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GP practice have dug themselves a hole they're going to find hard to get out of...ALL comments & thoughts WELCOME re this...
I even tried last night to see if I could book another NHS
phlebotomy
appointment any time soon, as I'm due to have [free] replacement Blue Horizon ones (Ferritin, Folate and Cortisol) from the specimens that had haemolysed and had decided to order an FBC from them to send at the same time
and
I even tried last night to see if I could book another NHS
phlebotomy
appointment any time soon, as I'm due to have [free] replacement Blue Horizon ones (Ferritin, Folate and Cortisol) from the specimens that had haemolysed and had decided to order an FBC from them to send at the same time
and
PRJ20
in
Thyroid UK
11 months ago
Besremi Side Effects
Past 42 hct I need a
phlebotomy
, as I had a TIA when I was at 43. I want to give Besremi a chance but I am just having a terrible time with the headaches. This week's dose will be 300. Then, I see my oncologist next week. Has anyone had bad headaches while on Besremi?
Past 42 hct I need a
phlebotomy
, as I had a TIA when I was at 43. I want to give Besremi a chance but I am just having a terrible time with the headaches. This week's dose will be 300. Then, I see my oncologist next week. Has anyone had bad headaches while on Besremi?
Artelu
in
MPN Voice
1 year ago
Thank you!
We will be searching for a potential secondary cause of the high RBC while continuing to monitor and have
phlebotomy
to control the numbers. Thank you so much for helping me find a doctor I know I can trust!
We will be searching for a potential secondary cause of the high RBC while continuing to monitor and have
phlebotomy
to control the numbers. Thank you so much for helping me find a doctor I know I can trust!
Hidden
in
MPN Voice
1 year ago
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Variations in Patient Response to interferons
All other labs have improved on Besremi but still requiring
phlebotomy
about every 10 weeks due to rises in hct. I asked what she is seeing from other patients on Besremi in terms of hct control. Interestingly she said that most women respond much better than men on interferons .
All other labs have improved on Besremi but still requiring
phlebotomy
about every 10 weeks due to rises in hct. I asked what she is seeing from other patients on Besremi in terms of hct control. Interestingly she said that most women respond much better than men on interferons .
mfh7
in
MPN Voice
1 year ago
Iron deficiency anemia and increased A1C levels
Have those of you who receive
phlebotomy
for PV experienced elevated A1C levels? I get phlebotomies ever couple of weeks, which as expected, has caused me to be iron deficient and a bit anemic (HGB 11.1, Ferritin <3 ng/mL, Iron 29, Transferrin 6%, UIBC 434, and IBC 463).
Have those of you who receive
phlebotomy
for PV experienced elevated A1C levels? I get phlebotomies ever couple of weeks, which as expected, has caused me to be iron deficient and a bit anemic (HGB 11.1, Ferritin <3 ng/mL, Iron 29, Transferrin 6%, UIBC 434, and IBC 463).
LIGEBA
in
MPN Voice
1 year ago
MRI and injuries
I'm Dx with PV jak2 and have been on low dose aspirin 2x daily/phlebotomies every 3 months or so for the last 20 years. My question has to do with inflammation and seemingly lengthy time it takes to heal when injured. I've been dealing with a lingering glute muscle injury obtained during golfing for
I'm Dx with PV jak2 and have been on low dose aspirin 2x daily/phlebotomies every 3 months or so for the last 20 years. My question has to do with inflammation and seemingly lengthy time it takes to heal when injured. I've been dealing with a lingering glute muscle injury obtained during golfing for
ritaandscooter1
in
MPN Voice
11 months ago
Mylo Fibrosis, et al
Hello. I'm new to this community and frankly new to social networking on health. My abbreviated story is that I transitioned to Mylo Fibrosis (MF) a few years ago, after dealing with Polycythemia Vera (PV) for 25+ years (I'm 66 years old). The PV regimen was inclusive of Phlebotomies, meds such as Agrilyn
Hello. I'm new to this community and frankly new to social networking on health. My abbreviated story is that I transitioned to Mylo Fibrosis (MF) a few years ago, after dealing with Polycythemia Vera (PV) for 25+ years (I'm 66 years old). The PV regimen was inclusive of Phlebotomies, meds such as Agrilyn
luvinretirement
in
MPN Voice
11 months ago
Introduction and question
Her treatment has been
phlebotomy
along with the 325mg aspirin she was on anyway from the stroke and she was doing well only needing to go in every couple of months to have the draws.
Her treatment has been
phlebotomy
along with the 325mg aspirin she was on anyway from the stroke and she was doing well only needing to go in every couple of months to have the draws.
onlineallthetime
in
MPN Voice
1 year ago
Update and few questions because i have no reliable sources
I told this to my hematologist who further ruled out other causes of elevated hb and put me on wait and watch and advice
phlebotomy
. It didn't improve my itching at all My question is do any senior pv patient who have not progressed yet have symptoms?
I told this to my hematologist who further ruled out other causes of elevated hb and put me on wait and watch and advice
phlebotomy
. It didn't improve my itching at all My question is do any senior pv patient who have not progressed yet have symptoms?
