Search
Search
About
Log in
Join
Experiences with
Proton Therapy
Posts
Communities
17,823 public posts
Filter results
Failed RP & SRT; Negative PSMA PET
Greetings. I had a radical prostatectomy that failed and then salvage radiation therapy that appears to have failed as well. A recent PSMA PET scan showed no signs of recurrent prostate cancer or metastases. By way of background: NOV 2010 - Dx at age 52; positive DRE, Gleason 3+3, PSA 5.0; prostate
Greetings. I had a radical prostatectomy that failed and then salvage radiation therapy that appears to have failed as well. A recent PSMA PET scan showed no signs of recurrent prostate cancer or metastases. By way of background: NOV 2010 - Dx at age 52; positive DRE, Gleason 3+3, PSA 5.0; prostate
dans_journey
in
Advanced Prostate Cancer
6 months ago
Genomics
HI all, After a progression 2 years on Arimadex, Ibrance my dear partner has had a liver biopsy and we are doing genomics testing, around $3.3k. 500 gene plate? Awaiting results but after a second opinion , (lady Onc, more caring, smart) Fulvescant has been prescribed. The other prescribed Tamoxifen
HI all, After a progression 2 years on Arimadex, Ibrance my dear partner has had a liver biopsy and we are doing genomics testing, around $3.3k. 500 gene plate? Awaiting results but after a second opinion , (lady Onc, more caring, smart) Fulvescant has been prescribed. The other prescribed Tamoxifen
muzzatron
in
SHARE Metastatic Breast Cancer
11 months ago
Symptoms v’s blood test
Hello I am so happy I’ve found this forum, I have been lurking and learning a lot over recent weeks. I previously had Graves, diagnosed by radioactive scan. Then subsequent to pregnancy was diagnosed hypo in 2013. I have been on 50mcg Levo for several years, also on HRT several years. I am looking
Hello I am so happy I’ve found this forum, I have been lurking and learning a lot over recent weeks. I previously had Graves, diagnosed by radioactive scan. Then subsequent to pregnancy was diagnosed hypo in 2013. I have been on 50mcg Levo for several years, also on HRT several years. I am looking
Candycanelane
in
Thyroid UK
7 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Thyroid research project
I wrote to complain about the thyroid research being carried out in Newcastle and there have been a little flurry of emails with me getting nowhere. Here is what has been written. The article he refers to can be found in THYROID Volume 31, Number 5, 2021 Clinical Outcomes After Discontinuation of Thyroid
I wrote to complain about the thyroid research being carried out in Newcastle and there have been a little flurry of emails with me getting nowhere. Here is what has been written. The article he refers to can be found in THYROID Volume 31, Number 5, 2021 Clinical Outcomes After Discontinuation of Thyroid
mstp
in
Thyroid UK
7 months ago
Thyroid - updated bloods - advice
Good morning, Just had the attached bloods back from Medichecks and wonder if anyone had any advice before I return to GP to discuss. I took the test at 7:30am after fasting overnight and within one hour of waking. I’ve put columns for previous tests in April and September for comparison. TSH
Good morning, Just had the attached bloods back from Medichecks and wonder if anyone had any advice before I return to GP to discuss. I took the test at 7:30am after fasting overnight and within one hour of waking. I’ve put columns for previous tests in April and September for comparison. TSH
MPG15
in
Thyroid UK
7 months ago
New menopause hot flush treatment discussed on BBC Breakfast around 8.17am 15th Jan
Also discussing standard HRT though this form is suitable for people needing non hormonal options
Also discussing standard HRT though this form is suitable for people needing non hormonal options
TiggerMe
in
Thyroid UK
7 months ago
Overwhelmed, what do I do next? Mutations In my Germline & a Tier 1 ATM Frameshift Alteration
My Germline is I’m missing a blm copy like a bloom syndrome drop My Genomic Tier 1 is a ATM Frameshift Alteration I have a battery of mutations listed in my profile bio. My PSA in the last 4 months is rising from <0.06 in October to 0.46 last week. I’m on Firmagon monthly, Zytiga with Prednisone
My Germline is I’m missing a blm copy like a bloom syndrome drop My Genomic Tier 1 is a ATM Frameshift Alteration I have a battery of mutations listed in my profile bio. My PSA in the last 4 months is rising from <0.06 in October to 0.46 last week. I’m on Firmagon monthly, Zytiga with Prednisone
Shorehousejam
in
Advanced Prostate Cancer
7 months ago
any one like me??
