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Qmiiz ODT
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Salvage Radiotherapy Info in UK
My PSA seems to be definitely on the move, latest is 0.11 up from 0.085 taken 3 months ago, full history is in my profile. I am sure SRT is now on the cards. There seems to be much to consider about dose (64-70Gy), target area (prostate bed with or without lymph nodes) and short term ADT, which is summarised
My PSA seems to be definitely on the move, latest is 0.11 up from 0.085 taken 3 months ago, full history is in my profile. I am sure SRT is now on the cards. There seems to be much to consider about dose (64-70Gy), target area (prostate bed with or without lymph nodes) and short term ADT, which is summarised
julianc
in
Prostate Cancer Network
1 year ago
Bone Problems
4 years on ADT and Abiraterone. Had spine fracture and now have osteopenia due to medication. has anyone else suffered bone issues with this medication.
4 years on ADT and Abiraterone. Had spine fracture and now have osteopenia due to medication. has anyone else suffered bone issues with this medication.
Lion321
in
Advanced Prostate Cancer
1 year ago
Collagen Peptide supplements and bone quality
Y'all are familiar by now that ADT leads to accelerated BMD (bone mineral density) loss. There are a series of things that can be done -- 1, Get a DEX scan now 2, Supplement with Calcium, K2, D3 and magnesium 3, Have your MO or whoever put you on BMD medication (eg denosumab, et al) Now comes
Y'all are familiar by now that ADT leads to accelerated BMD (bone mineral density) loss. There are a series of things that can be done -- 1, Get a DEX scan now 2, Supplement with Calcium, K2, D3 and magnesium 3, Have your MO or whoever put you on BMD medication (eg denosumab, et al) Now comes
Derf4223
in
Advanced Prostate Cancer
1 year ago
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Groundhog Year
Another year passes and the annual blood test causes its usual issues. I did get retested because of an abnormal result serum calcium concentration 2.19 mmol/L (2.20-2.60) They did the test uncuffed and I crept into range. TSH <0.01miu/L (0.49 - 5.23) like this since starting Liothyronine in
Another year passes and the annual blood test causes its usual issues. I did get retested because of an abnormal result serum calcium concentration 2.19 mmol/L (2.20-2.60) They did the test uncuffed and I crept into range. TSH <0.01miu/L (0.49 - 5.23) like this since starting Liothyronine in
tzracer
in
Thyroid UK
1 year ago
Can someone please remind me of how far through ranges is usually best?
I’ve just used the thyroid calculator for my latest results, see attached, any thoughts welcome. My TSH is 0.01 but it’s surpressed because I take NDT. Current dose 100mcg thyroxine, 1/2 grain ERFA twice daily. Many thanks (Bloods taken inline with protocol suggested on this site)
I’ve just used the thyroid calculator for my latest results, see attached, any thoughts welcome. My TSH is 0.01 but it’s surpressed because I take NDT. Current dose 100mcg thyroxine, 1/2 grain ERFA twice daily. Many thanks (Bloods taken inline with protocol suggested on this site)
Spangle15
in
Thyroid UK
1 year ago
What on Earth's going on?
How can an increased dose of NDT result in an increased TSH! Like most on here I wouldn’t normally worry too much about TSH but I’m consulting a private endo and he clearly does think it’s relevant so I need to respect that. Also, I’m decidedly not as well as I was before the dose increase/decrease in
How can an increased dose of NDT result in an increased TSH! Like most on here I wouldn’t normally worry too much about TSH but I’m consulting a private endo and he clearly does think it’s relevant so I need to respect that. Also, I’m decidedly not as well as I was before the dose increase/decrease in
Puddleperson
in
Thyroid UK
1 year ago
combination of NDT and t4?
Just reaching out to see if anyone else is on a NDT with an added t4. Unable to increase NDT due to t3 going over range. I ended up adding in t4 50mcg to 1 grain armour. I then switched to 125mcg (gradually increased to this over the past 7 months) plus a 5mcg of t3 compounded. well I feel dreadful
Just reaching out to see if anyone else is on a NDT with an added t4. Unable to increase NDT due to t3 going over range. I ended up adding in t4 50mcg to 1 grain armour. I then switched to 125mcg (gradually increased to this over the past 7 months) plus a 5mcg of t3 compounded. well I feel dreadful
Ajva
in
Thyroid UK
1 year ago
Going in circles,please advise on dosing, Endo disagrees.
