Search
Search
About
Log in
Join
Experiences with
Pulmonary valve disease
Posts
Communities
43,772 public posts
Filter results
microbleeds
Hi I wondered if any of you have had micro bleeds in the brain and had to therefore come of warfarin? We’re you put on clexane/fragmin etc? How has that worked for you and what was ongoing treatment? Also have you flown ok post bleeds on a plane? TIA
Hi I wondered if any of you have had micro bleeds in the brain and had to therefore come of warfarin? We’re you put on clexane/fragmin etc? How has that worked for you and what was ongoing treatment? Also have you flown ok post bleeds on a plane? TIA
chelb29
in
Hughes Syndrome APS Forum
8 months ago
Anticoagulants
Hi,I'm Jo, I'm 55 and three years ago I had an aneurysm in my aorta so had an Aortic Root & Valve replacement at Papworth. I have been on Warfarin ever since, but it's had it's problems. My INR levels are all over the place even though I'm careful what I eat etc. For 3 months I have been bleeding from
Hi,I'm Jo, I'm 55 and three years ago I had an aneurysm in my aorta so had an Aortic Root & Valve replacement at Papworth. I have been on Warfarin ever since, but it's had it's problems. My INR levels are all over the place even though I'm careful what I eat etc. For 3 months I have been bleeding from
Krunkbin
in
Heart Valve Voice
5 months ago
Anticoagulants
Hi I'm Jo,Three years ago I had an aortic aneurysm which resulted in a aortic root & valve replacement. I had a mechanical valve as I was 52, so I have been on Warfarin ever since. My Warfarin levels are rarely right, so have to have it adjusted regularly, but this is my concern. Three months ago I
Hi I'm Jo,Three years ago I had an aortic aneurysm which resulted in a aortic root & valve replacement. I had a mechanical valve as I was 52, so I have been on Warfarin ever since. My Warfarin levels are rarely right, so have to have it adjusted regularly, but this is my concern. Three months ago I
Krunkbin
in
Heart Valve Voice
5 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Post valve replacement
My husband had an Aortic valve replacement January 12th 2024. Since the operation he has had a cluster of aura migraines with pain.Anyone else had this!
My husband had an Aortic valve replacement January 12th 2024. Since the operation he has had a cluster of aura migraines with pain.Anyone else had this!
Prestige2003
in
British Heart Foundation
5 months ago
Aortic valve replacement
Good morning , I’m now on the waiting list at Papworth for surgery following my latest echo and review with my cardiologist. I note from his letter to the hospital that he has recommended a valve replacement with LAA exclusion . I have Atrial fibrillation for which I’ve had two catheter ablations which
Good morning , I’m now on the waiting list at Papworth for surgery following my latest echo and review with my cardiologist. I note from his letter to the hospital that he has recommended a valve replacement with LAA exclusion . I have Atrial fibrillation for which I’ve had two catheter ablations which
Hammerboy
in
British Heart Foundation
5 months ago
Rhythmic
Recently diagnosed with aortic regurgitation (leaking aortic valve), I am interested in the experience of others with this. Diagnosed following a stay in hospital with chest pain and high blood pressure as having possible early heart failure, this was confirmed by a heart specialist 3 months later, Dec
Recently diagnosed with aortic regurgitation (leaking aortic valve), I am interested in the experience of others with this. Diagnosed following a stay in hospital with chest pain and high blood pressure as having possible early heart failure, this was confirmed by a heart specialist 3 months later, Dec
Rhythmic
in
British Heart Foundation
5 months ago
Needing some suggestions to sitting for hours in hospital
I am 26 and on warfarin for a mechanical aortic valve inserted in April 23. I need to be tested very regularly, normally every 2 weeks atleast. It must be a blood test as the pin prick tests proved unreliable in my case. I spend hours and hours waiting at St Barts for a blood test which is where I am
I am 26 and on warfarin for a mechanical aortic valve inserted in April 23. I need to be tested very regularly, normally every 2 weeks atleast. It must be a blood test as the pin prick tests proved unreliable in my case. I spend hours and hours waiting at St Barts for a blood test which is where I am
Pefki
in
Anticoagulation Support
8 months ago
Mitral Valve Af and fed up
hi all, I’ve been diagnosed nearly two years ago with AF. Cardio version worked for 5 days so was put on Amiodarone 200mg along with the usual others, Apixiban, Nebivolol. The Amiodarone messed my thyroid about so was put on a higher dose of Levothyroxine. Fast forward 5 months I get an appointment
hi all, I’ve been diagnosed nearly two years ago with AF. Cardio version worked for 5 days so was put on Amiodarone 200mg along with the usual others, Apixiban, Nebivolol. The Amiodarone messed my thyroid about so was put on a higher dose of Levothyroxine. Fast forward 5 months I get an appointment
Gilly1372
in
Atrial Fibrillation Support
8 months ago
Travel ins
Looking for guidance on who people used for travel ins post valve replacement op.
