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Ulna drift
I am 50 yrs old have been on
remicade
for 13 yrs so they are actually shocked that I developed this . Any input on this would he helpful especially had anyone had surgery for this .
I am 50 yrs old have been on
remicade
for 13 yrs so they are actually shocked that I developed this . Any input on this would he helpful especially had anyone had surgery for this .
Mishelno64
in
NRAS
10 years ago
Any opinion on the effectiveness of remicade vs. enbrel or humira?
My doctor wants me to consider adding a biological to my treatment. I want to hear your experience.
My doctor wants me to consider adding a biological to my treatment. I want to hear your experience.
shareasmile
in
NRAS
10 years ago
Biosimilars - a new treatment pathway?
Inflectra, marketed by Hospira and Remsima, manufactured by Celltrion, are essentially the same infliximab biosimilar of the original product
Remicade
, made by Johnson & Johnson.
Inflectra, marketed by Hospira and Remsima, manufactured by Celltrion, are essentially the same infliximab biosimilar of the original product
Remicade
, made by Johnson & Johnson.
Hidden
in
NRAS
11 years ago
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Has anyone used iv remicade, I just had my fourth infusion for my behcets. I'm experiencing major mood swings, depression and joint pain
runninggirl08
in
Behçet's UK
11 years ago
Back Surgery?
Obviously on the
remicade
and prednisone I will be looking at a risk of infection and so on. I have heard mostly bad stories of people getting back surgery and bad recoveries and a desire wishing they never got it. Just curious.
Obviously on the
remicade
and prednisone I will be looking at a risk of infection and so on. I have heard mostly bad stories of people getting back surgery and bad recoveries and a desire wishing they never got it. Just curious.
Dmartin138
in
Behçet's UK
11 years ago
PREDNISONE TAPERING
Do to a recent flare up after a
Remicade
treatment, roughly a week later, not because the
Remicade
. I had to increase my prednisone up to 32 mgs from 29 to where I was trying to drop it from 30mgs.
Do to a recent flare up after a
Remicade
treatment, roughly a week later, not because the
Remicade
. I had to increase my prednisone up to 32 mgs from 29 to where I was trying to drop it from 30mgs.
Dmartin138
in
Behçet's UK
11 years ago
Newly Diagnosed with Neuro-Behcets
I recently was put on
Remicade
. We moved it to every 6 weeks though because I really am not finding it affective. I know this is a lot of different ends and questions in one, but could really appreciate any feedback. Its 330 am here and its because I have been so stressed.
I recently was put on
Remicade
. We moved it to every 6 weeks though because I really am not finding it affective. I know this is a lot of different ends and questions in one, but could really appreciate any feedback. Its 330 am here and its because I have been so stressed.
Dmartin138
in
Behçet's UK
11 years ago
SWITCH - research study for those on 1st anti-TNF and methotrexate
Remicade
, Enbrel, Humira, Cimzia & Simponi) together with methotrexate then you may be suitable to take part. The study will compare three different treatment options that are available to patients who are not responding to their current treatment.
Remicade
, Enbrel, Humira, Cimzia & Simponi) together with methotrexate then you may be suitable to take part. The study will compare three different treatment options that are available to patients who are not responding to their current treatment.
EmmaS-NRAS
NRAS
in
NRAS
11 years ago
..on a Happier Note...
Despite my kind of terrible afternoon at my
Remicade
infusion, I did get to finally see my rheumatologist after waiting over four months to get an appt. with him. Luckily his clinic is in the same building as the
Remicade
clinic, so I got to hobble over with my i.v. pole to see him.
Despite my kind of terrible afternoon at my
Remicade
infusion, I did get to finally see my rheumatologist after waiting over four months to get an appt. with him. Luckily his clinic is in the same building as the
Remicade
clinic, so I got to hobble over with my i.v. pole to see him.
behcetshurtsbeyondwords
in
Behçet's UK
11 years ago
Need to Vent!
I am so incredibly exhausted right now and my pain is spiralling out of control :( I had my
Remicade
Infusion today and literally took everything that was left inside me (which wasn't much)-- after a long crash all evening in my bed, I have woken up to feel even worse and now I feel ulcers deep inside
I am so incredibly exhausted right now and my pain is spiralling out of control :( I had my
Remicade
Infusion today and literally took everything that was left inside me (which wasn't much)-- after a long crash all evening in my bed, I have woken up to feel even worse and now I feel ulcers deep inside
behcetshurtsbeyondwords
in
Behçet's UK
11 years ago
General Doctors need more education
I have been on predisone, plaquinal, methotraxate and
Remicade
since I was diagnosis now. I am finally had a week without flare. I finally think we might me getting this under control and she wants be to go back to what caused the continue flares previously.
