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PET scan
I was diagnosed with PMR in October last year started on 60 mgs prednisol which relieved my symptoms in 3 or 4 days.Started reducing by 10 mgs every 4 weeks in December. Saw the medicina interna (I live in Spain) in July this year who suggested GCA and increased my pred to 60 again reducing by 10 mgs
I was diagnosed with PMR in October last year started on 60 mgs prednisol which relieved my symptoms in 3 or 4 days.Started reducing by 10 mgs every 4 weeks in December. Saw the medicina interna (I live in Spain) in July this year who suggested GCA and increased my pred to 60 again reducing by 10 mgs
NormaB
in
PMRGCAuk
9 months ago
Normal cortisol levels
Hello, I'm 52, lost my job and my way as a human. I was diagnosed with PMR in Sept 2022. I have been prescribed higher mg of prednisolone however 10mg/7.5mg alternate days for the last year until a PET scan in Sept this year. I was advised to drop to 4mg immediately for the scan. The scan showed no
Hello, I'm 52, lost my job and my way as a human. I was diagnosed with PMR in Sept 2022. I have been prescribed higher mg of prednisolone however 10mg/7.5mg alternate days for the last year until a PET scan in Sept this year. I was advised to drop to 4mg immediately for the scan. The scan showed no
Bargin_ninja
in
PMRGCAuk
9 months ago
Aching pelvis
I would like to reduce my
prednisone
. Many thanks - you have been such a support so far. Jane
I would like to reduce my
prednisone
. Many thanks - you have been such a support so far. Jane
Jane424
in
PMRGCAuk
1 year ago
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Slow healing.
Have been on Prednisolone for 5years , have currently tried dropping to 7mg. I had a bad leg wound on August 15th .It is taking a long time to heal . My wound clinic girl 's say it is my age and because I am on steriods .I will try to keep dropping steadily Will it be better to have painkillers and
Have been on Prednisolone for 5years , have currently tried dropping to 7mg. I had a bad leg wound on August 15th .It is taking a long time to heal . My wound clinic girl 's say it is my age and because I am on steriods .I will try to keep dropping steadily Will it be better to have painkillers and
Barbaracole
in
PMRGCAuk
9 months ago
Need more info on related symptoms
I’ve finished the first 6 weeks of treatment (Lupron + Abiraterone with
Prednisone
) and PSA has gone from 8.6 to .53/ testosterone less than .4. I’ve had really none of the usual side effects like hot flashes or fatigue. I start radiation of the prostate in a couple weeks.
I’ve finished the first 6 weeks of treatment (Lupron + Abiraterone with
Prednisone
) and PSA has gone from 8.6 to .53/ testosterone less than .4. I’ve had really none of the usual side effects like hot flashes or fatigue. I start radiation of the prostate in a couple weeks.
Willie51
in
Prostate Cancer And Gay Men
3 months ago
pmr flare
Was at 4.5 mg of
prednisone
started to stiffen up. Had reduced from 10 mg by doing .5 mg per month. As per flare guidelines I went to 9 mg for nine days then 7 mg for 5 days so I could go back to 5 mg where I was last fine but at 7, I am still stiff and sore in my lower back and left groin area.
Was at 4.5 mg of
prednisone
started to stiffen up. Had reduced from 10 mg by doing .5 mg per month. As per flare guidelines I went to 9 mg for nine days then 7 mg for 5 days so I could go back to 5 mg where I was last fine but at 7, I am still stiff and sore in my lower back and left groin area.
Skier321
in
PMRGCAuk
1 year ago
PREDNISONE TAPERING WITH ACTEMRA
So I went up to 60 mg
prednisone
. Now I’m at 10 mg
prednisone
and am just starting Actemra. My question is how fast can I taper
prednisone
with Actemra? PS: I feel like the PMR never came back though. I had no PMR symptoms this time around. Would that be possible?
