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Saw a specialist
I saw a specialist in endometriosis last week and it was eye opening. I had to pay for it or wait 12 months so I opted to go private. I spent over an hour with him and he was incredible. He explained everything and was very practical. I had a list of questions and he answered all of them. I already know
I saw a specialist in endometriosis last week and it was eye opening. I had to pay for it or wait 12 months so I opted to go private. I spent over an hour with him and he was incredible. He explained everything and was very practical. I had a list of questions and he answered all of them. I already know
Sunset-lady
in
Endometriosis UK
7 months ago
Helpful group
Hello All, This group has been very helpful in providing information and suggestions on PC. I was diagnosed in Sept. 23 as Stage 4, Gleason 7 with all core samples testing positive and one met to the sacrum. Just completed 28 rounds of IMRT and have been on Lupron, Xtandi and Zometa for the last two
Hello All, This group has been very helpful in providing information and suggestions on PC. I was diagnosed in Sept. 23 as Stage 4, Gleason 7 with all core samples testing positive and one met to the sacrum. Just completed 28 rounds of IMRT and have been on Lupron, Xtandi and Zometa for the last two
Jeffdanger
in
Advanced Prostate Cancer
5 months ago
Husband has passed
Well, group, sad news from our house. Pete has passed on. He seemed to be doing quite well with ADT treatment Lupron/ea 3 months, plus bone shot, and Abiraderone 250 mg daily for 2 1/2 yrs. Had all the terrible side effects you all experience. On no medication other than that. No other illnesses.
Well, group, sad news from our house. Pete has passed on. He seemed to be doing quite well with ADT treatment Lupron/ea 3 months, plus bone shot, and Abiraderone 250 mg daily for 2 1/2 yrs. Had all the terrible side effects you all experience. On no medication other than that. No other illnesses.
Hidden
in
Advanced Prostate Cancer
7 months ago
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Possible improvement of speech in Parkinsons patients with the encouragement and implementation of a daily walking routine.
The following postulation is a hope that our speech can be improved by implementing a consistent routine of daily walking. I discovered this amazingly beautiful yet simple concept by accident 🤔😁, after watching my 18 month old nephew have dramatic improvements in speech after graduating to walking
The following postulation is a hope that our speech can be improved by implementing a consistent routine of daily walking. I discovered this amazingly beautiful yet simple concept by accident 🤔😁, after watching my 18 month old nephew have dramatic improvements in speech after graduating to walking
pdpatient
in
Cure Parkinson's
11 months ago
Newly Diagnosed Polymyalgia
I am a 57 year old female living on a smallholding in the Welsh hills. I have historically suffered on/off back pain that tended to travel between my lumber and thoracic regions, the last three years being more on than off. I finally have a diagnosis, of quite frankly, a condition/disease that I had
I am a 57 year old female living on a smallholding in the Welsh hills. I have historically suffered on/off back pain that tended to travel between my lumber and thoracic regions, the last three years being more on than off. I finally have a diagnosis, of quite frankly, a condition/disease that I had
Hopeful66
in
PMRGCAuk
7 months ago
Hypothalamic amenorrhea
Does anyone here have hypothalamic amenorrhea where your body does not produce estrogen due to your eating disorder? I do and it causes me severe hot flashes and feeling hot all the time and I can't stand it. I have been suffering for over 6 months with this severe hot flashes and I've tried black cohosh
Does anyone here have hypothalamic amenorrhea where your body does not produce estrogen due to your eating disorder? I do and it causes me severe hot flashes and feeling hot all the time and I can't stand it. I have been suffering for over 6 months with this severe hot flashes and I've tried black cohosh
Hidden
in
Talk ED (eating disorders)
8 months ago
Any hot flash relief from anything? I'm dying here and I don't know what to try next...
I have had hot flashes and I mean severe hot flashes and feeling hot all the time 24/7 especially in my face for the last 6 months but even before that I was having trouble for several years. I have tried taking black cohosh 80 mg a day and that didn't do anything except for maybe take 5% off. I went
I have had hot flashes and I mean severe hot flashes and feeling hot all the time 24/7 especially in my face for the last 6 months but even before that I was having trouble for several years. I have tried taking black cohosh 80 mg a day and that didn't do anything except for maybe take 5% off. I went
Hidden
in
Women's Health
8 months ago
Hot flash relief for anyone? What helps relieve feeling hot all the time?
