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Experiences with
Pneumonitis
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Low oxygen seats at night
I have hypersensitivity
pneumonitis
(seems to be under control) and recently diagnosed asthma (peak flow is 140/60 on waking- max is 230/250- on a fabulous day!). Thanks.
I have hypersensitivity
pneumonitis
(seems to be under control) and recently diagnosed asthma (peak flow is 140/60 on waking- max is 230/250- on a fabulous day!). Thanks.
goat-lady
in
Lung Conditions Community Forum
5 years ago
Watch out for 'feather duvet lung' caution doctors .
A ‘ground glass’ mosaic pattern was seen on CT imaging, suggestive of hypersensitivity
pneumonitis
. Although he had no pet birds, on closer questioning he had recently acquired a duvet and pillows containing feathers.
A ‘ground glass’ mosaic pattern was seen on CT imaging, suggestive of hypersensitivity
pneumonitis
. Although he had no pet birds, on closer questioning he had recently acquired a duvet and pillows containing feathers.
2greys
in
Lung Conditions Community Forum
5 years ago
Hypersensitivity Pneumonitis....plus the rest
Hi guys, Had a really bad couple of days. Got a letter from my consultant confirming I have the above, and that he has no doubt its connected to the birds, so we'll be looking at moving them outside. Two of them I don't mind going outside, but one of them, my Quaker parrot "Bowie", I'm devastated about
Hi guys, Had a really bad couple of days. Got a letter from my consultant confirming I have the above, and that he has no doubt its connected to the birds, so we'll be looking at moving them outside. Two of them I don't mind going outside, but one of them, my Quaker parrot "Bowie", I'm devastated about
CozmoCreepers
in
Lung Conditions Community Forum
5 years ago
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Sort of diagnosed...
It says "Her CT scan appears consistent with acute Hypersensitivity
Pneumonitis
". From the blood results he believes there to be "slight sensitisation to house dust mites" and the results from my birds is still pending. I'm freaking out a little bit. Acute!
It says "Her CT scan appears consistent with acute Hypersensitivity
Pneumonitis
". From the blood results he believes there to be "slight sensitisation to house dust mites" and the results from my birds is still pending. I'm freaking out a little bit. Acute!
CozmoCreepers
in
Lung Conditions Community Forum
5 years ago
Flu jab?
Hi guys, Still in the process of having Bird Fancier Lung Disease officially diagnosed (Hypersensitivity
Pneumonitis
), have my CT scan later today and a lung function test on Monday. However, I'm wondering, does anyone know if I would qualify for a free jab?
Hi guys, Still in the process of having Bird Fancier Lung Disease officially diagnosed (Hypersensitivity
Pneumonitis
), have my CT scan later today and a lung function test on Monday. However, I'm wondering, does anyone know if I would qualify for a free jab?
CozmoCreepers
in
Lung Conditions Community Forum
5 years ago
Oxygen getting to the plane
Hello all I have Hypersensitivity
pneumonitis
and am on oxygen 16 hrs a day plus canisters for ambulatory. I note that certain airlines supply oxygen for the flight, but I would need to it get from airport to plane and same other end. I would arrange equipment hire for destination.
Hello all I have Hypersensitivity
pneumonitis
and am on oxygen 16 hrs a day plus canisters for ambulatory. I note that certain airlines supply oxygen for the flight, but I would need to it get from airport to plane and same other end. I would arrange equipment hire for destination.
cazza34
in
Lung Conditions Community Forum
5 years ago
Didn't go to plan
After nearly 3yrs since the HP (hypersensitivity
pneumonitis
) diagnosis I feel v little has been achieved- except I am still alive! Ho hum. Will probably feel more positive next week. My Anglo Nubian goat kids are arriving- can't help but smile at them.
After nearly 3yrs since the HP (hypersensitivity
pneumonitis
) diagnosis I feel v little has been achieved- except I am still alive! Ho hum. Will probably feel more positive next week. My Anglo Nubian goat kids are arriving- can't help but smile at them.
goat-lady
in
Lung Conditions Community Forum
5 years ago
I've been discharged!
My consultant said there is no sign of the
pneumonitis
but obviously I still have the fibrosis. I sincerely hope that my experience will give some hope to others that NSIP isn't necessarily the death sentence that I thought it was going to be!
My consultant said there is no sign of the
pneumonitis
but obviously I still have the fibrosis. I sincerely hope that my experience will give some hope to others that NSIP isn't necessarily the death sentence that I thought it was going to be!
JudithC
in
Lung Conditions Community Forum
5 years ago
I'm scared and confused
This is so difficult for me .I was diagnosed with Intersitual lung disease probable hypersensitivity
pneumonitis
secondary to my occupation in the building trade as a painter& Decorator breathing in various dust including being exposed to asbestos on a regular basis from the age of 15.
This is so difficult for me .I was diagnosed with Intersitual lung disease probable hypersensitivity
pneumonitis
secondary to my occupation in the building trade as a painter& Decorator breathing in various dust including being exposed to asbestos on a regular basis from the age of 15.
ProudYorky
in
Lung Conditions Community Forum
5 years ago
Can’t get off the roundabout.
She told me a while ago I have like a mixed connective tissue disease, I have had an extremely high RF factor but don’t don’t what it was as I was too concerned with having
pneumonitis
at the time and couldn’t breathe.
She told me a while ago I have like a mixed connective tissue disease, I have had an extremely high RF factor but don’t don’t what it was as I was too concerned with having
pneumonitis
at the time and couldn’t breathe.
