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Brain stem tumor from thyroid cancer
I have developed a brain stem tumor from thyroid cancer tall cell aggressive. Will be getting proton therapy. Any advice for things you used against possible side effects during treatments and after treatments . Appreciate all your help before I start proton therapy to my brain stem!!
I have developed a brain stem tumor from thyroid cancer tall cell aggressive. Will be getting proton therapy. Any advice for things you used against possible side effects during treatments and after treatments . Appreciate all your help before I start proton therapy to my brain stem!!
Portugal-2
in
Neuro Support
4 years ago
Questions for the RO for my upcoming video conference regarding options for early salvage treatment (and ADT) after Radical Prostatectomy?
I had my radical prostatectomy (RP) on 6/3/2019. Given my pathological results (see below for details) and the definite trend in my PSA levels over the last 18 months (see graph below), my surgeon now thinks I should pursue early salvage radiation therapy and I agree, but now trying to decide on the
I had my radical prostatectomy (RP) on 6/3/2019. Given my pathological results (see below for details) and the definite trend in my PSA levels over the last 18 months (see graph below), my surgeon now thinks I should pursue early salvage radiation therapy and I agree, but now trying to decide on the
cyber1
in
Prostate Cancer Network
4 years ago
MRI results
Hello all - MRI results surprisingly were released about 2 hours ago. Not sure why on a Sunday. Ryan had a thought that if they were released on a weekend that it was obviously good news. It is not good, nor completely bad. There were no "definitive" language used. Words such as "suspect" and "compatible
Hello all - MRI results surprisingly were released about 2 hours ago. Not sure why on a Sunday. Ryan had a thought that if they were released on a weekend that it was obviously good news. It is not good, nor completely bad. There were no "definitive" language used. Words such as "suspect" and "compatible
kellyOd
in
Melanoma Caregivers
4 years ago
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Proton therapy 20 treatment
Had markers and space oar vue installed today, dr asked if I wanted 20 treatments or 28. Anyone have experience with 20
Had markers and space oar vue installed today, dr asked if I wanted 20 treatments or 28. Anyone have experience with 20
Paver1
in
Advanced Prostate Cancer
4 years ago
Proton Therapy after Robotics and PSA
Radiologist advised against proton radiation therapy because his last PSA was <.1. His oncologist thinks radiation is indicated unless <.05. What lab has PSA testing that is this precise? He was Stage 3 Prostate Cancer.
Radiologist advised against proton radiation therapy because his last PSA was <.1. His oncologist thinks radiation is indicated unless <.05. What lab has PSA testing that is this precise? He was Stage 3 Prostate Cancer.
9791asil
in
Advanced Prostate Cancer
4 years ago
Tough decisions - looking for advice
Hello all - looking for some advice... Medical History: 48 years old. I live in the Atlanta Georgia area. I was diagnosed in June, Stage 4, Gleason 10. 1st PSA 104.5. 2 weeks later was at 150. All biopsy samples fully involved with cancer. Lowest sample was 4+5, several 5+4, most 5+5. CT scan showed
Hello all - looking for some advice... Medical History: 48 years old. I live in the Atlanta Georgia area. I was diagnosed in June, Stage 4, Gleason 10. 1st PSA 104.5. 2 weeks later was at 150. All biopsy samples fully involved with cancer. Lowest sample was 4+5, several 5+4, most 5+5. CT scan showed
TrashPanda72
in
Advanced Prostate Cancer
4 years ago
Meeting with a radiation oncologist for the first time this Thursday.
