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Primary ciliary dyskinesia (PCD)
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Slow Developing Parkinson's Symptoms
I've been following along the discussions, but am posting for the first time. I'm 76, and was diagnosed a little over five years ago. I'm taking two 25-100 Sinemet daily and two Selegiline 5mg with my morning and noon meals. My neurologist is very pleased with how slowly my symptoms are developing. My
I've been following along the discussions, but am posting for the first time. I'm 76, and was diagnosed a little over five years ago. I'm taking two 25-100 Sinemet daily and two Selegiline 5mg with my morning and noon meals. My neurologist is very pleased with how slowly my symptoms are developing. My
sandog
in
Cure Parkinson's
6 years ago
Going off requip (ropinirole)
My doctor has been reducing Requip today was the first day I went on only 4 mg. Tonight I can’t sleep due to what I think is dyskinesia. It’s mainly in my left leg But it is troublesome enough to be keeping me up awake at three in the morning. Should I self diagnose and take some additional ropinirole
My doctor has been reducing Requip today was the first day I went on only 4 mg. Tonight I can’t sleep due to what I think is dyskinesia. It’s mainly in my left leg But it is troublesome enough to be keeping me up awake at three in the morning. Should I self diagnose and take some additional ropinirole
Stuartep121
in
Cure Parkinson's
6 years ago
UTI/endo on bladder?
The beginning of me finally realising there was something wrong with my body started with having a UTI that didn’t clear with two lots of antibiotics. I insisted it wasn’t a UTI because it didn’t sting when I wee’d or any of the usual symptoms. Anyway, they then suspected appendicitis and whilst in hospital
The beginning of me finally realising there was something wrong with my body started with having a UTI that didn’t clear with two lots of antibiotics. I insisted it wasn’t a UTI because it didn’t sting when I wee’d or any of the usual symptoms. Anyway, they then suspected appendicitis and whilst in hospital
CJessicaD
in
Endometriosis UK
6 years ago
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The single biggest predictor of the rate of Parkinson's progression is if you are lonely. Finding by Dr. Laurie Mischley 4/25/18
Pretty interesting article "Indeed, I have lost count of the number of people with PD who have said something to me along the lines of "my friends and family have abandoned me/don't visit/lost touch". The negative feedback loops between loneliness and disease progression can be one of the most vicious
Pretty interesting article "Indeed, I have lost count of the number of people with PD who have said something to me along the lines of "my friends and family have abandoned me/don't visit/lost touch". The negative feedback loops between loneliness and disease progression can be one of the most vicious
MBAnderson
in
Cure Parkinson's
6 years ago
Microtablet dispenser - sounds like a good idea.
25th April 2018 - New research MICROTABLET DISPENSER FOR MORE PRECISE L-DOPA DOSAGE CLICK HERE FOR A PRINTABLE OR WHITE BACKGROUND VERSION OF THIS ARTICLE A study has assessed the effect of introducing a microtablet dose dispenser and adjusting doses based on the monitoring of motor symptoms in people
25th April 2018 - New research MICROTABLET DISPENSER FOR MORE PRECISE L-DOPA DOSAGE CLICK HERE FOR A PRINTABLE OR WHITE BACKGROUND VERSION OF THIS ARTICLE A study has assessed the effect of introducing a microtablet dose dispenser and adjusting doses based on the monitoring of motor symptoms in people
rebtar
in
Cure Parkinson's
6 years ago
What Gabapentin has done for me.
