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Remicade
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Weird Crohn’s bowl movements
Ok so, I haven’t had my
remicade
in like 3 months because my doctor transferred to a new hospital, so when I finally took
remicade
(a month late than usual) it felt like all my guts suddenly paused and I wasn’t passing stool like I normally would (after taking
remicade
) Do you feel like it’s just a coincidence
Ok so, I haven’t had my
remicade
in like 3 months because my doctor transferred to a new hospital, so when I finally took
remicade
(a month late than usual) it felt like all my guts suddenly paused and I wasn’t passing stool like I normally would (after taking
remicade
) Do you feel like it’s just a coincidence
Fatima_sh
in
Crohn's and Colitis Support
6 years ago
Medication I have found successful
After this they wanted to put me on
Remicade
but I refused because I didn't want to do an IV treatment as I didn't want to commit to such a harsh treatment for potentially the rest of my life.
After this they wanted to put me on
Remicade
but I refused because I didn't want to do an IV treatment as I didn't want to commit to such a harsh treatment for potentially the rest of my life.
JulienF
in
Behçet's UK
6 years ago
Remicade infusion
Does anyone know anything about
Remicade
Infusions? I don't. I really am not sure about this. Help me here if you know anything or have any advice. Please
Does anyone know anything about
Remicade
Infusions? I don't. I really am not sure about this. Help me here if you know anything or have any advice. Please
Tintoy43_
in
NRAS
6 years ago
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Folic Acid
I take methotrexate once a week and infusions of
remicade
once every 6 weeks. I see a lot of people that have been told not to take folic acid the same day as the methotrexate. My doctor has never told me that, she says to take it every day. Any thoughts on this? Thank you
I take methotrexate once a week and infusions of
remicade
once every 6 weeks. I see a lot of people that have been told not to take folic acid the same day as the methotrexate. My doctor has never told me that, she says to take it every day. Any thoughts on this? Thank you
lovekittys
in
NRAS
6 years ago
Third times a charm...for Remicade
I started
Remicade
in December 2017 and recently had my 3rd loading dose. Finally! I’m seeing some results. My usual diarrhea is a normal stool on the Bristol Myers chart! This morning I was looking into the toilet and smiling like a lunatic!
I started
Remicade
in December 2017 and recently had my 3rd loading dose. Finally! I’m seeing some results. My usual diarrhea is a normal stool on the Bristol Myers chart! This morning I was looking into the toilet and smiling like a lunatic!
Hobbits
in
Crohn's and Colitis Support
6 years ago
Living with Behcet's Syndrome for 22yrs
The first thing he did was start me on
Remicade
infusions on February of 2006. Five years later we added I.V.I.G. until this December 2017. January 5, 2018 I start a new medication called OTEZLA (Generic apremilast). Which here in the U.S. has had great results with sores.
The first thing he did was start me on
Remicade
infusions on February of 2006. Five years later we added I.V.I.G. until this December 2017. January 5, 2018 I start a new medication called OTEZLA (Generic apremilast). Which here in the U.S. has had great results with sores.
FRNSCGRL27
in
Behçet's UK
6 years ago
Biologic Question
Enbrel only treats RA
Remicade
treat both RA and Crohns Why? They are both TNF blockers and both work the same way. Is it just that Enbrel wasn’t specifically tested on Crohns? Is
Remicade
a more powerful biologic than Enbrel?
Enbrel only treats RA
Remicade
treat both RA and Crohns Why? They are both TNF blockers and both work the same way. Is it just that Enbrel wasn’t specifically tested on Crohns? Is
Remicade
a more powerful biologic than Enbrel?
Hobbits
in
NRAS
7 years ago
Severe Remicade Side Effects
Just had
Remicade
Infusion on Monday and ended up in ER on Thursday with severe side effects. Redness, Burning and sensitive to touch on both legs from knees to ankles. Coughing, shortness of breath, elevated blood pressure, night sweats, frequent urination. Anyone have this experience.
Just had
Remicade
Infusion on Monday and ended up in ER on Thursday with severe side effects. Redness, Burning and sensitive to touch on both legs from knees to ankles. Coughing, shortness of breath, elevated blood pressure, night sweats, frequent urination. Anyone have this experience.
NancyMosca
in
NRAS
7 years ago
Biologics Feedback, please:)
Due to side effects, I'm scaling back on Methotrexate and my rheumy doc is going to add Humira, Enbrel or
Remicade
. I have an appointment with him next week to discuss the options. Would love to hear your experiences with these drugs, both positive and negative. I also take plaquenil and meloxicam.
Due to side effects, I'm scaling back on Methotrexate and my rheumy doc is going to add Humira, Enbrel or
Remicade
. I have an appointment with him next week to discuss the options. Would love to hear your experiences with these drugs, both positive and negative. I also take plaquenil and meloxicam.
Maddi1208
in
NRAS
7 years ago
Other Options When Usual Options Fail?
Turns out my body doesn’t like
Remicade
and I can’t have it or any similar drugs. Apparently you can make antibodies to them, and when you do you do things like try and go into cardiac arrest to scare your nurses.
