Search
Search
About
Log in
Join
Experiences with
Pulmonary fibrosis
Posts
Communities
4,148 public posts
Filter results
No appetite & nausea
Hi all I have
Pulmonary
Fibrosis
caused by Hypersensitivity Pneumonitis. Now on Nintedanib (taken with food) & Mycophenolate. Im struggling with fatigue but also nausea & have lost my appetite. Any tips would be very welcome??
Hi all I have
Pulmonary
Fibrosis
caused by Hypersensitivity Pneumonitis. Now on Nintedanib (taken with food) & Mycophenolate. Im struggling with fatigue but also nausea & have lost my appetite. Any tips would be very welcome??
Tawny10
in
Lung Conditions Community Forum
10 months ago
I'm new to this community , but not to Health Unlocked
The consequences were scarring of the lungs that I now know is
pulmonary
fibrosis
and as of yet, does not have a treatment path. I participate as a stroke lived-experience person in various university studies, and maybe there are opportunities through this forum.
The consequences were scarring of the lungs that I now know is
pulmonary
fibrosis
and as of yet, does not have a treatment path. I participate as a stroke lived-experience person in various university studies, and maybe there are opportunities through this forum.
john-boy-92
in
Lung Conditions Community Forum
25 days ago
Crossstich
my 85 year old husband has got
Pulmonary
Fibrosis
, diagnosed in 2021. No treatment up to know. He’s losing weight despite eating well, adding chocolate biscuits with coffee, cake with afternoon tea, Complain as an evening drink. He had a blood test two weeks ago that didn’t show up anything wrong.
my 85 year old husband has got
Pulmonary
Fibrosis
, diagnosed in 2021. No treatment up to know. He’s losing weight despite eating well, adding chocolate biscuits with coffee, cake with afternoon tea, Complain as an evening drink. He had a blood test two weeks ago that didn’t show up anything wrong.
Xrossstich
in
Lung Conditions Community Forum
9 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Idiopathic pulmonary fibrosis
Hi is there anyone out there who has this? I have been on the anti fibrotic drug nintedanib for one year. I have recently had a knee replacement (six and a half weeks ago)
Hi is there anyone out there who has this? I have been on the anti fibrotic drug nintedanib for one year. I have recently had a knee replacement (six and a half weeks ago)
Hidden
in
Lung Conditions Community Forum
1 year ago
Crossstitch
my husband has
Pulmonary
Fibrosis
, the coughing is awful & he’s bringing up slight phlegm. We’ve asked for “puffer” but they won’t give him one, WHY??? My friend with COPD has a puffer and swears by it reckon it stops all the coughing in the mornings.
my husband has
Pulmonary
Fibrosis
, the coughing is awful & he’s bringing up slight phlegm. We’ve asked for “puffer” but they won’t give him one, WHY??? My friend with COPD has a puffer and swears by it reckon it stops all the coughing in the mornings.
Xrossstich
in
Lung Conditions Community Forum
10 months ago
difficulty eating.
my husband has had
pulmonary
fibrosis
for over two years now with heavy coughing bringing up very little phlegm.
my husband has had
pulmonary
fibrosis
for over two years now with heavy coughing bringing up very little phlegm.
Xrossstich
in
Lung Conditions Community Forum
1 year ago
Humidity and heat
Hello, I have asthma and my husband has
pulmonary
fibrosis
and emphysema, we are both finding it hard with the heat and humidity. Does anyone know if it helps to reduce the humidity by using a dehumidifier?
Hello, I have asthma and my husband has
pulmonary
fibrosis
and emphysema, we are both finding it hard with the heat and humidity. Does anyone know if it helps to reduce the humidity by using a dehumidifier?
strongmouse
in
Lung Conditions Community Forum
10 months ago
A cause for concern or?
In 2019 my GP felt i had a lung problem so i was sent for chest Xray, from which he told me i had Idiopathic
pulmonary
fibrosis
, as it was covid nothing else was done. i had a recent Chest x-ray after saying i was concerned id not been refereed or checked on. and have not had any result given to me
In 2019 my GP felt i had a lung problem so i was sent for chest Xray, from which he told me i had Idiopathic
pulmonary
fibrosis
, as it was covid nothing else was done. i had a recent Chest x-ray after saying i was concerned id not been refereed or checked on. and have not had any result given to me
caz1967
in
British Heart Foundation
3 months ago
saving my dad
My dad was recently diagnosed with
Pulmonary
Fibrosis
. He is only 64 years old and last year this same time he was in great health! Drs are unsure if it’s IPF or another severe form of
pulmonary
fibrosis
. He had a lung biopsy that came back inconclusive.
My dad was recently diagnosed with
Pulmonary
Fibrosis
. He is only 64 years old and last year this same time he was in great health! Drs are unsure if it’s IPF or another severe form of
pulmonary
fibrosis
. He had a lung biopsy that came back inconclusive.
Timslungs
in
Lung Conditions Community Forum
1 year ago
Swimming
Hi all, does anyone know if it's ok to swim in a swimming pool chlorinated with
pulmonary
fibrosis
? X
Hi all, does anyone know if it's ok to swim in a swimming pool chlorinated with
pulmonary
fibrosis
? X
Currygirl
in
Lung Conditions Community Forum
1 year ago
Swimming pools
I am wanting to get in the swimming pool with grandson but I do ha e
pulmonary
fibrosis
and wondering if the chlorine was bad for me ?x
I am wanting to get in the swimming pool with grandson but I do ha e
pulmonary
fibrosis
and wondering if the chlorine was bad for me ?x
Currygirl
in
Lung Conditions Community Forum
1 year ago
Other conditions
I have had A/F for 12 years, but now diagnosed with
Pulmonary
Fibrosis
as well. Is there anyone on this site with both conditions please? I am currently waiting to see a Consultant, but it's always very helpful to hear how other people have managed to cope with both.
