Primary ciliary dyskinesia: Hey, Anyone... - Lung Conditions C...

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Primary ciliary dyskinesia

Moekhalid profile image
5 Replies

Hey, Anyone has Primary ciliary dyskinesia! any advice with style life.

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Moekhalid profile image
Moekhalid
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2greys profile image
2greys

Try looking at this website, Primary Ciliary Dyskinesia family support.

pcdsupport.org.uk/

Moekhalid profile image
Moekhalid in reply to 2greys

thank you, dear.

cofdrop-UK profile image
cofdrop-UK

Hi Moekhalid

Everyone with PCD has bronchiectasis but not everyone with bronchiectasis has PCD. I appreciate people with PCD have other issues, although not all, eg infertility: situs inversus etc, but bronchiectasis should be treated the same whatever the cause. You will see from the ‘about’ on this link that as well as my ugly mug there is a list of societies who collaborated with ERS and one is the PCD FSG. Hope you find it helpful.

europeanlunginfo.org/bronch...

Love cx

Moekhalid profile image
Moekhalid in reply to cofdrop-UK

that is really helped thank you so much.

cofdrop-UK profile image
cofdrop-UK in reply to Moekhalid

You’re very welcome 🙂