Turns out my body doesn’t like
Remicade
and I can’t have it or any similar drugs. Apparently you can make antibodies to them, and when you do you do things like try and go into cardiac arrest to scare your nurses.
NerdyChristina
in
Behçet's UK
7 years ago
REPORT ON FIRST INFUSION OF REMICADE (100mg INFUSION). HERE IS WHAT IT WAS LIKE.
I GUESS YOU ALL WANT TO KNOW WHAT TO EXPECT IF YOU GET
REMICADE
OR AN INFUSION. Hi Everyone, Well, I had my first infusion on Thursday Oct. 5th. (Next one is Oct 19th, then Nov. 30th.)
I GUESS YOU ALL WANT TO KNOW WHAT TO EXPECT IF YOU GET
REMICADE
OR AN INFUSION. Hi Everyone, Well, I had my first infusion on Thursday Oct. 5th. (Next one is Oct 19th, then Nov. 30th.)
sneakyblonde
in
Behçet's UK
7 years ago
Finally, starting Remicde!
I know many of you wonder if YOU have to get
REMICADE
infusions, will it work, how fast and will you have side effects. Of course every one is different... But I HOPE, knowing some one that has, might help you decide.
I know many of you wonder if YOU have to get
REMICADE
infusions, will it work, how fast and will you have side effects. Of course every one is different... But I HOPE, knowing some one that has, might help you decide.
sneakyblonde
in
Behçet's UK
7 years ago
Need help, I am very confused
Now my doctor says he wants to give me
Remicade
infusion. Is that a treatment of GCA ? Isn't Actemra better for me ?
Now my doctor says he wants to give me
Remicade
infusion. Is that a treatment of GCA ? Isn't Actemra better for me ?
Ihsandaakur
in
PMRGCAuk
7 years ago
RA & Crohn's (cross posted)
I'm already on Enbrel for RA, and apparently
Remicade
can treat both Crohn's and RA....However I have great anxiety about going off Enbrel, it took over two years to find a drug that helped my RA, and I'm terrified of
Remicade
not working for my RA.
I'm already on Enbrel for RA, and apparently
Remicade
can treat both Crohn's and RA....However I have great anxiety about going off Enbrel, it took over two years to find a drug that helped my RA, and I'm terrified of
Remicade
not working for my RA.
Hobbits
in
NRAS
7 years ago
Changed Diet - 6 week mark (Crohn's and RA)
I'm already on Enbrel for RA, and apparently
Remicade
can treat both Crohn's and RA....However I have great anxiety about going off Enbrel, it took over two years to find a drug that helped my RA, and I'm terrified of
Remicade
not working for my RA.
I'm already on Enbrel for RA, and apparently
Remicade
can treat both Crohn's and RA....However I have great anxiety about going off Enbrel, it took over two years to find a drug that helped my RA, and I'm terrified of
Remicade
not working for my RA.
Hobbits
in
Crohn's and Colitis Support
7 years ago
Any advice? -First post!
After almost 4 months of the 12 mg methotrexate AND still receiving
remicade
, I was still having all the same symptoms and no sign of relief. I then was bumped up to the 20 mg of methotrexate and went down to every 6 weeks of
remicade
, and had little to none relief.
After almost 4 months of the 12 mg methotrexate AND still receiving
remicade
, I was still having all the same symptoms and no sign of relief. I then was bumped up to the 20 mg of methotrexate and went down to every 6 weeks of
remicade
, and had little to none relief.
Samantha01
in
NRAS
7 years ago
Reaction to Remicade
Has anyone esle experienced a reaction a
Remicade
? I have been diagnosed with drug induced psoriasis. Its treated with 20 mg of methrotrexate and dermovate. It only affect my feet and legs.
Has anyone esle experienced a reaction a
Remicade
? I have been diagnosed with drug induced psoriasis. Its treated with 20 mg of methrotrexate and dermovate. It only affect my feet and legs.
Timmy45
in
NRAS
7 years ago
I'm new here, just joined from Alaska☃ Hoping to get some advice or hear about people's experience with changing infusion meds
I'm currently on 20mg Leflunomide daily because Methotrexate DS nothing for me, plus I get
Remicade
infusions every 3 weeks. This Wednesday is my last shot at
Remicade
(tripled dose) and if it doesn't work I'll have to start something harsher.
I'm currently on 20mg Leflunomide daily because Methotrexate DS nothing for me, plus I get
Remicade
infusions every 3 weeks. This Wednesday is my last shot at
Remicade
(tripled dose) and if it doesn't work I'll have to start something harsher.
ZoyAK123
in
NRAS
7 years ago
Actemra uodate
Has anyone ever tried
Remicade
?
Has anyone ever tried
Remicade
?
30048
in
PMRGCAuk
7 years ago
What Causes PSP -- My theory.
In addition he's been on all the biologic meds they use for crohns; humira, metrotexate,
remicade
, you name it! My feeling is that all these toxins have affected his brain. Hoping for some feedback. Many thanks.
In addition he's been on all the biologic meds they use for crohns; humira, metrotexate,
remicade
, you name it! My feeling is that all these toxins have affected his brain. Hoping for some feedback. Many thanks.
Lacey23
in
PSP Association
7 years ago
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