I have been struggling with severe hot flashes and feeling hot all the time for about 6 months now. I have severely low estrogen as in non-existent at all and so my levels are not even showing up to even zero because of the fact that I've not had very many periods due to the fact that I have secondary
I have been struggling with severe hot flashes and feeling hot all the time for about 6 months now. I have severely low estrogen as in non-existent at all and so my levels are not even showing up to even zero because of the fact that I've not had very many periods due to the fact that I have secondary
Hidden
in
Menopause and Perimenopause Support
8 months ago
Bright Light Therapy Zoom Call Sat Aug 5 Noon Eastern
30 minute meeting to talk about Bright Light Therapy for PD Sat 5 Aug at Noon Eastern. https://us05web.zoom.us/j/82099215722?pwd=novCzckkWh2jyFYw8uuFXHR2TDJt8P.1 I am not an expert on Bright Light Therapy but it looks useful and I have been trying it for a while. Surprisingly, it may be best to do
30 minute meeting to talk about Bright Light Therapy for PD Sat 5 Aug at Noon Eastern. https://us05web.zoom.us/j/82099215722?pwd=novCzckkWh2jyFYw8uuFXHR2TDJt8P.1 I am not an expert on Bright Light Therapy but it looks useful and I have been trying it for a while. Surprisingly, it may be best to do
Bolt_Upright
in
Cure Parkinson's
11 months ago
Happy Gobble Day
Hello, Hello, been visiting for 7 months first post…I’m a foreigner in Japan with prostate cancer … quite a journey … not that great at Japanese … which makes everything a bit more difficult .. on top of that I broke my finger 4 weeks ago so a bit difficult to type so I’ll keep this short.. appreciate
Hello, Hello, been visiting for 7 months first post…I’m a foreigner in Japan with prostate cancer … quite a journey … not that great at Japanese … which makes everything a bit more difficult .. on top of that I broke my finger 4 weeks ago so a bit difficult to type so I’ll keep this short.. appreciate
Yokohama2023
in
Advanced Prostate Cancer
8 months ago
GnRH side affects and endo pain
I have had my second monthly GnRH injection out of three that I am having but have really been struggling with menopause side affects such as hot flushes, all over aches and feeling exhausted. Has anyone else had this and did these symptoms go on their own or did you have to have HRT tablets or did anything
I have had my second monthly GnRH injection out of three that I am having but have really been struggling with menopause side affects such as hot flushes, all over aches and feeling exhausted. Has anyone else had this and did these symptoms go on their own or did you have to have HRT tablets or did anything
Luci20
in
Endometriosis UK
8 months ago
I've been prescribed Amitriptyline for pelvic pain. Has anyone had success with this medication?
I've seen the consultant for Adenomyosis. He is referring me for an urgent mri to confirm it's Adenomyosis and listed for a hysterectomy, including my ovaries. It's an 18 month wait.So, I've been prescribed Amitriptyline and he wants me to trial Prostsap again. Which I'm nervous to do, as it was the
I've seen the consultant for Adenomyosis. He is referring me for an urgent mri to confirm it's Adenomyosis and listed for a hysterectomy, including my ovaries. It's an 18 month wait.So, I've been prescribed Amitriptyline and he wants me to trial Prostsap again. Which I'm nervous to do, as it was the
Mindfullness4791
in
Endometriosis UK
8 months ago
Long time member advice required on recent thyroid blood test after starting HRT.
I’m just after some advice on my recent blood test I had taken myself. I know the drill no levo 24 hours before. NDT gap of 8 hours. Vitamins stoped week before My test was taken at the same time as all other blood test 7.10am. I always stick to this routine to ensure consistency. I decided to take
I’m just after some advice on my recent blood test I had taken myself. I know the drill no levo 24 hours before. NDT gap of 8 hours. Vitamins stoped week before My test was taken at the same time as all other blood test 7.10am. I always stick to this routine to ensure consistency. I decided to take
Peanut31
in
Thyroid UK
8 months ago
Adding Docetaxel to T3b?
