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Recently diagnosed and trying to work out what to do! All advice gratefully received.
I was diagnosed this week. Still in shock a bit as I am a fit and very active 58 with no real symptoms. I have a psa of 7.7. Gleason Score 3+4 = 7 one in 10 cores with a 2.5mm tumour length whoich is 20% of the core involved. 30% of cores showed cribreform pattern 4 glands. Area of concern on MRIs
I was diagnosed this week. Still in shock a bit as I am a fit and very active 58 with no real symptoms. I have a psa of 7.7. Gleason Score 3+4 = 7 one in 10 cores with a 2.5mm tumour length whoich is 20% of the core involved. 30% of cores showed cribreform pattern 4 glands. Area of concern on MRIs
welshsky
in
Prostate Cancer Network
2 days ago
Lupron unjection not reducing PSA
I was first diagnosed with prostate cancer in 2016. It has been contained in the prostate ever since. For 3 years I treated myself with vitamins and nutrients. Kept my psa down until I had a kidney stone operation and for some odd ball reason loss control of the psa after the operation, it shot up to
I was first diagnosed with prostate cancer in 2016. It has been contained in the prostate ever since. For 3 years I treated myself with vitamins and nutrients. Kept my psa down until I had a kidney stone operation and for some odd ball reason loss control of the psa after the operation, it shot up to
woppaginny
in
Advanced Prostate Cancer
3 months ago
Proton Beam Therapy
Has anyone had Proton Beam Therapy for their prostate cancer. I have read up on it but would like to know some personal experiences from anyone who has had this treatment. Preferably anyone who had proton beam therapy at Penn Medicine at Lancaster General in Lancaster, Pa. but anyone who has experienced
Has anyone had Proton Beam Therapy for their prostate cancer. I have read up on it but would like to know some personal experiences from anyone who has had this treatment. Preferably anyone who had proton beam therapy at Penn Medicine at Lancaster General in Lancaster, Pa. but anyone who has experienced
woppaginny
in
Advanced Prostate Cancer
3 months ago
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BCF after 9 years post proton therapy
My PSA had been increasing slowly since my nadir of .75 in 2017 reaching 1.19 in 2022. Both RO and Uro weren't terribly concerned. I wanted PSMA after 3rd consecutive increase but both recommended a wait and see approach, especially the RO who seems honor bound to wait for 2.0 over nadir. I skipped
My PSA had been increasing slowly since my nadir of .75 in 2017 reaching 1.19 in 2022. Both RO and Uro weren't terribly concerned. I wanted PSMA after 3rd consecutive increase but both recommended a wait and see approach, especially the RO who seems honor bound to wait for 2.0 over nadir. I skipped
hwrjr
in
Prostate Cancer Network
3 months ago
Tall Cell Aggressive Papillary Thyroid Cancer
Interested in speaking with other Tall Cell Papillary Thyroid Cancer adults diagnosed in late that have both the BRAF V 600 and TERT gene. I have had a total thyroidechtomy 2/3 para thyroid out 85 nodes removed. RAI 150. Daily radiation for 8 weeks with one day a week chemo, 6 proton therapy. Now
Interested in speaking with other Tall Cell Papillary Thyroid Cancer adults diagnosed in late that have both the BRAF V 600 and TERT gene. I have had a total thyroidechtomy 2/3 para thyroid out 85 nodes removed. RAI 150. Daily radiation for 8 weeks with one day a week chemo, 6 proton therapy. Now
Portugal-2
in
Thyroid UK
3 months ago
Tall Cell Agressive Papillary Thyroid Cancer
Interested in speaking with other Tall Cell Papillary Thyroid Cancer adults diagnosed in late that have both the BRAF V 600 and TERT gene. I have had a total thyroidechtomy 2/3 para thyroid out 85 nodes removed. RAI 150. Daily radiation for 8 weeks with one day a week chemo, 6 proton therapy. Now have
Interested in speaking with other Tall Cell Papillary Thyroid Cancer adults diagnosed in late that have both the BRAF V 600 and TERT gene. I have had a total thyroidechtomy 2/3 para thyroid out 85 nodes removed. RAI 150. Daily radiation for 8 weeks with one day a week chemo, 6 proton therapy. Now have
Portugal-2
in
Thyroid Cancer Support
3 months ago
Radiation Sessions
I am considering proton therapy radiation for my DICS cancer found in the left breast. Six months ago, I had a dissection B - TAVAR for a torn aorta. I am very concerned about the radiation penetrating to heart and lungs. The main concern is if proton therapy radiation is so advanced, why is the standard
