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Proton Therapy
I just finished my second week of Proton Therapy at the Univ. of Oklahoma Stephenson Cancer Center. Drinking liquids pass through me quick and I pee frequently now. Last night my left hip hurt some. Other than that I feel good...Onward!
I just finished my second week of Proton Therapy at the Univ. of Oklahoma Stephenson Cancer Center. Drinking liquids pass through me quick and I pee frequently now. Last night my left hip hurt some. Other than that I feel good...Onward!
BB_1
in
Active Surveillance - Prostate Cancer
1 year ago
Maca Root Supplement
I finished Proton Therapy for Gleason 9 Prostate cancer on December 2, 2022. This included six months of androgen deprivation therapy that ended December 15, 2022. Is there any danger to my prostate if I begin taking Maca Root supplement?
I finished Proton Therapy for Gleason 9 Prostate cancer on December 2, 2022. This included six months of androgen deprivation therapy that ended December 15, 2022. Is there any danger to my prostate if I begin taking Maca Root supplement?
IamaPreacher2
in
Advanced Prostate Cancer
1 year ago
Proton therapy finally starts
After a failed Space OAR gel placement back in October 2022 I finally started my proton therapy today (4-17-2023). Twenty proton treatments scheduled. Onward!
After a failed Space OAR gel placement back in October 2022 I finally started my proton therapy today (4-17-2023). Twenty proton treatments scheduled. Onward!
BB_1
in
Advanced Prostate Cancer
1 year ago
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better options
Have lost faith and patience with husband's current docs, they are now contradicting each other.I have enough airline points we can fly for free anywhere in us so I'm looking what would be best hospital /treatment center that has multiple treatment protocols where we can learn about treatments like Proton
Have lost faith and patience with husband's current docs, they are now contradicting each other.I have enough airline points we can fly for free anywhere in us so I'm looking what would be best hospital /treatment center that has multiple treatment protocols where we can learn about treatments like Proton
Spring15-3
in
Advanced Prostate Cancer
1 year ago
PSMA scan results just arrived but interpreting them is difficult and no Onc telmed available until next week. Orgovyx failed two months ago
Any idea what this means or suggestions? Study Result Impression 1. Previous prostatectomy with no F-18 PSMA evidence of local recurrence or 2. Two F-18 PSMA avid presumed bone metastases, one in the right posterior third rib and the other in the left anterior T4 vertebral body. 3. No other F-18
Any idea what this means or suggestions? Study Result Impression 1. Previous prostatectomy with no F-18 PSMA evidence of local recurrence or 2. Two F-18 PSMA avid presumed bone metastases, one in the right posterior third rib and the other in the left anterior T4 vertebral body. 3. No other F-18
SViking
in
Advanced Prostate Cancer
2 years ago
Plain English for a layman please!
Not complaining, I know the doctors need their own precise terms and acronyms, but as a patient (even a reasonably educated one), I struggle to interpret what they're telling me in terms that I understand. The relevant parts of my PSMA PET scan report were: 1. Intense radiotracer uptake at the left
Not complaining, I know the doctors need their own precise terms and acronyms, but as a patient (even a reasonably educated one), I struggle to interpret what they're telling me in terms that I understand. The relevant parts of my PSMA PET scan report were: 1. Intense radiotracer uptake at the left
Atdabeach
in
Advanced Prostate Cancer
2 years ago
Newly diagnosed Stage IV Metastatic Prostate Cancer
I am 75 years old and have had Prostate Cancer for 16 years. The first 13 years was all Active Surveillance. Gleason Score of 3+3, PSA never above 12. Cancer was confined to the prostate. This all changed 3 years ago when my PSA rose to 12. I had a bone scan and a PSMA test showing the cancer
I am 75 years old and have had Prostate Cancer for 16 years. The first 13 years was all Active Surveillance. Gleason Score of 3+3, PSA never above 12. Cancer was confined to the prostate. This all changed 3 years ago when my PSA rose to 12. I had a bone scan and a PSMA test showing the cancer
sdmike2022
in
Advanced Prostate Cancer
2 years ago
Needing Advice Please- Didn’t get the results I wanted
Hello all this is my first post, and I am glad to have this forum. My PCa backstory: DX 5/22 Metastatic to bones, PSMA- PET- PSA 30. Lupron+ Zytiga+ Prednisone 6/22 Change to Orgovyx 9/22 LU177 2x- 10 GBq - 7/22 and 9/22 PSA .240 - 10/22 PSMA PET - 10/22- several spots of increased SUV
Hello all this is my first post, and I am glad to have this forum. My PCa backstory: DX 5/22 Metastatic to bones, PSMA- PET- PSA 30. Lupron+ Zytiga+ Prednisone 6/22 Change to Orgovyx 9/22 LU177 2x- 10 GBq - 7/22 and 9/22 PSA .240 - 10/22 PSMA PET - 10/22- several spots of increased SUV
Steel67
in
Advanced Prostate Cancer
2 years ago
ADT or no ADT
Diagnosed with 4+3, mri shows 2 lesions in prostate only. Starting proton therapy soon, urologist and oncologist recommend 6 mos of ADT. The latest stody for unfavorable is a difference of .7 years?( hard to understand the study results). Trying to make the decision whether or not to do the ADT.