My husband is 63, stage T3b N0M0. His biopsy showed all 12 cores positive with 80%+ cancer, GL 4+5 with
intraductal carcinoma
and original PSA was 12. According to PSMA pet scan 12 months ago, he has additional risk factors such as
ECE, SVI, PNI
, but no other spread. He has completed 39
My husband is 63, stage T3b N0M0. His biopsy showed all 12 cores positive with 80%+ cancer, GL 4+5 with
intraductal carcinoma
and original PSA was 12. According to PSMA pet scan 12 months ago, he has additional risk factors such as
ECE, SVI, PNI
, but no other spread. He has completed 39
Adendino
in
Advanced Prostate Cancer
7 months ago
Happy Thanksgiving Eve
Also Happy Hump Day 😁 https://youtu.be/PBsjggc5jHM?si=JPeepmKsrlzyNL0E Silly Kaiser thinks that Abiraterone is chemo and won't mail it, so gotta go down to Bakersfield monthly to get it, but this time I brought Chocolate covered Macadamia Nuts for the AIS Cancer Center Onco and Radiation staff.
Also Happy Hump Day 😁 https://youtu.be/PBsjggc5jHM?si=JPeepmKsrlzyNL0E Silly Kaiser thinks that Abiraterone is chemo and won't mail it, so gotta go down to Bakersfield monthly to get it, but this time I brought Chocolate covered Macadamia Nuts for the AIS Cancer Center Onco and Radiation staff.
dockam
in
Advanced Prostate Cancer
8 months ago
Medichecks hormone test. Any thoughts?
I’ve been on thyroid replacement for about six years now and starting to feel that quite soon I will have improved as much as I’m going to and I’m wondering if HRT could be the last part of what I need to feel more like me. I’ve remained reasonably well all things considered but it’s as though I’m a
I’ve been on thyroid replacement for about six years now and starting to feel that quite soon I will have improved as much as I’m going to and I’m wondering if HRT could be the last part of what I need to feel more like me. I’ve remained reasonably well all things considered but it’s as though I’m a
Noelnoel
in
Thyroid UK
8 months ago
Dad with Stage 4 PCa - Need some words of wisdom...again please!
Hi everyone. Just got back from appointment with Dad's oncologist. To keep you up to speed - 3 months ago, his ADT injections stopped working and his PSA started to climb up slowly. Oncologist put Dad on Enzalutamide - been on it for 6 cycles - tolerated well but his PSA has gone from 76 to 87 in one
Hi everyone. Just got back from appointment with Dad's oncologist. To keep you up to speed - 3 months ago, his ADT injections stopped working and his PSA started to climb up slowly. Oncologist put Dad on Enzalutamide - been on it for 6 cycles - tolerated well but his PSA has gone from 76 to 87 in one
kikinini
in
Advanced Prostate Cancer
8 months ago
Post Menopausal?
Hello This is my first time on this board but I am also on the Thyroid UK board - hello! I've always wondered about this - and hope that someone might be able to answer or have any other explanation? When I was 43 - nearly 10 years ago - I was diagnosed with an underactive thyroid via an ordinary
Hello This is my first time on this board but I am also on the Thyroid UK board - hello! I've always wondered about this - and hope that someone might be able to answer or have any other explanation? When I was 43 - nearly 10 years ago - I was diagnosed with an underactive thyroid via an ordinary
missrees
in
Menopause and Perimenopause Support
8 months ago
When To End An ADT Holiday
Just had a lengthy conversation with my MD Anderson MO who agrees with my Houston Methodist MO, i.e., it’s probably better, after an ADT holiday, to allow PSA to reach 0.5 so a PSMA scan can be used to identify any metastices, then zap the met(s), then go back on ADT to put the cancer back into remission
Just had a lengthy conversation with my MD Anderson MO who agrees with my Houston Methodist MO, i.e., it’s probably better, after an ADT holiday, to allow PSA to reach 0.5 so a PSMA scan can be used to identify any metastices, then zap the met(s), then go back on ADT to put the cancer back into remission
6357axbz
in
Advanced Prostate Cancer
8 months ago
PCNA gene attack -- for solid tumors
Pasted from a publicly avaiilable website A "holy grail" molecule that kills all solid cancer tumors, leaving other cells unaffected, has been developed by scientists. The team at the City of Hope, one of the largest cancer research and treatment organizations in the United States, made the breakthrough
Pasted from a publicly avaiilable website A "holy grail" molecule that kills all solid cancer tumors, leaving other cells unaffected, has been developed by scientists. The team at the City of Hope, one of the largest cancer research and treatment organizations in the United States, made the breakthrough
Derf4223
in
Advanced Prostate Cancer
11 months ago
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