I am considering proton therapy radiation for my DICS cancer found in the left breast. Six months ago, I had a dissection B - TAVAR for a torn aorta. I am very concerned about the radiation penetrating to heart and lungs. The main concern is if proton therapy radiation is so advanced, why is the standard
AVOCADOtastes
in
SHARE Breast Cancer Support
4 months ago
Treatment Options
PSA 4.7 (over 2 years it double and then doubled again) This is the Pathology report A: Prostate gland, left lateral posterior, biopsy: Benign prostatic tissue with mild chronic inflammation, no tumor present. B: Prostate gland, left lateral mid, biopsy: Benign prostatic tissue with mild chronic
PSA 4.7 (over 2 years it double and then doubled again) This is the Pathology report A: Prostate gland, left lateral posterior, biopsy: Benign prostatic tissue with mild chronic inflammation, no tumor present. B: Prostate gland, left lateral mid, biopsy: Benign prostatic tissue with mild chronic
Vortex12
in
Prostate Cancer Network
4 months ago
Experience, thus far with Lupron and Abiraterone
I am 78 years old. I was diagnosed in May 2022 with PCa after my PSA was measured at 23.79. I have no other health issues. Following the determination that PCa was still within the prostrate capsule and had not spread to any other organ, I was placed on Lupron (6 monthly IM injections for 2 years). Clinically
I am 78 years old. I was diagnosed in May 2022 with PCa after my PSA was measured at 23.79. I have no other health issues. Following the determination that PCa was still within the prostrate capsule and had not spread to any other organ, I was placed on Lupron (6 monthly IM injections for 2 years). Clinically
Sanctus
in
Advanced Prostate Cancer
4 months ago
Looking to connect
Hello, I would like to connect with survivors with these combinations in their medical experience, please. Can you help? 1. Have had heart failure 2. Have had a dissection B 3. Havd had a torn aorta 4. Have had a lumpectomy or mastectomy on the LEFT breast 5. Have had radiation or PROTON therapy
Hello, I would like to connect with survivors with these combinations in their medical experience, please. Can you help? 1. Have had heart failure 2. Have had a dissection B 3. Havd had a torn aorta 4. Have had a lumpectomy or mastectomy on the LEFT breast 5. Have had radiation or PROTON therapy
AVOCADOtastes
in
SHARE Breast Cancer Support
4 months ago
Looking to connect
Hello, I would like to connect with survivors with these combinations in their medical experience, please. Can you help? 1. Have had heart failure 2. Have had a dissection B 3. Havd had a torn aorta 4. Have had a lumpectomy or mastectomy on the LEFT breast 5. Have had radiation or PROTON therapy
Hello, I would like to connect with survivors with these combinations in their medical experience, please. Can you help? 1. Have had heart failure 2. Have had a dissection B 3. Havd had a torn aorta 4. Have had a lumpectomy or mastectomy on the LEFT breast 5. Have had radiation or PROTON therapy
AVOCADOtastes
in
SHARE Breast Cancer Support
4 months ago
WHAT ARE THE CURRENT EFFECTIVE SALVAGE TREATMENTS IN CASE OF A REOCCURRENCE IF YOU HAVE HAD SBRT,IMRT, WITH PLACEMENT OF GOLD BARS?
It appears that if you had SBRT or like myself IMRT and you were given
gold markers
you cannot do any of the following
salvage treatments in case of a reoccurrence
: Proton therapy, Hifu, Tulsa Pro , Etc. Is this true???? Again a significant fact left out before treatment...
In addition
It appears that if you had SBRT or like myself IMRT and you were given
gold markers
you cannot do any of the following
salvage treatments in case of a reoccurrence
: Proton therapy, Hifu, Tulsa Pro , Etc. Is this true???? Again a significant fact left out before treatment...
In addition
JWS13
in
Advanced Prostate Cancer
5 months ago
Newly diagnosed metastatic PC treatment options
Hi, I'm 68 years old. Here are the key points in my story so far: In July 2023 a blood test showed a PSA value of 45. On September 26 2023, prostate MRI showed a dominant tumor in the prostate with extension into the right seminal vesicle. Also the fat plane between the rectum and prostate is lost
Hi, I'm 68 years old. Here are the key points in my story so far: In July 2023 a blood test showed a PSA value of 45. On September 26 2023, prostate MRI showed a dominant tumor in the prostate with extension into the right seminal vesicle. Also the fat plane between the rectum and prostate is lost
ShorePine
in
Advanced Prostate Cancer
5 months ago
NY Proton Center and Cyberknife at NYU Langone.