Xuzy
in
MPN Voice
1 year ago
Finger prick test - I bottled it
Looks like in future I will just have to stick with paying extra for the
phlebotomy
service 🙃
Looks like in future I will just have to stick with paying extra for the
phlebotomy
service 🙃
Gymbuni
in
Thyroid UK
1 year ago
Counts looking good after 2nd dose of Besremi
My oncologist has cancelled the monthly
phlebotomy
and suggested I say at the same dosage for the next injection of Besremi (150 mg). I am feeling good and staying optimistic. Here are my counts:
My oncologist has cancelled the monthly
phlebotomy
and suggested I say at the same dosage for the next injection of Besremi (150 mg). I am feeling good and staying optimistic. Here are my counts:
MrsBerri
in
MPN Voice
1 year ago
Knee replacement fears while having PV
Couldn't handle HU or PEG so have been on 2 aspirin a day with
phlebotomy
as needed. Note: Have been taking turmeric for years to assist with inflammation.
Couldn't handle HU or PEG so have been on 2 aspirin a day with
phlebotomy
as needed. Note: Have been taking turmeric for years to assist with inflammation.
ritaandscooter1
in
MPN Voice
1 year ago
1 Year on Besremi results
Last
phlebotomy
was 10/25/2022; before that needed monthly. I have had severe PV symptoms since diagnosis which have remained even with CHR.
Last
phlebotomy
was 10/25/2022; before that needed monthly. I have had severe PV symptoms since diagnosis which have remained even with CHR.
PupsBestFriends
in
MPN Voice
9 months ago
Help please- who gets phlebotomy in Brisbane Australia?
I have PV and am visiting from Canada (am a Aussie home for Christmas) Both me and my Canadian hematologist were a bit optimistic on my being able to cope with 2 months between
phlebotomy
.
I have PV and am visiting from Canada (am a Aussie home for Christmas) Both me and my Canadian hematologist were a bit optimistic on my being able to cope with 2 months between
phlebotomy
.
C2Cnext
in
MPN Voice
1 year ago
Real-world treatments and thrombotic events in polycythemia vera patients in the USA
Hematocrit control was suboptimal in both risk groups; 54% of high-risk patients initiating with
phlebotomy
monotherapy sometimes/always had HCT levels > 50%; among low-risk patients, 64% sometimes/always had HCT levels above 50%.
Hematocrit control was suboptimal in both risk groups; 54% of high-risk patients initiating with
phlebotomy
monotherapy sometimes/always had HCT levels > 50%; among low-risk patients, 64% sometimes/always had HCT levels above 50%.
Manouche
in
MPN Voice
1 year ago
Update 7.6
Happy to say that the news remains favorable on all fronts. I reviewed my PV status with the MPN Specialist at Johns Hopkins. I remain in a complete hematologic response at 150mcg Besremi. Tolerance remains the same, with mild lymphopenia, borderline neutropenia, and mild itching. I switched to
Happy to say that the news remains favorable on all fronts. I reviewed my PV status with the MPN Specialist at Johns Hopkins. I remain in a complete hematologic response at 150mcg Besremi. Tolerance remains the same, with mild lymphopenia, borderline neutropenia, and mild itching. I switched to
hunter5582
in
MPN Voice
1 year ago
Starting phlebotomies soon but not sure if this is the right approach?
I recently went back to work, so I had to cut the HU back to twice a week because of the headaches, but I haven't stopped it completely yet as my first
phlebotomy
isn't until Feb. 10th.
I recently went back to work, so I had to cut the HU back to twice a week because of the headaches, but I haven't stopped it completely yet as my first
phlebotomy
isn't until Feb. 10th.
Maximo06
in
MPN Voice
1 year ago
First nurse appointment
So they took blood there (they were kind enough to pick up the forms and have the nurse do it as
phlebotomy
was heaving) to check again.
So they took blood there (they were kind enough to pick up the forms and have the nurse do it as
phlebotomy
was heaving) to check again.
Gottarelax
in
NRAS
1 year ago
Besremi One Year Update
HCT still not controlled by Besremi so I will schedule a
phlebotomy
next month, but I have been able to have fewer than before starting Besremi. As a result, I do have some iron in my body. CMP was all within normal ranges.
HCT still not controlled by Besremi so I will schedule a
phlebotomy
next month, but I have been able to have fewer than before starting Besremi. As a result, I do have some iron in my body. CMP was all within normal ranges.
Elizka
in
MPN Voice
1 year ago
First dose of Besremi today (100 mg)
Hi, I'm on my way to get a routine
phlebotomy
and an introduction on how to self-inject Besremi. My prescription has me starting at 100mg. I thought it was 50, but I misread. I hope all goes well!
Hi, I'm on my way to get a routine
phlebotomy
and an introduction on how to self-inject Besremi. My prescription has me starting at 100mg. I thought it was 50, but I misread. I hope all goes well!
MrsBerri
in
MPN Voice
1 year ago
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