***Edited post to add bloods history*** not as many T3 readings as often they refuse to test it T3 (normal range 3.1-6.8 pmol/L) 20/3/23 - 2.8 13/11/23 - 2.8 Started taking Tiromel December 23 so yet to test T4 (normal range 11.3 - 21.6 pmol/L) 20/3/23 - 12.3 (after which started on 25mcg levo)
***Edited post to add bloods history*** not as many T3 readings as often they refuse to test it T3 (normal range 3.1-6.8 pmol/L) 20/3/23 - 2.8 13/11/23 - 2.8 Started taking Tiromel December 23 so yet to test T4 (normal range 11.3 - 21.6 pmol/L) 20/3/23 - 12.3 (after which started on 25mcg levo)
Clauds123
in
Thyroid UK
7 months ago
changing from Armour to levo
Hi all I take armour thyroid and have done for over 10 yrs now. I was originally prescribed this by a private doctor but further down the rd I found a way to buy Armour myself so I self medicate. I test my levels regularly (probably every 4-6 months) and I’ve felt in a good place for years. That’s
Hi all I take armour thyroid and have done for over 10 yrs now. I was originally prescribed this by a private doctor but further down the rd I found a way to buy Armour myself so I self medicate. I test my levels regularly (probably every 4-6 months) and I’ve felt in a good place for years. That’s
Tweetypie28
in
Thyroid UK
7 months ago
Any Data or MO Advice Regarding Dutasteride / Finasteride At Very Early Biochemical Recurrence?
Does anyone know of any studies or MO advice they've gotten regarding use of Dutasteride or Finasteride at very early signs of Biochemical Reccurrence (uPSA in the 0.03 - 0.1 range) prior to Salvage Radiotherapy? It's obviously going to slow PSA doubling time and thereby probably lengthen the time
Does anyone know of any studies or MO advice they've gotten regarding use of Dutasteride or Finasteride at very early signs of Biochemical Reccurrence (uPSA in the 0.03 - 0.1 range) prior to Salvage Radiotherapy? It's obviously going to slow PSA doubling time and thereby probably lengthen the time
jazj
in
Advanced Prostate Cancer
7 months ago
PSA Response From Broccoli Sprout Extract (Sulforaphane) May Due To Just Being Moderate ADT
I forgot I ran across this a 2 years ago as many with PCa diagnosis are very interested in Sulforaphane due to a lot of excitement from a few studies a few years ago. (This fueled an explosion of supplements on Amazon.) This however is one of the more expensive supplements and my jury is still out
I forgot I ran across this a 2 years ago as many with PCa diagnosis are very interested in Sulforaphane due to a lot of excitement from a few studies a few years ago. (This fueled an explosion of supplements on Amazon.) This however is one of the more expensive supplements and my jury is still out
jazj
in
Advanced Prostate Cancer
7 months ago
Fatiqued and wiped out feeling
I started lupron injection 5 months ago and starting my second month on nubeqa. I am extremely fatiqued and feel wiped out all the time. No ambition to do anything. Climbing stairs is an efford have to force myself to get out of bed. Cannot sleep very well. When I get up it feels like I have not slept
I started lupron injection 5 months ago and starting my second month on nubeqa. I am extremely fatiqued and feel wiped out all the time. No ambition to do anything. Climbing stairs is an efford have to force myself to get out of bed. Cannot sleep very well. When I get up it feels like I have not slept
woppaginny
in
Advanced Prostate Cancer
5 months ago
test results
Hi there again. Ive finally received my test results and have posted them below. Im a 57 year old male with a physical job (builder) with type 2 diabetes (low range) and only just benn put on statins although i was fine until very recently ref the statins. Quick history: Thyroid removed in 2006 due
Hi there again. Ive finally received my test results and have posted them below. Im a 57 year old male with a physical job (builder) with type 2 diabetes (low range) and only just benn put on statins although i was fine until very recently ref the statins. Quick history: Thyroid removed in 2006 due
wolthebuilder
in
Thyroid UK
8 months ago
Declining psa #9
Gm folks, hope all are having a wonderful New Year. I’m following up n giving results on using ivermectin, cbd oil, turmeric Vit b3,6,12 Vit c And zinc solely after eliminating ADT after 7 months, post Rp n rad… Psa dropped another .29 points to .66 down from .95 n psa was hovering 7 when I first got
Gm folks, hope all are having a wonderful New Year. I’m following up n giving results on using ivermectin, cbd oil, turmeric Vit b3,6,12 Vit c And zinc solely after eliminating ADT after 7 months, post Rp n rad… Psa dropped another .29 points to .66 down from .95 n psa was hovering 7 when I first got
Nfler
in
Advanced Prostate Cancer
7 months ago
Anyone tried adrenal supplements? Any feedback please?
