So.....if you were offered a cure to pd...b1, hinz, mucuna, stem cell...amino acid balance, mitochondrial support, wahles protocol... B-1 .amino acid l- tyrosine, l-tryptofan supplement....acetyl l whatever...qui gong , shifke, chinese foot therapy.....walking fast ......name it etc.....woud you actually take it? throw yourself back in the lottery? colon cancer, brain tumor, bone cancer, monkey pox..choke on a hotdog with dirty underwear in front of your family at wrigley field , a hot dog.....really?? .....name it..i propose that we are lucky....we know more or less...... barring other sht...how we gonna go?.....(knowledge is power)...........TRY BEING THANKFULL FOR WHAT YOU HAVE...EVEN PD.......thats the cure.. if there is one...for after all there is no cure to LIFE....its noones fault...im pro pd alcemy...i called shifkke and hinz......it just ...its noones fault we just ...drop out.....were tired.........the voiceless that live every minute as a lifetime....fight with our dr's to battle what dr parkinson said in his journnals when documenting the original exxpression of illness now called pd..."methinks me patients have trouble breathing".....convincing our dr's of extreme pain while struggling 20 hrs a day to pee.....hold still ...open a wallet....breathe.....do this test.
......research...mostly just read now when we can focus. knowing that the first 10 on google are mostly crap.....identify mayo...colmbia......nih...united kinggdom....australia. pro publica.etc.....the last bastions of non money makers..as far as you know...hoping thier research will fix you like a feild mouse.........every night at our own personal 2 am..............were here but usually hahaaha ....were quiet...hang tough...until you cant...than do something else... change your mind ..chaange the world....“There is no greater agony than bearing an untold story inside you.”
― Maya Angelou, I Know Why the Caged Bird Sings
Written by
beehive23
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You are really hitting some home runs with your writing Beehive. Truly impressive.
I have not been diagnosed with PD (except by Marc) so maybe I should not weigh in, but I will. Yes, if I could make whatever is ailing me go away, sure I would do it. My plan was always to be surprised by a brief illness in my 80s and be gone.
That Maya Angelou, could she write! “There is no greater agony than bearing an untold story inside you”. A lot of my story got told. A lot did not. Makes me want to try hard to get more of it out.
Wow! That’s quite a diatribe by Maya Angelou! You get us thinking, at 2am, Beehive23 - it is a good thing! Whenever I get discouraged, fighting the daily trials of living with advancing PD, I think that there are having ailments, way worse, like ALS, and a painful, deadly cancer, or, like my wife, who’s in heart failure, and being able to breath in enough air, where she’s always somewhat short of breath, is constantly a struggle, all day long, with no relief, ever! So, all in all, I’m thankful! Also, I have had all the shots, and have never gotten COVID! That is, also, something to be thankful for! Importantly, though, I have my fellow PD friends here, on HealthUnlocked.com, whom I can commiserate with at 2:00am, or any other time, any day I want! Thanks to all for supporting each other!
Gymsack. Everyone is a gift. And for what im reading your gift here is great. My garden is in a state of neglect...thank goodness some of my weeds are also healing...
Sometimes it’s very hard to be upbeat and grateful. Sometimes it all just sucks.Travelling with PD is a nightmare. I’m currently a long way from home and wondering if I even have the strength to get back.
Onwards and and Happy Canada Day (or whatever they say here).
it sucks all the time....im not gratefull just trying to take a pile of horse crap and change my mind/perception about it...its still a pile of crap....maybe i can make some fertilzer with it for my existential garden.
Yes, but…that fertilizer is pure gold. And gold you wouldn’t have had without PD. I’m close to 7 years in, just starting to encounter some of those inner resources. First five years I ran on fear: obsessive on diet, exercise, etc. Now I’ve realized how that stress has damaged my body too! So I’m starting to learn how to manage stress better. Having difficult family circumstances, working on BOUNDARIES.
Great post, Beehive. Good thing the last bastions of non money makers are here, in healthunlocked.com and we can share some of our untold stories at 2 am...or any other time when like they say in the 12 steps of AA and other anonymous groups, "we can share our experience strength and hope"and also our vulnerabilties. Stay strong, or stay trembling and weak or tearful( you caught me this way this morning in Ireland)but stay there, keep coming back so we can weave our stories into a beautiful flying bird that keeps singing.
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Alternative treatment other than sinemet
Amino Acid Therapy info
Lets talk about levadopa. While it is reputed to be the most valuable medication in PD it can cause dyskinesia which alarms me.
High uric acid diet for PD?