I have had A/F for 12 years, but now diagnosed with
Pulmonary
Fibrosis
as well. Is there anyone on this site with both conditions please? I am currently waiting to see a Consultant, but it's always very helpful to hear how other people have managed to cope with both.
ruuthmo
in
AF Association
1 year ago
Introduction
GI tract involvement (literally from top to bottom)
pulmonary
fibrosis
& telangiectasia. My bovine tricuspid valve was replaced in 2023 with a prosthetic valve in a keyhole operation at LHCH. A two day keyhole surgery operation, no pain whatsoever, absolutely incredible!
GI tract involvement (literally from top to bottom)
pulmonary
fibrosis
& telangiectasia. My bovine tricuspid valve was replaced in 2023 with a prosthetic valve in a keyhole operation at LHCH. A two day keyhole surgery operation, no pain whatsoever, absolutely incredible!
Ildivolover
in
Scleroderma & Raynaud's UK (SRUK)
2 months ago
DNR not sure what to do.
I have hypersensitivity pneumonitis a lung condition and
pulmonary
fibrosis
. I was in hospital in January with Pneumonia and whilst in the assessment area of A & E a doctor asked me if I have and DNR in place in sort of threw me. I said not and must have looked shocked as he scuttled off.
I have hypersensitivity pneumonitis a lung condition and
pulmonary
fibrosis
. I was in hospital in January with Pneumonia and whilst in the assessment area of A & E a doctor asked me if I have and DNR in place in sort of threw me. I said not and must have looked shocked as he scuttled off.
cazza34
in
Lung Conditions Community Forum
11 months ago
Advice about experts at London Bridge Hospital
I have an unusual history. In 2007, I recovered from several months in hospital with hypoxia and very severe chest pain only when I was put on heparin. I have a very severe history of clotting on my Mum's side of the family and family and friends begged the doctors to try anticoagulation because
I have an unusual history. In 2007, I recovered from several months in hospital with hypoxia and very severe chest pain only when I was put on heparin. I have a very severe history of clotting on my Mum's side of the family and family and friends begged the doctors to try anticoagulation because
Annslack
in
Hughes Syndrome APS Forum
1 month ago
CT scan 10 weeks ago showed pulmonary fibrosis and emphysema.
That came back showing I have in fact got
pulmonary
fibrosis
and emphysema. I had to wait 9 weeks to get results from gp. Apparently as I have no new symptoms I won’t see a lung specialist for months. I was put on routine waiting list at same time as scan was requested and that’s 12 weeks now.
That came back showing I have in fact got
pulmonary
fibrosis
and emphysema. I had to wait 9 weeks to get results from gp. Apparently as I have no new symptoms I won’t see a lung specialist for months. I was put on routine waiting list at same time as scan was requested and that’s 12 weeks now.
Hidden
in
Lung Conditions Community Forum
11 months ago
Warfarin
Has anyone experienced Warfarin failing you more than once? I have had three different instances where I had large clots in my lungs while on it. I am still on it (after my coverage from work denied paying for Framing injections - the only anticoagulant that hasn't failed me). Just wondering if this
Has anyone experienced Warfarin failing you more than once? I have had three different instances where I had large clots in my lungs while on it. I am still on it (after my coverage from work denied paying for Framing injections - the only anticoagulant that hasn't failed me). Just wondering if this
Willow7733
in
Hughes Syndrome APS Forum
2 months ago
Shock diagnosis
Hi. I was admitted to hospital last Friday with heart rate of 144 and told I have AF. Told without anticoagulants I was risking major stroke, heart attack or pulmonary embolism. Now on beta blocker, Warfarin and Fragmin. Worried 😟. Was working on day I was admitted and feeling very anxious. Don’t know
Hi. I was admitted to hospital last Friday with heart rate of 144 and told I have AF. Told without anticoagulants I was risking major stroke, heart attack or pulmonary embolism. Now on beta blocker, Warfarin and Fragmin. Worried 😟. Was working on day I was admitted and feeling very anxious. Don’t know
Fannyphasbees
in
Atrial Fibrillation Support
4 months ago
Diagnosed last Friday AF
Hi. I was admitted to hospital last Friday with heart rate of 144 and told I have AF. Told without anticoagulants I was risking major stroke, heart attack or pulmonary embolism. Now on beta blocker, Warfarin and Fragmin. Worried 😟. Was working on day I was admitted and feeling very anxious. Don’t know
Hi. I was admitted to hospital last Friday with heart rate of 144 and told I have AF. Told without anticoagulants I was risking major stroke, heart attack or pulmonary embolism. Now on beta blocker, Warfarin and Fragmin. Worried 😟. Was working on day I was admitted and feeling very anxious. Don’t know
Fannyphasbees
in
Anticoagulation Support
4 months ago
Niraparib
I was diagnosed with Stage 3c high grade serous ovarian cancer in June 2023 which had spread to omentum and peritoneal lining. I had ascites which was drained twice and have developed a pleural effusion. I had the 3xchemo and debulking surgery then 3 more chemo. Finished treatment on Dec 23. ca-125
I was diagnosed with Stage 3c high grade serous ovarian cancer in June 2023 which had spread to omentum and peritoneal lining. I had ascites which was drained twice and have developed a pleural effusion. I had the 3xchemo and debulking surgery then 3 more chemo. Finished treatment on Dec 23. ca-125
Berryporridgr
in
My Ovacome
5 months ago
1
2
3
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Fertility Network UK
1302 results
Lung Conditions Community Forum
1025 results
Endometriosis UK
587 results
View top 10 communities
Sort by
Most Relevant
Newest