So I went up to 60 mg
prednisone
. Now I’m at 10 mg
prednisone
and am just starting Actemra. My question is how fast can I taper
prednisone
with Actemra? PS: I feel like the PMR never came back though. I had no PMR symptoms this time around. Would that be possible?
Pamk1949
in
PMRGCAuk
1 year ago
Progress
After just over seven months have finally made it to 10mg prednisolone (from 50mg) and feel like celebrating ! I would not be in this position if it were not for this fabulous supportive group - THANK YOU so much. You've given me confidence to question the medical establishment even though it is still
After just over seven months have finally made it to 10mg prednisolone (from 50mg) and feel like celebrating ! I would not be in this position if it were not for this fabulous supportive group - THANK YOU so much. You've given me confidence to question the medical establishment even though it is still
Body_bonkers
in
PMRGCAuk
9 months ago
lowering prednisolone
I have had pmg since last September and have very gradually lowered my dose from 15mg to 1mg. which I have been on for the last six weeks. I decided to try to go without steroids for the last two days and apart from the usual shoulder ach when getting up, so far so good, I am now worried about getting
I have had pmg since last September and have very gradually lowered my dose from 15mg to 1mg. which I have been on for the last six weeks. I decided to try to go without steroids for the last two days and apart from the usual shoulder ach when getting up, so far so good, I am now worried about getting
Guilluame
in
PMRGCAuk
9 months ago
NHS App
Currently tapering down on meds. On RTX infusion , Methotrexate and Prednisolone. There is the need to monitor bloods and every three months get a ANCA reading. Thought I would look on the NHS App for results, but none are visible. On call to get the results, queried and was told its political,
Currently tapering down on meds. On RTX infusion , Methotrexate and Prednisolone. There is the need to monitor bloods and every three months get a ANCA reading. Thought I would look on the NHS App for results, but none are visible. On call to get the results, queried and was told its political,
Bailey59
in
Vasculitis UK
9 months ago
Grumpy Old Lady in pain
A follow up to my previous post.. Is it my fault? That I didn’t give them enough relevant information when I phoned? How do I know what is relevant when I’m not a trained medical professional and I can’t see what comes up on their computer screen against my name? Would it hurt for them to ask
A follow up to my previous post.. Is it my fault? That I didn’t give them enough relevant information when I phoned? How do I know what is relevant when I’m not a trained medical professional and I can’t see what comes up on their computer screen against my name? Would it hurt for them to ask
Loco99
in
PMRGCAuk
9 months ago
Breathing
Six weeks ago really started losing my breath. went to the Doc and got
prednisone
and antibiotics. was fair for a couple weeks. Could catch my breath , my o2 was 72 walking ten feet. So im weaaring o2 all the time now at 3L. when i just my 02 is 94. Soon as i go ten feet 02 70s.
Six weeks ago really started losing my breath. went to the Doc and got
prednisone
and antibiotics. was fair for a couple weeks. Could catch my breath , my o2 was 72 walking ten feet. So im weaaring o2 all the time now at 3L. when i just my 02 is 94. Soon as i go ten feet 02 70s.
Romolo55
in
Lung Conditions Community Forum
1 year ago
COVID and/or vaccine-induced PMR
To be specific, for PMR she says that patients who's onset happened after COVID or a COVID vaccine tend to require higher initial doses of
prednisone
, but that they *generally* are able to reduce their dose without flareups more quickly.