I have been on predisone, plaquinal, methotraxate and
Remicade
since I was diagnosis now. I am finally had a week without flare. I finally think we might me getting this under control and she wants be to go back to what caused the continue flares previously.
Darice1234
in
NRAS
11 years ago
I have Behcet's and bone cancer. The cancer has put a stop to my Behcet's treatment. Any advise to help control bd when you have cancer?.
One of my doctors said its ok to restart the
remicade
infusions but every other doctor says its not safe. Have any one of you been dealing with any type of cancer with your Behcet's and if so what has been your treatment to keep the Behcet's under control.
One of my doctors said its ok to restart the
remicade
infusions but every other doctor says its not safe. Have any one of you been dealing with any type of cancer with your Behcet's and if so what has been your treatment to keep the Behcet's under control.
Haley111
in
Partners for Behcet's
11 years ago
I.V. steroid injections? Anyone?
He kept telling me
Remicade
is the best option for Behcet's and to just be patient.. but I think an entire year at the max. dose with no response is being patient enough. I've had it with this stupid disease..
He kept telling me
Remicade
is the best option for Behcet's and to just be patient.. but I think an entire year at the max. dose with no response is being patient enough. I've had it with this stupid disease..
behcetshurtsbeyondwords
in
Behçet's UK
11 years ago
Remicade, Imuran, Colchicine
I will start
Remicade
soon and my doctor plans to stop my Imuran and colchicine about the same time. However, I have heard that some Behcet's patients have remained on their immunosuppresants while using the
Remicade
.
I will start
Remicade
soon and my doctor plans to stop my Imuran and colchicine about the same time. However, I have heard that some Behcet's patients have remained on their immunosuppresants while using the
Remicade
.
Bobsbetty
in
Behçet's UK
11 years ago
High LDH and Behcet's?
I had this scare already last summer when my LDH had doubled within two weeks, so there was fear about Lyphoma because of the immunosuppressants and
Remicade
treatments I am on.
I had this scare already last summer when my LDH had doubled within two weeks, so there was fear about Lyphoma because of the immunosuppressants and
Remicade
treatments I am on.
behcetshurtsbeyondwords
in
Behçet's UK
11 years ago
Insurance denied Infliximab - $28k bill
I recently had to stop taking Humira and start taking
Remicade
.
Remicade
is IV infusion, only. When I went for my first infusion, I found out my hemoglobin was 5, so they had to start IV iron before I could start
Remicade
.
I recently had to stop taking Humira and start taking
Remicade
.
Remicade
is IV infusion, only. When I went for my first infusion, I found out my hemoglobin was 5, so they had to start IV iron before I could start
Remicade
.
Kayhold
in
Behçet's UK
11 years ago
Remicade infusion
I had my first infusion a week ago feel very tired and feels like I have a cold, Plus terrible taste in my mouth and got headache most the time, Would this be side affects ? .
I had my first infusion a week ago feel very tired and feels like I have a cold, Plus terrible taste in my mouth and got headache most the time, Would this be side affects ? .
gerri-1966
in
NRAS
11 years ago
Response to Sue about severe headaches
The next step up is often drugs that treat your Behcet's inflammation systemically, such as the biologics Enbrel,
Remicade
, Humira, and that whole family of TNF inhibitors. More aggressive treatments would include immunosuppressants and chemo drugs.
The next step up is often drugs that treat your Behcet's inflammation systemically, such as the biologics Enbrel,
Remicade
, Humira, and that whole family of TNF inhibitors. More aggressive treatments would include immunosuppressants and chemo drugs.
amietamant
in
Behçet's UK
11 years ago
My Behcet's headaches - "Atypical migraines"
I suffered from these for years and was treated with migraine medicines, high dose prednisone, Enbrel,
Remicade
, methotrexate, Cellcept, Imuran, you name it. Caffeine, either via coffee or caffeine pills, are also helpful to shrink swollen brain blood vessels.
I suffered from these for years and was treated with migraine medicines, high dose prednisone, Enbrel,
Remicade
, methotrexate, Cellcept, Imuran, you name it. Caffeine, either via coffee or caffeine pills, are also helpful to shrink swollen brain blood vessels.
amietamant
in
Behçet's UK
11 years ago
Becoming informed about Behcet's
In 2010, I spoke at the Behcet's Patient Conference in London about the dangers of fungal infections for patients taking biologics (anti-TNF a drugs like Enbrel,
Remicade
, Humira, Cimzia, etc.).
In 2010, I spoke at the Behcet's Patient Conference in London about the dangers of fungal infections for patients taking biologics (anti-TNF a drugs like Enbrel,
Remicade
, Humira, Cimzia, etc.).
amietamant
in
Behçet's UK
11 years ago
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