodules like this and if they have had treatment and what helped?
Now is having three daily infusions of Methylprednisolone and going to start on
Rituximab
1st November. Has lost over 10 kg in weight and now can't even walk.He is really poorly. Can anyone help or let me know if they have had nodules like this and if they have had treatment and what helped?
Rockky
in
NRAS
2 years ago
flu and COVID vaccine at the same time (or few days apart)?
I'm more worried if they will be equally effective if administered together (assuming they will be effective at all for me - I'm almost 5 month after my
rituximab
treatment - so probably won't produce (m)any antibodies anyway). I got my COVID booster 3 days ago.
I'm more worried if they will be equally effective if administered together (assuming they will be effective at all for me - I'm almost 5 month after my
rituximab
treatment - so probably won't produce (m)any antibodies anyway). I got my COVID booster 3 days ago.
mantana
in
CLL Support
2 years ago
DENTIST VISIT & COVID PRECAUTIONS
I am on
Rituximab
(for RA) and so consider myself pretty vulnerable to Covid and, as advised, informed the dentist of my medication. Does anyone know if there are rules requiring dentists and assistants to wear at least FFP3 masks when treating patients who are vulnerable to Covid?
I am on
Rituximab
(for RA) and so consider myself pretty vulnerable to Covid and, as advised, informed the dentist of my medication. Does anyone know if there are rules requiring dentists and assistants to wear at least FFP3 masks when treating patients who are vulnerable to Covid?
Jimminey
in
NRAS
2 years ago
Latest bloodwork
My past 3 cbc's have shown a rise in specific areas that seem to indicate that I'm no longer in remission. I'm hoping I can attach results as I have questions about some elements. I have been on a low dose of (140mg) for the past 5 years and was previously treated with FCR in 2013. I will see my oncologist
My past 3 cbc's have shown a rise in specific areas that seem to indicate that I'm no longer in remission. I'm hoping I can attach results as I have questions about some elements. I have been on a low dose of (140mg) for the past 5 years and was previously treated with FCR in 2013. I will see my oncologist
rubberlegs68
in
CLL Support
1 year ago
jak for RA
i would like to know if jak for RA is suirable as i have tried TNF And
Rituximab
and nothing only side efects
i would like to know if jak for RA is suirable as i have tried TNF And
Rituximab
and nothing only side efects
Al1954
in
NRAS
2 years ago
Advice pls
Had my Blood test in readiness for my next
Rituximab
which I was told could be 2 months wait but cant get thro to anyone to get a date. I have to have my 2nd Shingrix jab on 12th (shingles). I was booked for my 5th Covid on 10th but mayb too close.
Had my Blood test in readiness for my next
Rituximab
which I was told could be 2 months wait but cant get thro to anyone to get a date. I have to have my 2nd Shingrix jab on 12th (shingles). I was booked for my 5th Covid on 10th but mayb too close.
Evie3
in
NRAS
2 years ago
Evusheld after Rituximab
Hi Does anyone know how long after
Rituximab
infusions do you have to wait before you can have the Evusheld injections?
Hi Does anyone know how long after
Rituximab
infusions do you have to wait before you can have the Evusheld injections?
Birmingham64
in
Vasculitis UK
2 years ago
V + O , TP53 and p13
after a great read through the recent posts on V+ O I have some confusion 1 my doc said that with a TP 53 mutation and p13 deletion that Zanu was a better option than V+ O. Is that the consensus ? 2 It is a bit disappointing that the PFS for V+ O starts when treatment starts. Is that true of
after a great read through the recent posts on V+ O I have some confusion 1 my doc said that with a TP 53 mutation and p13 deletion that Zanu was a better option than V+ O. Is that the consensus ? 2 It is a bit disappointing that the PFS for V+ O starts when treatment starts. Is that true of
skipro
in
CLL Support
1 year ago
Problems with Venetoclax & Obinutuzumab-feeling low about the future
Possibly the answer might be (if I actually did have to abandon V & O) transferring to V and
Rituximab
on the basis that
Rituximab
should be less potent than Obinutuzumab. Clearly, I need to raise all these other points as well with my consultant.
Possibly the answer might be (if I actually did have to abandon V & O) transferring to V and
Rituximab
on the basis that
Rituximab
should be less potent than Obinutuzumab. Clearly, I need to raise all these other points as well with my consultant.
ornstin
in
CLL Support
2 years ago
A brief update post Venetoclax+Rituximab - treatment number 4
My final option was Venetoclax +
Rituximab
which is standard treatment for relapsed CLL in the UK and consolidation with a bone marrow/stem cell transplant was discussed, depending on how my CLL responded. I recently had my 6 month assessment of MRD and the results are now in.
My final option was Venetoclax +
Rituximab
which is standard treatment for relapsed CLL in the UK and consolidation with a bone marrow/stem cell transplant was discussed, depending on how my CLL responded. I recently had my 6 month assessment of MRD and the results are now in.
Jm954
Administrator
in
CLL Support
2 years ago
Rituximab
has anybody experienced flue like symptoms or fevers on
Rituximab
? Or chronic sinusitis?
has anybody experienced flue like symptoms or fevers on
Rituximab
? Or chronic sinusitis?
Hidden
in
Vasculitis UK
2 years ago
Any recent experiences of AIHA developing in progressive CLL - particularly in those treated with or awaiting Venetoclax treatment?
Especially interested in any Venetoclax clax/
Rituximab
stories in this context. But also just want to say hi to everyone again, and state the obvious but fundamental truth that this disease never seems to come back for the same dance with you. It really keeps you on your toes doesn't it?
Especially interested in any Venetoclax clax/
Rituximab
stories in this context. But also just want to say hi to everyone again, and state the obvious but fundamental truth that this disease never seems to come back for the same dance with you. It really keeps you on your toes doesn't it?
jibs60
in
CLL Support
2 years ago
rituxan treatment
My CLL has caused a condition called warm autoimmune hemolytic anemia and they are wanting to start
Rituximab
to keep my hgb counts from tanking. I am not a big fan of treatments and have refused treatments several times for other cancers.
My CLL has caused a condition called warm autoimmune hemolytic anemia and they are wanting to start
Rituximab
to keep my hgb counts from tanking. I am not a big fan of treatments and have refused treatments several times for other cancers.
Bluegillking
in
CLL Support
2 years ago
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