Diagnosed with 4+3, mri shows 2 lesions in prostate only. Starting proton therapy soon, urologist and oncologist recommend 6 mos of ADT. The latest stody for unfavorable is a difference of .7 years?( hard to understand the study results). Trying to make the decision whether or not to do the ADT.
progman
in
Prostate Cancer Network
2 years ago
Seeking Data ???
I am trying to collect information from men in a specific category. That category is men who have had a radical prostatectomy (RP) and thereafter experienced biochemical recurrence (BCR) and used proton beam therapy (PBT) radiation as the treatment following that BCR. I’d like to know several things
I am trying to collect information from men in a specific category. That category is men who have had a radical prostatectomy (RP) and thereafter experienced biochemical recurrence (BCR) and used proton beam therapy (PBT) radiation as the treatment following that BCR. I’d like to know several things
ragnar2020
in
Advanced Prostate Cancer
2 years ago
Seeking Data ????
I am trying to collect information from men in a specific category. That category is men who have had a radical prostatectomy (RP) and thereafter experienced biochemical recurrence (BCR) and used proton beam therapy (PBT) radiation as the treatment following that BCR. I’d like to know several things
I am trying to collect information from men in a specific category. That category is men who have had a radical prostatectomy (RP) and thereafter experienced biochemical recurrence (BCR) and used proton beam therapy (PBT) radiation as the treatment following that BCR. I’d like to know several things
ragnar2020
in
Prostate Cancer Network
2 years ago
Trouble urinating after fiducial placement
Anyone experienced difficulty urinating after fiducial placement? Placement Sept 30 (Tues). Couldn’t urinate 3hrs post insertion so RN tried to cath without anesth gel-severe pain and no go so was sent to ER. They got the job done with gel. Sent home next day after CT and MRI simulations for Proton
Anyone experienced difficulty urinating after fiducial placement? Placement Sept 30 (Tues). Couldn’t urinate 3hrs post insertion so RN tried to cath without anesth gel-severe pain and no go so was sent to ER. They got the job done with gel. Sent home next day after CT and MRI simulations for Proton
Cub49614
in
Advanced Prostate Cancer
2 years ago
Looks like I have a BCR, 9 years after Proton Beam Therapy in Korea
In early 2013, I had 28 doses of PBT radiation at the Korean National Cancer Centre. I most impressive facility that gave me a great outcome. PSA was negligible until 3 years back. Last year my PSA was 0.34. A year later (July 22) it came in at 0.75. The question is where do I go from here. I should
In early 2013, I had 28 doses of PBT radiation at the Korean National Cancer Centre. I most impressive facility that gave me a great outcome. PSA was negligible until 3 years back. Last year my PSA was 0.34. A year later (July 22) it came in at 0.75. The question is where do I go from here. I should
AlanLawrenson
in
Advanced Prostate Cancer
2 years ago
Are MRI with coil and biopsy needed for BCR recurrence in prostate for cryotherapy, HIFU, Tulsa Pro or Brachytherapy?
