Bladder symptoms with endo

[Ilogn]

Hi,

I've had urinary symptoms for over 4 years. These include the feeling of chronic uti's where no infection is found, and recently since having a lapoaoscopy and mirenna coil fitted a sudden urge to urinate when my bladder is either empty or with little urine.

I wake a few times a night with a sudden urge to go. Also when I do pass urine I have a deep pain in my lower abdomen (just below my belly button).

I've been referred to a urologist and have a cystocopy and dilation done and nothing found. My gyno doesn't seem massively concerned about it and my gp doesn't want to prescribe meds for irritable bladder with me discussing with consultant first.

My question is does anyone else have these symptoms? And how do you manage them long term? Nothing has been found to be wrong with my bladder or urinary system as a whole so Im assuming it's my endo?

I was officially diagnosed with endo three weeks ago during my lapoaoscopy but haven't yet received results stating exactly where and how much. Feeling frustrated. X

[danijonez]

I have the same feelings with my bladder! It will just come on suddenly that I really need to pee it is very uncomfortable and when I go pee it’s like a dribble. And I pee a stupid amount of times in the day, up a few times in the night. I don’t even drink that much a day because of it but the amount of times I go pee a day is like I drink litres and litres of water.

I haven’t officially been diagnosed with endometriosis and there hasn’t been any investigation yet with my bladder but I do have my laparoscopy tomorrow afternoon so I may get some answers!

[RR21]

I am undiagnosed with anything but I deal with bladder issues. I pretty much constantly have a full and dull achey feeling in my pelvis that triggers my urge to pee as if that is going to relieve some pressure. I am in aching pain when I cant empty my bladder. When things are bad I wake up at leazt once a night and every morning with a feeling like my uterus is swollen and pressing on my bladder. I sleep on my stomach and it can feel like I am laying on my swollen uterus. I have purchased an off brand Avo urinary pain relief to try from online. Heating pad helps atleazt to distract and I like to drink a decent amount of water because psychologicaly then when I do pee there will be something to come out. It helps me feel better a little. I am sorry I dont have more advice but I understad some of what you feel!

[skybluepink]

NB Pursue it as my utis do not show up on hospital testing & sepsis can be involved & antibiotics you may become resistant to if not targeted - chicken & egg situation?

The number of GPs no longer taking Hippocratic oaths enable them to be directed unethically?Even in training where not taught about disability & multi conditions

I have stuck to my guns & survived a cardiac arrest as suspect the stress caused heart failure symptons to be ignored before & after re Cuts .

.I regularly had 3-4 bugs in mine & saw a Prof 3 weekly because got painful cysts & boils .These are now being disregarded knowing of details & history .I wonder why?

Now they bully me by say no testing or referral when not Specialists or able to research & test .

Yet as a pharmacists daughter 71 yrs I was brought up to believe in antibiotics used intelligently .I was one of first on penicillin at birth?

The Prof may have been on remits to ignore the disability but he kept my kidneys clear as scarred as a child. Another MeToo situation !