Looking for guidance on who people used for travel ins post valve replacement op.
Holidayman
in
British Heart Foundation
5 months ago
Endocarditis Round 2
Hi Guys Ok, had my first valve replacement last July which was accompanied with my first case of Endo. My recovery has been incredible and I have never been as fit in my entire life until last Wednesday when I fell apart again with the usual symptoms, back in hospital and yes have Endo Part 2.
Hi Guys Ok, had my first valve replacement last July which was accompanied with my first case of Endo. My recovery has been incredible and I have never been as fit in my entire life until last Wednesday when I fell apart again with the usual symptoms, back in hospital and yes have Endo Part 2.
Larson2023
in
British Heart Foundation
5 months ago
A simple life with Acalabrutinib?
Hi! As an 80 year old guy living (happily) in a rural backwater, I’m 100 miles of slow unpredictable travel away from my haematologist and the associated treatment centre. I have CLL with 17p deletion. I’m soon going to start acalabrutinib medication along with prophylactics etc. Does anyone know what
Hi! As an 80 year old guy living (happily) in a rural backwater, I’m 100 miles of slow unpredictable travel away from my haematologist and the associated treatment centre. I have CLL with 17p deletion. I’m soon going to start acalabrutinib medication along with prophylactics etc. Does anyone know what
Fogey
in
CLL Support
6 months ago
Tricuspid regurgitation and mitral valve regurgitation and afib
Just had the results of my exho and inhave moderate mitral valve regurgitation and moderate tricuspid valve regurgitation to.
I had the echo because I am experiencing breathlessness.
However the letter said there was nothing on my scan that would cause breathlessness. I was under
Just had the results of my exho and inhave moderate mitral valve regurgitation and moderate tricuspid valve regurgitation to.
I had the echo because I am experiencing breathlessness.
However the letter said there was nothing on my scan that would cause breathlessness. I was under
Sunnyann
in
AF Association
8 months ago
Mitral valve (moderate)regurgitation and AF.
Has anyone with AF been diagnosed with MVR? What is the treatment, can you still have an ablation or perhaps......this may not be needed if the valve is repaired? To me it does seem pointless having an ablation if the Regurgitation is the cause of AF and this is not addressed first. On the plus side
Has anyone with AF been diagnosed with MVR? What is the treatment, can you still have an ablation or perhaps......this may not be needed if the valve is repaired? To me it does seem pointless having an ablation if the Regurgitation is the cause of AF and this is not addressed first. On the plus side
sunlovah
in
Atrial Fibrillation Support
9 months ago
Aortic Stenosis I’m so confused!
