Experiences with

Rickets and osteomalacia

I was diagnosed with CLL in April 2024. I began experiencing symptoms in October 2024. I am not getting immunotherapy treatments along with taking Venclextra. Lately (since probably a few months ago) it has felt like I am constantly shedding. I do have very thick hair (and long), so I guess it's

Hi Everyone, I’m needing some hope and advice right now if anyone can help. I was diagnosed with OC back in May 2019. I had Paclitaxol and Carboplatin with radical surgery in the middle plus 2 years of Olaparib. All was well for four and a half years and then my Ca125 crept up from 16 to 23. I was

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Hi I was diagnosed with PMR beg Dec 2024. Started on 20 mg Pred. Now down to 15mg & reducing 2.5 mg per mth until 10mg then going to reduce by 1mg per mth if all goes well. Generally well, swimming, in the gym, walking etc & getting on with life. My question is, every so often, perhaps every few

Hello all.I think I've given my story, but to recap. I was in Guys hospital in Oct.2021. I had a planned nephrectomy. Operation was a lot more challenging than anticipated. I had a massive blood loss in theatre. I also had an ischemic bowel so had to have a Hartmas procedure. I was then in an induces

My daughter-in-law's mother was diagnosed with acoustic neuroma 3 years ago. They told her that her symptoms would probably go away in about a year. I do think she did a gamma knife treatment. Since the first onset to now, her tumor has grown. Her symptoms have never gone away and are worsened now because

For those of you who were here when I dropped off the forum about the time I was found to be MRD, I was Cllady01 and found it difficult to re-enter with the username, so I am now Cllady25. Since my V/O treatment was completed, I have been in MRD status with little change in my CLL profile. I believe

Hey All, I'm a newbie here posting on behalf of my mum, who has just been diagnosed with stage 1A ovarian clear cell carcinoma (OCCC). She had her debulking surgery in late Jan and is now being offered watch and wait or adjuvant chemotherapy as options. I've read that OCCC is chemo resistant. Just

This small-molecular reactivator is for TP53 mutations which is found in 50% of human cancers. Compound 26 (rezatapopt; PC14586), which had the most favorable plasma exposure, was evaluated for its ability to inhibit the growth of NUGC-3 tumor xenografts in nude mice. Oral administration of daily doses

Hi just recently I went to my dermatologist for a suspicious lesion. It was round and shiny and pink I really didn’t pay to much attention too it until it became painful. So the dermatologist did a biopsy. Today I got a call and the results were Basal Cell CA . So I was told that it needed to be excised

I have been on several pill treatment for my 4th stage breast cancer along with the injections of xgeva and Faladex(spelling) for 8 years and have survived with little or no advancement but on my PET scan in September showed a couple of new lesions in my liver and lymph nodes, so they started me on Doxil

7/1/24 prostate cancer and spread to lungs. No bones or lymph nodes. Started with Eligard 3 months shots and Abbie (1000 mg) and prednisone. PSA is <.04. Everything good until January 2025 when ALT and AST again were over 5X normal. Stopped Abbie and Pred. 3 weeks ago and as of today liver enzymes are

Dear Friends, I hope this message finds you all well. It’s been a while since I’ve connected with everyone, and I wanted to update you on my current situation and gather your thoughts on the treatment options I’m considering. Brief History of My Case: As many of you know, I was diagnosed with metastatic

Let's hope!!!! Researchers from Aston University and the Royal Orthopaedic Hospital have developed a gallium-doped bioglass injectable paste that eliminates 99% of cancerous cells while promoting bone regeneration. Designed for both primary bone cancer and metastases from other kinds of cancer[/b

Diagnosed in 2012 with a CEA of 1.0. Never higher than 2.77. There could be a lot of things going on here. I am hereditary with Lynch Syndrome. Is it an indicator for recurrence? I hope not. I have a PET scan 11/25 and another CEA check. That will tell us a lot👍🤟💪

It's not yet Prostate cancer related, but I love it. It is a company traded on Nasdaq, so we are not talking about 3 guys that could be erased by some big pharma company. This is a company I would love to help to get to clinical trials! The company (I try not to include company names here wen I can)

I have recently been diagnosed with a recurrence of breast cancer and due to have a mastectomy within the next few weeks. I consulted a GP as to what I should do with my Pred dose, particularly on the day of the operation. He said he would consult a Rheumatologist and let me know (I have never been referred

Hi All, I'm scheduled for a delayed pedicled TRAM flap right breast reconstructive surgery on March 7, 2025. [u]Should I consider DELAYING surgery if it means I can have a DIEP flap instead[/u]? Here's the thing: everything is TOTALLY LINED UP for my current schedule TRAM flap for 3/7/25. But

Hi there, My dad (84) was diagnosed with stage 3 PC 3.5 years ago, received 6 weeks of radiation and has had 3 mthly standard hormone treatments. His PSA was .7 prior to treatment and has been .00 and up to .01 ever since, although now it has apparently increased to .02. Gleason score is 9. He has

Has anyone got slight headaches from this and bladder infections thanks onit a year now instead of firmagon