Search
Search
About
Log in
Join
Experiences with
Phlebotomy
Posts
Communities
442 public posts
Filter results
Study Trial for PV who got phlebotomies 3 times in 6 mo
May be any of you interest to e participant https://www.polycythemiavera-clinicaltrial.com/study-criteria
May be any of you interest to e participant https://www.polycythemiavera-clinicaltrial.com/study-criteria
william-Indo
in
MPN Voice
1 year ago
Platelet's creeping up
Am 76 just on
phlebotomy
and aspirin. No physical symptoms.
Am 76 just on
phlebotomy
and aspirin. No physical symptoms.
wateron
in
MPN Voice
2 years ago
New evidence on the early treatment of low-risk PV patients (using IFN)
I saw this article: Final results from the Low PV study now published in the NEJM Evidence https://fondazionefrom.it/fondazione-from/la-fondazione/news/final-results-from-the-low-pv-study-now-published-in-the-nejm-evidence "The results of the randomized, controlled phase II trial Low PV clearly demonstrated
I saw this article: Final results from the Low PV study now published in the NEJM Evidence https://fondazionefrom.it/fondazione-from/la-fondazione/news/final-results-from-the-low-pv-study-now-published-in-the-nejm-evidence "The results of the randomized, controlled phase II trial Low PV clearly demonstrated
Joey1025
in
MPN Voice
1 year ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Good News: Pegasys finally working! Bad News: Pulmonary embolus!
This event came at the heels of a long trip/flights and despite taking every travel precaution (
phlebotomy
before and after trip, hydration, compression socks, exercise, etc). I even had two negative lower extremity ultrasounds prior to the PE! It is not clear where the PE originated.
This event came at the heels of a long trip/flights and despite taking every travel precaution (
phlebotomy
before and after trip, hydration, compression socks, exercise, etc). I even had two negative lower extremity ultrasounds prior to the PE! It is not clear where the PE originated.
Minify
in
MPN Voice
7 months ago
Update 7.3 Good news this time
I had hoped to try a mini-
phlebotomy
, which the care team supported. Unfortunately, none of the local
phlebotomy
providers would do it. I opted for a full 500ml venesection. It was fine and not a problem. As usual, no short term reaction to it at all.
I had hoped to try a mini-
phlebotomy
, which the care team supported. Unfortunately, none of the local
phlebotomy
providers would do it. I opted for a full 500ml venesection. It was fine and not a problem. As usual, no short term reaction to it at all.
hunter5582
in
MPN Voice
1 year ago
Help interpreting results & likelihood of diagnosis if I saw a private practitioner.
Had
phlebotomy
appointment at 8.50am on 21/2/23 having fasted and ceased all supplements for at least 10 days beforehand.
Had
phlebotomy
appointment at 8.50am on 21/2/23 having fasted and ceased all supplements for at least 10 days beforehand.
J972
in
Thyroid UK
1 year ago
Hard day with Phlebotomy + Besremi + Port Surgery?
Hi, Yesterday was my monthly
phlebotomy
visit. I brought my husband with me because I had my first Besremi injection with me so a nurse could go over instructions with me. It was a rough day! The first nurse could not get a solid vein/line going. She poked me 3 times on one arm with no luck.
Hi, Yesterday was my monthly
phlebotomy
visit. I brought my husband with me because I had my first Besremi injection with me so a nurse could go over instructions with me. It was a rough day! The first nurse could not get a solid vein/line going. She poked me 3 times on one arm with no luck.
MrsBerri
in
MPN Voice
1 year ago
2nd Dose of Besremi Today
She couldn't tell if the counts were due to the Besremi or the
phlebotomy
I had also done on the same day as the first injection. This morning, I gave myself an injection of 150. Feel a bit light-headed and have a 'taste' in my mouth. The injection site, on my thigh, had a bit of blood too.
She couldn't tell if the counts were due to the Besremi or the
phlebotomy
I had also done on the same day as the first injection. This morning, I gave myself an injection of 150. Feel a bit light-headed and have a 'taste' in my mouth. The injection site, on my thigh, had a bit of blood too.
MrsBerri
in
MPN Voice
1 year ago
Very scared for life. Need assistance
I don't want to take hydroxyurea i want interferons, even hydroxyurea seems not required for me because i want to start regular
phlebotomy
and see how my levels are..?
I don't want to take hydroxyurea i want interferons, even hydroxyurea seems not required for me because i want to start regular
phlebotomy
and see how my levels are..?
Xuzy
in
MPN Voice
1 year ago
Update 7.4
I am very pleased that the three more doses of Besremi + a single
phlebotomy
brought me back down to target with no adverse effects. I had the MRI of the brain and met with my Neurologist/NF Specialist on 01/30. There is no sign of tumor recurrence.