Hi all, so glad I’ve stumbled across this forum!!!. I was found to have a heart murmur by accident in 2012. I was put under cardiology where they told me I had a bicuspid valve and was seen every 3 years initially. Iwas later signed off because they said it wasn’t progressing but to go back if I noticed
Hi all, so glad I’ve stumbled across this forum!!!. I was found to have a heart murmur by accident in 2012. I was put under cardiology where they told me I had a bicuspid valve and was seen every 3 years initially. Iwas later signed off because they said it wasn’t progressing but to go back if I noticed
Trynagetfitter
in
British Heart Foundation
6 months ago
Has anyone been changed to Luforbec as a preventer inhaler
I have just been swapped from Clenil Modulite to Luforbec, I 'm a bit worried as I have moderate Aortic stenosis, Instructions say to take extra care with this medicine .
I have just been swapped from Clenil Modulite to Luforbec, I 'm a bit worried as I have moderate Aortic stenosis, Instructions say to take extra care with this medicine .
1browneyes1
in
Lung Conditions Community Forum
9 months ago
Steve 6 and a half years since heart failure.
My heart problems materialised when my customer said to me you look terrible as I wheeled a barrow up a ramp with heavy concrete blocks. Next morning I was in a ward being told I had heart failure. Was a shock and after 2 years on meds was finally sent in for a aortic root and valve replacement. So
My heart problems materialised when my customer said to me you look terrible as I wheeled a barrow up a ramp with heavy concrete blocks. Next morning I was in a ward being told I had heart failure. Was a shock and after 2 years on meds was finally sent in for a aortic root and valve replacement. So
Bobbymrg
in
British Heart Foundation
6 months ago
Has anyone taken Perdnisone or Prednisolone with Warfarin ?
Hello everyone, Just wondering if anyone has taken Perdnisone or Prednisolone with Warfarin ? Experienced any drug interactions ? Many thanks, Rosegardens
Hello everyone, Just wondering if anyone has taken Perdnisone or Prednisolone with Warfarin ? Experienced any drug interactions ? Many thanks, Rosegardens
rosegardens
in
Hughes Syndrome APS Forum
4 months ago
Atrial fibrillation in early 50s for no obvious reason
Hi, I'm 51 years old, fit, healthy, no high BP, don't smoke, eat mostly a plant based diet and had my first afib episode a month ago. A&E couldn't find a cause and put it down to dehydration and over doing it. They sent me away with no medication. A fews weeks later I started getting migraines with aura
Hi, I'm 51 years old, fit, healthy, no high BP, don't smoke, eat mostly a plant based diet and had my first afib episode a month ago. A&E couldn't find a cause and put it down to dehydration and over doing it. They sent me away with no medication. A fews weeks later I started getting migraines with aura
Sweet-Potato
in
AF Association
9 months ago
Aortic stenosis
Morning all , I’m 14 months post my second ablation which was an RF redo to tidy up the PV and left atrial floor as I was told . I’m very pleased with my progress so far with only two mild and short episodes of AF . I also have mild to moderate stenosis of the valve which I was told in 2017 would have
Morning all , I’m 14 months post my second ablation which was an RF redo to tidy up the PV and left atrial floor as I was told . I’m very pleased with my progress so far with only two mild and short episodes of AF . I also have mild to moderate stenosis of the valve which I was told in 2017 would have
Hammerboy
in
AF Association
9 months ago
Had the ablation.
Monday I had the procedure under general anesthesia-safely and successfully. The did give IV cortef at the start of the procedure. Since they needed to intubate my throat is sore for days but my ears-especially the right one are achy. I was debating why aching now; pollen count is moderate,and my jaw
Monday I had the procedure under general anesthesia-safely and successfully. The did give IV cortef at the start of the procedure. Since they needed to intubate my throat is sore for days but my ears-especially the right one are achy. I was debating why aching now; pollen count is moderate,and my jaw
Karenjaninaz
in
PMRGCAuk
3 months ago
1
...
3
4
5
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Thyroid UK
5667 results
British Liver Trust
4500 results
Advanced Prostate Cancer
4429 results
View top 10 communities
Sort by
Most Relevant
Newest