Experiences with

Polyarteritis nodosa

The autoimmune diseases included Graves' disease, Crohn's disease, psoriasis, systemic lupus erythematosus, rheumatoid arthritis, ankylosing spondylitis, Guillain-Barre syndrome, Sjogren's syndrome, myasthenia gravis, pernicious anemia, hereditary hemolytic anemia, polyarteritis nodosa, Celiac disease

"Most of these 25 patients (male) met clinical criteria for an inflammatory syndrome (relapsing polychondritis, SWEET'S SYNDROME, polyarteritis nodosa, or giant-cell arteritis) or a hematologic condition (myelodysplastic syndrome or multiple myeloma) or both." https://www.nejm.org/doi/full/10.1056/NEJMoa2026834

Hi, does anybody else in the UK have this virus i am 65 yrs old its affected my nerves and my lungs i am taking steroids at the moment but going on to methotrexate in June.had it since December 2018 , cheers

The reason for the vasculitis also must be identified: It may be caused by infection, such as hepatitis B; it may be polyarteritis nodosa alone; or it may be a complication of an autoimmune disease.

Just looking to share info/advice and experiences with anyone else out there with these sort of ailments

It was only when the main rheumatologist saw that my little finger had lost all resistance due to nerve damage that he decreed that vasculitis was the diagnosis - possibly Polyarteritis Nodosa - and steroids treatment could begin.

My rheumatologist referred me for Nerve tests. I saw the Nerve Doctor at North Staffordshire Hospital (Dr Horton). Lovely chap and his intro was 'All I look at is nerves'. I had nerve tests on my legs, feet, hands and arms on both sides of my body. He then spent the other half of the time asking questions

Just started to get bruising with red inflammation in the middle of my left arm. It is all up my left arm in patches. It has literally just appeared!!

However, as Polyarteritis Nodosa was being considered,an MRI scan would be required to examine the 'Circle of Willis' in particular and other parts of the brain.

September 1st to October 1st 2016 Just over 23,000 users 63,285 pages viewed 2mins 21 seconds average session 74% New visitors 26% Returning Visits Top five Individual diseases viewed Polyarteritis Nodosa Behcets Disease Urticarial Vasculitis Eosinophilic Granulomatosis with Polyangiitis (EGPA

so I just found out today I have systemic polyarteritis nodosa. Finally got in to an actual vasculitis center. Shocked to find out only 22 other people are diagnosed with pan in north America. And I think it was like 120 with another form of vasculitis.

just curious to hear from others who have cutaneous pan. And how they manage and what prescriptions work and how its affecting you. I'm recent diagnosis and am 31 living or was living an active lifestyle and now I'm realizing my body cant keep up. Just curious as to what others are going through.

These conditions include Sjögren’s syndrome, rheumatoid arthritis, discoid lupus, juvenile idiopathic arthritis (without uveitis) and various forms of vasculitis including giant cell arteritis, polyarteritis nodosa, granulomatosis with polyangiitis (formerly Wegener’s granulomatosis) and eosinophilic

Or could I have something else more systemic such as Wegener's granulomatosis or polyarteritis nodosa that seems to have evaded a proper diagnosis with blood tests (kidney and liver function, inflammatory (ESR, CRP), and ANCA tests all normal)?

Not sure if anyone has seen the Jeremy Kyle Emergency Room programme but there was a lovely lady, called Annalisa, on the programme today discussing her Vasculitis , Polyarteritis Nodosa . this is the link https://www.itv.com/itvplayer/jeremy-kyle-s-emergency-room First time John Mills has ever watched

The biopsy showed I have a vasculitis of the small and medium vessels and they thought it could be cutaneous polyarteritis nodosa as my anca levels were negative and other bloods seemed ok.

We have noticed there are one or two members of the community who have children with Vasculitis so we thought we might share this page from the VUK website - this page includes Henoch Schönlein purpura (HSP), Kawasaki disease (KD), Polyarteritis nodosa (PAN) , ANCA associated vasculitis (AAV) and Takayasu

If you live in England and have been diagnosed with Microscopic Polyangiiis, Takaysu Arteritis, Churg Strauss Syndrome or Polyarteritis Nodosa and you would like to support the RUDY study , please can you register.. they really need more numbers of these types... also surprisingly enough Giant Cell

I was diagnosed with vasculitis a month ago (after many years) and I've just received a letter from the skin biopsy saying it is polyarteritis nodosa. The condition only affects my skin and peripheral nerves (at the moment). I'm Anca negative and bloods generally look normal.

A student elective bursary for a research study for Takayasu Arteritis and a drug trial for Polyarteritis Nodosa in Children.