To be specific, for PMR she says that patients who's onset happened after COVID or a COVID vaccine tend to require higher initial doses of
prednisone
, but that they *generally* are able to reduce their dose without flareups more quickly.
sferios
in
PMRGCAuk
1 year ago
Hi everyone
My name is Dave and I was diagnosed with MPA Vasculitis around the end of September. I had been having fevers and night sweats that would come and go most days for approx 6 months. Also aching legs and tingly feet. GP had no luck finding the cause for about 3 or 4 months. Then my wife insisted I should
My name is Dave and I was diagnosed with MPA Vasculitis around the end of September. I had been having fevers and night sweats that would come and go most days for approx 6 months. Also aching legs and tingly feet. GP had no luck finding the cause for about 3 or 4 months. Then my wife insisted I should
Reggie999
in
Vasculitis UK
9 months ago
live yoghurt and prednisolone
I debated whether to add this to the current discussion or start with a fresh question. Lots of you say you take prednisolone with live yoghurt, but when I searched for relevant information a while back it said that you should not take prednisolone with live yoghurt (can't remember why). I eat a lot
I debated whether to add this to the current discussion or start with a fresh question. Lots of you say you take prednisolone with live yoghurt, but when I searched for relevant information a while back it said that you should not take prednisolone with live yoghurt (can't remember why). I eat a lot
musicalJ
in
PMRGCAuk
9 months ago
Do you also have these symptoms?
Being treated with abiraterone and
prednisone
, Lupron twice a year, and had 28 radiation treatments in December 2022. I would like to know if others are experiencing the symptoms I am. Hot flashes and crying, due to Lupron. General weakness in body. Often somewhat depressed.
Being treated with abiraterone and
prednisone
, Lupron twice a year, and had 28 radiation treatments in December 2022. I would like to know if others are experiencing the symptoms I am. Hot flashes and crying, due to Lupron. General weakness in body. Often somewhat depressed.
SandyBear2023
in
Advanced Prostate Cancer
1 year ago
Surgery and PMR?
How important is the fact that you have PMR relevant to hospital treatment and surgery? I am on a low dose of Prednisolone and recently had abdominal surgery. According to my GP’s surgery notes I don’t have PMR at all but it has been recorded on the NHS database and I get extra Covid vaccinations.
How important is the fact that you have PMR relevant to hospital treatment and surgery? I am on a low dose of Prednisolone and recently had abdominal surgery. According to my GP’s surgery notes I don’t have PMR at all but it has been recorded on the NHS database and I get extra Covid vaccinations.
Loco99
in
PMRGCAuk
9 months ago
PREDNISONE AS A TEMPORARY PAIN RELIEF A GOOD IDEA
I have been off
prednisone
since late last year at the request of the rheumatologist. They do not believe I have PMR. Since I have been off
prednisone
I have not gone a day without pain and stiffness. My inflammation markers continue to be high. My day is truly predictable at this point.
I have been off
prednisone
since late last year at the request of the rheumatologist. They do not believe I have PMR. Since I have been off
prednisone
I have not gone a day without pain and stiffness. My inflammation markers continue to be high. My day is truly predictable at this point.
SMH4CRNA
in
PMRGCAuk
1 year ago
Shingrix vaccine for immunosuppressed people aged 50+
I thought I would just post this from the gov.uk website because I have just a bit of struggle convincing our surgery that I was eligible, so maybe other people haven't been invited either. The full list is on chrome-extension://efaidnbmnnnibpcajpcglclefindmkaj/https://assets.publishing.service.gov.uk
I thought I would just post this from the gov.uk website because I have just a bit of struggle convincing our surgery that I was eligible, so maybe other people haven't been invited either. The full list is on chrome-extension://efaidnbmnnnibpcajpcglclefindmkaj/https://assets.publishing.service.gov.uk
Sharitone
in
PMRGCAuk
9 months ago
Facial Hair growth due to Cyclosporine
It's been 3 months post my transplant and I'm on cyclosporine,
prednisone
& MMF. I have been. experience a lot of facial hair growth. My doctors told me it could due to steroid or cyclosporin but more likely due to cyclosporine.
It's been 3 months post my transplant and I'm on cyclosporine,
prednisone
& MMF. I have been. experience a lot of facial hair growth. My doctors told me it could due to steroid or cyclosporin but more likely due to cyclosporine.
TheLostMonk
in
Kidney Transplant
9 months ago
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