I am very pleased that the three more doses of Besremi + a single
phlebotomy
brought me back down to target with no adverse effects. I had the MRI of the brain and met with my Neurologist/NF Specialist on 01/30. There is no sign of tumor recurrence.
hunter5582
in
MPN Voice
1 year ago
Starting Besremi Next Week
So far, I have taken a daily aspirin and had a
phlebotomy
monthly. My HCT hovers around 48 and my platelets have been going up. The
phlebotomy
is not a solution and I have been told this by the oncologist; it's just a minor fix. The oncologist has prescribed me 50 mg of Besremi, at my request.
So far, I have taken a daily aspirin and had a
phlebotomy
monthly. My HCT hovers around 48 and my platelets have been going up. The
phlebotomy
is not a solution and I have been told this by the oncologist; it's just a minor fix. The oncologist has prescribed me 50 mg of Besremi, at my request.
MrsBerri
in
MPN Voice
2 years ago
Help with supplement timings please
I will have to pay the extra for
phlebotomy
service, which obviously makes it not only more expensive but less convenient too.
I will have to pay the extra for
phlebotomy
service, which obviously makes it not only more expensive but less convenient too.
Gymbuni
in
Thyroid UK
1 year ago
Just a vent post. And future anxiety
I'm a young person with mpn. Some days are good some days aren't. I keep thinking abt the risk of progression of the disease. As a person who is a medicine and surgery graduate and for better understanding of the disease i have asked around quite a bit, especially to people who have had longer periods
I'm a young person with mpn. Some days are good some days aren't. I keep thinking abt the risk of progression of the disease. As a person who is a medicine and surgery graduate and for better understanding of the disease i have asked around quite a bit, especially to people who have had longer periods
Xuzy
in
MPN Voice
1 year ago
Test results: what is going on? Longish post and history
Liothyronine was taken 12 hours before
phlebotomy
.
Liothyronine was taken 12 hours before
phlebotomy
.
gabkad
in
Thyroid UK
1 year ago
I met an Endocrinolgist yesterday
Then after I got the local
phlebotomy
test I was able to drop the levo by 12.5 mcg. I felt better after I dropped the dose. My BP was unmeasurable (too high at night for home BP monitor to record) -for days after I dropped to 112.5.
Then after I got the local
phlebotomy
test I was able to drop the levo by 12.5 mcg. I felt better after I dropped the dose. My BP was unmeasurable (too high at night for home BP monitor to record) -for days after I dropped to 112.5.
Jenny583
in
Thyroid UK
2 years ago
Just started hydroxyurea..
Blood counts are all high and also had my first
phlebotomy
! Any comments?
Blood counts are all high and also had my first
phlebotomy
! Any comments?
Ginger1017
in
MPN Voice
2 years ago
Rusfertide (for reducing Hb/HCT) is making progress
A small update on trials from Sept: "...These data (various phase 2 trials) provide support for the ongoing, randomized phase 3 VERIFY trial (NCT05210790), which intends to enroll about 250 patients with PV who require frequent
phlebotomy
.."
A small update on trials from Sept: "...These data (various phase 2 trials) provide support for the ongoing, randomized phase 3 VERIFY trial (NCT05210790), which intends to enroll about 250 patients with PV who require frequent
phlebotomy
.."
EPguy
in
MPN Voice
2 years ago
Sweating with PV
I have had Polycythemia for about 15 years. Phlebotomies control the hematocrit. Does anybody have hot flash type sweating? Comes on anytime and lasts for a few minutes. At nighttime wake up being wet from sweat. This seems it has got worse with years. I also had had AFib for over 20 years. Thanks for
I have had Polycythemia for about 15 years. Phlebotomies control the hematocrit. Does anybody have hot flash type sweating? Comes on anytime and lasts for a few minutes. At nighttime wake up being wet from sweat. This seems it has got worse with years. I also had had AFib for over 20 years. Thanks for
Flimmeri
in
MPN Voice
1 year ago
9 month Besremi update
Hi All, Latest test results showed that I need a
phlebotomy
: My HCT was 44.5 and though I'm slightly increasing my Besremi dose (now at 160ish), it hasn't kept the HCT under my target of 42.
Hi All, Latest test results showed that I need a
phlebotomy
: My HCT was 44.5 and though I'm slightly increasing my Besremi dose (now at 160ish), it hasn't kept the HCT under my target of 42.
Elizka
in
MPN Voice
2 years ago
Have arranged phone consult for tomorrow, but where do I start?
I was on 125mcg of levo till last month, but dropped 12.5 off after
phlebotomy
test. BP went even higher. BP at the endo clinic was over the top of the range in both dystolic & systolic. Right arm at top of range, I think.
I was on 125mcg of levo till last month, but dropped 12.5 off after
phlebotomy
test. BP went even higher. BP at the endo clinic was over the top of the range in both dystolic & systolic. Right arm at top of range, I think.
Jenny583
in
Thyroid UK
1 year ago
1
...
4
5
6
...
23
Next page
10
20
Filter results
Clear filters
Posted in
All communities
MPN Voice
314 results
Thyroid UK
63 results
Fight MPN
6 results
View top 10 communities
Sort by
Most Relevant
Newest