After posting questions on ADT options for BCR oligometastasis, we have new development/input from RO and MO which makes us delay starting hormone therapy now. We would really appreciate members' input and advice so that we can make informed decision. Brief background, my husband was diagnosed in Dec
After posting questions on ADT options for BCR oligometastasis, we have new development/input from RO and MO which makes us delay starting hormone therapy now. We would really appreciate members' input and advice so that we can make informed decision. Brief background, my husband was diagnosed in Dec
TCMG
in
Advanced Prostate Cancer
2 years ago
ADT options for BCR oligometastesis
Recent Auxmin and PSMA scans show that my husband has BCR oligometastesis (MRI shows nothing). It seems there are two different treatment options/opinions: 1. Lupron OR Eligard OR Firmagon OR Orgovyx for a few months and then radiation, then continue hormone therapy for 1-1.5 years 2. Lupron OR Eligard
Recent Auxmin and PSMA scans show that my husband has BCR oligometastesis (MRI shows nothing). It seems there are two different treatment options/opinions: 1. Lupron OR Eligard OR Firmagon OR Orgovyx for a few months and then radiation, then continue hormone therapy for 1-1.5 years 2. Lupron OR Eligard
TCMG
in
Advanced Prostate Cancer
2 years ago
Recurring prostate cancer individual seeking Letetium 177 before it spreads more
My recent PSMA scan evidenced recurring prostate cancer now in seminal vesticule following proton therapy in 2015. Well respected USA hospital MD said surgery & radiation out due to previous proton radiation & closeness to bladder & rectum. Other than ADT only hope would be to get Letetium 177 treatment
My recent PSMA scan evidenced recurring prostate cancer now in seminal vesticule following proton therapy in 2015. Well respected USA hospital MD said surgery & radiation out due to previous proton radiation & closeness to bladder & rectum. Other than ADT only hope would be to get Letetium 177 treatment
Willofthewisp
in
Advanced Prostate Cancer
2 years ago
Proton Therapy verses SBRT side effect differences
Are the side-effect profiles between Proton Therapy and SBRT essentially the same? The Proton Therapy advocates say the side effect profile from Proton Therapy is significantly less than SBRT or other External Beam types of radiation, but are there any side by side comparisions to show this? Issues
Are the side-effect profiles between Proton Therapy and SBRT essentially the same? The Proton Therapy advocates say the side effect profile from Proton Therapy is significantly less than SBRT or other External Beam types of radiation, but are there any side by side comparisions to show this? Issues
Yearofthecow
in
Prostate Cancer Network
2 years ago
Information about a RO for treatment following BCR at a proton beam therapy facility
Greetings fellow travelers. I'm seeking recommendations about an experienced RO at a proton beam facility for treatment following BCR. Any information that you might be able to offer would be appreciated.
Greetings fellow travelers. I'm seeking recommendations about an experienced RO at a proton beam facility for treatment following BCR. Any information that you might be able to offer would be appreciated.
ragnar2020
in
Advanced Prostate Cancer
2 years ago
First reoccurrence chemotherapy not worked
Hi, so my sister had a reoccurrence after a month and went onto have six weekly one hour sessions of chemotherapy. After five sessions CT has been done. CA125 markers are up. Chemotherapy hasn’t worked so that has been stopped. I will be seeing her consultant tomorrow with her. I have put to him that
Hi, so my sister had a reoccurrence after a month and went onto have six weekly one hour sessions of chemotherapy. After five sessions CT has been done. CA125 markers are up. Chemotherapy hasn’t worked so that has been stopped. I will be seeing her consultant tomorrow with her. I have put to him that
nettiebobs
in
My Ovacome
2 years ago
Pylarify and ADT question
Hello All , My father (74) was recently diagnosed with prostate cancer intermediate (on the border of favorable and unfavorable) with gleason 7, his bone scan and PET scan came out clean. After much fight I was able to get Pylarify approved. For members who have gotten the PSMA PET can you let me know
Hello All , My father (74) was recently diagnosed with prostate cancer intermediate (on the border of favorable and unfavorable) with gleason 7, his bone scan and PET scan came out clean. After much fight I was able to get Pylarify approved. For members who have gotten the PSMA PET can you let me know
DRKC81
in
Prostate Cancer Network
2 years ago
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