I have been taking Gabapentin for the pain in my feet about a month. It has worked, i no longer nave any issues with my feet. They still tingle some but it is so light i hardly notice. Before i started taking Gabapentin my feet would at times keep me from from going to sleep and when driving more
I have been taking Gabapentin for the pain in my feet about a month. It has worked, i no longer nave any issues with my feet. They still tingle some but it is so light i hardly notice. Before i started taking Gabapentin my feet would at times keep me from from going to sleep and when driving more
Bailey_Texas
in
Cure Parkinson's
6 years ago
Mucuna Pruriens
I am looking to hear from anyone who has been using the velvet bean as a source of naturally occurring source of dopamine. I was on Sinemet for about 4 years and developed dyskinesia and had to consider other options. After trying a few other medications that also came with almost immediate side effects
I am looking to hear from anyone who has been using the velvet bean as a source of naturally occurring source of dopamine. I was on Sinemet for about 4 years and developed dyskinesia and had to consider other options. After trying a few other medications that also came with almost immediate side effects
DBS2018
in
Cure Parkinson's
6 years ago
Right combination of supplements
I have experienced that the combination of different herbs and supplements can backfire if not taken rightly. But the right combination is a tricky matter and is different for different persons. I was wondering whether there is some standard combination of supplements which is optimal and is more or
I have experienced that the combination of different herbs and supplements can backfire if not taken rightly. But the right combination is a tricky matter and is different for different persons. I was wondering whether there is some standard combination of supplements which is optimal and is more or
Farooqji
in
Cure Parkinson's
6 years ago
Can folic acid supplement cause UTI
Have had many urinary tract infections in the past- currently on trimethoprim for 9 days (3 day course didn't work). I had pain on passing urine but last week I passed a lot of bright red blood - very frightening - GP said it seemed like something had scraped and maybe caused by stones so pee in a jug
Have had many urinary tract infections in the past- currently on trimethoprim for 9 days (3 day course didn't work). I had pain on passing urine but last week I passed a lot of bright red blood - very frightening - GP said it seemed like something had scraped and maybe caused by stones so pee in a jug
Cassandra
in
Thyroid UK
6 years ago
Amantidine. 100 mg
I just started with this and have amazing results Diag 1 year ago. Taking 2 tab of C L 3 times a day. Dyskinesia was awful. Finally got this. I’m still adjusting 1 tab 2 x a day still have some tremors but dyskinesia is all but gone. I also started probiotics & b12. About same time. Hope it keeps
I just started with this and have amazing results Diag 1 year ago. Taking 2 tab of C L 3 times a day. Dyskinesia was awful. Finally got this. I’m still adjusting 1 tab 2 x a day still have some tremors but dyskinesia is all but gone. I also started probiotics & b12. About same time. Hope it keeps
Idofotos
in
Cure Parkinson's
6 years ago
Help needed
Help With in legs, All of a sudden, I have had som uncontrollable leg spasms, muscle jerkings and cramping , like I never have had before. I am taking stalevo 50_-200 6 times a day along with, Azilect 1mg, Amantadine and Mirapex. Also Ativan prescribed for anxiety. I cannot do anything when I
Help With in legs, All of a sudden, I have had som uncontrollable leg spasms, muscle jerkings and cramping , like I never have had before. I am taking stalevo 50_-200 6 times a day along with, Azilect 1mg, Amantadine and Mirapex. Also Ativan prescribed for anxiety. I cannot do anything when I
neilp01
in
Cure Parkinson's
6 years ago
uti problem
please i need yr valuable advic i am suffering from uti since a year every three months i have to take antibiotic now my kidneys r effecting my serum creatinine has reached to 1.9 also due to this antibiotic i get diarrhoea i do home remedies like parsley water etc but rises to 240 please helpmy
please i need yr valuable advic i am suffering from uti since a year every three months i have to take antibiotic now my kidneys r effecting my serum creatinine has reached to 1.9 also due to this antibiotic i get diarrhoea i do home remedies like parsley water etc but rises to 240 please helpmy
Shadan
in
Diabetes India
6 years ago
amantadine side effects?-sinemet CR?
hello.i started taking amantadine these days but i read it have some side effects like molten skin and swollen ankles so is that happen as a side effect on kidney or liver -im suffering from dyskinesia which last up to 2 hours after talking my sinemet dose so is changing regular sinemet to CR can help
hello.i started taking amantadine these days but i read it have some side effects like molten skin and swollen ankles so is that happen as a side effect on kidney or liver -im suffering from dyskinesia which last up to 2 hours after talking my sinemet dose so is changing regular sinemet to CR can help
jack-carpenter12
in
Cure Parkinson's
6 years ago
Thought it was dyskenesia but found out it might be dystonia!