Hi Everyone, I am still struggling 8th year now of trying to fine tune meds. I have Hashis and DIO2+. and still feel extremely undermedicated with fatigue/weakmess, chronic gut probs, buckling legs, freezing, tinnitus,poor sleep,etc etc Heart sink of a new Endo or should I say Gestational Diabetic
Hi Everyone, I am still struggling 8th year now of trying to fine tune meds. I have Hashis and DIO2+. and still feel extremely undermedicated with fatigue/weakmess, chronic gut probs, buckling legs, freezing, tinnitus,poor sleep,etc etc Heart sink of a new Endo or should I say Gestational Diabetic
Gillybean1
in
Thyroid UK
1 year ago
ADT and ED Meds?
I am just starting Orgovyx and it's working well.... too well as far as ED is concerned. I had no significant issues prior to ADT with achieving an erection and orgasm. So at a minimum I'm pretty motivated to try and get it back in some form or fashion or at least do whatever I can prophylactically
I am just starting Orgovyx and it's working well.... too well as far as ED is concerned. I had no significant issues prior to ADT with achieving an erection and orgasm. So at a minimum I'm pretty motivated to try and get it back in some form or fashion or at least do whatever I can prophylactically
FinnO
in
Advanced Prostate Cancer
1 year ago
Does anyone actually have an NHS 'named patient basis' for NDT?
Hi all, I hope everyone is well . I am doing a lot better nowadays, having been on Armour for about 9 months now. My memory is much better, I have more energy (and a full-time job in health research :) ), my muscles no longer ache, and I don't have random dizzy/fainting spells. My stomach bloating is
Hi all, I hope everyone is well . I am doing a lot better nowadays, having been on Armour for about 9 months now. My memory is much better, I have more energy (and a full-time job in health research :) ), my muscles no longer ache, and I don't have random dizzy/fainting spells. My stomach bloating is
lau99
in
Thyroid UK
1 year ago
Does anyone take NDT at night?
Hi I’m thinking about swapping my meds to nighttime. I currently take a combination of ERFA and thyroxine first thing, and then another 1/2 grain of ERFA at lunch. But my calcium is very low and I need to take multiple doses at the moment which is tricky with thyroid meds. So I’ve been thinking
Hi I’m thinking about swapping my meds to nighttime. I currently take a combination of ERFA and thyroxine first thing, and then another 1/2 grain of ERFA at lunch. But my calcium is very low and I need to take multiple doses at the moment which is tricky with thyroid meds. So I’ve been thinking
Spangle15
in
Thyroid UK
1 year ago
question about hypothermia?
a couple weeks back, I visited my Kaiser infusion lab …. Lupron implant and Zometa pain train infusion. While there the intake nurse was alarmed with my 95.2 body temp. It’s been running between 95.2 and 95.7 lately. She told me to go to the E.R. , immediately, if it dropped to 95 or less. They were
a couple weeks back, I visited my Kaiser infusion lab …. Lupron implant and Zometa pain train infusion. While there the intake nurse was alarmed with my 95.2 body temp. It’s been running between 95.2 and 95.7 lately. She told me to go to the E.R. , immediately, if it dropped to 95 or less. They were
Kaliber
in
Advanced Prostate Cancer
1 year ago
ADT Emotional Lability Do Antidepressants Help?
Dear All, I’m dealing with the emotional lability of ADT and was wondering if Antidepressants helped? Just curious about others experiences. I have tried escitalopram but was deathly nauseous 3 days in and stopped taking it and haven’t tried anything else. Thank you for sharing your experiences.
Dear All, I’m dealing with the emotional lability of ADT and was wondering if Antidepressants helped? Just curious about others experiences. I have tried escitalopram but was deathly nauseous 3 days in and stopped taking it and haven’t tried anything else. Thank you for sharing your experiences.
TylexGP
in
Advanced Prostate Cancer
1 year ago
AR-V7 blood test and PET ordered yesterday.