Hi Everyone, You were all so kind when I had a bit of a meltdown learning about my diagnosis and then finding this forum. Thank you all from the bottom of my heart. I took everyone’s advice. Slowing things down and doing my homework. I just wanted to mention a couple of items. I met with a very well
Hi Everyone, You were all so kind when I had a bit of a meltdown learning about my diagnosis and then finding this forum. Thank you all from the bottom of my heart. I took everyone’s advice. Slowing things down and doing my homework. I just wanted to mention a couple of items. I met with a very well
LBRV711
in
Prostate Cancer Network
8 months ago
Proton Therapy timeline question
For those who have had proton therapy, what was your timeline? What period of time elapsed after you began ADT and had the simulation? And then, how long after that did the actual therapy begin? I've been reading and can't seem to determine a timeline, other than one guy wrote that he had the simulation
For those who have had proton therapy, what was your timeline? What period of time elapsed after you began ADT and had the simulation? And then, how long after that did the actual therapy begin? I've been reading and can't seem to determine a timeline, other than one guy wrote that he had the simulation
Hidden
in
Advanced Prostate Cancer
8 months ago
low back problems
I've been on Eligard and abiraterone+prednisone for slightly more than a year, out of a planned 2 years. I had 44 sessions of proton beam therapy ending 4/7/23. My PSA has been undetectable since early in my ADT regimen, and remained so as recently as 2 weeks ago. I began to have low back pain, sometimes
I've been on Eligard and abiraterone+prednisone for slightly more than a year, out of a planned 2 years. I had 44 sessions of proton beam therapy ending 4/7/23. My PSA has been undetectable since early in my ADT regimen, and remained so as recently as 2 weeks ago. I began to have low back pain, sometimes
Atdabeach
in
Advanced Prostate Cancer
9 months ago
Possible SBRT on prostate and lymph nodes?
Hello again. Gleason 4+3+7, Grade 3, Stage IIc cancer, Tumor cT1c, N0M0, PSA 7.4 (5 weeks ago on biopsy; 10.4 last week). Prostate volume 52 cc. Neither MRI nor ultrasound detected a tumor. Enlarged prostate is pressing on urethral area. Calcifications throughout. Unfavorable. Will have PSMA/PET in
Hello again. Gleason 4+3+7, Grade 3, Stage IIc cancer, Tumor cT1c, N0M0, PSA 7.4 (5 weeks ago on biopsy; 10.4 last week). Prostate volume 52 cc. Neither MRI nor ultrasound detected a tumor. Enlarged prostate is pressing on urethral area. Calcifications throughout. Unfavorable. Will have PSMA/PET in
conchjoe
in
Advanced Prostate Cancer
9 months ago
treatment and insurance questions
gleason 4+3=7 (70% pattern 4) involving one core less than 0.5mm. PSA 5.2. Biopsy results confirmed by MRI. I am 64 years old and will be 65 in December. I have horrible insurance with very limited treatment options. I would like to delay treatment until I have Medicare (5 months). I have met with
gleason 4+3=7 (70% pattern 4) involving one core less than 0.5mm. PSA 5.2. Biopsy results confirmed by MRI. I am 64 years old and will be 65 in December. I have horrible insurance with very limited treatment options. I would like to delay treatment until I have Medicare (5 months). I have met with
Hidden
in
Prostate Cancer And Gay Men
10 months ago
Specialty to start with?
Originally joined group because 55 yr son diagnosed with stage 4 PCa. Been tracking my own PSA for a few years and it is now 18.5. Due to this group and other reading I am pretty well versed in treatment alternatives. I am 77 and if I do any treatments I would lean toward proton therapy. I had an
Originally joined group because 55 yr son diagnosed with stage 4 PCa. Been tracking my own PSA for a few years and it is now 18.5. Due to this group and other reading I am pretty well versed in treatment alternatives. I am 77 and if I do any treatments I would lean toward proton therapy. I had an
Billyeff
in
Advanced Prostate Cancer
11 months ago
Proton Therapy
I just finished my second week of Proton Therapy at the Univ. of Oklahoma Stephenson Cancer Center. Drinking liquids pass through me quick and I pee frequently now. Last night my left hip hurt some. Other than that I feel good...Onward!
I just finished my second week of Proton Therapy at the Univ. of Oklahoma Stephenson Cancer Center. Drinking liquids pass through me quick and I pee frequently now. Last night my left hip hurt some. Other than that I feel good...Onward!
BB_1
in
Active Surveillance - Prostate Cancer
1 year ago
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