Meeting with a local radiation oncologist for the first time this Thursday. Quick recap - Robotic radical prostatectomy in Oct 2018. PSA has risen to .38 effective a couple of weeks ago. Decipher RP score was .37. Here are the questions I plan to ask them (they are not an academic clinic): 1. Do
Meeting with a local radiation oncologist for the first time this Thursday. Quick recap - Robotic radical prostatectomy in Oct 2018. PSA has risen to .38 effective a couple of weeks ago. Decipher RP score was .37. Here are the questions I plan to ask them (they are not an academic clinic): 1. Do
searchingtom
in
Advanced Prostate Cancer
4 years ago
Should my advanced micrometastatic treatment be more aggressive
DX Feb 2014, Gleason 9, psa 10, 3tb. All scans have shown no metastatic involvement including pet/ct in April 2020. Treatment 42 fractions proton radiation June 2014 . Lupron 3mos prior and 6mos after proton therapy. Psa 3mos post proton treatment 0.1, 9mos post treatment 6.0. Firmagon started Dec
DX Feb 2014, Gleason 9, psa 10, 3tb. All scans have shown no metastatic involvement including pet/ct in April 2020. Treatment 42 fractions proton radiation June 2014 . Lupron 3mos prior and 6mos after proton therapy. Psa 3mos post proton treatment 0.1, 9mos post treatment 6.0. Firmagon started Dec
Tnjw
in
Advanced Prostate Cancer
4 years ago
New Here and Glad I’ve found this Group – Anyone done Proton Therapy?
Intro Info – I’m 66 relatively good health, obviously gay. During a routine physical I had a slightly elevated PSA score of 4.3 so my primary care doctor recommended me to a Urologist. After some discussion we decided to do a biopsy. The result from the 12 cores was not what I wanted to hear. I was hoping
Intro Info – I’m 66 relatively good health, obviously gay. During a routine physical I had a slightly elevated PSA score of 4.3 so my primary care doctor recommended me to a Urologist. After some discussion we decided to do a biopsy. The result from the 12 cores was not what I wanted to hear. I was hoping
gcunningham
in
Prostate Cancer And Gay Men
4 years ago
An update on my Proton Therapy
So I decided to update my situation and treatment here in the Houston area. At a very young and sexually active 72 yrs old I was diagnosed with intermediate risk Pc in May last year (2019). I had a large tumor with a slight extracapsular extension. PSA 7.5 and rising pretty fast, G 3+4. I spend a lot
So I decided to update my situation and treatment here in the Houston area. At a very young and sexually active 72 yrs old I was diagnosed with intermediate risk Pc in May last year (2019). I had a large tumor with a slight extracapsular extension. PSA 7.5 and rising pretty fast, G 3+4. I spend a lot
Pesky21
in
Prostate Cancer Network
4 years ago
Investigating Proton therapy for salvage treatment following RARP
I had RARP nine months ago, and I'm investigating salvage treatment now. I am G9/10 with pT3a NO EPE but with PCa in the margins. My bone scan was negative. Prior to RARP my PSA had reached 4.9 after doubling from the previous year. I'd be very interested in hearing from others who have used proton therapy
I had RARP nine months ago, and I'm investigating salvage treatment now. I am G9/10 with pT3a NO EPE but with PCa in the margins. My bone scan was negative. Prior to RARP my PSA had reached 4.9 after doubling from the previous year. I'd be very interested in hearing from others who have used proton therapy
ragnar2020
in
Advanced Prostate Cancer
4 years ago
If Proton Therapy is successful can I get off of Xtandi?
Starting proton therapy next week. RO thinks remission and possible cure. If so can I get off of Xtandi.
Starting proton therapy next week. RO thinks remission and possible cure. If so can I get off of Xtandi.