Currently looking at adrenal supplements saw from an old post on here a product recommendation and used by a Dr P but this has been discontinued now and the closest product is this one. Thorne Advanced Adrenal Cortex. Any feedback on these supplements or similar support please and what supplements
Currently looking at adrenal supplements saw from an old post on here a product recommendation and used by a Dr P but this has been discontinued now and the closest product is this one. Thorne Advanced Adrenal Cortex. Any feedback on these supplements or similar support please and what supplements
Fizzwhizz
in
Thyroid UK
7 months ago
Stratification test for ADT effectiveness
As someone who has had the awful experience of ADT side effects, I give this tool a standing ovation: https://artera.ai/arteraai-prostate-cancer-test Just approved for Medicare coverage, and just a matter of time before California and New York join the other 48 states in approving it.
As someone who has had the awful experience of ADT side effects, I give this tool a standing ovation: https://artera.ai/arteraai-prostate-cancer-test Just approved for Medicare coverage, and just a matter of time before California and New York join the other 48 states in approving it.
ron_bucher
in
Advanced Prostate Cancer
7 months ago
SRBT and EXTEND trial
Does anybody have the full text of EXTEND trial results from June 2023? (my payment attempt is rejected and the tips on how to get a study without cost doesn´t work) https://pubmed.ncbi.nlm.nih.gov/37022702/ Addition of Metastasis-Directed Therapy to Intermittent Hormone Therapy for Oligometastatic
Does anybody have the full text of EXTEND trial results from June 2023? (my payment attempt is rejected and the tips on how to get a study without cost doesn´t work) https://pubmed.ncbi.nlm.nih.gov/37022702/ Addition of Metastasis-Directed Therapy to Intermittent Hormone Therapy for Oligometastatic
Purple-Bike
in
Advanced Prostate Cancer
7 months ago
Has anyone taken a non-medication route and seen an improvement in their osteoporosis through only supplements/diet/exercise?
Hello, I have osteoporosis and been advised to take medication - either HRT or Alendronate. However, I as an alternative wondered whether anyone who is not on medication has seen an improvement in their osteoporosis through only supplements/diet/exercise?
Hello, I have osteoporosis and been advised to take medication - either HRT or Alendronate. However, I as an alternative wondered whether anyone who is not on medication has seen an improvement in their osteoporosis through only supplements/diet/exercise?
Houseelf
in
Bone Health and Osteoporosis UK
7 months ago
What is the next step
I have one more Immunotherapy for my bladder cancer, so far all scan have shown no metastasis. Now I need to focus on my PC after more than a year of ignoring it. My PSA has been fluctuating and is now 0.65, doubling time is 16 months, I have not had ADT yet and my MO wants to just wait and watch. What
I have one more Immunotherapy for my bladder cancer, so far all scan have shown no metastasis. Now I need to focus on my PC after more than a year of ignoring it. My PSA has been fluctuating and is now 0.65, doubling time is 16 months, I have not had ADT yet and my MO wants to just wait and watch. What
old64horn
in
Advanced Prostate Cancer
7 months ago
Follow up to "My trajectory after a 'vacation' and a new metastasis," and a new question
I though that the recommendation of the "tumor board" at Smilow Cancer Center in New Haven, CT, would be "doublet therapy" to treat the new metastasis that was found with a PET PSMA scan, (the second one that was found after my Lupron "vacation"; the first was treated with radiation--details of my case
I though that the recommendation of the "tumor board" at Smilow Cancer Center in New Haven, CT, would be "doublet therapy" to treat the new metastasis that was found with a PET PSMA scan, (the second one that was found after my Lupron "vacation"; the first was treated with radiation--details of my case
Istomin
in
Advanced Prostate Cancer
7 months ago
1
...
70
71
72
...
100
Next page
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Advanced Prostate Cancer
4583 results
Thyroid UK
2930 results
Endometriosis UK
1882 results
View top 10 communities
Sort by
Most Relevant
Newest