Hello dear friends! recently i wrote about having problems with possible dyskenesia so my Dr has been decreasing my meds and switching from IR C/L to CR C/L with no relief, Symptoms seemed to get worse the more we decreased the doses and now after doing some research on my symptoms i have figured out
Hello dear friends! recently i wrote about having problems with possible dyskenesia so my Dr has been decreasing my meds and switching from IR C/L to CR C/L with no relief, Symptoms seemed to get worse the more we decreased the doses and now after doing some research on my symptoms i have figured out
RS313
in
Cure Parkinson's
6 years ago
I know i sound like a broken record :)
I really could use everyones advice here. I know i have written a few times about my meds and dyskenesia but i am still having problems and my Movement dis specialist said for me to just play around with my meds to find what works.This may sound easy but for me n=being fairly new still to the parkinsons
I really could use everyones advice here. I know i have written a few times about my meds and dyskenesia but i am still having problems and my Movement dis specialist said for me to just play around with my meds to find what works.This may sound easy but for me n=being fairly new still to the parkinsons
RS313
in
Cure Parkinson's
6 years ago
My impression: citicoline ashwaganda rosemary bacopa monniera
# My impression: citicoline ashwaganda rosemary bacopa monniera ## Today I tried using citicoline instead of cholinergic herbs - while continuing 25/100 and amantadine. By noon I realized that citicoline was not sufficiently boosting my motor function. ## I managed to arise from chair and ingest a
# My impression: citicoline ashwaganda rosemary bacopa monniera ## Today I tried using citicoline instead of cholinergic herbs - while continuing 25/100 and amantadine. By noon I realized that citicoline was not sufficiently boosting my motor function. ## I managed to arise from chair and ingest a
aspergerian13
in
Cure Parkinson's
6 years ago
Using Azo bladder control or similar supplement
My PWP has always had to get up multiple times in the night to urinate. With PD, the frequency is a little more often, and he can't always get out of bed quickly enough. The anxiety he feels going to bed, and panic when he can't get up, are keeping us both awake most of the night, almost every night
My PWP has always had to get up multiple times in the night to urinate. With PD, the frequency is a little more often, and he can't always get out of bed quickly enough. The anxiety he feels going to bed, and panic when he can't get up, are keeping us both awake most of the night, almost every night
Hidden
in
Cure Parkinson's
6 years ago
Mucuna Pruriens in Parkinson's disease, dosages and effects, A double-blind, randomized, controlled, crossover human study (2017)
Mucuna pruriens in Parkinson disease. A double-blind, randomized, controlled, crossover study (2017) https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5539737/ "This study demonstrates that the acute intake of MP powder at both high and low dose is non-inferior to dispersible levodopa/benserazide in terms
Mucuna pruriens in Parkinson disease. A double-blind, randomized, controlled, crossover study (2017) https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5539737/ "This study demonstrates that the acute intake of MP powder at both high and low dose is non-inferior to dispersible levodopa/benserazide in terms
Greenday
in
Cure Parkinson's
6 years ago
Why do you need all of these? Neupro, amantadine & sinamet
Confused as I have been reading where people are on all of these Neupro, amantadine & sinamet at the same time. Is there a reason? Thanks
Confused as I have been reading where people are on all of these Neupro, amantadine & sinamet at the same time. Is there a reason? Thanks
Tiger101
in
Cure Parkinson's
6 years ago
Bladder symptoms with endo
Hi, I've had urinary symptoms for over 4 years. These include the feeling of chronic uti's where no infection is found, and recently since having a lapoaoscopy and mirenna coil fitted a sudden urge to urinate when my bladder is either empty or with little urine. I wake a few times a night with a sudden
Hi, I've had urinary symptoms for over 4 years. These include the feeling of chronic uti's where no infection is found, and recently since having a lapoaoscopy and mirenna coil fitted a sudden urge to urinate when my bladder is either empty or with little urine. I wake a few times a night with a sudden
Ilogn
in
Endometriosis UK
6 years ago
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