Bobcat64
in
Advanced Prostate Cancer
4 years ago
Scott in Boynton Beach, Florida
Recently diagnosed with prostate cancer and am starting my Proton therapy on April 28th...a bit nervous, but we caught it early
Recently diagnosed with prostate cancer and am starting my Proton therapy on April 28th...a bit nervous, but we caught it early
scottnflorida
in
Prostate Cancer And Gay Men
4 years ago
Issues with Radiation Therapy and the location of the heart
Has anyone had issues with Radiation Therapy and the location of their heart? I went for my consult and they said that I have to have my expanders reduced more than the 180cc that I had removed before my consultation. Wondering if my "assigned" radiation oncologist really knows what they are doing, since
Has anyone had issues with Radiation Therapy and the location of their heart? I went for my consult and they said that I have to have my expanders reduced more than the 180cc that I had removed before my consultation. Wondering if my "assigned" radiation oncologist really knows what they are doing, since
LibbyBelle04
in
SHARE Breast Cancer Support
4 years ago
Still confused on next step
Dx 12/15/2018, PSA 60, GS 3+4, ADT eligard, firmagon, casodex, 6 month PSA=0.1, 8 month=.9, off casodex, 10 month =4.6, 12 month =12.3. PET scan impression = SCLEROTIC OSSEOUS MOST METABOLICALLY ACTIVE IN THE POSTERIOR ASPECTOF THE RIGHT ILLIAC BONE. NO EXTRA-OSSEOUS FDG-AVID MALIGNANCY IS IDENTIFIED
Dx 12/15/2018, PSA 60, GS 3+4, ADT eligard, firmagon, casodex, 6 month PSA=0.1, 8 month=.9, off casodex, 10 month =4.6, 12 month =12.3. PET scan impression = SCLEROTIC OSSEOUS MOST METABOLICALLY ACTIVE IN THE POSTERIOR ASPECTOF THE RIGHT ILLIAC BONE. NO EXTRA-OSSEOUS FDG-AVID MALIGNANCY IS IDENTIFIED
Bobcat64
in
Advanced Prostate Cancer
4 years ago
Proton therapy
Has anyone done Proton therapy for the PC?
Has anyone done Proton therapy for the PC?
FellowSurvivors
in
Prostate Cancer And Gay Men
4 years ago
Alliance for Proton Therapy Access
After reading about this organization I tried to find out more about them. According to their press release from July 25, 2017: "The Alliance for Proton Therapy Access is an advocacy organization comprised of a growing community of patients, families, caregivers, physicians and industry partners" I'm
After reading about this organization I tried to find out more about them. According to their press release from July 25, 2017: "The Alliance for Proton Therapy Access is an advocacy organization comprised of a growing community of patients, families, caregivers, physicians and industry partners" I'm
AlanMeyer
in
Advanced Prostate Cancer
5 years ago
Proton Therapy
Thought I would share this given to me by a wise friend who is in the fight. https://www.fiercehealthcare.com/payer/industry-voices-medicare-patients-could-lose-access-to-advanced-cancer-treatment-congress
Thought I would share this given to me by a wise friend who is in the fight. https://www.fiercehealthcare.com/payer/industry-voices-medicare-patients-could-lose-access-to-advanced-cancer-treatment-congress
teamkv
in
Advanced Prostate Cancer
5 years ago
Medicare patients could lose access to advanced cancer treatment; i.e., Proton Therapy
This is very bad news for anyone anticipating or needing proton therapy. .From the article: [i]"If implemented as written, many cancer institutions would be in the difficult position of not being able to offer their patients proton therapy because the reimbursement rate would not adequately cover the
This is very bad news for anyone anticipating or needing proton therapy. .From the article: [i]"If implemented as written, many cancer institutions would be in the difficult position of not being able to offer their patients proton therapy because the reimbursement rate would not adequately cover the
cujoe
in
Fight Prostate Cancer
5 years ago
A difficult customer
Hello i've just joined this group so will summarise my experiences. I have a very understanding oncologist who has been very supportive but also refers to me, not always in jest, as her "difficult one". The reason is that I have rejected most of what is referred to as Standard Care here in the UK. I
Hello i've just joined this group so will summarise my experiences. I have a very understanding oncologist who has been very supportive but also refers to me, not always in jest, as her "difficult one". The reason is that I have rejected most of what is referred to as Standard Care here in the UK. I
Notewell
in
Advanced Prostate Cancer
5 years ago
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