MO diagnosis information on test order form (slightly edited) is: "Metastatic (stage IV), castrate resistant prostate cancer at last visit. (YES). Most recent PSA .25. Date 1-23-23. Patient received and failed either Xtandi, Erleada or Zytiga and progression of mCRPC was defined by the Prostate Cancer
MO diagnosis information on test order form (slightly edited) is: "Metastatic (stage IV), castrate resistant prostate cancer at last visit. (YES). Most recent PSA .25. Date 1-23-23. Patient received and failed either Xtandi, Erleada or Zytiga and progression of mCRPC was defined by the Prostate Cancer
alperk
in
Advanced Prostate Cancer
1 year ago
Oral SERD approved by FDA
https://apple.news/Ai1FWYlHCQ_yIOAT6MGXX6w Hormone therapies are well established in breast cancer treatment, working by blocking or reducing levels of hormones that feed tumor growth. If the disease progresses, the next line of therapy includes an injectable drug that specifically targets the estrogen
https://apple.news/Ai1FWYlHCQ_yIOAT6MGXX6w Hormone therapies are well established in breast cancer treatment, working by blocking or reducing levels of hormones that feed tumor growth. If the disease progresses, the next line of therapy includes an injectable drug that specifically targets the estrogen
Kerryd22
in
SHARE Metastatic Breast Cancer
1 year ago
To ARi or not to ARi, that is the question
I had a 12/22 .71 PSA, 6mo doubling time and PSMA confirmed 5mm met in right pelvic lymph node (after prior failure of RP and fossa IMRT to “cure”). I have been on Orgovyx for a month and start 28 sessions of IMRT to the pelvic lymph nodes with boost to known met next week. Tolerating Orgovyx very well
I had a 12/22 .71 PSA, 6mo doubling time and PSMA confirmed 5mm met in right pelvic lymph node (after prior failure of RP and fossa IMRT to “cure”). I have been on Orgovyx for a month and start 28 sessions of IMRT to the pelvic lymph nodes with boost to known met next week. Tolerating Orgovyx very well
FinnO
in
Advanced Prostate Cancer
1 year ago
Relugolix/Orgovyx with pelvic radiation?
My PSA is increasing once again beyond the detectable level. 9 years ago had RPT. 6 years ago had follow up PBRT only upon a detectable psa rise. See history in profile. My recent PSA is at 0.364. I have a PSMA PET scan scheduled at UCSF in April. Should the scan show metastasis in the pelvic
My PSA is increasing once again beyond the detectable level. 9 years ago had RPT. 6 years ago had follow up PBRT only upon a detectable psa rise. See history in profile. My recent PSA is at 0.364. I have a PSMA PET scan scheduled at UCSF in April. Should the scan show metastasis in the pelvic
bitittle
in
Advanced Prostate Cancer
1 year ago
Natural Desiccated Thyroid
Hiya I just wanted to let NDT users know that I heard yesterday that NDT will no longer be available to the UK without a prescription. Its bad news for users of NDT and will make NDT more expensive. Apparently the company we usually order from say its a new policy. But I am wondering if its due to MHRA
Hiya I just wanted to let NDT users know that I heard yesterday that NDT will no longer be available to the UK without a prescription. Its bad news for users of NDT and will make NDT more expensive. Apparently the company we usually order from say its a new policy. But I am wondering if its due to MHRA
JaneChapple
in
Thyroid UK
1 year ago
Not tolerating thyroid medications , tried t4 , t3 and ndt as well as cow thyroid , ready to give up completely
Hello All, back again. I recently had and increase of ndt and the muscle pain and joint pain are hiddeous, doesn't matter which meds I try none of them work, cant get within range without terrible side effects.
Hello All, back again. I recently had and increase of ndt and the muscle pain and joint pain are hiddeous, doesn't matter which meds I try none of them work, cant get within range without terrible side effects.
Rhannii7
in
Thyroid UK
1 year ago
QOL - Even More Handy APC Euphemisms
Every once in a while (24/7) my brain takes a dive into black humor. I know this type of humor isn’t for everyone, but hopefully the rest of you will find a chuckle or two to brighten the day. [u]
Even More Handy APC Euphemisms
[/u] for Patients and Their Families
1. Wee Willie, Shorty
Every once in a while (24/7) my brain takes a dive into black humor. I know this type of humor isn’t for everyone, but hopefully the rest of you will find a chuckle or two to brighten the day. [u]
Even More Handy APC Euphemisms
[/u] for Patients and Their Families
1. Wee Willie, Shorty
Carlosbach
in
Advanced Prostate Cancer
1 year ago
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