Lizard28
in
LUPUS UK
5 years ago
My dad passed away
The doctors are figuring that the
pneumonitis
was caused by the immune booster he was receiving. Plus when they restarted the blood thinner to prevent pulm embolism they used the one that takes longer to reverse. The blood thinner caused alveolar hemorrhage. I’m very sad, he wasn’t ready to go.
The doctors are figuring that the
pneumonitis
was caused by the immune booster he was receiving. Plus when they restarted the blood thinner to prevent pulm embolism they used the one that takes longer to reverse. The blood thinner caused alveolar hemorrhage. I’m very sad, he wasn’t ready to go.
pverde9901
in
Lung Cancer Support
5 years ago
Sensitive !
Incredible- just minutes to trigger my hypersensitivity
pneumonitis
. Hoping the predisolone (that I react badly to) sorts that. Fortunately expecting a Consultant appointment in the next week or two. GP described my respiratory system as now "v twitchy" - I like that.
Incredible- just minutes to trigger my hypersensitivity
pneumonitis
. Hoping the predisolone (that I react badly to) sorts that. Fortunately expecting a Consultant appointment in the next week or two. GP described my respiratory system as now "v twitchy" - I like that.
goat-lady
in
Lung Conditions Community Forum
5 years ago
Bone Marrow Transplant Aftermath
First it was loss of the ability for my body to regulate my temperature effectively, then after about six months, almost constant slight nausea and occasional sudden vomiting, then after nine months, lung inflammation (
pneumonitis
), which causes shortness of breath, cough, fatigue, loss of appetite and
First it was loss of the ability for my body to regulate my temperature effectively, then after about six months, almost constant slight nausea and occasional sudden vomiting, then after nine months, lung inflammation (
pneumonitis
), which causes shortness of breath, cough, fatigue, loss of appetite and
Beauxman
in
Advanced Prostate Cancer
5 years ago
Medication uncertainty
I don’t want to be negative, but really cannot cope with waiting 6 months, my RA has been out of control for2 years, following
pneumonitis
, and I mentally and physically cannot take any more.
I don’t want to be negative, but really cannot cope with waiting 6 months, my RA has been out of control for2 years, following
pneumonitis
, and I mentally and physically cannot take any more.
Callabag64
in
NRAS
5 years ago
Oxygen assessment...Fed up
I have hypersensitivity
pneumonitis
since 2015, was ok for first year...was on occasional pred and antibiotics. Noticed my sats kept dropping about 8 months ago. So was put on ambulatory oxygen.
I have hypersensitivity
pneumonitis
since 2015, was ok for first year...was on occasional pred and antibiotics. Noticed my sats kept dropping about 8 months ago. So was put on ambulatory oxygen.
cazza34
in
Lung Conditions Community Forum
5 years ago
Methotrexate, not for me
I have just been watching two videos on NRAS site about people who have found relief from R A with methotrexate, I know many people benefit from this drug, but it put me in hospital for 2 weeks with
pneumonitis
, I could quite easily have died. I was on oxygen for most of that time.
I have just been watching two videos on NRAS site about people who have found relief from R A with methotrexate, I know many people benefit from this drug, but it put me in hospital for 2 weeks with
pneumonitis
, I could quite easily have died. I was on oxygen for most of that time.
Callabag64
in
NRAS
5 years ago
Pneumonitis
I had
pneumonitis
, a side effect of Radiotherapy, ended up in hospital for 2 weeks, my breathing is better than it was,down to 2 steroids a day, but still cannot do much without becoming short of breath, have a green inhaler 2 puffs once a day, also a blue one,anyone else had this
I had
pneumonitis
, a side effect of Radiotherapy, ended up in hospital for 2 weeks, my breathing is better than it was,down to 2 steroids a day, but still cannot do much without becoming short of breath, have a green inhaler 2 puffs once a day, also a blue one,anyone else had this
Greenwi
in
Lung Conditions Community Forum
5 years ago
Dry eyes?
It states that people with Sjögrens usually have the RA factor, they can get kidney stones, dry gritty eyes, dry mouth, and can get
pneumonitis
, amongst other things. All of these I have. Getting my doctor to test me for it today.
It states that people with Sjögrens usually have the RA factor, they can get kidney stones, dry gritty eyes, dry mouth, and can get
pneumonitis
, amongst other things. All of these I have. Getting my doctor to test me for it today.
Callabag64
in
NRAS
5 years ago
Depression for last 2 years
I had small flares from time to time, and methotrexate was givenas add onion small dose, I had been on it previously and had the side effects of nausea etc, theusual , but on the whole was well and able to work part time. 2 years ago that changed when I developed
pneumonitis
, was in hospital for 2 weeks
I had small flares from time to time, and methotrexate was givenas add onion small dose, I had been on it previously and had the side effects of nausea etc, theusual , but on the whole was well and able to work part time. 2 years ago that changed when I developed
pneumonitis
, was in hospital for 2 weeks
Callabag64
in
NRAS
5 years ago
Work and living with a lung condition
I have been diagnosed with Hypersensitivity
Pneumonitis
(with unknown cause). 90% of the time I feel normal but I get breathless walking up stairs or slight inclines. I'm only on a low dose of steroids at the moment as the hospital are still conducting tests.
I have been diagnosed with Hypersensitivity
Pneumonitis
(with unknown cause). 90% of the time I feel normal but I get breathless walking up stairs or slight inclines. I'm only on a low dose of steroids at the moment as the hospital are still conducting tests.
Staffiemum
in
Lung Conditions Community Forum
5 years ago
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